PatNet Exploring Social Media and Bio-sensors for a Patient Driven Health Care System
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Transcript of PatNet Exploring Social Media and Bio-sensors for a Patient Driven Health Care System
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Session 5b, 30 October 2014 eChallenges e-2014 Copyright 2014 Dynamics Lab - UCD
PatNet: Exploring Social Media and Bio-sensors for a Patient Driven
Health Care System
Nasim Mahmud and Diane Payne
Dynamics Lab, Geary Institute,
University College Dublin (UCD)
http://dl.ucd.ie
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Session 5b, 30 October 2014 eChallenges e-2014 Copyright 2014 Dynamics Lab - UCD
Summary
• People are increasingly becoming health-conscious
• Patients are keen to utilize bio-sensors• There is a little known about how to tap into the
potential patient driven knowledge and information in a systematic order
• The PatNet project provides stepping stones into this domain of patient and sensor social networks
• This research rationale outlines the challenges and opportunities that the proposed model shows
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Session 5b, 30 October 2014 eChallenges e-2014 Copyright 2014 Dynamics Lab - UCD
Research Problem
• Within the Irish health sciences or indeed internationally, there is relatively little systematic research to date on the use and impact of social media in healthcare management
– How health care professional and patients behave through interaction in social media forums?
– How these new lateral forms of information diffusion may be impacting on individual healthcare
practitioner learning and decision making?
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Session 5b, 30 October 2014 eChallenges e-2014 Copyright 2014 Dynamics Lab - UCD
Abundance of Information
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Session 5b, 30 October 2014 eChallenges e-2014 Copyright 2014 Dynamics Lab - UCD
Neat and Tidy (Information) Blocks
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Session 5b, 30 October 2014 eChallenges e-2014 Copyright 2014 Dynamics Lab - UCD
Starts from Simple: How To Assemble?
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Session 5b, 30 October 2014 eChallenges e-2014 Copyright 2014 Dynamics Lab - UCD
Patient Data – “Traditional” Approach
Patient 1
Patient 2
Patient 3
Patient n
time
Observation 1
Patient 1
Patient 2
Patient 3
Patient n
time
Observation 2
Patient 1
Patient 2
Patient 3
Patient n
time
Observation n
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Session 5b, 30 October 2014 eChallenges e-2014 Copyright 2014 Dynamics Lab - UCD
Patient Data – Traditional Approach
Networks of Patients
Networks of ProfessionalMedical Personnel
Patient 1
Patient 2
Patient 3
Patient n
time
Observation 1
Patient 1
Patient 2
Patient 3
Patient n
time
Observation 2
Patient 1
Patient 2
Patient 3
Patient n
time
Observation n
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Session 5b, 30 October 2014 eChallenges e-2014 Copyright 2014 Dynamics Lab - UCD
Challenges With Traditional Approach
• Scattered Data
• Uncontrolled Flow of Information
• Insecure Data Dissemination
• Data (topic) Control - Moderation
• Time Consuming Data
• Laboratory Observation Only
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Session 5b, 30 October 2014 eChallenges e-2014 Copyright 2014 Dynamics Lab - UCD
Organized Approach with PatNet
Patient 1
Patient 2
Patient 3
Patient n
time
Observation 1
Patient 1
Patient 2
Patient 3
Patient n
time
Observation 2
Patient 1
Patient 2
Patient 3
Patient n
time
Observation n
Networks of ProfessionalMedical Personnel
Networks of Patients
-With WEB 2.0 technology-Secured Database-Connected Socially-Patient-sensor and caregiver network-Network of networks
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Session 5b, 30 October 2014 eChallenges e-2014 Copyright 2014 Dynamics Lab - UCD
PatNet Components
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Session 5b, 30 October 2014 eChallenges e-2014 Copyright 2014 Dynamics Lab - UCD
Goal of the PatNet Project
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Session 5b, 30 October 2014 eChallenges e-2014 Copyright 2014 Dynamics Lab - UCD
Goal of the PatNet Project
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Session 5b, 30 October 2014 eChallenges e-2014 Copyright 2014 Dynamics Lab - UCD
What is PatNet
• A specialized (social) network engine
• Dedicated for a targeted user group
• Secured
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Session 5b, 30 October 2014 eChallenges e-2014 Copyright 2014 Dynamics Lab - UCD
Purpose
• Get insight about the patient data
• Analyse data
• For better understanding (to support improved healthcare)
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Session 5b, 30 October 2014 eChallenges e-2014 Copyright 2014 Dynamics Lab - UCD
General Purpose Social Network
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Session 5b, 30 October 2014 eChallenges e-2014 Copyright 2014 Dynamics Lab - UCD
Dedicated Social Network
Own secured database
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Session 5b, 30 October 2014 eChallenges e-2014 Copyright 2014 Dynamics Lab - UCD
Basic Building Blocks
User Interaction
Sensor Data
DatabaseCommunity
Data
DoctorsCaregivers
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Session 5b, 30 October 2014 eChallenges e-2014 Copyright 2014 Dynamics Lab - UCD
Network of Users and Bio Sensors
Users Interaction
Database
Analysis+
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Session 5b, 30 October 2014 eChallenges e-2014 Copyright 2014 Dynamics Lab - UCD
User Data
• Users can provide data
– In a similar fashion of form filling
– Long survey
– Regular Micro Survey
• Wearable sensor technologies
• Doctors can provide data related to a patient, patient group
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Session 5b, 30 October 2014 eChallenges e-2014 Copyright 2014 Dynamics Lab - UCD
Sensor Data
• Direct input (by users, e.g., BP)
• Via webservers (via web service, e.g., fitbit)
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Session 5b, 30 October 2014 eChallenges e-2014 Copyright 2014 Dynamics Lab - UCD
Where Are We Now?
• Working on a PatNet social network engine
– Will be published soon
• Primary features
– Survey tool
– Detailed user profile
– Multiple communication mode for users (e.g., forum, site message, chat)
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Session 5b, 30 October 2014 eChallenges e-2014 Copyright 2014 Dynamics Lab - UCD
Use Engagement…
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Session 5b, 30 October 2014 eChallenges e-2014 Copyright 2014 Dynamics Lab - UCD
Use Engagement… …
Avatar
Sensor Pane
General
Interaction
and Social
Pane
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Session 5b, 30 October 2014 eChallenges e-2014 Copyright 2014 Dynamics Lab - UCD
Licencing…
Site Level User Agreement
Each user must accept the terms and conditions of the site at the time of registration.
All users (e.g., patients, medical personnel) have to ‘sign’ this agreement
Institutional Level User Agreement
Medical personnel and researchers dealing with user data must sign the ‘ethical contract’ to comply with the policy of their respective institutes.
Individual Artefact User Agreement
When a user (e.g., patients, medical personnel, e.t.c.) share some particular (sensitive) information on the site, they will be asked to agree on the terms of use.
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Session 5b, 30 October 2014 eChallenges e-2014 Copyright 2014 Dynamics Lab - UCD
Basic Registration
User Agreement
Patients
Medical Personnel and Researchers
Institutional Agreement
Hospitals and other institutes
User Agreement
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Session 5b, 30 October 2014 eChallenges e-2014 Copyright 2014 Dynamics Lab - UCD
Challenges with Bio--sensor Data
• Need to identify from a range of sensors
• Need to agree upon capturing data from those sensors
• Currently PatNet design can support some formats (e.g., ASCII, XML)
• What about continuous data, etc…
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Session 5b, 30 October 2014 eChallenges e-2014 Copyright 2014 Dynamics Lab - UCD
Thank you!Dr. Nasim Mahmud and Dr. Diane [email protected]://dl.ucd.ie
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Session 5b, 30 October 2014 eChallenges e-2014 Copyright 2014 Dynamics Lab - UCD
What is your opinion?
• Will medical personnel share their expertise online?
• Will *you give your data?
– -Why and when?
– -Why not?