Omair Sana Foundation (OSF)Striving for Thalassaemia free Pakistan ...

Omair Sana Foundation: Intro

• Omair Sana Foundation (OSF) is an initiative taken back in 2002 by a Pakistan-born American doctor, Kashif Hussain Ansari. The Foundation is named after two kids, Omair and Sana, he lost to Blood Diseases. Under his leadership, OSF is run and managed by a group of highly qualified professionals from different walks of life.

• OSF’s Mission - (RREAL)• R – Relief• R – Rehabilitation• E – Emergency• A – Advocacy• L - Lobbying

• The Foundation offers capacity building support to other thalassaemia centers across the country.

• OSF also provides health relief in disaster situations.

Omair Sana Foundation: Scope of Work

Prevention• Family Screening• Mass Screening• CVS• Genetic Counseling• Community Participation• Research

Patient Support• Blood Transfusion• Pathological Lab• Consultation and

Medication• Iron Chelation

Rehabilitation• Education• Social Activities• Economic Assistance

Scope of Work

Prevention

• Family Screening• Mass Screening• CVS• Genetic Counseling• Community

Participation• Research

• CVS – Over 1200 performed; 300 aborted. Mostly from rural Sindh and Baluchistan .

• So far - 3500 Individuals of 525 families have been screened.

• On an average - 11,000 individuals screened annually, 7% minors reported.

• Awareness Material

• Research papers published in national and international journals.

• Over 200 workshops and 300 lectures held covering over 50,000 people. Thalassaemia Prevention program in leading educational institutions.

Research Paper 2014

Research Paper 2012

Research Paper 2012

Research Poster presentation 2015

Research Poster Presentation 2013

Research Poster Presentation 2012

Research Collaborations

• Austrian Red Cross Headquarter, Vienna, Austria

• Department of Hematology and Oncology ,AOR Villa Sofia-V. Cervello , Palermo ,Italy

• Blood Transfusion Centre of Slovenia ,Ljubljana, Slovenia

• Department of Microbiology and Molecular Genetics, University of Punjab, Lahore

• National Institute of Blood Disease And Bone Marrow Transplantation , Karachi

• National Center for Proteomics , University of Karachi

• Dow University of Health Sciences, Karachi

Austrian Red Cross (ARC) Headquarter, Vienna, Austria

• Complete Training on Red Cell antigen genotyping.

• Discussed Thalassemia management ,prevention and Blood Transfusion with ARC people.

Department of Hematology, AOR Villa Sofia-V. Cervello , Palermo ,Italy

• Completed Training on cell culture process, their flow cytometric counts ,their drug treatment for cell and real time PCR for gamma globin mRNA .

• Observed the whole process of Gene therapy for thalassemia.

Blood Transfusion Centre of Slovenia ,Ljubljana, Slovenia

• Completed Training on Free Fetal Rh D typing with maternal plasma.

• Discussed Free fetal screening for Thalassemia with experts.

National Center for Proteomics , University of Karachi

Proteomic Analysis of Maternal Serum for Prenatal Beta-Thalassemia Screening

Plasma Proteomics analysis of Hydroxyurea treated patients suffering from Thalassemia

Currently Running Projects

National Institute of Blood Disease And Bone Marrow Transplantation , Karachi

Association of Xmn1,Bcl 11A and Myc-b polymorphism and response to Hb F augmenting agent (Hydroxycarbamide)

in Beta Thalassaemia Intermedia and Beta Thalassaemia Major

Currently Running Project

Prevention

Scope of Work

• 12 bedded transfusion facility.

• Over 400 thalassaemia registered patients.

• On an average - 500 blood transfusions every month.

• Free consultation and medication.

• Regular iron chelation.

• More than 1400 different tests performed every month.

Patient Support

• Blood Transfusion• Pathological Lab.• Consultation and

Medication• Iron Chelation• Research

Patient Support

Scope of Work

• Supporting 80 thalassaemia children with stationary, books, uniform and school fees etc.

• Picnics, parties, fun galas and religious events.

• Financial support and grocery.

• Employment support and financing.

Rehabilitation• Education• Social Activities• Economic Assistance

Omair Sana Foundation (OSF)Striving for Thalassaemia free Pakistan ...

www.omairsana.com