Patients and the Web Better NHS services with linked data
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Patients and the WebBetter NHS services with linked data
Frank SullivanNHSTayside Prof. of R&D in Primary Care Health Informatics Centre Dundee
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Dundee
Edinburgh
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Outline of talk
• How are health data linked in Scotland?
• What services does that enable?
• Do patients benefit
• Making access easier
• Multi-agent systems
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64% of adults access the Internet
Adults who have used the Internet in the 3 months prior to interview in October 2005 (GB )National Statistics Omnibus Survey 2005
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How often, if at all, do you personally use the internet?
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Health Use Internet
• Have used for this purpose– Health-related information 34%
• Is there anything which you havepersonally never used the internet to do but which you would like to?– Get medical information/advice 7%
MORI 2005
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Data, Data everywhere
OpticiansOpticiansHospitalHospital
SMRSMR
GPGP
PAMSPAMS
Lab Lab DataData
PharmacyPharmacyEye vanEye van
InvestigationsInvestigations
ScreeningScreening
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Community Health Number
DOBDOB SexSex CheckCheck
07 10 6407 10 64 02 02 55 00
Serial No
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Linking Data for Seamless Care
CHNoCHNoHospitalHospital
Eye VanEye Van
PharmacyPharmacy
Lab Lab DataData
OpticiansOpticians
InvestigationsInvestigations ScreeningScreening
PAMSPAMS
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Remote Interrogation Remote Interrogation GENIE GENIE Generic
Import and Export
GP Clinical SystemsGP Clinical SystemsData In Data In Standard Standard FormatFormat
Erroneous DataErroneous Data
‘‘Clean’ DataClean’ Data Previous ExportPrevious Export
====
Regional repositoryRegional repository Data For ExportData For Export
Currently operational in Tayside, Glasgow and Lothian
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76 General Practices76 General Practices1000 Networked PCs1000 Networked PCs
NHS TaysideNHS TaysideI & CT DepartmentI & CT Department
Acute Trust SitesAcute Trust SitesHealth Board SitesHealth Board Sites
Primary Care Primary Care Trust SitesTrust Sites
3 Hospitals3 Hospitals3000 Clients3000 Clients
5 Sites5 Sites300 Clients300 Clients
20 Hospitals20 Hospitals700 Clients700 Clients
NHSNetNHSNet
The InternetThe Internet
FirewallFirewall
Local AuthorityLocal Authority
Perth & KinrossPerth & KinrossAngusAngusDundeeDundeeNorth-East FifeNorth-East FifeOther TrustsOther Trusts
& Boards& Boards
SchlumbergerSemaSchlumbergerSemaMainframe ServicesMainframe Services
FirewallFirewall
NHSTayside ICT DepartmentNHSTayside ICT Department
Communications InfrastructureCommunications Infrastructure
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Web Services
• a standard means of interoperating between different software applications, running on a variety of platforms and/or frameworks.
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Patient Summary for clinicians
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Summary for patients
• NHSTayside IT for managed clinical networks– DARTS– HEARTS
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Available results reduce visits
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How easy or difficult is it for you to get access to the internet?
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Health Use Internet
• Have used for this purpose– Health-related information 34%
• Is there anything which you havepersonally never used the internet to do but which you would like to?– Get medical information/advice 7%
MORI 2005
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Seniors Seeking Health Information Need Help Crossing "Digital Divide"
Use of Internet
0
10
20
30
40
50
60
70
80
50-64 65-74 75+
age group
%
Voelker R JAMA. 2005;293:1310-1312.
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Multi-agent Systems in Development
• Patients’ electronic rights represented and protected by their agents
• Agents interacting on behalf of patients with electronic systems including web services, databases, and agents representing other individuals, organisations and functions.
patientagent
collator
Web service:Trials list
audit +regs
trialsData?
Data?
History
Anonymised
Access?LogsSuitable?
Trials
GPsurgery
hospital
other stakeholders…
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Ferguson T, Inverting the power Pyramid, Consumer Health informatics, Healthcare Forum, 1995
Record linked data and the web enables the Information Revolution in health care
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