Patient-Initiated Research

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©2011 MFMER | 3139261-1 Advancement of Rare Disease Research through Social Networking SCAD Study

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Slides and video from the Oct. 18, 2011 discussion of patient-initiated research into spontaneous coronary artery dissection (SCAD) at the Social Media Summit in Rochester, Minn.

Transcript of Patient-Initiated Research

Page 1: Patient-Initiated Research

©2011 MFMER | 3139261-1

Advancement of Rare Disease Research through Social Networking

SCAD Study

Page 2: Patient-Initiated Research

©2011 MFMER | 3139261-2

SCAD?

Findings being published in

MAYO CLINICPROCEEDINGS

September 2011 issue


Conducting Investigator-Initiated Research in a Community ...

Conducting Investigator-Initiated Research in a Community ...

Intention to Leave among Self-initiated Academic ...hrmars.com/hrmars_papers/Intention_to_Leave_among_Self-initiated... · International Journal of Academic Research in Business and

Intention to Leave among Self-initiated Academic ...hrmars.com/hrmars_papers/Intention_to_Leave_among_Self-initiated... · International Journal of Academic Research in Business and

Investigator Initiated Research Program

Investigator Initiated Research Program

Presentation: The role of the patient in pharmacovigilance ... · The role of the patient in pharmacovigilance TGA perspective ... • CLEVER project initiated in collaboration with

Presentation: The role of the patient in pharmacovigilance ... · The role of the patient in pharmacovigilance TGA perspective ... • CLEVER project initiated in collaboration with

Investigator-Initiated Research and Evaluation on … regarding the solicitation “Investigator-Initiated Research and Evaluation on Firearms Violence” April 2, 2018: A sentence

Investigator-Initiated Research and Evaluation on … regarding the solicitation “Investigator-Initiated Research and Evaluation on Firearms Violence” April 2, 2018: A sentence

Evaluation of the Locally Initiated Research Partnership ...The evaluation of the Locally Initiated Research Program (LIRP) was a team effort last-ing over several years. Edward Connors,

Evaluation of the Locally Initiated Research Partnership ...The evaluation of the Locally Initiated Research Program (LIRP) was a team effort last-ing over several years. Edward Connors,

Progress from the Patient-Centered Outcomes Research ...€¦ · Progress from the Patient-Centered Outcomes Research Institute ... PATIENT-CENTERED OUTCOMES RESEARCH INSTITUTE ...

Progress from the Patient-Centered Outcomes Research ...€¦ · Progress from the Patient-Centered Outcomes Research Institute ... PATIENT-CENTERED OUTCOMES RESEARCH INSTITUTE ...

GAO-01-459 Computer-Based Patient Records: Better · PDF fileCPRS Computer Patient Record System ... the Government Computer-Based Patient Record (GCPR) project was initiated by VA,

GAO-01-459 Computer-Based Patient Records: Better · PDF fileCPRS Computer Patient Record System ... the Government Computer-Based Patient Record (GCPR) project was initiated by VA,

PATIENT-CONTROLLED RECORDS FOR Patient -Powered Research Networks

PATIENT-CONTROLLED RECORDS FOR Patient -Powered Research Networks

Bottlenose Dolphin Research on Florida's West Coast: 4+ Decades … · 2016-01-27 · Bottlenose dolphin research was initiated in Sarasota Bay, Florida, in 1970 • Tagging initiated

Bottlenose Dolphin Research on Florida's West Coast: 4+ Decades … · 2016-01-27 · Bottlenose dolphin research was initiated in Sarasota Bay, Florida, in 1970 • Tagging initiated

Investigator Initiated-Sponsored Research (IISR)

Investigator Initiated-Sponsored Research (IISR)

Division of Physics: Investigator-Initiated Research ... · Division of Physics: Investigator-Initiated Research. Projects ... Division of Physics: ... Projects and Facilities, telephone:

Division of Physics: Investigator-Initiated Research ... · Division of Physics: Investigator-Initiated Research. Projects ... Division of Physics: ... Projects and Facilities, telephone:

PATIENT CARE EDUCATION RESEARCH

PATIENT CARE EDUCATION RESEARCH

Investigator-Initiated Research and Evaluation on Firearms · PDF fileNotices regarding the solicitation “Investigator-Initiated Research and Evaluation on Firearms Violence” February

Investigator-Initiated Research and Evaluation on Firearms · PDF fileNotices regarding the solicitation “Investigator-Initiated Research and Evaluation on Firearms Violence” February

ORIGINAL PROF-2337 PATIENT SATISFACTION; · Patient satisfaction is a relative phenomenon, which has been around since 1960’s but active research on the topic was initiated in late

ORIGINAL PROF-2337 PATIENT SATISFACTION; · Patient satisfaction is a relative phenomenon, which has been around since 1960’s but active research on the topic was initiated in late

Research Article End-Group Evaluation of HEMA Initiated Poly ...Research Article End-Group Evaluation of HEMA Initiated Poly( -caprolactone) Macromonomers via Enzymatic Ring-Opening

Research Article End-Group Evaluation of HEMA Initiated Poly ...Research Article End-Group Evaluation of HEMA Initiated Poly( -caprolactone) Macromonomers via Enzymatic Ring-Opening

GOVERNOR SIGNS ADRC-INITIATED BILL SUPPORTING …adrc.ucsd.edu/newsletter/Currents/Currents_winter_03.pdf · GOVERNOR SIGNS ADRC-INITIATED BILL SUPPORTING ALZHEIMER’S RESEARCH A

GOVERNOR SIGNS ADRC-INITIATED BILL SUPPORTING …adrc.ucsd.edu/newsletter/Currents/Currents_winter_03.pdf · GOVERNOR SIGNS ADRC-INITIATED BILL SUPPORTING ALZHEIMER’S RESEARCH A

The Playspace of Publicly Initiated Scientific Research

The Playspace of Publicly Initiated Scientific Research

Investigator-Initiated Research and Evaluation on Firearms ... · Investigator-Initiated Research and Evaluation on Firearms Violence (CFDA No. 16.560) A. Program Description Overview

Investigator-Initiated Research and Evaluation on Firearms ... · Investigator-Initiated Research and Evaluation on Firearms Violence (CFDA No. 16.560) A. Program Description Overview

Investigator-Initiated Research Grants at the NIH: Something - NIH ...

Investigator-Initiated Research Grants at the NIH: Something - NIH ...