Personal Health Records and Consumer Health Informatics

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Nawanan Theera-Ampornpunt, MD, PhD Healthcare CIO Program Ramathibodi Hospital Administration School Aug. 30, 2013 SlideShare.net/Nawanan Except where citing other works

Transcript of Personal Health Records and Consumer Health Informatics

Page 1: Personal Health Records and Consumer Health Informatics

Nawanan Theera-Ampornpunt, MD, PhD

Healthcare CIO ProgramRamathibodi Hospital Administration SchoolAug. 30, 2013 SlideShare.net/Nawanan

Except where citing other works

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Stakeholders in Health Care

Patient

Providers

Policy-Makers

Public

Payers

Diagram modified from Supachai Parchariyanon’s 4Ps Concept

• High bargaining power• Benefit with improved quality in fee-for-service

• Needs to satisfy many “bosses”• Faces up-front costs in health IT investments• Long-term benefits depend on payment schemes

• Require data for policy-making• Limited budget• Often face bureaucracies• Highly political

• Concerns about resource allocation & community’s well-being, but not necessarily individual patients

• Directly benefits from improved quality of care• Knowledge gap between patient & providers

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The Intersection

Clinical Informatics

Public Health

Informatics

Consumer Health

Informatics

Patients & Consumers

Providers & Patients

Policy-Makers, Payers, Public(Also providers)

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Public Policy in Informatics: A US’s Case

1991: IOM’s CPR Report published

1996: HIPAA enacted

2000-2001: IOM’s To Err Is Human & Crossing the Quality Chasm published

2004: George W. Bush’s Executive Order establishing ONCHIT (ONC)

2009-2010: ARRA/HITECH Act & “Meaningful use” regulations

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Political Support Behind Health IT

“...We will make wider use of electronic records and other health information technology, to help control costs and

reduce dangerous medical errors.”

Source: Wikisource.org Image Source: Wikipedia.org

President George W. BushSixth State of the Union Address

January 31, 2006

?

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U.S. Adoption of Health IT

• U.S. lags behind other Western countries (Schoen et al, 2006;Jha et al, 2008)

• Money and misalignment of benefits is the biggest reason

Ambulatory (Hsiao et al, 2009) Hospitals (Jha et al, 2009)

Basic EHRs w/ notes 7.6%Comprehensive EHRs 1.5%CPOE 17%

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President Obama Backs Health IT

“...Our recovery plan will invest in electronic health records and new technology

that will reduce errors, bring down costs, ensure privacy, and save lives.”

President Barack ObamaAddress to Joint Session of Congress

February 24, 2009

Source: WhiteHouse.gov

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American Recovery & Reinvestment Act

Contains HITECH Act(Health Information Technology for Economic and Clinical Health Act)

~ 20 billion dollars for Health IT investments

Incentives & penalties for providers

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U.S. National Leadership

David Blumenthal, MD, MPPNational Coordinator for Health Information Technology (2009 - 2011)

Farzad Mostashari, MD, ScMNational Coordinator for Health Information Technology (2011 - 2013)

Robert Kolodner, MDNational Coordinator for Health Information Technology (2006 - 2009)

David Brailer, MD, PhDNational Coordinator for Health Information Technology (2004 - 2007)

Office of the National Coordinator for Health Information Technology (ONC -- formerly ONCHIT)

Photos courtesy of U.S. Department of Health & Human Services

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What is in HITECH Act?

Blumenthal D. Launching HITECH. N Engl J Med. 2010 Feb 4;362(5):382-5.

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“Meaningful Use”

“Meaningful Use” of a PumpkinPumpkin

Image Source & Idea Courtesy of Pat Wise at HIMSS, Oct. 2009

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“Meaningful Use” of Health IT

Stage 1- Electronic capture of health information- Information sharing- Data reporting

Stage 2

Use of EHRs to improve processes of care

Stage 3

Use of EHRs to improve outcomes

Better Health

(Blumenthal D, 2010)

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Health Information Exchange (HIE)

Hospital A Hospital B

Clinic C

Government

Lab Patient at Home

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Health Information Exchange in the U.S.

Regional Health Information Organizations (RHIOs)

State e-Health initiatives Nationwide Health Information Network

(NHIN) Still ongoing efforts, but with significant

progress

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Other Public Health Informatics Applications

e-Health & m-Health m-Health in disaster management: #ThaiFlood

Data reporting to government agencies Claims & reimbursements Diseases Utilization statistics Quality measures etc.

Biosurveillance (case reporting vs. predictive) Epidemiologic & health services research

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Google Flu Trends

Source: Google.org/FluTrends

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Thailand’s Biosurveillance

Source: www.biophics.org

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Consumer Health Informatics (CHI)

“The field devoted to informatics from a consumer view.” (Hersh, 2009)

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M/B/H Informatics As A Field

(Hersh, 2009)

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Examples of Areas within Consumer Health Informatics

Image Source: http://www.webmd.com/

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Examples of Areas within Consumer Health Informatics

Image Source: http://www.greatdreams.com/cancer-cure.htm

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Examples of Areas within Consumer Health Informatics

Image Source: http://www.hon.ch/, http://socialmarketing.blogs.com/r_craiig_lefebvres_social/2007/02/health_literacy.html

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Examples of Areas within Consumer Health Informatics

Image Source: http://michaelcarusi.com/2012/01/01/when-you-should-not-become-a-social-media-manager/

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Examples of Areas within Consumer Health Informatics

Image Source: http://ucedtech.wikispaces.com/Welcome

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mHealth

http://whqlibdoc.who.int/publications/2011/9789241564250_eng.pdf

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Examples of Areas within Consumer Health Informatics

Image Source: http://nutrition.about.com/od/recipesmenus/ss/learnlabels.htm

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Class Exercise

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Roles of ICT in Consumer Health Informatics

Access to information Networking opportunities Education/Self-study Personalization Effective & efficient communications Empowerment “User Experience”

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Issues in Consumer Health Informatics

Health literacy & IT literacy Cultural diversity & sensitivity Usability, information presentation Impact of ICT on behavioral modifications

Integration with provider’s systems Information exchange & interoperability Business model Privacy & security

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Personal Health Records (PHRs)

“An electronic application through which individuals can access, manage and share their health information, and that of others for whom they are authorized, in a private, secure, and confidential environment.” (Markle Foundation, 2003)

“A PHR includes health information managed by the individual... This can be contrasted with the clinician’s record of patient encounter–related information [a paperchart or EHR], which is managed by the clinician and/or health care institution.” (Tang et al., 2006)

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Types of PHRs

Patient portal from a provider’s EHRs(“tethered” PHRs)

Online PHRs Stand-alone Can be integrated with EHRs from multiple providers

(unidirectional/bidirectional data sharing)

Stand-alone PHRs PC-based applications USB Drive CD-ROM or other data storage devices Paper

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PHRs and Other Systems

(Tang et al., 2006)

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Ideal PHRs

Integrated Accessible Secure Comprehensive Accurate & current Patient able to

manage sharing & update information

Engaging & educational

User-friendly, culturally & literacy appropriate

The “Hub and Spoke” Model(Kaelber et al., 2008)

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Use Cases of PHRs

Data entry/update by patients Data retrieval by providers

With patient’s consent

“Break-the-glass” emergency access

Data update from EHRs Privacy settings Personalized patient education Communications with providers

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Data in PHRs

(Tang et al., 2006)

(Tang et al., 2006)

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Other IT for Consumer Health

Traditional Web MedlinePlus Other sitesSocial Media The Usuals: MySpace, Facebook, Twitter Blogs, forums PatientsLikeMeTelemedicine & Telehealth Home monitoring/recording devices Tele-consultations, virtual visits http://media.nstda.or.th/video/viewVideo.php?video_id=1273

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The Future

Microsoft Health: Future Vision

http://www.microsoft.com/showcase/en/us/details/b112da1c-c918-41ee-bb45-d6a553496168

NECTEC’s Smart Health

http://media.nstda.or.th/video/viewVideo.php?video_id=1273

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References Blumenthal D. Launching HITECH. N Engl J Med. 2010 Feb 4;362(5):382-5. Blumenthal D, Tavenner M. The “meaningful use” regulation for electronic health

records. N Engl J Med. 2010 Aug 5;363(6):501-4. Connecting for Health. The personal health working group final report. Markle

Foundation; 2003 Jul 1. Hsiao C, Beatty PC, Hing ES, Woodwell DA. Electronic medical record/electronic health

record use by office-based physicians: United States, 2008 and preliminary 2009 [Internet]. 2009 [cited 2010 Apr 12]; Available from: http://www.cdc.gov/nchs/data/hestat/emr_ehr/emr_ehr.pdf

Jha AK, DesRoches CM, Campbell EG, Donelan K, Rao SR, Ferris TG, Shields A, Rosenbaum S, Blumenthal D. Use of electronic health records in U.S. hospitals. N EnglJ Med. 2009;360(16):1628-38.

Kaelber DC, Jha AK, Johnston D, Middleton B, Bates DW. A research agenda for personal health records (PHRs). J Am Med Inform Assoc. 2008 Nov-Dec;15(6):729-36.

Schoen C, Osborn R, Huynh PT, Doty M, Puegh J, Zapert K. On the front lines of care: primary care doctors’ office systems, experiences, and views in seven countries. Health Aff (Millwood). 2006;25(6):w555-71.

Tang PC, Ash JS, Bates DW, Overhage JM, Sands DZ. Personal health records: definitions, benefits, and strategies for overcoming barriers to adoption. J Am Med Inform Assoc. 2006 Mar-Apr;13(2):121-6.