PatNet Exploring Social Media and Bio-sensors for a Patient Driven Health Care System

Session 5b, 30 October 2014 eChallenges e-2014 Copyright 2014 Dynamics Lab - UCD

PatNet: Exploring Social Media and Bio-sensors for a Patient Driven

Health Care System

Nasim Mahmud and Diane Payne

Dynamics Lab, Geary Institute,

University College Dublin (UCD)

http://dl.ucd.ie


Summary

• People are increasingly becoming health-conscious

• Patients are keen to utilize bio-sensors• There is a little known about how to tap into the

potential patient driven knowledge and information in a systematic order

• The PatNet project provides stepping stones into this domain of patient and sensor social networks

• This research rationale outlines the challenges and opportunities that the proposed model shows


Research Problem

• Within the Irish health sciences or indeed internationally, there is relatively little systematic research to date on the use and impact of social media in healthcare management

– How health care professional and patients behave through interaction in social media forums?

– How these new lateral forms of information diffusion may be impacting on individual healthcare

practitioner learning and decision making?


Abundance of Information


Neat and Tidy (Information) Blocks


Starts from Simple: How To Assemble?


Patient Data – “Traditional” Approach

Patient 1

Patient 2

Patient 3

Patient n

time

Observation 1

Patient 1

Patient 2

Patient 3

Patient n

time

Observation 2

Patient 1

Patient 2

Patient 3

Patient n

time

Observation n


Patient Data – Traditional Approach

Networks of Patients

Networks of ProfessionalMedical Personnel

Patient 1

Patient 2

Patient 3

Patient n

time

Observation 1

Patient 1

Patient 2

Patient 3

Patient n

time

Observation 2

Patient 1

Patient 2

Patient 3

Patient n

time

Observation n


Challenges With Traditional Approach

• Scattered Data

• Uncontrolled Flow of Information

• Insecure Data Dissemination

• Data (topic) Control - Moderation

• Time Consuming Data

• Laboratory Observation Only


Organized Approach with PatNet

Patient 1

Patient 2

Patient 3

Patient n

time

Observation 1

Patient 1

Patient 2

Patient 3

Patient n

time

Observation 2

Patient 1

Patient 2

Patient 3

Patient n

time

Observation n

Networks of ProfessionalMedical Personnel

Networks of Patients

-With WEB 2.0 technology-Secured Database-Connected Socially-Patient-sensor and caregiver network-Network of networks


PatNet Components


Goal of the PatNet Project


What is PatNet

• A specialized (social) network engine

• Dedicated for a targeted user group

• Secured


Purpose

• Get insight about the patient data

• Analyse data

• For better understanding (to support improved healthcare)


General Purpose Social Network


Dedicated Social Network

Own secured database


Basic Building Blocks

User Interaction

Sensor Data

DatabaseCommunity

Data

DoctorsCaregivers


Network of Users and Bio Sensors

Users Interaction

Database

Analysis+


User Data

• Users can provide data

– In a similar fashion of form filling

– Long survey

– Regular Micro Survey

• Wearable sensor technologies

• Doctors can provide data related to a patient, patient group


Sensor Data

• Direct input (by users, e.g., BP)

• Via webservers (via web service, e.g., fitbit)


Where Are We Now?

• Working on a PatNet social network engine

– Will be published soon

• Primary features

– Survey tool

– Detailed user profile

– Multiple communication mode for users (e.g., forum, site message, chat)


Use Engagement…


Use Engagement… …

Avatar

Sensor Pane

General

Interaction

and Social

Pane


Licencing…

Site Level User Agreement

Each user must accept the terms and conditions of the site at the time of registration.

All users (e.g., patients, medical personnel) have to ‘sign’ this agreement

Institutional Level User Agreement

Medical personnel and researchers dealing with user data must sign the ‘ethical contract’ to comply with the policy of their respective institutes.

Individual Artefact User Agreement

When a user (e.g., patients, medical personnel, e.t.c.) share some particular (sensitive) information on the site, they will be asked to agree on the terms of use.


Basic Registration

User Agreement

Patients

Medical Personnel and Researchers

Institutional Agreement

Hospitals and other institutes

User Agreement


Challenges with Bio--sensor Data

• Need to identify from a range of sensors

• Need to agree upon capturing data from those sensors

• Currently PatNet design can support some formats (e.g., ASCII, XML)

• What about continuous data, etc…


Thank you!Dr. Nasim Mahmud and Dr. Diane [email protected]://dl.ucd.ie


What is your opinion?

• Will medical personnel share their expertise online?

• Will *you give your data?

– -Why and when?

– -Why not?

PatNet Exploring Social Media and Bio-sensors for a Patient Driven Health Care System

Technology

Transcript of PatNet Exploring Social Media and Bio-sensors for a Patient Driven Health Care System