IMPACT REPORT

(502) 254-3388PARKINSONCENTER.ORG

315 Townepark Circle, Suite 100Louisville, KY 40243

PARKINSONSUPPORTCENTER

2018

RESOURCE GUIDE

2018 BOARD OFFICERS Jerry BloomChairWHAS-iHeart Media

PresidentDan HeinsHumana

VP of PartnershipsPaul BlakeleyBetter Business Bureau TreasurerMatt WestfallARGI Financial Group SecretaryJoan PrenticeHosparus (Retired) 2018 BOARD MEMBERS

Sonya L. DisingerMidwest Canvas Products, Inc.

Dennis WhittingtonYUM! (Retired) Tom GoodwinAtria Senior Living Group Inc Barry ElliottElliott Medical

Emily WittTrilogy Health Services

Erik PrenticeProactive Worldwide, Inc. Curt SlaytonConsulting Services International, LLC April BuchananKindred at Home John BaumannThe Inspiring Esquire Russell CottonRaymond James Peter MasseyTrilogy Health Services

Steve WalshFord (Retired) Barbara M. NicholsEmeritus Gayle ZoellerEmeritus StaffErika BranchExecutive Director Brenda PeixottoOffice Manager

IMPACT LETTER

There is no question that Parkinson’s awareness is increasing in our community. The number of newly diagnosed assistance calls and requests for resource assistance has significantly increased within the last year. The Parkinson Support Center is continuing to meet these demands. Our independent, grassroots approach affords us the opportunity to be the first resource to many families even before diagnosis. Our mission to provide education, exercise and support is in forefront when servicing the community. Living Well with Parkinson’s disease is more than a slogan; it is an imperative life adjustment that is adopted by the constituents we serve.

In the first 6 months of 2018, we have: held the first ever Parkinson’s disease symposium in Evansville, Indiana which hosted 175 attendees; formed a partnership with TKO Parkinson’s to afford 40 individuals the opportunity to participate in the Rock Steady Boxing exercise program free of charge; and celebrated the start of The Women’s Support Group and addition of the Essential Tremor’s Support Group. Our service does not stop there.

Most recent accomplishments are the expansion of support resources by offering the monthly Caregiver Help Web Series. This series allows us to reach targeted rural, under-served areas of Kentucky and Indiana. Lastly, 10 individuals were treated to the Feet to the Fire Writers’ Workshop. Feet to the Fire Writers’ Workshop offers a place to belong in a circle of writers. Participants are motivated weekly by a skilled writing instructor, and are able to share with others in an intimate, close, salon-style workshop.

As you can see we are committed to providing awareness and education to the local Parkinson’s community. For the first time in our organization’s history we now offer 100 % of our services free to the community!

Thank you to our sponsors and incredible donors. If you have not done so, I urge you to consider joining our PD Champion monthly giving campaign. Every dollar raised will ensure that our constituents in Kentucky and Indiana are Living Well with Parkinson’s disease.

Erika Branch, Executive DirectorOctober 2018

Promoting a healthier and

improved quality of life for those living with parkinson’s

disease in our community.

Education

living well with parkinsons symposium

buddy programmedication managment

PD 101DeGraaf Caregiver’s

Exercise

yogarocky steady boxing

delay the diseasefight back with fitness

DanceWise for PD

Support Groups

18Support Groups

serving 45 counties in Kentucky and Indiana.

Feet to the Fire Writers’ Workshop Journal entry – 9-16-2018

THE DIAGNOSIS, “YOU HAVE PARKINSON’S DISEASE”

Looking back, I don’t remember the reason my family physician suggested that I see a neurologist. I don’t remember how long ago it was – a year, year and a half, two years or longer? They say Parkinson’s sometimes creates memory loss. But it affects every-one differently. My wife says she has trouble remembering things too, and after all she is 77 and I am 78 years old. Maybe it was my lack of facial expression, a slight change in my ability to articulate, or it could have been the fact that my penmanship was getting worse and Judy, who is so loving and supportive, began to complain that it was harder to read my ever diminishing scribbles.

When I saw the Neurologist, Nurse Practitioner, she asked me to follow her finger with my eyes, then asked me to touch my nose with my right pointer finger – then the same thing with my left finger, and I thought I did pretty well. There were some written questions on a questionnaire I filled out. After about a twenty or thirty minute conversation, she told me that she thought that I did in fact have Parkinson’s disease, but she scheduled a brain scan just to be sure and the results confirmed the diagnosis.

Before my diagnosis of “PD”, in my earlier years, I had experienced several stitches in my leg without local anesthetics, oral surgery as a teen; then much later in life, open heart surgery, several stint surgeries to open clogged arteries, two knee replacements, two or three colonoscopies, and

most recently in 2016, the placement of three screws in my right ankle (which still is uncomfortable at times). The hardest to endure was physical therapy after the knee replacements –which came about 6 months apart. At one point I broke down in tears and said “I quit!” Well I thought, “If I could manage all of those experiences, how bad could PD be?”

I was told that PD was a neurological condition that affected the amount of dopamine released by the brain which in turn interfered with the signals sent by the brain to the extremities. I experienced no visual signs like “the shakes” or tremors which were visual symptoms for Michael J. Fox and Muhammed Ali. I was told the tremors were common in many cases but not all and the disease affected different people in different ways.

I was curious – so I began to checkout web sites and did some research. My friend I met in a PD writing class, “Parkie” (her name for her personal experience with PD) can erode your confidence at times and at other times it can actually be a blessing in disguise.

At first I was reluctant to tell people about my diagnosis and I began to withdraw from some of our friends and social contacts. One night after spending several hours with our Condo Book Group, I realized how isolated I felt and how reluctant I had been to interact with people. I talked it over with Judy after reading Lucky Man by M.J. Fox and decided I would try to be more willing to share my diagnosis and be more open. The results were both liberating and reassuring. Later, when I discussed the diagnosis with a member of the same book group, he suggested I read an article in Sports Illustrated about Brian Grant, a pro basketball player and his experiences with PD. When I went to the library and read the article, it felt so good to know that someone in my book group, who I admired and respected – “He Understood!” It seems the more I share my diagnosis, the more support I receive in return.

Louisville has a Parkinson’s disease Support Center in Middletown where I now participate in a “Feet to the Fire” writing class (which incidentally is the reason I am writing this Journal entry). I’ve made some good friends here. And this is just one of the many blessings like mediation/affirmation tapes, golf lessons, Tai-Chi, physical therapy (that doesn’t make me cry). (Pause) These activities are some of the many blessings I’ve received as a result of my diagnosis, “You have Parkinson’s disease.”

Richard Thomas

EXCERPTS FROM MY PD STORY by Steve Walsh, Board Member & Volunteer

My PD story - Chapter 1 “The Diagnosis”

It was late summer 2014. I had already begun counting the days to my retirement in November. A few weeks earlier during a family vacation our daughter (an RN) Jessie had spotted the symptoms - shuffling gait, left arm not swinging as I walked - and suggested I might have Parkinson’s Disease. Now I was sitting in the neurologist’s office listening to the doctor confirm Jessie’s diagnosis.

My PD Story - Chapter 2 “Navigating the Stages of Grief ”

People often compare receiving a life altering diagnosis with losing a loved one. In a sense that is exactly what has happened. The patient and their loved ones have lost their “pre-PD” family member or friend and despite their best efforts that person is not coming back. The question then becomes how do we move forward? I’m not going to turn this post into a textbook on handling grief. I only want to make 2 points here. Please note these are my personal opinions.

Point 1. You cannot effectively begin to fight PD until you reach the Acceptance stage. This does not mean you simply skip the first four stages. You simply cannot get stuck in the first four stages. You need to get angry. It’s OK to feel “why me?” The danger is getting stuck in one of these stages and therefore being unable to effectively combat the disease.

Point 2. Just because you have reached the Acceptance stage, that does not mean you will never again experience the first four stages. Let’s face it, a part of us will continue to be angry about having PD. We just need to focus that anger into positive pursuits like exercise, fund raising and volunteerism. The same is true for the other phases. It’s OK to “visit” them periodically, just don’t get stuck there.

My PD Story - Chapter 3 “The Caregiver”

While we normally think of a Caregiver as an individual there are situations where the role is performed by several family members and/or friends. These caregiver “teams” support not only their patient but each other as well. It is important to remember that Caregivers need somebody to lean on from time to time as well.

Here’s one more thing to consider. I get up each day as a PD patient. It is not a choice. If it were I would choose not to have PD. My wife Terry gets up each morning and chooses to be my primary Caregiver. I will never lose sight of that.

Be sure to take a few minutes today (and everyday) to thank the Caregiver in your patient’s life.

My PD Story - Chapter 4 “The Journey Continues”

We all have a story. Thus far my PD Story only has a beginning. Every day I have the opportunity to write the next line, paragraph or chapter in my story. We all have the same opportunity. So here’s our challenge. Will we take charge of our own story or will we let events and situations beyond our control write it for us?

Every week I see people in exercise classes, support group meetings, symposiums and other gatherings who are taking charge and writing their own stories. If you are having trouble getting started, contact the Parkinson Support Center of Kentuckiana. The Support Center has a wide variety of opportunities to help you write your next chapter. Who knows? Maybe we’ll end up being characters in each other’s story.

The story continues: givegab.com/users/565419/reflections

I HAVE PARKINSON’S

It is so sad that even today the medical world does not recognize signs of Parkinson’s. Early detection is so important! If I only knew then what I know now; studies have shown that exercise is so important to the disease and slows the progression.

Family and friends early on (late 40’s) started to notice that something was wrong with me. I will never forget my Aunt Lois saying, Genny the doctors are not getting it. There is something seriously wrong with you. With time, the symptoms were getting worse. I was afraid to tell my family doctor. He will think I’m crazy. So many people newly diagnosed have said the same thing.Three years ago, I was finally diagnosed with the disease at the age of 56. I want to educate anyone who will listen. By the time I was diagnosed I had already lost about 70 to 80% of the chemical dopamine which allows my muscles to move.

Every year, 50,000 people in the United States are diagnosed with Parkinson’s disease. Parkinson’s is a brain disease associated with a loss of Dopamine producing nerve cells deep in the brain. Dopamine is a chemical that helps regulate the body’s movement. Essentially, less Dopamine leads to less mobility and less control over one’s movements.

Parkinson’s is both a chronic and progressive disease. In fact tremors, slowness, or stiffness begin in most people in most people after 80% of certain dopamine producing nerve cells have degenerated. That said, it’s important to note that each person’s experience with symptoms of Parkinson’s can vary widely.

Primary movement problems can include:

• Rest tremors, a rhythmic shaking in your arm or leg;

• Brady kinesis, or slowness in movement;

• Rigidity or stiffness in the arms, legs, neck or back muscles;

• Walking problems such as stooped posture, decreased arm swing and shuffling steps;

• Balance problems, typically experienced in the later stages of the disease.We do not know what causes Parkinson’s disease however, scientists and researchers believe a combination of genetic and environmental factors are involved. Parkinson’s is the second most common neurological disease (after Alzheimer’s) in the United States, affecting between 1 million to 1.5 million Americans. The majority of cases occur in people older than 65; about 60 percent of them male.

How is Parkinson diagnosed? Because it can take so many forms and is very individualized, Parkinson’s disease can be difficult to diagnose.

We are too silent about this disease. We are afraid to tell our family and friends. I am turning 60 this year. I will no longer be silent! I Have Parkinson’s.

I take one day at a time. I have a strong faith and believe in miracles. I am truly blessed to have a good support system, including my husband, family and friends. I will fight this disease till I take my last breath. I have Parkinson’s. Thank you for listening.

Genevieve White – Rock Steady Boxing Participant

PROGRAM & SERVICE HIGHLIGHTS

IN 2018, PSC:

• Facilitated 18 support groups and 10 exercise classes to people with PD and their caregivers

• Added the Women’s, Essential Tremor and Masonic Homes support groups

• Held the Living Well Symposium in Louisville and Evansville with 450 attendees

• Hosted a Showcase of Programs

• Kicked off the 4th year of the PD Buddy Program

• Hosted several community education programs on topics such as PD Psychosis and DBS Therapy

• Provided Parkinson’s Outreach to Southern Indiana Rehab Hospital, Lions Club Louisville East, St. Augustine Health Fair

PSC relies on like-minded community partners to help us more effectively serve people with PD and their caregivers. Thanks to all of our strategic partners who enable us to deliver life-changing programs and services to people throughout the region and across the state.

SPECIALITY PROGRAMS

• Feet to the Fire Writers’ Workshops

• PD Buddy Program

• Medication Management

• Caregiver Help Web Series

STRATEGIC PARTNERSHIPS

• Bellarmine University: Let’s Dance—dance class led by Physical Therapy Department

• The Horseshoe Foundation: Move It Or Lose It—a movement and mobility class, featuring yoga, dance and pilates.

• Your Community Pharmacy: Medication Management—class helps participants manage medication (one-on-one follow-up services provided)

• Treyton Oaks: Class offerings of Fight Back with Fitness and Rock Steady Boxing

• TKO Parkinson’s: Sponsorship of Rock Steady Boxing at St. John Paul and Rock Steady Boxing Scholarships at Full Moon Martial Arts

• Pints for Parkinson’s Foundation/Gordon Biersch: Sponsorship of Living Well with Parkinson’s Symposium - Louisville

• RehabCare Kentucky Rehab Agency: Class offerings of Rock Steady Boxing

• Premier Caregiver Services: Sponsorship of Caregiver Help Web Series

The purpose of each annual symposium continues to be “living well” with Parkinson’s disease. In 2018, approximately 450 people with Parkinson’s, caregivers, family members, physicians, healthcare and senior care professionals joined us for a day of education and fellowship.

THANK YOU TO OUR WONDERFUL PRESENTERS!

Living Well with Parkinson’s Symposium – Evansville, April 2018In partnership with Parkinson’s Awareness and Support Association of the Tri-State (PASATS)

Basics of Parkinson’s DiseaseRoderick Warren, MD, Deaconess Clinic Gateway

The Role of Exercise in the Management of Parkinson’s Disease Maghan Bretz, PT, MPT, NCS St Vincent Evansville

Think BIG: The Science and Practice of LSVT BIGLaura Merten, PT, DPT, ATC, cert MDT, Progressive Health

Integrative Rehab Judith Canlas, MD, Deaconess Clinic Gateway

Communication, Cognition, Swallowing: What You Need to KnowBeth A. Titzer MS CCC SLP, St Vincent Evansville

Keynote Rev. Vicki Hopkins, B.Th. SCC/BCC

FRANCES E. LANG LIVING WELL WITH PARKINSON’S SYMPOSIUM – LOUISVILLE, OCTOBER 2018

Understanding PD & Non Motor Symptoms of PD Dr. Justin Phillips, Norton Neuroscience

Depression & IsolationRobert Underwood, PhD Neuropsychology Clinic at Frazier Rehabilitation Institute,

KentuckyOne HealthTreatment Options for PD

Dr. Abigail Rao, Norton NeuroscienceLearning about Parkinson’s Disease and OFF Time

Dr. Diego R. Torres-Russotto, University of Nebraska Medical CenterKeynotes

Joel Weintraub & Bob Tebow

2018 LIVING WELL WITH PARKINSON’S SYMPOSIUM

THANKS AND HATS OFF TO ALL!!

Once again, our supporters and friends gathered to celebrate the lives of those affected by and living with Parkinson’s. Attendees enjoyed live music, great food and the opportunity to donate more through our awesome auctions! From the generous support of this event, we raised $70,000 for PSC to continue and enhance the programs that improve the quality of life of those living with Parkinson’s disease.

We honor Mr. J.D. Nichols and Ms. Barbara Nichols for the donation of a lifetime to the Parkinson’s disease community - our Nichols Parkinson Support Center.

SPECIAL THANKS TO OUR SPONSORS – Barbara NicholsUS Worldmeds

Tom Musselman FoundationWood & Marie Hannah Foundation

Brundage JewlersGordon Biersch

SunovionAbbvieAcadia

LundbeckBallotin

MedtronicRepublic Bank

Louisville PodiatryProactive Worldwide

RESOURCE GUIDEPARKINSONSUPPORTCENTER

2018

INTRODUCTION 1 PARKINSON’S 101 SYMPTOMS OF PD

CARE MANAGEMENT 5 COMMON PD MEDS PHARMACUTICAL COMPANIES

MEDICAL & SERVICE PROFESSIONALS 12 HOSPITALS & DOCTORS INTERGRATIVE HOLISTIC SERVICES LEGAL, MENTAL HEALTH, SPEECH

SOCIAL SERVICES 18 ADULT DAY CARE ADULT PROTECTIVE SERVICES AREA AGING AGENCIES HOUSING SENIOR CENTERS SOCIAL SERVICES/MEDICARE

TRANSPORTATION & MOBILITY 23 DISABLED PARKING PERMITS/SPACES MOBILITY & ASSISTIVE AIDES • BUSINESSES AND ORGANIZATIONS TRANSPORTATION

TABLE OF CONTENTS

I

II

III

IV

V

INTRODUCTION

PARKINSON’S DISEASE 101

Parkinson’s was originally described in 1817 by James Parkinson’ in his Essay on the Shaking Palsy. What researchers have come to understand is that Parkinson’s Disease is a neurological disorder in which there is a gradual loss of brain cells that make and store dopamine. Dopamine is a chemical in the brain, known as a neurotransmitter, which sends messages that control movement. As PD progresses, more dopamine neurons in the brain are lost.

The primary symptoms of PD are movement related, and include: resting tremor, rigidity and slowness of movement. However, many patients also experience non-movement related symptoms such as cognitive impairment, mood changes, constipation and blood pressure problems.

The causes of PD remain unknown, although researchers believe the disease may be brought on by a combination of environmental and genetic factors. Available treatments help to reduce some of the symptoms but there is currently no treatment that can slow or stop the disease from progressing over time. Much research is ongoing to identify strategies for improving treatment of PD in the future.

Source: PARTNERS IN PARKINSON’S—PARKINSON’S DISEASE GUIDE

Parkinson’s patients experience a wide range of symptoms and it varies for each person. There is no diagnostic test that determines whether a person has developed PD, rather a thorough examination of one’s medical history and a physical examination helps to detect symptoms synonymous with PD.

Movement/Motor-Related

• Bradykinesia: slowing down and loss of spontaneous and voluntary movement

• Rigidity: unusual stiffness in a limb or other body part

• Resting Tremor: an uncontrollable movement that affects a limb when it is at rest • and usually stops for the duration of a voluntary movement

• Postural Instability: problems with standing or walking, or impaired balance • and coordination, which can lead to falls

• Dystonia: involuntary movement with a muscle contraction, such as a cramp

• Reduced facial expression: “mask-like” face due to bradykinesia

• Speech and swallowing problems

Other Treatment-Related Symptoms

• Dyskinesia: involuntary twisting/turning, jerky movements that can result from• long-term use of medications that treat PD

• Impulse Control: inability to resist an impulse that is harmful to self or others• that can result from use of medications that treat PD

SYMPTOMS OF PD

1 2

INTRODUCTION

NON-MOTOR RELATED SYMPTOMS

• Cognitive Impairment: decline in ability to multi-task and/or concentrate; • potential decline in intellectual functioning and onset of psychosis

• Mood changes: can include depression, apathy or anxiety

• Sleep disorders: REM sleep behavior disorder, for example, where • individuals act out their dreams

• Hyposmia: loss of sense of smell

• Fatigue

• Constipation

• Bladder problems: a sudden need to urinate or incontinence

• Orthostatic Hypotension: low blood pressure upon standing

• Central Pain: pain other than pain caused by posture problems or dystonia

CARE MANAGEMENT

MEDICATION MANAGEMENT

Because many Parkinson’s symptoms are due to the lack of dopamine—the brain chemical that plays an important role in behavior, coordination and mobility— patients are commonly prescribed dopamine medications. Dopamine drug side effects include: nausea, drowsiness, low blood pressure, hallucinations and dyskinesia—writhing movements.

Choosing the right medication is directly related to the patient’s ability to handle its side effects. Balancing the ideal medication program and schedule can be easy for some and very challenging for others. Medication is most effective when taken on a regular schedule and combined with exercise, good nutrition and rest.

3 4

5 6

COMMON PD MEDS

Class Medication (common name) Function Side Effect

Levodopa

DopamineAgonists

COMT(Catechol-O-Methyl Transferase)Inhibitors

Carbidopa/Levodopa(Sinemet®)Carbidopa/Levodopa controlled re-lease (Sinemet CR®)Carbidopa/Levodpa orally disinte-grateing tablet (Parcopa®)Carbidopa/Levodopa/Entacapone (Stalevo®)

Apomorphine (Apokyn®)Bromocriptine (Parlodel®)Pramipexole (Mirapex®)Pramipexole dihydrochloride extend-ed-release (Mirapex ER®)Ropinirole (Requip®)Ropinirole extended-release tablets (Requip® XL)Rotigotine transdermal system (Neupro®)

Entacapone (Comtan®)Tolcapone (Tasmar®)

Converts intodopamine to manage major symptoms

Stimulates brain asif given dopa-mine; compliments levodopa and helps deter symptoms in between levodopa doses.

Helps extend effectof levodopa

Low blood pressure, nausea and vomiting, dyskinesia, dry mouth, dizziness

Does not cause dyskinesias, but can lead to nausea, hallucinatios, sleepi-ness and lightheadedness

Abdominal pain, back pain, constipation, nausea, diarrhea, blood in urine, liver failure

Class Medication (common name) Function Side Effect

MAO-B(Monoamineoxidase)Inhibitors

Anticholinergics

Rasagiline (Azilect®)Selegiline or deprenyl (Eldepryl®)Seleginilie HCI orally disintegrating tablet (Zelapar®)

Benztropine mesylate (Cogentin®)Procyclidine (not in US)Trihexyphenidyl (Artane®)

Blocks enzyme in the brain that breaks down levodopa.

Helps with tremors and dystonia

Dizziness, nausea, pain, headache, insomnia, rhinitis, dyskinesia, back pain, stomatitis, dyspepsia

Blurred vision, dry mouth, constipation and urinary retention

As the pharmaceutical industry continues to evolve, PD patients have many options in which to purchase meds. Below is list of PSC support-ers who are in the pharmaceutical industry.

Your Community Pharmacy3922 Willis Avenue Louisville, KY 40207

Senior Pharmacy SolutionsLynn Harrelsonwww.seniorpharmacysolutions.com 502-425-8642

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CARE MANAGEMENT

PHARMACEUTICAL COMPANIES

Abbott Medical

abbott.com

Abbvie (Duopa)

abbvie.com

Acadia Pharmaceuticals (Nuplazid)

nuplazid.com

Adamas

adamaspharma.com

Bostonscientific

bostonscientific.com

Impax

impaxlabs.com

Lundbeck (Northera)

northera.com

Medtronic, Inc. (Restorative Therapies Group)

medtronicdbs.com

UCB (Neupro)

www.neupro.com

US World Meds (Apokyn) (XADAGO)

usworldmeds.com

NEED HELP PAYING FOR MEDS?

Check with the manufacturer of your prescription medication to de-termine if there is a patient assistance program. You can find infor-mation regarding patient prescription programs here:

Needy Meds

needymeds.org • 800-503-6897

Partnership for Prescription Assistance

pparx.org • 888-808-1213

Patient Access Network Foundation (PANF)

panfoundation.org/parkinsons-disease • 866-316-7263

RX Assistance

rxassist.org • 800-888-344-8915

Select Care Benefits Network

Myrxadvocate.com • 877-331-0362

Together Rx Access

togetherrxaccess.com • 800-444-4106

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MEDCIAL & SERVICE PROFESSIONALS

HOSPITALS & DOCTORS

Because PD affects different parts of the body, patients may find themselves seeing multiple medical professions to treat specific aspects of the disease. The following is list of area hospitals and professionals associated with these facilities who care for PD patients.

University of Louisville / Jewish Hospital (Kentucky One Health)Frazier Rehab Institute and Neuroscience Center

220 Abraham Flexner Way, Suite 606 (40202)uoflphysicians.com/parkinsons-disease-and-movement-disorders

Kathrin LaFaver, MD (Neurologist, Center Director) Phone: 502-582-7654Victoria Holiday, MD (Neurologist) 502-582-7654Laura Dixon, DNP, APRN (Nurse Practitioner) 502-582-7654Joseph Neimat, MD. MS (Neurosurgeon)

Norton Hospital (and Norton-Brownsboro) /Neuroscience Institute—Cressman Parkinson’s Center

4950 Norton Healthcare Blvd (40241)nortonhealthcare.com/parkinsonsdisease

Angela Hardwick, MD (Neurologist) 502-394-6460Mohammad Alsorogi, MD (Neurologist) 502-394-6460Justin Phillips, MD (Neurologist) 502-394-6460Elizabeth Ulanowski, PT, DPT, NCS 502-446-8520David Sun, M.D., Ph.D. (Neurosurgeon) 502-394-6460 Abigail Rao, MD (Neurosurgeon) 502-394-6460

Norton Hospital210 E. Gray Street, Suite 1105 (40202)502-583-1697

University of Kentucky800 Rose Street, Lexington, KY 40536Neurology, 859-323-5661 ukneurology.com

Craig van Horne, MD (Neurosurgeon) 859-323-1334Greg Gerhardt, MD (Neurology Professor) 606-323-4531John Slevin, MD—Movement Disorder Clinic 859-323-5661

Cardinal Hill Rehabilitation Hospital2050 Versailles RoadLexington, KY 40504cardinalhillhealthsouth.com859-254-5701

KentuckyOne Health200 Abraham Flexner Way, Louisville, KY 40202kentuckyonehealth.org 502.587.4011

St. Joseph’s HospitalMatthew Tutt, MD (Neurosurgeon)1401 Harroldsburg Road, Suite A-540Lexington, KY 40504kentuckyonehealth.org 859-258-6783

Lake Cumberland Neurosurgical Clinic75 Hail Knob RoadSomerset, KY 42503Amr El-Naggar, MD (Neurosurgeon)Magdy El-Kalliny, MD (Neurosurgeon)lcnc-ky.com 606-678-9617

Southern Indiana Rehab HospitalJen Robinson, PT3104 Blackiston Blvd. New Albany, IN 47150sirh.org 812-941-8300

Wellstone Regional Hospital2700 Vissing Park Rd,Jeffersonville, IN 47130wellstonehospital.com 812-284-8000

8.50 x 3.50 in

8.50 x 5.50in

11 12

MEDCIAL & SERVICE PROFESSIONALS

CARE & THERAPY SERVICES

These companies and professionals provide an array of services that help families create personalized, innovative care plans. The following abbreviations describe their services:

cardiopulmonary spec

daily living assistance

financial planning

homemaking

memory care-assisted living

nutrition/wellness

occupational therapy

safe stride

personal care

physical therapy

skilled nursing

social work

speech therapy

transportation

respite care

CAR

DLA

FP

HC

MC

NW

OT

SAF

PC

PT

SN

SO

ST

TP

RC

Caregivers/Home Care

Age Transitions2300 Meadow , Ste 208 (40218)www.agetransitions.com502-509-9416 OfficeNW

BrightStar Care400 Blankenbaker Pkwy, Ste 301 (40243)www.brightstarcare.com502-893-4700DLA, TP, SN

CareSource10200 Forest Green Boulevard Suite 400 Louisville, Kentucky 40223 502.213.4700

Caregivers Health Network9510 Ormsby Station Rd Ste. 103 (40223)www.healthcare4pplcom502-423-4336 or 502-773-2223DLA, NW, RC, SN, TP MC

FirstLight Home Care3761 Johnson Hall Dr (40041)www.flightlighthomecare.com502-434-3030DLA, HC, RC

Home Instead Senior Care4610 Taylorsville Rd,Louisville, KY 40220502-221-3919www.homehealthlouisville.comMC

Kindred at Home Hospice680 South 4th St (40202) www.gentiva.com502-596-7700CAR, OT, PT, SAF, SN, ST

Right at Home500 Executive Park (40207)www.louisville.rightathome.net502-897-0580DLA, HC, NW, RC

Senior Care Experts145 Thierman Ln (40207)www.srcareexperts.org502-896-2316HC, FP, NW, RC, TP

Silver Tree Home Care10608 Watterson Center Ct., Ste. 102 (40299)www.homecarelouisville.net (502) 240-6464

Thrive at Beckley Creek13700 English Villa Dr,Louisville, KY 40245502 354-4029Www.thriveatbeckleycreek.com

Premier Caregiver Servicespremiercgs.com 502-548-1239 DLA, FP, HC, PC, TP, RC

RehabCare 108 Diagnostic Dr Suite C, (40601) (502) 607-8910 OT, PT

Therapy

Lotus 9 Studio3701 Lexington Rd. (40207)www.amyguytonlouisville.com502-897-6300

Inner Light Consultants/Acupuncturist305 Lyndon Ln (40222) drjamesodell.com502- 429-8835

Paws with Purposewww.pawswithpurpose.org502-689-0804info@pawswithpurpose.org

Exercise & Fitness

Get Fit Todaygetfittoday@hotmail.com502-550-2754

Yogayogawarriors.com/teachers/ginny-firstgfirst67@gmail.com502-689-3114

Tai ChiMdbernstrom@gmail.com

Nu Chapter Tai ChiNuchaptertaichi@gmail.com502-779-08501313 Bardstown Rd rear en-tranceLou KY 40204nuchaptertaichi.com

Motion Studio3211 Grant Line Rd. #13 (47150)motionstudioonline.com812-207-4434

502 Power Yoga Studio2210 Dundee Rd. (40205)502poweryoga.com502-208-1012

DanceNancy UrbscheitBellarmine University2001 Newburg Rd (40205)nurbscheit@bellarmine.edu

Aqua FitnessBenjamin SnyderHome of the Innocents1100 E. Market St. (40206)bsnyder@homeoftheinnocents.org 502-596-1141

DanceWise Elena Diehl dancewiseforparkinsons.com

Ask about LSVT!

Lee Silverman Voice Treatment - LOUD (LSVT LOUD) is one of the most widely practiced treatments for speech disorders associated with Parkinson’s disease. It focuses on increasing vocal loudness and has an intensive approach of one month. Speech therapy andspecifically LSVT LOUD may

improve voice and speech function in PD.

lsvtglobal.com/clinicians

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MEDCIAL & SERVICE PROFESSIONALS

LEGAL & FIANCIAL

Kentucky Elderlaw, PLLC920 Dupont Rd, Ste 200 (40207)www.kyelderlaw.com502-581-1111

Elder Law of Louisville4500 Bowling Blvd, Ste 150 (40207)elderlawoflouisville.com502-410-5080

Schad & Schad Trial Lawyers223 E Spring St (47150)www.schadlaw.com812-945-4555

Elder Advisers4965 U.S. 42, Ste 1000 (40222)elderadvisers.com/ 800-763-7930

Alexander Investment Services12701 Townepark Way # 303,Louisville, KY 40243(502) 459-4414

MENTAL HEALTH—LOUISVILLE, KY

Centerstone of KY (formerly Seven Counties)10101 Lynn St. Rd. Suite 600 (40223)sevencounties.org 502-589-860024-Hour Hope Now Hotline 502- 589-4313 or 1-800-221-0446Make A First Appointment 502 589-1100 or 1-800-264-8799

Edelson & Associateswww.edelsonandassociates.info7511 New LaGrange Rd (40222)502-423-1151

CREATING A PERSONAL SUPPORT TEAMNo matter where you are in your treatment,

it is important to have a Support Team. The following is a recommended list of a variety of individuals who can assist:

Movement Disorder SpecialistA neurologist who is trained specifically to treat movement disorders., such as Parkinson’s

disease. Movement disorder specialists must complete their residency training in neurology and then complete additional training (a fellowship) in movement disorders.

Physician/NeurologistResponsible for directing your care. They are seen as the lead in your treat-ment program and

should be consulted if you have any questions or concerns.

Nurse/CaregiverHelps with specific or daily personal care and needs.

Physical TherapistUses specially designed exercises and equipment to help patients regain or improve their

physical abilities

Occupational TherapistHelps regain independence of daily activities

Speech TherapistWorks to improve speaking, swallowing, reading and writing

Dietitian • Social Worker /Case Manager • PharmacistChaplain/Spiritual Leader • Psychologist/Neuropsychologist

Legal and Financial Planners

Other Tips:• Find a Support Group

• Access Community Health Networks Join a Clinical Trial• Attend Education Conferences

Graven & Associates, PLLC.421 Benjamin Ln, Ste. 202 (40222)www.louisvillepsychologist.com502-690-8024

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ADULT PROTECTIVE SERVICES

KY Cabinet for Health and Family Services

Family and Adult Consultative Services Branch (40621)chfs.ky.gov502-564-4527

Adult Protective and General Adult Services are directed toward preserving vulnerable individuals’ independence and/or protecting them from abuse, neglect and/or exploitation. Field staff who provide these services are located in each county at the Department for Community Based Services office.

AREA AGING AGENCIES

Kentuckiana Planning and Development Agency (KIPDA)

11520 Commonwealth Drive (40299)kipda.org502-266-6084

Provides regional planning, review and technical services in the areas of public administration, social services and transportation as well as community ridesharing programs. KIPDA also coordinates services for persons 60 years of age and over. KIPDA also coordi-nates services and/or people with disabilities, caregivers, and sen-iors.

Louisville Metro Department of Community Services701 Ormsby Ave, Ste. 201 (40203)

Meals on Wheels (Metro Dept. Community Services Program)louisvilleky.gov/government/community-services502-574-5050

Provide information on community resources to aging and disabled citizens and the community at large. Educate community on needs of aging and disabled citizens; serve as resource for giving infor-mation and referrals to individual citizens; provide consultation to community groups on aging and disability issues.

COMMUNITY & SOCIAL SERVICES

ADULT DAY CENTERS

Alternative Adult Day Center 147 Wilma Ave (40229)alternativehc.org 502-955-1750

Tri County Comm. Action AgencyCaring Adult Day Center 1015 Dispatchers Way (40031)tricountycaaky.org 502-222-1349

ElderClub @ Oak & Acorn Adult Day Health Center 631 S. 28th St (40211)elderserveinc.org/programs/senior-center-at-oak-acorn/ 502-778-7418

Fern Creek/HighviewUnited Ministries Adult Day Center 9300 Beulah Church Rd (40291)fchum.org/contactus.php 502-762-9618

Highland Comm. Ministries2000 Douglas Blvd (40205)hcmss.org 502-459-4887

Multi-Purpose CAAShelbyville 207 Washington St(40065)mpcaa.org502-633-2218

Southwest YMCA Adult Day Health Center 2800 Ford-Haven Rd (40214)ymcalouisville.org 502-933-9622, ext. 234

South Louisville Community Ministries—Adult Day Center 4100 Southern Pkwy (40214)slcm.org 502-365-7989

Adult day centers are community-based programs for adults who need supervision throughout the day. Centers provide structured activities to meet the physical, mental, social and/or emotional needs of the participant. Eligibility is based on assessment results with a sliding scale fee. Attendance is structured to meet the participant’s needs. Contact KIPDA (502) 266-5571 to complete an over-the-phone intake for yourself or a loved one to attend any of the centers listed below.

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COMMUNITY & SOCIAL SERVICESElderServe215 W. Breckinridge St. (40203)www.elderserveinc.org(502) 587-8673

COMMUNITY & SOCIAL SERVICESJewish Family and Career Services2821 Klempner Way (40205)jfcslouisville.org (502) 452-6341

Metro United Way 334 E. Broadway 40204metrounitedway.org(502) 583-2821Dial 211 or 1-877-566-4968 to connect to various services

HOUSINGThere are many housing options in Louisville. Fol-lowing is a listing of companies . This is not an endorsement of any company.

Assisted Living Locators of Louisville9850 Von Allman Ct. Ste 201 (40241)www.161.assistedlivinglocators.com(502) 208-4072

Belmont Village Senior Living4600 Bowling Blvd (40207)belmontvillage.com(502) 721-7500

Clarity Pointe Louisville13700 English Villa Dr. (40245) claritypointe.com(502) 354-4029

Episcopal Church Home7504 Westport Rd (40222)episcopalchurchhome.org (502) 736-7800Forest Hills Commons

Forest Hills Commons9107 Taylorsville Rd, (40299)www.ascseniorcare.com(502) 499-5533 or (800) 788-2501

Franciscan Healthcare Center3625 Fern Valley Rd (40219)www.trilogyhs.com (502) 964-3381

Friendship Health & Rehab7400 Friendship Dr. (40056)www.friendshipky.com(502) 241-8821

Genesis Healthcare / specializing in Short Stay care & Long-term care.Regis Woods, 4604 Lowe Rd, 40220(502) 451-1401

Klondike Center, 3802 Klondike Lane; 40218; phone: (502) 452-1579Regency Center, 1550 Raydale Dr, 40219(502) 968-6600

Green Valley Care Center / private nursing home accepts Medicare and Medicaid3118 Green Valley Rd, New Albany (47150)greenvalleycarecenter.com(812) 945-2341

Hosparus3532 Ephraim McDowell Dr (40205)www.hosparus.org (502) 456-6200 or (800) 264-0521

Magnolia Springs East8225 Whipps Mill Rd (40222)magnolia-springs.net (502) 716-5160

Nazareth Home2000 Newburg Rd (40205)nazhome.org(502) 459-9681

Treyton Oak Tower211 W Oak St, (40203) treytonoaktowers.com (502) 589-3211

Trilogy Health Services303 N Hurstbourne Pkwy #200 (40222)trilogyhs.com(502) 412-5847

Masonic Communities of Kentucky 3701 Frankfort Ave 40207 502-259-9627

LOUISVILLE METRO PARKS(AIR) Adaptive and Inclusive Recreation1300 Heafer Rd, (40223)Mon-Thur: 9:00 AM- 9PM—Fri: 1-6PM—Sat: 10AM-2PM(502) 456-8148

SENIOR CENTERSFlaget Senior Center 4425 Greenwood Ave (40211)louisvilleky.gov/government/parks/flaget-se-nior-centeramped 502-574-2831 Mon-Thurs: 9:00 a.m. to 12:00 p.m.Fri: CLOSED

Wilderness Road Senior Center 8111 Blue Lick Rd (40219)louisvilleky.gov/government/parks/senior-services 502-964-5151Mon-Fri: 8:00AM-5PM

COMMUNITY & SOCIAL SERVICES — OTHERDaniel H Ruckriegel Sr Center10631 Watterson Tr (40299)jeffersontownky.gov/index.aspx?nid=129502-267-9112Mon-Fri: 8:00AM-3:00PM

Louisville Free Public Library301 York St (40203)lfpl.org Phone: 502- 574-1611

Oak and Acorn Intergenerational Center

TRANSPORTATION & MOBILITY

MOBILITY & ASSISTIVE AIDES

Local Businesses

Gould’s Discount Medical3901 Dutchman’s Ln (40207)www.gouldsdiscountmedical.com502-491-2000—ask about other locations

Web-based Businesses

Free Rider USAwww.freeriderusa.comIn-Step Mobility Products, Inc.Walking Aids Designed Specifically for Neurological Conditionsustep.com1-800-558-7837

LiftWareliftware.com(weekdays 6am–5pm PACIFIC TIME)415-894-5438

Luggie Scootersluggiescooters.com877-701-0572

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TRANSPORTATION & MOBILITY

DISABLED PARKING PERMITS

Applications for handicapped parking permits and plates are available at the County Clerk’s Office in Kentucky or the License Bureau in Indiana.

KENTUCKYJefferson County Clerk502-574-5700jeffersoncountyclerk.org

• Motor Vehicle & Boats

• Disabled Parking

• Obtain form from Clerk’s office (available online)

• Form needs physician’s signature and notarized

• Small fee

DISABLED PARKING SPACESResidents of Metro Louisville and the City of New Albany can apply to have an Accessible Parking Zone (disabled parking space) installed to allow for accessible on-street parking near their home. Fees apply.

Louisville Metro Public Works Departmenthttps://louisvilleky.gov/public-works502-574-5810

City of New Albany (IN)www.cityofnewalbany.com812-948-5333

INDIANAin.gov/bmv/2347.htmCathy Cousins, Customer Service ccousins@cityofnewalbany.com

Speak Up for Parkinson’s—mobile appitunes.apple.com/us/app/speak-up-for-parkinsons/id784117908?mt=8

Guardian Medical Monitoringguardianmedicalmonitoring.com 800-782-9688

Zounds Hearing of Louisville168 N. Hurstbourne Pkwy (40222)zoundshearing.com/LouisvilleMonday, Wednesday and Friday 9:00 – 5:00 Seen by appointment only 502-883-1090

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ORGANIZATIONSenTECH @ Spalding University812 South Third St (40203)www.entech.spalding.edu502-992-2448As part of the Auerback School of Occupational Therapy, enTECH’s outreach is focused in the local area, region and state. enTECH has numerous programs and services to assist individuals who require alternative ways of participating in educational, community living and activities of daily living.

Kentucky Assistive Technology Network8412 Westport Rd (40242)www.katsnet.org502-429-0145The KATS Network serves as the Assistive Technology Act Program for the State of Kentucky. Our mission is to make assistive technology (AT) information, devices and services easily obtainable for people of any age and/or disability, their families, employers and employment service providers, educators, healthcare and social service providers.

Kentucky Assistive Technology Loan Corporation275 East Main St (40621)katlc.ky.gov877-675-0195 (TOLL FREE)The Kentucky Assistive Technology Loan Corporation (KATLC) offers low interest loans for qualified applicants with disabilities who need assistive technology. Working with its lending partner, Fifth Third Bank, KATLC can provide loans for modified vehicles, hearing aids, adapted computers, mobility devices, augmentative communication devices or any other type of equipment or home modification that will improve the quality of life or increase the independence of Kentuckians with disabilities.

Need a Ramp?Ramps can be rented, purchased, pre-made or constructed. Unfortunately, many insurance plans provide limited funding for the cost of ramp installation. The following organizations assist, but note, there may be extensive waiting lists (up to a year).

Center for Accessible Living 502-589-6620Lifespan Resources (New Albany IN) 812 948-8330New Directions (Repair Affair) 502-589-2272New Directions (New Albany IN) 502-719-7139

TRANSPORTATION & MOBILITY

TRANSPORTATION SERVICESJewish Family and Career Services2821 Klempner Way (40205)www.jfcslouisville.org 502-452-6341JFCS has a Senior Consignor and a variety of services to meet the health, social, personal, transportation, housing and safety needs.

TARC 31000 W Broadway (40203)www.ridetarc.org/tarc3-paratransit-forms502-213-3217TARC 3 Paratransit Service provides public transportation for people with disabilities who cannot use regular fixed-route bus service. TARC 3 Paratransit service is a shared-ride public transportation system, en-abling routes and schedules to be structured to transport multiple pas-sengers on the same vehicle to multiple destinations. Anyone who would like to check an address and is unable to utilize the interactive map or prefers not to use it is welcome to call the ParatransitEligibility Office 502.213.3217 for assistance.

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SOCIAL SECURITY/MEDICARE/MEDICAIDU.S. Social Security Administration601 West Broadway (40202) www.ssa.gov(866) 716-9671

10503 Timberwood Cir, #50 (40223)socialsecurityhop.com/offices/social-security-office-louisville-ky-40223-kentucky

3700 Blackiston Blvd (47150)socialsecurityhop.com/offices/social-security-office-new-albany-in-47150-indiana(800) 772-1213

Passport Health PlanMember Services: 1-800-578-0603 | TDD 1-800-691-55665100 COMMERCE CROSSING DR. (40229) (502) 632-3663Passport Health Plan (Passport) is a local nonprofit community-based health plan administering Kentucky Med-icaid benefits.

ADVOCACYMedicare Access Network of Kentuckymedicarexaccessky.org

Partners in Parkinson’spartnersinparkinsons.org

Oasis Senior Advisors Louisville(502) 631-3002OasisSeniorAdvisors.com/Louisville

CARE MANAGEMENT

PHARMACEUTICAL COMPANIES

Abbvie (Duopa)www.abbvie.com

Acadia Pharmaceuticals (Nuplazid) www.nuplazid.com

Lundbeck (Northera) www.northera.com

Medtronic, Inc. (Restorative Therapies Group)www.medtronicdbs.com

UCB (Neupro) www.neupro.com

US World Meds (Apokyn)www.usworldmeds.com

10

GETTING BACK TO YOU Medtronic DBS Therapy for Parkinson’s

“Before DBS Therapy, I couldn’t tie my shoes, button my shirts, or tie my own tie. After the therapy, I could do all of those things myself.”

JerryReceiving DBS Therapy

For more information, visit MedtronicDBS.com or call 877-438-3574

Medtronic DBS Therapy for Parkinson’s is not for everyone. Not everyone will receive the same results. Patients should always discuss the potential risks

a physician. A prescription is required.

DBS Therapy requires brain surgery. Risks of brain surgery may include serious complications such as coma, bleeding inside the brain, stroke, seizures, and infection. DBS Therapy may cause worsening of some symptoms. See Important Safety Information www.medtronicdbs.com/parkinsons-important-safety-information/index.htm or call Medtronic at 800-328-0810.

UC201801225 EN ©2017 Medtronic. All Rights Reserved.

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TRANSPORTATION & MOBILITY

DISABLED PARKING PERMITSApplications for handicapped parking permits and plates are available at the County Clerk’s Office in Kentucky or the License Bureau in Indiana.

DISABLED PARKING SPACESResidents of Metro Louisville and the City of New Albany can apply to have an Accessible Parking Zone (disabled parking space) installed to allow for accessible on-street parking near their home. Fees apply.

Louisville Metro Public Works Departmenthttps://louisvilleky.gov/public-works502-574-3893

City of New Albany (IN)www.cityofnewalbany.com812-948-5336

KENTUCKYJefferson County Clerkwww.jeffersoncountyclerk.org502-574-4700

INDIANAwww.in.gov/bmv/2347.htmCathy Cousins, Customer Service ccousins@cityofnewalbany.com

• Motor Vehicle & Boats• Disabled Parking• Obtain form from Clerk’s office (available online)• Form needs physician’s signature and must be notarized• Small fee

HANDICAPPED PARKING PERMITS

Norton Neuroscience Institute and Cressman Parkinson’s Center offer the region’s most comprehensive team

of fellowship-trained neurologists, neurosurgeons and neuropsychologists. They strive to provide excellent

care and improve the quality of life for people living with Parkinson’s disease and other movement disorders.

COMPREHENSIVE CARE FOR MOVEMENT DISORDERS

SPECIALISTS IN MOVEMENT DISORDERS

Mohammad S. Alsorogi, M.D., M.S., neurology; Bradley S. Folley, Ph.D., neuropsychology;

Angela M. Hardwick, M.D., neurology; Justin T. Phillips, M.D., neurology; Abigail J. Rao, M.D.,

functional neurosurgery; David A. Sun, M.D., Ph.D., neurosurgery

To schedule an appointment, call (502) 629-1234.

(502) 254-3388PARKINSONCENTER.ORG

315 Townepark Circle, Suite 100Louisville, KY 40243