Patient and Public Involvement in Programme Development and Research at Maggies Mandy McMahan PhD...
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![Page 1: Patient and Public Involvement in Programme Development and Research at Maggies Mandy McMahan PhD (Clinical Psychology) Maggies Dundee & Fife mandy.mcmahan@maggiescentres.org.](https://reader036.fdocuments.us/reader036/viewer/2022062417/55173d09550346fe558b61e2/html5/thumbnails/1.jpg)
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Patient and Public Involvement in Programme Development and Research at Maggie’s
Mandy McMahanPhD (Clinical Psychology)Maggie’s Dundee & [email protected]
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Maggie’s: A foundation of patient & public involvement• Maggie Keswick Jencks & Charles Jencks
“Above all, what matters is
not to lose the joy of living in
the fear of dying”
www.maggiescentres.org
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Maggie’s Programme of Support
Remains Well
Remission
Long Term Effects
DiagnosisPrimary
TreatmentRecurrence
Active and Advanced Disease
2nd and Subsequent Treatments
End of Life
Maggie's Support Programme
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Quality assurance & Research
Programme development and evaluation
Getting Started
3-hour group workshop for patients & carers before or at beginning stages of treatment
Education & discussion about managing side effects, keeping physically active, nutrition and well-being
Where Now?
6-week post treatment programme
Personalised exercise & nutrition, stress management & well-being
Patient & Carer perceptions of barriers to participating in Maggie’s services
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Programme Development
Getting Started & Where Now?
Partnership
Wellness Community & Lance Armstrong Foundation
Pilot
Frankly Speaking & Cancer Transitions
Evaluation & Feedback
Standard measures + participant feedback and comments
Integration & Development
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Research: Identifying barriers to services & participation
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Research: Identifying barriers to services & participation
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Research: Identifying barriers
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Research: Identifying barriers to services & participation
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Research: Identifying barriers
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Research: Identifying barriers
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