PBTF Online Annual Report 08-19-15 - cure the kids · of Atlanta Allied World Assurance ... Sun...

2014 ANNUAL IMPACT REPORT

TOGETHERSTRONGER

Dear friends,

Because the kids can’t wait! That’s our answer when folks ask us why we’re moving so quickly to engage more people in our mission.

Childhood brain tumor research is grossly underfunded, better treatments are greatly lacking, and there are many gaps in support for families living with this devastating disease.

The Pediatric Brain Tumor Foundation is the largest nonprofit funder of childhood brain tumor research. We’re encouraged that survival rates have improved over the past three decades for many childhood brain tumors, and we’ve played a key role in attracting scientists into this field of discovery. But that’s not good enough for us.

We’re expanding, diversifying and mobilizing with a sense of urgency to be a stronger force for kids with brain tumors…to improve quality of life while searching for cures.

Other national health nonprofits raise significantly more funds for their mission – even those with small patient populations like ours. Organizations like the Cystic Fibrosis Foundation and the ALS Association are making strides with multiple fundraising “engines” and well-organized chapter networks that work with patient families, volunteers and supporters in their local communities.

And because we know their efforts are leading to better treatments, improved quality of life and even longer lives for the patients they serve, we’re moving in that same direction.

How? By growing our national signature fundraising program Ride for Kids to attract more motorcyclists in creative, new ways. Through additional revenue sources, like our new Starry Night walk/run program, which debuted in seven cities last year, generating $300,000+ in new revenue. And by partnerships with the leading children’s hospitals, businesses, the media and other childhood brain tumor organizations.

We’ll soon celebrate the first anniversary of the PBTF joining forces with the Brain Tumor Foundation for Children to establish the Georgia Chapter and make a bigger impact for families there. We’ve also laid the groundwork for additional chapters in Los Angeles, Chicago and Houston.

Your continued generous support is critical, and so is your active involvement!

Why? Because we know that together we will be stronger. Because the kids can’t wait.

With hope for the future,

Chris Hoefflin, Board Chair

Robin Boettcher, President and CEO

EXECUTIVE OFFICERS

Chris Hoefflin, Chair

Larry Little, Vice Chair

Robin Boettcher, President

Jack McGinnis, Treasurer

Don Goden, Secretary

Anne Sutton, Assistant Secretary

2015 BOARD OF DIRECTORS

Rosemary Gullikson Bittorf

Bob Henig

Chris Hoefflin

Larry Little

Jack McGinnis

Susie Rossick

Jill Scognamiglio

Anne Sutton

Wayne Toyota

Kurt Yndestad

Brady Young

$25,000 to $49,999Samuel Caine EstateCarquest Charitable FoundationBryce Garst Foundation

$10,000 to $24,999Aflac Benefit SolutionsAmerican Endowment FoundationJanet BryantAlison & W.G. Buckley

Frances Hollis Brain FoundationBrinker InternationalBuilders Insurance GroupCalpine FoundationCiara's Circle of HopeCIGNADelta Community Credit UnionJason DavisJennifer & Brian DukeLu & Bob DumasEpicKathleen & Anthony FerritoFirst Insurance FundingJohn and Mary Franklin FoundationGKN FoundationMarc GreenGreystone Servicing Corp.Pamela & Randy GulsethThe HartfordGordon Hartman Family FoundationJ.B. HayesHexberg Family FoundationI.B.E.W. Local 617Jewish Communal FundGloria & Richard KernsStephanie KerrishJohn LevyDebbie & Ralph LloydJessie MarinoMcDowell NW Pile KingLee & Aidan McMahon FoundationMungenast FoundationNovak Construction NSM Insurance Group

Bobbie & Kyle BeelerNeil BookmanBerkley SoutheastCalifornia Coast Credit UnionPatrick CallahanCarolina Comfort AirCerti-Fab IndustriesChevos ConsultingCNJ D-Arcy FoundationCoastal Mechanical SystemsCobb EMC Community FoundationMerle CogginsCreative Training SolutionsCrystal Family FoundationCustomInkDeals Gap Motorcycle ResortDLB FoundationGerald A. Doering FoundationRichard DomskyDurata TherapeuticsElektaErgon FoundationEquifax FoundationWilliam EvansJudy & Steve FergusonFidelity Charitable Gift FundTim FoedererFT Cares FoundationDenise & Keith GillilandVladimir GitermanGoodrich FoundationGrange InsuranceGregory Electric Co.Guardian

$100,000 and GreaterAmerican Honda Motor Co., Inc.GEICO Hardee's Food Systems

$50,000 to $99,999Denise & David ChaseGenentech FoundationJ. Smith Lanier & Co.Kyrie Foundation

Karen & Steven ChaikinSandra ChaikinCarol & David CarterColonial LifeJack & Carolyn Ferguson

Charitable FoundationKimberly Harris & Scott WeinerHonda of America ManufacturingHonda Manufacturing of AlabamaScott Hudgens Family FoundationImlay FoundationJoseph & Catherine Johnson

Family FoundationKaiser PermanentePeter KaiserLive NationHillary & Zackery PadgettJohn K. & Alice O'Neill Powers

FoundationQBE AmericasNorma SanchezScognamiglio FamilyStrategic Risk SolutionsRobert & Jamie Taylor FoundationTelefonixTravelersWintrust Financial

$5,000 to $9,999AmWINSAndrew BerryWarren AverettTom BartelsBayer CropScienceBend Your Knees

Ruth & David OstoichPayden & RygelReliant TechnologyRosenthal Family FoundationTaylor Rozier's Hope for a Cure

Brain Tumor FoundationKaden Schmale Memorial FundShattuc Cord SpecialtiesSilicon Valley Community

FoundationMargaret & Terry SimsSpectra Energy FoundationKathryn StockettCheyenne StonerJean & Loyd WatersSandy & Robert WernerWestfieldWin Anyway Foundation

$2,500 to $4,999Advanced Integrated TechnologiesAdvanced Particle TherapyAetnaAflac Cancer & Blood Disorders

Center at Children's Healthcare of Atlanta

Allied World AssuranceAmerican Family Mutual Insurance American Honda Finance Corp.Ameritas GroupAtlantic Capital BankJerry BarnettKathleen & Ted BatesBaystate Financial Services

Foundation

HanoverJanet & Andrew HartHerman Miller CaresIBM CorporationIdeal Realty GroupIndian Brave Campground

(L&S IBC, LLC)ITC Holding CorpDebbie & Craig JacksonJohn & Helen Jarman Family

FoundationJack JonesJoshua's Great ThingsAmy Kanyuk & Matthew BensonKaty's Korner StoreJill & Chris KernionKeyBank FoundationKay & Richard KnepperKohl'sJoseph & Helen Komarek

FoundationKraft Foods Group FoundationPatricia & David LebanowskiLeibold PartnersRonnie LunsfordWilliam ManuelKathleen & Wilson MatthewsMetLifeMorris, Manning & MartinDaniel MurrayMutual of OmahaNational Oilwell VarcoClaudette & Robert NewmanNorth Perimeter Optimist ClubOhio Motor Officers

Our mission: to eliminate the challenges of childhood brain tumors.

The unification of the PBTF and the Brain Tumor Foundation for Children in July 2014 brought us another step closer to that goal. We thank the dedicated donors and fundraisers from both

organizations for their generous contributions to our shared mission.

We’re stronger, together.

TogetherStronger

Pepsi Beverage Co.Josephine M. Pintozzi FoundationRobert PizzoniaPMAPNM Resources FoundationGloria & Dennis ReschSteven RigganGersham RiggsPhyllis RothRunzel FamilySalesforce.com FoundationLeslie & Duncan SandilandScitor CorporationHolli ScottPamela & Samuel SellersSeneca InsuranceElaine & Cliff SilerShayesteh SimsDiana & Doug SlumskieSummitSun Life FinancialTeamMates for Kids FoundationConnie & Michael TennysonJulie & Gary TouchstoneBillie & Jimmy TragleTrinity Christian SchoolTVITwin Cities Motorcycle Escort Corp.UnitedHealthcareUnumValero Energy FoundationValve Reconditioning ServiceKeith Vanderveen

Walmart FoundationWhaleyville Animal HospitalAnn Willey

$1,000 to $2,499Anderson Family Revocable TrustACEBette AdkinsAgroupur Division Natrel USAAHFC - Southeast RegionAll American Heating & AirCara & Randell AllenAllstate Giving CampaignAllstate InsuranceSam P. Alterman Family FoundationAmazing AlyssaAmericadeMark & Judy AmmonsEmanuel AndradeKathleen & T.M. AntonaccioSusan ArnoldArctica Ice CreamSteve AtkinsonAuto ZonePatricia BabuinBrenda & Roy BadgettBarham-Calhoun Memorial FundThe Barter CompanyJudith & Jerome BarzyckiBasso & AssociatesBCD TravelBarbara & Harold BeaumontBecky BellBesson/Cooper Fund

Beta Sigma Phi, Ocala City CouncilCheung Biggles Rosemary Gullikson BittorfHolly & Eric BondusWilliam & Catherine BonoStephanie & Gary BookPaula & Bernie BorensteinDon BrooksC Spire FoundationCable PlusCargillJolene CarviouHannah & Rechad CassimBen CastleSusan CazzettaCharitable Works FundGeorge & Peg ChernyChin-Shia & Chu Shin ChiuCinema Concepts Theatre ServiceEllen & John CioccioClabough & AssociatesClark Well ServiceAlan CliftonClub of HeartsCarrie ColemanMelanie & Kurt CollinsColumbia InsuranceColumbus Bank & TrustLarry CombsJudie & Steven ConnerHolly & David CookJackie CookeMary & Mike CoralRobert & Mona Corbin

Country Cottages & MotelGrant CraftJanice & Scott CraigJackie & Roy CrowderCulver's VIP FoundationGuillaume CunningtonD&R Rental PropertiesRay DavisJune & Robert DegenhardtCheryl & Brian DehmlowPatricia & Henry DeKockCarol & Kenneth DenmanDavid & Judy DerryNeoma Flanagan DisneyTom DixonDonors TrustFidelina DuclosDuke Brain Tumor CenterHunter Duke FoundationJayakumar & Rashmi DuraisamyLorraine DutkowskyLaura EbbertMaxx EbenalLeslie & Michael EcholdsEl Cajon FordEmerald Guild SocietyEnabler FoundationEncompass InsuranceEnterprise Holdings FoundationNicole EversExxonMobil FoundationBill FarthingSusan & Danny FeatheringillLinda & Mike Fields

Fluid FloorsCity of FranklinSue FrishFrontier ToyotaFTI ConsultingLynn GaileyJanice & John GarsideD.W. GaryGE FoundationShea GeeslinDuncan & Jayne GeislerWendy GenzGeorge's CafeGetz FoundationMike GirardiGKN DrivelineJoel GladdingGolden State Foods FoundationDavid & Delores GormleyLarry GreenvilleMichael GreenwaldJeff GriffithGross Family FoundationGuaranty BankMarianne & Robert GublerNalin GuptaLorraine GuzmanMichele HagansMarlene & Jay HallerDavid HappCheryl & Barton HarrisAnn & Kirk HarrySam Harry FoundationCharles Hawley

Regina HayesHennessy Automobile CompaniesDeborah HillsWilliam HippHM Insurance GroupSue & Christopher HoefflinRoxanne & Bruce HoerningHolloway FoundationHome Depot FoundationHonda of South Carolina

ManufacturingKenneth HonigWilliam HooperHoover Building SystemsHorning Family Charitable FundBill Howell PlumbingKimberly & Kirk HowellHuber Heights City SchoolsI.B.E.W. Local 6I.B.E.W. Local 48I.B.E.W. Local 302Iglewski Family FoundationInstitutional InvestorIronman FoundationSam Jackson EnterprisesJames-Bates-Brannon-Groover-LLPJeffrey JeterJett CommunicationsSherri & Kevin JohnsonJoshua's HopeGeorge & Dorothy JuzdanKabelin Ace Hardware Kaplen FoundationMiriam & Mike Kaufman

Kell Band Booster AssociationRichard KenyonTodd KesslerKey Impact SalesKey RiskTim KlespiesLinda KoehlerMichael & Diane KonkeMichael KrasnyKroger Co. FoundationMelissa & Kriss KudlaCheryl KunzlerLauderdale Moose LodgeDarla LaurentElaine & Joel LazereSharon & James LearnedDaniel LeeSherryl & John LeeDale LeonardEllen & Douglas LeslieUrsula & Gerd LohmannTarsis LopezKim & Scott LorbacherGina LorelloVicki & Tom LorenzPat and Chris LowryKaren & Clarke LundellDebra & Mark MaiettaSebastian MailleuxManagement Services NetworkSam MancusoMelissa & Maurice ManessMarks BrothersMarsh Auto Parts

Martin CompaniesJames MartinJim MartinSusan & James MartinAaron MattiPamela McCombsFrances McDonaghLynn & John McFeeJack McGinnisJerry McMillanStacey McMullenJo & Hal MeeksElena Melius FoundationMennonite FoundationMerck FoundationMerriman Road Baptist ChurchDarlene & Brian MeyersKathryn MeyersKathy & Richard MeyersMid-Lake Softball OrganizationArchie MillerJames MillerDenise Mitchell & James BurkeThomas & Donna MitchellMoncrief Heating & AirMovement FoundationJoseph MyersLeigh Anne & Aaron NaasNational Christian Foundation

IndianaNC ComiconLawton NeaseNewmont Mining CorporationNickelson Industrial Service

Patricia NietrzebaAnn & Rex NixNorthern Trust CompanyDan NugentEthel NugentJo & Joe NugentBill O'BrienJeff OlsonOneBeaconRonald & Laura OrrPage, Scrantom, Sprouse,

Tucker & Ford, P.C.PANDA NeurologyAlexander ParcanWilliam ParnellPatner ConstructionBeth & Brian PatrickWanshula & James PaxtonPerformance ToyotaPerformer's AcademyBetty & Phil PhillipsDixie & Johnny PhillipsKaren & Jeffrey PickeringPickford Realty CaresAnita & Charles PorcheVirginia & Charlie PortesJean & Walter PotworaChip PrescottEleanor Phipps PriceBrian ProctorProduction Tool & TechnologyTeresa & Tony PuleoQuikTrip Corp.Gary & Marie Rabalais

Mickey & Mary RairdinJeff RayRay's Helova DeliReagan ConsultingLiam Reda FoundationLaw Office of Robert L. RedaReynolds Middle SchoolJenna RhodesShellie & Doug RichterMark RingesJennifer & Michael RobbinsJanis & Stanley RobertsLeo & Christine RoccaRocky River IndustrialKathy & Durant RodrigueRoof ManagementJoan & William RossRotary Club of KennettThomas RubrightJohn & Maria RudChris SackettSalon BluToni & Edward SalvaJim SantosJonathan P. Schroeder, LLCSchwab Charitable FundStephen SelzerSara SernaKay & John SerratelliTeri ShannonShapiro & LeventhalBruce and Ellen ShawDerrick Shindler

Siemens IndustryRichard & Jennifer SilvaRonald SimmonsSirote & PermuttSkydive the FarmSara SladePaulette SmithShelly SmithGordon Snyder Jr.Socius InsuranceSophie's Giving TreeLisa SoticheckTrang & Roger SparksAngela Spence FoundationWanda & David SquiresSRA - San DiegoSt. Matthew's United Methodist

ChurchSt. Patrick Roman Catholic ChurchLaura StahlState Farm InsuranceState Farm Mutual Automobile

InsuranceStephenson Family FoundationJane & James SternJoe StewartStreet Tiques of AshGary StricklandSunTrust Bank, AtlantaSutter Health Sacramento Sierra

RegionTar Heel Wealth ManagementJohn TaylorPaul & Kathleen Taylorson

TD SportsTeam David SamTeamsters Local Union No. 456Teleflex FoundationPatricia Bowman Terwilliger Family

Foundation Charitable TrustTescor LabsIsabella TeslerBrenda ThieleJulie & Brad ThiemeJ.A. TouchstoneTroutman Sanders LLPTrust CompanyTwigg CyclesUnited ConcordiaRichard ValdezValence HealthCindy & Rick ValentineAutumn & James VallecorsaValley View United Methodist

ChurchVance Charter SchoolVancleave Schools Activity FundNancy VandenbergVanguard Charitable Endowment

ProgramMary Ellen VaughanLonda & Brian VencilVencil FarmsBrian VickersVIP InteriorsWaccamaw TransportMerlin WaglerJames Walen

Phillip D. & Jane C. Walton Family Fund

Laura & William WardLaura WardJodine & James WatkinsonRenee & Jack WatkinsonWatts Auto Diesel ServiceCarole & Steven WeinbergDenise & Anthony WeinerJames WertmanWeswood FoundationAnita & Jack WheelerJudy & Chris WickershamWilliams Family FoundationVanessa & Jimmy WilsonWindsor High SchoolWinston ProductsTimothy WolfAndrew & Claudia WoodardLaurie & Kurt YndestadBrady YoungJames & Linda ZablerBradley Zankel FoundationZenith Insurance Co.Zurich Foundation

Foundation

Our research efforts are guided by our Research Advisory Network, a panel of leading experts contributing insights and perspective into the most promising areas for research funding.

Learn more about our research investments at curethekids.org.

invested through 2014

MILLIONin funding

$1.8 22 2researchers countries

FOR IN

multiyear research projects

leading institutions

Institute grants

3 15 3ATSUPPORTING

researchers, physicians and

thought leaders brought together

premier academic

institutions

our first think-tank

conference, Translating

Discoveries to Cure the Kids

39 17FORFROM

ADVANCING RESEARCH

The PBTF research efforts are guided by its Research Advisory Network, a panel of leading experts contributing insights and perspective into the most promising areas for research funding.

Suzanne Baker, PhD . . . . . . . . . . . . . . . . . . St. Jude Children’s Research Hospital

Jill Barnholtz-Sloan, PhD . . . . . . . . . . . . . Case Western Reserve University

Oren J. Becher, MD . . . . . . . . . . . . . . . . . . Duke University School of Medicine

Tom Curran, PhD, FRS . . . . . . . . . . . . . . . . The Children’s Hospital of Philadelphia

G. Yancey Gillespie, PhD . . . . . . . . . . . . . . University of Alabama at Birmingham

Gerald Grant, MD, FACS . . . . . . . . . . . . . . Stanford School of Medicine

Nalin Gupta, MD, PhD . . . . . . . . . . . . . . . . UCSF Benioff Children’s Hospital

Mark Kieran, MD, PhD . . . . . . . . . . . . . . . . Dana-Farber Cancer Institute and . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Boston Children’s Hospital

Duane Mitchell, MD, PhD. . . . . . . . . . . . . . University of Florida

Michelle Monje-Deisseroth, MD, PhD . . . . Stanford School of Medicine

Sabine Mueller, MD, PhD . . . . . . . . . . . . . . UCSF Benioff Children’s Hospital

Roger Packer, MD . . . . . . . . . . . . . . . . . . . . Children’s National Health System

Will Parsons, MD, PhD . . . . . . . . . . . . . . . . Texas Children’s Hospital

Raphael Rousseau, MD, PhD . . . . . . . . . . Genentech

James Rutka, MD, PhD, FRCSC . . . . . . . Hospital for Sick Children

Max Wallace . . . . . . . . . . . . . . . . . . . . . . . . . Accelerate Brain Cancer Cure

Robert Wechsler-Reya, PhD . . . . . . . . . . . Sanford-Burnham Medical Research Institute

In 2014, the Pediatric Brain Tumor Foundation made significant strides to support and empower families.

We established a Georgia Chapter in July by merging with the Brain Tumor Foundation for Children, and laid the groundwork for additional chapters in Los Angeles, Chicago and Houston.

We also expanded our family support programs with a conference for parents and survivors, and developed new partnerships with leading children's hospitals and businesses around the country.

SUPPORTING FAMILIES

1stParents & Survivors Conference held in

collaboration with the Children’s Brain Tumor

Foundation

6educational videos

produced as the first in a series for

patient families

80brain tumor survivors, family

members, caregivers and researchers featured in awareness campaigns

28,000children and teens living with

a brain tumor in the U.S.

$125,000in college scholarships awarded to 100+ brain

tumor survivors in 35 states

$450,000in direct aid from BTFC

and PBTF to families through partnerships

with 21 hospitalsin 9 states

16,000+ daily interactions with

survivors, family members and supporters on

social media

Created the first PBTF chapter by merging with

the Brain Tumor Foundation for Children in Georgia

130,000listeners reached in our

annual radiothon

MISSION-FOCUSED EVENTS

+ Community Fundraising

$3,925,816

raised by event participants to fight childhood brain tumors

2,282volunteers

324families

383,361estimated miles

7,400motorcycles

11,910participants

events

44 29states

NAME CONTRIBUTION

Julie Runzel .................................................$50,942Sam Caine Estate........................................ $38,500Janet Bryant................................................ $35,883Ted Nielsen.....................................................$24,215Judy Ferguson...............................................$21,877

NAME CONTRIBUTION

Enzo Scognamiglio ...................................... $21,845Bob Henig...................................................... $21,330Jennifer Duke ...............................................$15,400Charlie Portes .............................................. $15,395Phil Phillips ................................................... $15,395

SOURCE OF FUNDS

$5,226,729*

Honor, tribute donations $182,667 (3.5%)

*exclusive of investment gains and losses

USE OF FUNDS

$6,897,213

Non-cash and other$638,125 (12.2%)

Corporate support$1,857,573 (35.5%)

Direct public support$2,548,364 (48.8%)

Management/admin$684,305 (9.9%)

Fundraising$687,339 (10.0%)

Programs$5,525,569 (80.1%)

2014 FINANCIALS

2014 Top Fundraisers

We invested 80.1 percent of the funds we raised in research and family support programs.

Special thanks to our Top 10 fundraisers who went to extraordinary lengths to support our mission through our Ride for Kids program.

Source: Independently audited financial statement for the year ending Dec. 31, 2014

PBTF Online Annual Report 08-19-15 - cure the kids · of Atlanta Allied World Assurance ... Sun...

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