Patient association, chapters, self support groups, programs

Zalatnai Klara - HOPA

EPF Autumn Regional Advocacy Seminar for Patient LeadersBudapest, Hungary 25-26-2 October 2010

Introduction of HOPA

• Based in Budapest • Set up in 1998 • NGO non profit umbrella

organization• 25 chapters• More than 2000 patients across

the country

• Vision:Vision: • Decreasing number of fragility

fractures• Improved quality of life of

the patients

http://www.obme.hu

Key issues

• Health education programs, campaigns about

• Prevention

• Early detection of osteoporosis

• Progression of the disease could be stopped

• Patients’ involvement

• In decision making process

• Lobbying

• Capacity building

Major events of HOPA

• WOD Program

• Osteoporosis Civilian Forum

• Joint program with the Rehabilitation Section of Osteoporosis Medical Society

Major programs of HOPA

• Joint program with the Rehabilitation Section of Osteoporosis Medical Society

• April 2009

• Funny Role-playing …. Patient Education and Counseling

• The art of the Therapy

Major programs of HOPA

• Osteoporosis Civilian Forum

• May 2110

• It happened to me - what about the quality of life?

Major programs of HOPA

• WOD Program

• October 20, 2110

• Don’t miss the signs of breaking spine

It is never too late - Extend

/

http://www.extend.org.uk

Sketches of kids