Participatory design, the "Making" of Health and the Future of Diabetes Technology
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Transcript of Participatory design, the "Making" of Health and the Future of Diabetes Technology
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John Costik, Adrien de Croy, Weston Nordgren II, The Nightscout community, Joyce Lee, MD, MPH, Doctor as Designer
Participatory Design, the “Making” of Health,
and the Future of Diabetes Technology
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Co-director-Mott Mobile
Technology for Enhancing Health
Social Media Editor, JAMA Pediatrics
Healthdesignby.us
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Hard to !nd Too many
Uncertain Quality Uncertain Bene!t
Lack of link to provider Lack information on security/data
The promise of mobile health has yet to be realized
Eng DS, Lee JM. The Promise and Peril of Mobile Health Applications for Diabetes and Endocrinology. Pediatric Diabetes 2013: 14: 231–238.
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75% of children fail to achieve recommended
blood sugar goals in Type 1 Diabetes
Diabetes through the eyes of healthcare
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But is it really their fault? Look at this series of
#design #fails
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What do those buttons mean & why are they so hard to press?
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Why are the menus all different and confusing? A green screen? Really?
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Why does your doctor ask you to keep a paper
logbook? To practice your penmanship?
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Hi-tech #dataviz in the clinic! Circles for highs, triangles for lows?
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Which cord? A desktop software program? No cloud connectivity?
Really?
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#waiting
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#waiting
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How many different data displays are there for all the different
meters/pumps?
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Not so helpful? Not so Interactive? Not so useful?
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Oh and the devices don’t talk to each other, so many caregivers still
use paper for communication
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Don’t forget to fax BS to your MD and wait for a rotary phone call!
Kid: “Mom, what’s a fax? Is it compatible with Snapchat?”
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“Design was at fault, not the operators”
-Don Norman
http://bit.ly/1xcgR4Z
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http://bit.ly/1wIvdc6
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75% of health care providers/systems fail to help children achieve recommended blood sugar
goals in Type 1 Diabetes
Diabetes through the eyes of a designer
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Patient problems are really
design problems
Joyce Lee Medical Designer
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Fix the design, and it’s no longer the
patient’s problem
Joyce Lee Medical Designer
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Let patients and caregivers design, and they will
!x the problem!
The Nightscout Project
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But we have to overcome the #cultureofhealthcare
which says:
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“D!"#$r%&'(e)*+, & d-./0c!123n4567 a-5'8h9:;<p9=#>,?N@A'BaC*;Dt%”
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“OEFG0c9=#Hf45I0h9JK8h/iELM>t-N'Br!O;>s4PQ3l%:
sRPMSd?T;0c-5U8iEV'd4JW,t9X'8eYZQ$l!VG”
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“D!"#$t%& t%'()o*+,- i. c/012e3 B4 t50 d6'78r &
c69:;n< F=> t50 p?@A$nB”
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Have you guys heard about the
Nightscout Project?
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Patient as
expert maker
collaborator #thefutureofdiabetestechnology
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Patient as
expert http://bit.ly/10IUyph
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Patient as
maker
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John Costik
Adrien de Croy
Weston Nordgren II
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John Costik
Adrien de Croy
Weston Nordgren II
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MD to Patient Passive Solitary
#currentdiabetestechinnovation
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Patient to Patient Active
Collaborative
#futurediabetestechinnovation
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THANK YOU John Costik
Adrien de Croy Weston Nordgren II
The Nightscout/#doc community David Klonoff
Twitter: @NightscoutProj
FB: CGM in the Cloud #wearenotwaiting