Non Governmental Organization Quality of health related ... · 3 "Cyberchondriacs" on the Rise?...
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www.hon.ch Non Governmental Organization Quality of health related information on the Web Célia Boyer Executive Director How Health2.0 may contribute to the empowerment of informed citizen Comment le Health2.0 peut contribuer à l’autonomie éclairée du citoyen Sarah Cruchet, Vincent Baujard and Célia Boyer, Executive Director
Transcript of Non Governmental Organization Quality of health related ... · 3 "Cyberchondriacs" on the Rise?...
www.hon.ch
Non Governmental Organization
Quality of health related information on the Web
Célia Boyer
Executive Director
How Health2.0 may contribute to the empowerment of informed citizen
Comment le Health2.0 peut contribuer à l’autonomie éclairée du citoyen
Sarah Cruchet, Vincent Baujard and
Célia Boyer, Executive Director
www.healthonnet.org
Outline
Presentation of HON
The context
Our motivation
Results
Conclusion
2© 2010 Foundation Health On the Net
www.healthonnet.org
The Health On the Net
Created in 1996, HON is a not-for profit foundation
Mission: HON guides Internet users by highlighting reliable, comprehensible, relevant and trustworthy sources of online health and medical information, tackling the major obstacle of Web:
the overwhelming quantity of information
the uneven quality of health information available online
Since 2002, HON Foundation is continuously recognized as a non-governmental organization and granted Special Consultative Status with the United Nations Economic and Social Council
In France, HON is the official certifying organization for French health websites (since 2007)
Funded by the Geneva state, European Commission, and the French National Health Authority
3© 2010 HON
www.healthonnet.org
The HONcode
Sponsorship Clearly distinguish advertising from editorial
content
Authoritativeness
Complementarity
Privacy
Attribution
Justifiability
Indicate the qualifications of the authors
Information should support, not replace, doctor-
patient relationship; Mission and Audience of site
Respect the privacy and confidentiality of personal
data submitted to the site by the visitor
Cite the source(s) of published information and
dating of medical and health pages
Site must back up claims relating to benefits and
performance of a specific treatment. Completeness.
Accessible presentation, identities of editor and
Webmaster, accurate and accessible email contactTransparency
Financial disclosure Identifying funding sources
http://www.HealthOnNet.org/HONcode/ 4© 2010 Foundation Health On the Net
7’300 HONcode certified sites
102 countries
+400 in Switzerland
+1’300 in France –
Collaboration at the governmental level with French Health Authority (Haute Autorité de Santé - HAS)
www.healthonnet.org
The Context
The number of Internet users continues to increase: 1/3 of the worldwide population is connected [1]
75% of the Swiss population is online . An increase of 170% in ten years [1]
The possibilities offered by information and the Internet are changing the behavior of e-patients and their relationship with their doctors. Internet is the second source of health information after the physicians [2]
In USA, the proportion of those who are online and look for health information has increased to 88% this year [3]. In France, 71 % of the respondents have gone online for searching health information [2]
1 http://www.internetworldstats.com2 Les conséquences des usages d’internet sur les relations patients –médecins, April 2010 Ipsos Public Affairs
3 "Cyberchondriacs" on the Rise? Harris Poll Interactive Jul 2010
www.healthonnet.org
The Context
Cyberchondria (increased anxiety after consulting the Internet for health information) highlights the potential impact of Internet on e-patient [1].
The health information found online affects ePatients health decision [2].
Only 34% using health information online as a source of information share their research with their physicians.
1 Cyberchondria: Studies of the Escalation of Medical Concerns inWeb Search, Microsoft Dec. 2008
2 The Social Life of Health Information, June 2009, pewinternet.org
3 Les conséquences des usages d’internet sur les relations patients –médecins, April 2010 Ipsos Public Affairs
www.healthonnet.org
Our motivation
Our investigation in 2008 amongst the doctors in Geneva for their habits and needs shows that:
88% of the 267 respondents have Internet access in their practice
46% of the respondents recommend websites to their patients
sites of specialized medical information (59%)
sites of general medical information (50%)
sites of associations of patients (50%)
sites providing ‘advice for everyday life’ (46%)
62% would use already printed "cards" containing the addresses of sites specific to certain diseases
78% would you use an Internet tool that allows them to select sites for quality and trust classified by subjects to give/send to their patients
Survey conducted in collaboration with the Association desMédecins de Genève (AMG)
www.healthonnet.org
The HON Health2.0 tool: what is it?
A web-based Health2.0 tool enabling medical professionals to create a database of their own selection of health websites tailored for their patients.
8© 2010 HON
www.healthonnet.org
Functionalities
HON proposes a selection of health sites for most common health searches
Diabetes
Alzheimer disease
Eye diseases
…
Organize your selected websites, create directories an share themEmail the list of selected websites
Integrated customized search engineFor the entire selection of sites or individual directories
www.healthonnet.org
Who is the tool for?
Patients
Physicians
Webmasters
Other medical professionals
à Individuals who want to keep an organized database of relevant health and medical websites
10© 2010 HON
www.healthonnet.org
How do I use it?
Install the selection tool
Simply drag the Health Select link into your Favorites
When you go to a health web site that you find relevant, you can now add it to your list
11© 2010 HON
www.healthonnet.org
Select and rate a website to be added to your list
The website is automatically added to your list
12© 2010 HON
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How can it help me?
Search only within your selection of websites (integrated customized search engine)
Share or send to an email address your selection of health sites
13© 2010 HON
www.healthonnet.org
A selection of health websites tailored for their patients
A thematic web page sent to the selected person
Updated automatically when you add sites to the list
Customized trustworthy search engine
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Other features of the tool
The tool has a database of trustworthy websites, providing certified health websites by topic (69 topics)
15© 2010 HON
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Awareness for quality health information online
Interactive questionnaire Evaluate health websites according to ethical and quality principles
Results: a scale of trustworthiness of the site
Explanation on the shortcomings of the site
Video raising the quality of health information online
Online course on finding trustworthy health information
www.healthonnet.org
Health website evaluation tool: to educate
17© 2010 Foundation Health On the Net
www.healthonnet.org
Conclusion
Presence of billions of health websitesHave a select few that are useful and relevant
Organize them properly
Put your own personal touch to the website through your own comments and ratings
Empower the patient-physician relationshipPhysicians can easily enable the patient to learn more about their information through online research
Patients can easily consult with their physicians based on information they find online
Learn where to find useful and relevant health and medical information online
Based on others’ recommendations/website lists
Based on HON’s database of trustworthy sites
Evaluation tool
18© 2010 HON
www.healthonnet.org
Thank you for your attention
19© 2010 Foundation Health On the Net
http://www.hon.ch/PartageEtSelection
