OtherHalf – Chinese Stem Cell Initiative. Who is OtherHalf? Grassroots organization established in...

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OtherHalf – Chinese Stem Cell Initiative

Transcript of OtherHalf – Chinese Stem Cell Initiative. Who is OtherHalf? Grassroots organization established in...

Page 1: OtherHalf – Chinese Stem Cell Initiative. Who is OtherHalf? Grassroots organization established in 2008 to raise awareness of the urgent need for more.

OtherHalf – Chinese Stem Cell Initiative

Page 2: OtherHalf – Chinese Stem Cell Initiative. Who is OtherHalf? Grassroots organization established in 2008 to raise awareness of the urgent need for more.

Who is OtherHalf?

• Grassroots organization established in 2008 to raise awareness of the urgent need for more Chinese Canadians in the stem cell donor registry.

• Registered charity with Canada Revenue Agency with offices in Toronto & Vancouver.

• A Community Partner of OneMatch Stem Cell and Marrow Network, a division of Canadian Blood Services.

Page 3: OtherHalf – Chinese Stem Cell Initiative. Who is OtherHalf? Grassroots organization established in 2008 to raise awareness of the urgent need for more.

OtherHalf’s Mission

• To help increase the number of stem cell donations to Chinese patients by educating and recruiting committed unrelated donors into the network

Page 4: OtherHalf – Chinese Stem Cell Initiative. Who is OtherHalf? Grassroots organization established in 2008 to raise awareness of the urgent need for more.

Who needs Stem Cell Donation?

• Adults and children with life threatening diseases– leukemia– aplastic anemia– immune

system/metabolic disorders

Page 5: OtherHalf – Chinese Stem Cell Initiative. Who is OtherHalf? Grassroots organization established in 2008 to raise awareness of the urgent need for more.

Why the urgency?

• Only 25 % of patients will find a match from a sibling for transplant.

• Therefore, 75% of patients need stem cells from an unrelated donor.

• Patients are mostly likely to find their match from donors of same ethnicity.

• Chinese are under represented in the global stem cell database: 4% Chinese vs. 85% Caucasians

• About 20% of Chinese patients can find a match

Page 6: OtherHalf – Chinese Stem Cell Initiative. Who is OtherHalf? Grassroots organization established in 2008 to raise awareness of the urgent need for more.

The case for better donor registry in Canada

• Today, most Canadian patients undergoing stem cell transplants need to “import” donated stem cell from another country.

• If a donor can be found in the OneMatch donor registry, the time it takes to confirm donation and proceed to transplant would be much shorter. This improves the patient’s prognosis.

• Importing stem cells costs tax payers more money than using stem cells from fellow Canadians.

Page 7: OtherHalf – Chinese Stem Cell Initiative. Who is OtherHalf? Grassroots organization established in 2008 to raise awareness of the urgent need for more.

Number of Chinese Canadian Searchables*

* according to data from OneMatch

Page 8: OtherHalf – Chinese Stem Cell Initiative. Who is OtherHalf? Grassroots organization established in 2008 to raise awareness of the urgent need for more.

OneMatch donor registryGlobal donor database (bmdw.org)

Stem Cell Donor Network

Page 9: OtherHalf – Chinese Stem Cell Initiative. Who is OtherHalf? Grassroots organization established in 2008 to raise awareness of the urgent need for more.

% Chance of finding a donor

Why we need your help

Page 10: OtherHalf – Chinese Stem Cell Initiative. Who is OtherHalf? Grassroots organization established in 2008 to raise awareness of the urgent need for more.

Current Patients(33 Chinese patients in Canada)

Page 11: OtherHalf – Chinese Stem Cell Initiative. Who is OtherHalf? Grassroots organization established in 2008 to raise awareness of the urgent need for more.

Patients whose “HLA Twin” gave them the Gift of Life

Page 12: OtherHalf – Chinese Stem Cell Initiative. Who is OtherHalf? Grassroots organization established in 2008 to raise awareness of the urgent need for more.

In Memoriam

Carolyn Tam1970 - 2009

Steve Pho1987 - 2010

Jason Cheung1987 - 2010

Janet Leung1985 - 2012

Page 13: OtherHalf – Chinese Stem Cell Initiative. Who is OtherHalf? Grassroots organization established in 2008 to raise awareness of the urgent need for more.

How can YOU help?

Between 17 – 35, register as stem cell donor today

Tell 5 friends to sign up @ www.OneMatch.ca

www.facebook.com/ChineseStemCell

Volunteer at our drives

Fundraise for OtherHalf

Page 14: OtherHalf – Chinese Stem Cell Initiative. Who is OtherHalf? Grassroots organization established in 2008 to raise awareness of the urgent need for more.

BE THE ONE…to help save a life

www.ChineseStemCell.ca

/ChineseStemCell