Overview of AD and Models of Caregiving Ministry
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Transcript of Overview of AD and Models of Caregiving Ministry
Overview of AD and Models of
Caregiving Ministry
ByKaren Robinson, PhD, PMHCNS-BC,
FAANProfessor, ULSON
Definition of Family Caregiving
“Extraordinary care involving significant expenditure of time and energy often for months or years, requiring the performance of tasks that may be physically demanding and unpleasant “
(Schulz, 2001)
Statistics about Dementia
AD effects approximately 4.5 million Americans
Number effected has doubled since 1980
Estimates by year 2050, 11.3 million effected
Average person lives 8-10 years with the disease, but some live as long as 20 years
Demographic and Social Trends
7 of 10 persons live at home Family caregivers provide 75% of care
More people growing older
More people “dying longer”
Smaller families
Working women
Mobility – caregiving at a distance
Spouse Caregivers
Older-Advanced Age Poor Physical Health At Risk for Increased Mortality Sometimes die before PWD
Types of Care ProvidedInstrumental
Activities of Daily Living (98%): meals,transportation, shopping, housework
Activities of Daily Living (51%): dressing, bathing, toileting, mobility
Medication management (23%)
Dementia: Types LOTs of variability
in presentation! Within specific types . . . BETWEEN types . . .
Overlapping syndromes are common Dementia AND delirium Mixed dementia
Types
Effects on CaregiversLess time for
other family/leisure
Suffer from mental health/emotional stress problems
Physical health/ strain problems
Financial hardships
Work-related adjustments (e.g. fewer hours, schedule changes, less demanding jobs) “opportunity costs”
Stages of Dementia
Early - Forgetful Middle - Confused Later - Ambulatory Terminal -
Endstage
Spiritual Support
Persons with Dementia have Long Term Memory
Sing old songs Repeat old prayers Enjoy the presence of a joyful spirit Try not to offer sermons Group is stronger than individual
interaction
Familiar Hymns and Passages of Scripture
Amazing Grace Blessed Assurance In the Garden Jesus Loves Me Old Rugged Cross What a Friend We Have in Jesus
Scripture Passages
Genesis 1:1-2 John 3:16Psalm 23Proverbs 3: 5-6John 3:3 Romans 6:23
Emotional Support
Get the person’s attention before you speak
Make person feel like a VIP Help the person maintain as much of
“themselves” as possible=you remember them
Break requests down into smaller conceptual units
Remember the importance of the presence of the caregiver
Worship with Cognitively Impaired
Those elements memorized as a child will work well
Employ rhythm, clapping or sensorial devices to keep the group tracking together
Must all elements of worship be engaged in by all congregation?
What is the Caregivers Program of Research?
CPR is a dementia-specific, caregiver-focused education, support, and research program affiliated with the University of Louisville School of Nursing.
CPR currently serves family caregivers in the Louisville metropolitan area, including southern Indiana
Enrollment Criteria
Medical Diagnosis PWD Caregiver Willing to Sign Research
Consent PWD Residing in Community/at
Home Interview =45 Minutes of HSC
Skill Building
Family Focus=Same Understanding Increased Knowledge about Disease
Process Management of PWD Behavior
Problems Use of Community Resources
Outcomes of Caregiver Program of Research
Decreased Caregiver Depression Improved Management of PWD Decreased Frequency of PWD
Problem Behavior
Caregiver Coping MechanismsPrayer 74%Talking with friends/relatives
66%
Exercising 38%Hobbies 36%Professionals (e.g. counselors)
16%
Medications 7%Alcohol 3%
Spirituality Improves Coping
Use spiritual behaviors to enhance coping with demands of caregiving!!
Reading Spiritual Material The Book of Ruth
Naomi—Elimelech Ruth—Mahlon
Orpah—Chilion
Nourish Your Spirit
Increased capacity to give care
Caregiving is inherently spiritual
Greater potential to find meaning in the care we provide
Nurture Faith and Spirituality Find a sense of purpose in
caregiving
Continue to engage in spiritual activity
Use prayer, journaling, meditation, reading materials etc.
Try different modes of spirituality
Contact Information
Call 502-852-CARE (2273) OR Call U of L School of Nursing Research Assistant Samantha Davis, MSSW