NPCA data submission and reporting

Update from the National Cancer Registration Service (NCRS)

2 The National Cancer Registration Service for EnglandImproving the Quality and Timeliness of Cancer Clinical Data Reported to the National Cancer Registration Service (NCRS)

The National Cancer Registration Service

Northern and Yorkshire

East Midlands

London

North West

South West

West Midlands

Oxford

Eastern

8 NCRS Regional Offices

160+ Trusts submitting to

NCRS

*

3 NPCA Data Collection

Dimensions of the NCRS

Periodic Data Feeds Cancer Registration

Hospital Episodes Statistics

Office of National Statistics

Cancer Waiting Times

1700 MDTs per

week 200k records

per month

160+ NHS Providers

188+ Data Items per

cancer type

350k tumours spanning 42 cancer types registered per

year

Monthly Data Submission

160 expert Cancer Registration OfficersQA and integration of all these data at individual patient level across the whole pathway

4 NPCA Data Collection

Radiotherapy

Pathology

PAS

CWT

Chemo

Radiology

COSD / MDT

Open Exeter

Encore

Audit

NH

S A

cute

Tru

st

Death Cert

ONS

NatCanSat

Oxford

NCRS Data Flows

Reg

ion

al O

ffic

e

5 NPCA Data Collection

NPCA Data Submission• Monthly data submission

• NPCA data expected to be submitted alongside COSD

• Separate files, but same timescales

• Data entered once – extracted by system into appropriate report

• NCRS Data Liaison Staff using existing relationships with Trusts to encourage and support the submission of NPCA data

• Initial validation and processed into ENCORE

6 National Disease Registration: Overview of Key Programmes

NPCA Submissions: November

98

Trusts

42

Trusts

140 Trust

s

7 NPCA Data Collection

NPCA Data Quality• Submitted data

• Initial check – patient numbers in COSD v NPCA

• Data completeness of each field

• Trust by trust report

• Data liaison teams to work with trusts to improve completeness of data

8 National Disease Registration: Overview of Key Programmes

Data Quality Report

9 National Disease Registration: Overview of Key Programmes

10 National Disease Registration: Overview of Key Programmes

11 National Disease Registration: Overview of Key Programmes

12 National Disease Registration: Overview of Key Programmes

13 NPCA Data Collection

NPCA Reporting Timeline

Dia

gnos

is D

ate

(Apr

il)

Mon

th 1

Dat

a S

ubm

issi

on

(Jun

e)M

onth

2 D

ata

Sub

mis

sion

(J

uly)

Mon

th 3

Dat

a S

ubm

issi

on

(Aug

ust)

Mon

th 4

Dat

a S

ubm

issi

on

(Sep

tem

ber)

Dat

aset

1 N

PC

A

Qua

lity

Rep

ort

(End

Sep

t)

Mon

th 5

Dat

a S

ubm

issi

on

(Oct

ober

)

Dat

aset

2 &

3

NP

CA

Dat

a Q

ualit

y R

epor

t

(End

Oct

)

Mon

th 6

Dat

a S

ubm

issi

on

(Nov

embe

r)

Data Quality Feedback to Trusts

14 NPCA Data Collection

NPCA Trust Engagement• Building on existing relationships through NCRS

• Data quality reports and feedback provided via trust level reports from ENCORE via NCRS offices

• NPCA Prospective Audit data will inform 2nd Annual Report.

• Establishing timelines and final submission point annual report data; will be shared with Trusts

15 National Disease Registration: Overview of Key Programmes

Questions?