NHS Kidney CareSupporting Young Adults with

kidney diseaseProject assets map

April 2012

Asset mapping

• Defined as:

The process of cataloguing the resources of a community

• Approach developed and used by agencies working with and supporting communities

• Used in local authorities planning, community development and public health

• Intended to help project board identify assets that can support the long term sustainability of project learning

Supporting Young Adults with kidney disease 2010-2012

Products/ tools:WebsiteForum

YouTubeE-seminar

Literature review slide setOxford YAC film

YAC Reading How to guideAbstracts, posters, presentations, articles

Facebook How to Guide

In development:How to guides on SAF, immunosuppression…

E-seminarsEvaluation report

App(s)

Local products:Facebook pages, Twitter, Apps

NewslettersPathways

Project group modelsSelf assessment framework tool

Educational resourcesReady Steady Go transition documents

Immunosuppression protocol

Events:

BRS, RA, ESOT, KEN,

EWOPA, ERA-EDTNA

Association for Young People’s Health, YPHSIG

Diabetes UK, British Cardiovascular Society ,

Transplantation meetings

Long term conditions

Key contacts and links:Project board

Learning NetworkOther NHS KC work programmes

EB and BM contact with SSRCP transition group

BRS, RABAPN

BKPA, KPAsYoung@NKFYPHSIG, YPH

DH, You’re WelcomeTeenage cancer survivors projects

NHS Diabetes, NHS Liver CareDiabetes UK, BHF, NHS ImprovementLocal authority young people leads

Connexions

Publications and media coverage:Nursing Standard, Nursing Times, Nursing in Practice

CNO Bulletin, British Journal of Renal Medicine,Kidney Care Matters, Renal Association Website

Children, Maternity, and Families e-bulletinJournal of Renal Nursing

National Youth Agency websiteChildren and Young People Now

Kidney Life,Derby Telegraph

BBC Radio Oxford, Jack FMNewcastle Evening Chronicle

Nottingham Evening PostBBC Oxford TV, BBC Radio Tees

Synapse (Trust magazine at Nottingham)Your Local Guardian

Project championsExisting:

• Elisabeth Buggins• Beverley Matthews• Donal O’Donoghue• Sheila Shribman• Janet McDonagh• Paul Harden• Local project group

champions (see over)• Claire Lewis

(Young@NKF), other young adults

• BKPA, KPAs• BRS, RA, BAPN

Could develop:• Cancer:

NHS Improvement, DH• Diabetes: NHS Diabetes,

DH, Diabetes UK• Liver: NHS Liver Care, DH• Other transplanted organs• CF, other LTCs e.g. BHF• YPHSIG• AYPH• Director of Nursing and

Medical Director of NHS• NHS Improvement• DH CNO and CMO

Project group champions

East Midlands– Matt Tomlin (keyworker)– Charlotte Bebb– Emma Coyne– Cathy Johnson– Catherine Byrne– Wendy Hope

London + SEC– Clare Nottage (keyworker)– Sue Cox– Stephen Marks

North East

– Lorraine Lentell (keyworker)

– Laura Baines

– Margaret McQuade

South Central

– Paul Harden

– Dan Lonsdale (keyworker)

– Katy Priddis (keyworker)

South West

– Jo Woodland (keyworker)

– Sally Tutton (keyworker)

– Rachel Gair

Stakeholder power / interest matrix

Keep satisfied Partner units Commissioners Project leads NHS KC (funding provider) Young people Chief execs GPs Trust board General public Adult nephrologists Media

Encourage and influence Staff – MDT KPAs Outside organisations GPs Other LTC services Young adults Exec committee Managers Matron Media Adult nephrologists Trusts Senior nurses

Monitor

GPs Commissioners Renal nurse

Keep informed GPs Project board Trusts Local media Key worker Consultants/drs Nurses and MDT Local renal network Renal consultants Paediatrics (external referral organisations) Patients Other professionals (eg youth workers) Other renal centres in local network External agencies Connexions Social support

Pow

er

Interest Low

High

High

Some asset maps include:

• Risks: e.g. NHS reforms and funding

• Strategies to sustain:e.g. links to DH and RCP