NPSDD and the measure of activity and participation (MAP): employment data

Sarah Craig and Anne Doyle, Health Research Board.

Structure of presentation Introduction to the National Physical and

Sensory Disability Database (NPSDD) Outline of information collected Overview of the Measure of Activity and

Participation (MAP) Benefits of MAP Data on employment and participation Future developments

The NPSDD

Established in 2002 as a service planning tool

Managed by HRB for the DOHCaptures information on current

and future need for specialist disability services

Circa 25,000 people

Purpose of NPSDDImprove accuracy of planning dataGuide future service development

Registration Criteria:Have a persistent physical and/or sensory or

speech/language disabilityLess than 66 years of ageReceiving or requiring specialised health

and personal social servicesHave consented to being on the database

What is collected? Service user details Therapeutic/rehabilitation services Personal assistance and support Technical aids and appliances Type of disability (physical, visual, hearing,

speech and language) Diagnosis Measure of activity and participation

(added in 2004) >16 years only 12,444 respondents (2010 data)

Measure of Activity and Participation (MAP) Three broad areas based on WHO’s ICF:

Barriers & challenges

ParticipationExtent of restriction

WHODAS IIDifficulties experienced in day to day living

Barriers and challenges

Physical environmentServices, support and informationPeople’s attitudesTransportLaws and entitlementsIncomeClimate/weather

Barriers and challenges, NPSDD, 2010

Participation restrictionEducation and trainingEmploymentCommunity/family lifeShoppingLeisure/sportsServices

% Participation restriction 2010

WHODAS II

WHO Disability Assessment Schedule IIConcentratingLearning a new taskStanding/walking/washing/getting dressedDay to day work/schoolCommunity life/dealing with peopleEmotional impact of disability

% who experienced difficulty WHODAS II, 2010

37.6 38.5

71.3 69.8

37.8 38.1

29.825.7

59.654.6 56.5

73.1

0.0

10.0

20.0

30.0

40.0

50.0

60.0

70.0

80.0

%

%

WHODAS II - Day to day work or school

  n %None 3967 15.7Mild 1199 4.8Moderate 1281 5.1Severe 955 3.8Extreme 1340 5.3Not applicable 3468 13.8Refused 234 0.9Total 12444 49.4

Benefits of MAP

Distinguishes different levels of functioning which may be better indicator of health care needs than diagnosis

Holistic view of disability – ICFCould assist with move to

individualised budgets

Benefits of MAP ctd.

Move away from impairment-based interventions

Determines impact of service on functioning/participation

Facilitates communication across disciplines (e.g therapists)

MAP and comprehensive employment strategy Remove disincentives and benefit traps, and

make work pay Ensure that people with disabilities are

equipped to compete for today’s and tomorrow’s jobs

Improve retention in employment Ensure that programmes of education, training

and employment meet the needs of all people with disabilities

Numbers on NPSDD in employment 2010

N% of all on NPSDD

(25191)

Sheltered employment 85 0.3Sheltered work 133 0.5Supported employment 143 0.6Part-time open employment

1134 4.5

Full-time open employment

1774 7.0

Total 3269 13.0

Participation restriction in employment or job seeking (of those in employment)

n % of3269

Mildly 234 7.2

Moderately 277 8.5

Severely 239 7.3

Completely 78 2.4

Total 828 25.3

Participation restriction - education & training (of those in employment)

n % of 3269

Mildly 125 3.8Moderately 171 5.2Severely 122 3.7Completely 47 1.4Total 465 14.2

Restriction in employment/job seeking

N %

Reported restriction in employment/job-seeking

5285 42.5

Total respondents 12444 100.0

Restriction in employment/job seeking (out of potential 12,444)Type of disability n %Physical disability 3508 66.4Hearing loss/deafness

263 5.0

Visual disability 305 5.8Speech/language disability

17 0.3

Multiple disabilities 1192 22.6Total 5285 100.0

Linking MAP data to service interventionsMAP provides scope to monitor

impact of services on participation in employment

Possibility to track over timeGreater focus on outcome of the

interventions

Restriction in participation, NPSDD 2010

Participation restriction by PA use/need, 2010

 

0.0 10.0 20.0 30.0 40.0 50.0 60.0 70.0 80.0

Education & training

Employment or job seeking

Community life

Family life

Socialising

Shopping

Living with dignity

Leisure/cultural activities

Sports or physical recreation

Religion

Hospital services

Mental health services

Community based health services

Currently using PA service Requiring PA service

The future?

Capture of data for those <16 years

Work to ensure that all cases on the NPSDD are up-to-date

Mainstream use of MAP (e.g. HSE Service Plan)

Questions?Thank you

scraig@hrb.iewww.hrb.ie