PC Pt & Carer Education

8/8/2019 PC Pt & Carer Education

1/22

Running an Educational Program forPalliative Care Patients and Carers

Edite Tang ( Senior PC physiotherapist )Jenny Downes, ( Social Worker)

Palliative Care Service, Braeside Hospital , Sydney


2/22

Objectives

Highlight the challenges we have experienced in

implementing a Palliative Care (PC) Patient & Carer

Education Program

Share the benefits we have noted to date with the

implementation of the PC Patient & Carer Education

Program


3/22


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Literature review

Rosenwax(2005) suggests 10 conditions potentially

needing palliative care

Cancer

HIV AIDS

Parkinsons disease

Liver Failure

Heart failure Disease

Chronic obstructive pulmonary disease

Motor Neurone Disease

Renal failure

Alzheimers disease

Huntingtons Disease


5/22

Literature review

Kwak (2007) study using Cargiving at End of life Program

Hudson (2008) psycho-educational group program

Hudson (2009) study Carer Group Education Program

focus on role of carer on PC, strategies for self care andterminally ill

Harding (2002) short term group intervention focus on

information and support needs of carers

Harding (2004) short term group intervention focus on

psychological support / anxiety reduction, information

giving and enhancement of coping


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Areas of Need

(Palliative Care Australia 2003)

Patients& carers

Physical

Emotional

Spiritual

Emotional

SocialPsychological

BEREAVEMENT

END OFLIFE ISSUES

ADVANCE

CARE

PLANNING


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Palliative Care Needs Analysis

WhatWhat

Consultation (based on focus group discussions, semistructure interviews & questionnaire analysis) with clients ofservices

WhoWho

Participants are (a) PC patient: patients of South-WesternArea Health PC Service

(b) Carers of PC patients

WhyWhy To gain first-hand and detailed understanding of experiences,needs and priorities from PC patients and cares


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Unmet Needs Influence Quality ofLife

Increased EmotionalDistress

Decreased

Quality ofLifeUnmet Needs


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What they want to know more about

PC patients ( n = 31)

Planning Ahead

Crisis Management

Emotional Management Symptom Management

Nutrition

Energy Conservation

Social Activities &Entertainment

Legal issues

PC patients cares ( n = 17)

End of life issues

Nutrition & Hydration

Legal issues Emotional Management

Results reported in descending order of frequency


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Objectives of the PC Patient & Carer

Education Program

Literature

review

Carerneeds

Patient

needs

Reduce gaps in knowledge to enhancePalliative Care Control

Facilitate and accelerateimplementation of best availableknowledge

Optimise quality and access

Improve the palliative care experiencefor Australians


12/22

Area Health PC Patient & Carer

Education Program 2010FORUM 1: Stress and Relaxation (Oncology Clinical Psychologist)

FORUM2

Advanced Care Planning (CMO)

Nursing Issues and End ofLife Issues (PC CNC)

FORUM 3:

Music Therapy (Music Therapist)

Energy Conservation (Occupational Therapist)

FORUM 4: Look Good, Feel Better Workshop

FORUM 5: Legal Issues (Solicitor)


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Statistical Analysis

Participants were asked to evaluate the program

after participation by means of an evaluation

questionnaire. They could answer on a five-point

scale (strongly agree / agree / neutral / disagree/strongly disagree ).


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Result


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Outcomes ofSessions

A couple of patients followed up psychologist redepression management and relaxation

Follow up by patients re: Advanced care planning

Group discussion re nursing issues and end of lifecare

L

egal issues follow up by carers and patients


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Linking to clinical practice

EDUCATION

Dialogue with Patient /Basic Intervention

Increasing timely accessto services

INTERVENE

FOLLOW UP


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Work across role boundaries

Communication

Liaise with multidisciplinary teams oncology

Intercede as patient advocate

Make transparent the role of Palliative Care service


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Limitations

Was not associated with improved health status

Publicity of sessions : (Limited interest from

community patients & carers)

Limited capacity to cater for those from CALD

backgrounds due to lack of interpreters etc

Limited evaluation due to lack of resources

Catering for patients & carers at different PalliativeCare stages

No Funding / Resource


19/22

Areas for Further Development

Increased satisfaction with services

Increase Access and Connection

To provide leadership to change the focus ofPalliative Care so that patients and families needsare better served.

Future research is needed to evaluate the most

acceptable and effective ways of providinginformation


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Areas for further Development

Increased knowledge about palliative caremanagement

Increase Access and Connection

Greater inclusion of pts and carers from CALDbackgrounds

Improved study method

Accessing funding / resources

Publicity of sessions


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Acknowledgements

Dr Meera Agar (Director, Palliative Care Service, Braeside Hospital)

Mr.M

ark Buhagiar (Allied Health Manager, Braeside Hospital)

Mrs. Judy Stone (CNC, Palliative Care Service, Braeside Hospital)

Mr. Stewart James (General Manager, Hammondcare Health and

Hospital)


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PC Pt & Carer Education

Documents

Transcript of PC Pt & Carer Education