Personalisation – what’s it all about?

Kate FearnleyDirector of Personalisation

Summary

About personalisation The vision and the reality What Alzheimer Scotland is doing What it means on the Helpline in

practice

From 2008, dementia will be

regarded as anational priority

supporting people to self manage their

conditions in the community ”

”

Care should be co-ordinated by means of ICPs

Personalisation is driving the shape of all

public services

assessment of need is no

longer about which service a person should be referred to,

but about individualising

the support

“““

“

” ”

”

“

Choice and control:

• where to live • who to live with (if anyone) • what to do through the day• what support is required and

who/how it should provided

What do people want?

A story…

What’s the problem?

Lots of detailed and highly professional assessment ….

Leads to being allocated existing services

Poor fit with people’s lives Lack of creativity and flexibility No thought given to natural

supports

Growing older population

Growing number of people living with a long term condition

Reducing group of unpaid carers

Finite resources

Over focus on hours of support

Reluctance to take risks

There are challenges ahead

About personalisation

Puts full choice and control with the person

May or may not mean managing money May or may not mean being an

employer Attorney or guardian with financial &

welfare powers can do on person’s behalf

About getting a life, not a service

Personalisation is a spectrum

Direct payment, employ personal assistant

Direct payment,

buy services

Individual budget, choose services but no need to manage money

Vision and reality

Vision: A right Individualised budget available to

anyone, option to hold the money or not

Full flexibility in how it is spent to meet outcomes for person

‘A life not a service’

Reality: Direct payments/Self-directed

support Limited access Misunderstandings Barriers in social work depts Size of support packages, eligibility

criteria Limited uptake

Alzheimer Scotland and personalisation

Specialist dementia services important Our home support (individual support)

services offer flexible support Can use direct payments to buy our

specialist services Can top up direct payments if council’s

rate too low Can purchase privately

Alzheimer Scotland personalisation pilots

East Renfrewshire & Renfrewshire post-diagnostic pilot Supporting people after diagnosis Future care planning

Ayrshire Self-Directed Support pilot SDS for people facing care home

Personalisation and dementia research project

Evaluate the potential of personalisation for people with dementia

Identify enablers and barriers Learn from England Find out the experience of people using

SDS Case studies Report in Autumn

The Helpline and personalisation

Encourage thinking outside the box – but without raising expectations too far

Suggest self-directed support/direct payments

Be able to explain them Support people to request them

What would you do for Jim?

www.alzscot.org

Alzheimer Scotland

Making sure no-one goes through dementia alone