Newly Diagnosed Children · Newly Diagnosed Children Click Here to Enter the Presentation TIME...

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Newly Diagnosed Children Click Here to Enter the Presentation TIME MONDAY, NOVEMBER 2 10:00am Maija Steenari, MD Children's Hospital Orange County (CHOC) Epilepsy 101 11:00am Pantea Sharifi-Hannauer, MD UCLA and Pediatric Minds Epilepsy & Autism 12:00pm Monika Jones, JD The Brain Recovery Project: Childhood Epilepsy Surgery Foundation Building IEP 1:00pm Cesar Santos, MD Valley Children's Healthcare Understanding your Child’s EEG TIME TUESDAY, NOVEMBER 3 10:00am Jonathan Romain, PhD Children's Hospital Orange County (CHOC) - Neuropsychology Epilepsy and Learning 11:00am Raman Sankar, MD, PhD UCLA Mattel Children's Hospital New Anti-Seizure Medications 12:00pm Arnold Sansevere, MD Boston Children's Hospital Newly Diagnosed Kids 1:00pm Courtney Wusthoff, MD Stanford Children's Health Seizures in Babies – Why Do They Occur? 2:00pm Neggy Rismanchi, MD Rady Children’s Hospital My First Seizure 3:00pm Clare Skora, MD Rady Children's Hospital San Diego Understanding Your Child’s EEG Click here to go back to ALL LIVE PRESENTATIONS Schedules The “expert” speaker paints a powerful image on the subject on which you are about to hear him/her speak. These presentations may include slides and/or movies. EADDL makes no claims as to the accuracy of any of these statements. It is up to you as the listener to evaluate these statements. This is for educational purposes only, and not intended for treatment. You agree by listening or watching any of these presentations, slide shows, or movies to not hold EADDL liable for any consequences that may result from relying on any of the advice given in these presentations.

Transcript of Newly Diagnosed Children · Newly Diagnosed Children Click Here to Enter the Presentation TIME...

Page 1: Newly Diagnosed Children · Newly Diagnosed Children Click Here to Enter the Presentation TIME MONDAY, NOVEMBER 2 10:00am Maija Steenari, MD Children's Hospital Orange County (CHOC)

Newly Diagnosed Children Click Here to Enter the Presentation

TIME MONDAY, NOVEMBER 2 10:00am Maija Steenari, MD

Children's Hospital Orange County (CHOC) Epilepsy 101

11:00am Pantea Sharifi-Hannauer, MD UCLA and Pediatric Minds

Epilepsy & Autism 12:00pm Monika Jones, JD

The Brain Recovery Project: Childhood Epilepsy Surgery Foundation

Building IEP 1:00pm Cesar Santos, MD

Valley Children's Healthcare Understanding your Child’s EEG

TIME TUESDAY, NOVEMBER 3 10:00am Jonathan Romain, PhD

Children's Hospital Orange County (CHOC) - Neuropsychology Epilepsy and Learning

11:00am Raman Sankar, MD, PhD UCLA Mattel Children's Hospital

New Anti-Seizure Medications 12:00pm Arnold Sansevere, MD

Boston Children's Hospital Newly Diagnosed Kids

1:00pm Courtney Wusthoff, MD Stanford Children's Health

Seizures in Babies – Why Do They Occur? 2:00pm Neggy Rismanchi, MD

Rady Children’s Hospital My First Seizure

3:00pm Clare Skora, MD Rady Children's Hospital San Diego

Understanding Your Child’s EEG Click here to go back to

ALL LIVE PRESENTATIONS Schedules The “expert” speaker paints a powerful image on the subject on which you are about to hear him/her speak. These presentations may include slides and/or movies. EADDL makes no claims as to the accuracy of any of these statements. It is up to you as the listener to evaluate these statements. This is for educational purposes only, and not intended for treatment. You agree by listening or watching any of these presentations, slide shows, or movies to not hold EADDL liable for any consequences that may result from relying on any of the advice given in these presentations.

Page 2: Newly Diagnosed Children · Newly Diagnosed Children Click Here to Enter the Presentation TIME MONDAY, NOVEMBER 2 10:00am Maija Steenari, MD Children's Hospital Orange County (CHOC)

Advanced Education for Children Click Here to Enter the Presentation

TIME MONDAY, NOVEMBER 2 9:00am Pilar Pichon, MD

Loma Linda University Health ESES & Status in Sleep

10:00am Jason Lerner, MD Adolescent Epilepsy Center at UCLA

Transitional Care 11:00am Don Phillips, MD

Children's Hospital Orange County (CHOC) ESES

12:00pm Joseph Sullivan, MD UCSF Benioff Children’s Hospital

New Anti-Epileptic Medications 1:00pm Monika Jones, JD

The Brain Recovery Project: Childhood Epilepsy Surgery Foundation IEP for Transition

2:00pm Dan Shrey, MD Children's Hospital Orange County (CHOC)

CT, PET, MRI and MEG: The World of Neuroimaging

TIME TUESDAY, NOVEMBER 3 9:00am Doug Nordli, MD

University of Chicago Medical Center

Pediatric Epilepsy, Genetics and EEG 10:00am Emily Spelbrink, MD, PhD & Fiona Baumer, MD

Stanford Children's Health Neurostimulation – What’s The Buzz All About

11:00am TBA 12:00pm Adam Numis, MD

UCSF Benioff Children's Hospital Neuroinflammation & Autoimmune

1:00pm Kristen Park, MD & Katie Angione, MS, CGC CGC Children's Hospital Colorado

Understanding Genetics 2:00pm Raj Rajaraman, MD

UCLA Mattel Children's Hospital Hard to Treat Epilepsy

3:00pm Joshua Loeb, MD Loma Linda University Health

Treatment of Medically Refractory Epilepsy

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The “expert” speaker paints a powerful image on the subject on which you are about to hear him/her speak. These presentations may include slides and/or movies. EADDL makes no claims as to the accuracy of any of these statements. It is up to you as the listener to evaluate these statements. This is for educational purposes only, and not intended for treatment. You agree by listening or watching any of these presentations, slide shows, or movies to not hold EADDL liable for any consequences that may result from relying on any of the advice given in these presentations.

Page 3: Newly Diagnosed Children · Newly Diagnosed Children Click Here to Enter the Presentation TIME MONDAY, NOVEMBER 2 10:00am Maija Steenari, MD Children's Hospital Orange County (CHOC)

Newly Diagnosed Adults Click Here to Enter the Presentation TIME MONDAY, NOVEMBER 2

10:00am Danielle McDermott, MD University of Colorado Hospital

Epilepsy 102: Why Do We Go to Epilepsy Centers and What are My Next Steps

11:00am TBA 12:00pm TBA 1:00pm TBA 2:00pm TBA 3:00pm TBA 4:00PM Indranil Sen-Gupta, MD

UCI Health Sleep Issues in Epilepsy

TIME TUESDAY, NOVEMBER 3 10:00am Amir Arain, MD

University of Utah, Salt Lake City Epilepsy in Geriatrics

11:00am James Park, DO Pickup Family Neurosciences Institute/Hoag

Epilepsy 101: Why an Epileptologist & Why a Level 4 12:00pm James Chen, MD

VA Greater LA Healthcare System PTSD & Epilepsy

1:00pm David Millett, MD, PhD Pickup Family Neurosciences Institute/HOAG

Understanding your EEG 2:00pm John Stern, MD

UCLA Mattel Children's Hospital New AEDs for adults

3:00pm TBA 4:00PM TBA

Click here to go back to ALL LIVE PRESENTATIONS Schedules

The “expert” speaker paints a powerful image on the subject on which you are about to hear him/her speak. These presentations may include slides and/or movies. EADDL makes no claims as to the accuracy of any of these statements. It is up to you as the listener to evaluate these statements. This is for educational purposes only, and not intended for treatment. You agree by listening or watching any of these presentations, slide shows, or movies to not hold EADDL liable for any consequences that may result from relying on any of the advice given in these presentations.

Page 4: Newly Diagnosed Children · Newly Diagnosed Children Click Here to Enter the Presentation TIME MONDAY, NOVEMBER 2 10:00am Maija Steenari, MD Children's Hospital Orange County (CHOC)

Advanced Education for Adults Click Here to Enter the Presentation

TIME MONDAY, NOVEMBER 2 9:00am Brandy Ma, MD, MPH

Houston Methodist Women Treating Women

10:00am Michael Privitera, MD University of Cincinnati

Cannabadiol 11:00am Samiya Rashid, DO

Epilepsy + Neurology Specialists Pharma for Epilepsy Adult

12:00pm Dawn Eliashiv, MD David Geffen School of Medicine at UCLA

Neurostimulation: A Look at Case Studies on VNS, RNS, and DBS

1:00pm James Park, DO Pickup Family Neurosciences Institute/HOAG

Innovations in Epilepsy 2:00pm TBA 3:00pm Jack Lin, MD

UCI Health Surgical Epilepsy

TIME TUESDAY, NOVEMBER 3 9:00am TBA

10:00am TBA 11:00am Amit Verma, MD

Houston Methodist Sleep + Epilepsy

12:00pm Lilit Mnatsakanyan, MD UCI Health

Epilepsy Comorbidities and Alternative Therapies 1:00pm Robert T. Wechsler, MD, PhD, FAES, FAAN

Idaho Comprehensive Epilepsy Center Facts and Mythology of CBD

2:00pm Mona Sazgar, MD UCI Health

Treating Epilepsy in Women 3:00PM TBA

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The “expert” speaker paints a powerful image on the subject on which you are about to hear him/her speak. These presentations may include slides and/or movies. EADDL makes no claims as to the accuracy of any of these statements. It is up to you as the listener to evaluate these statements. This is for educational purposes only, and not intended for treatment. You agree by listening or watching any of these presentations, slide shows, or movies to not hold EADDL liable for any consequences that may result from relying on any of the advice given in these presentations.

Page 5: Newly Diagnosed Children · Newly Diagnosed Children Click Here to Enter the Presentation TIME MONDAY, NOVEMBER 2 10:00am Maija Steenari, MD Children's Hospital Orange County (CHOC)

Surgical Options & Other Treatments Click Here to Enter the Presentation

TIME MONDAY, NOVEMBER 2 9:00am Deborah Holder, MD

Children's Hospital, Los Angeles (CHLA) An In Depth Look into VNS Therapy

10:00am TBA 11:00am TBA 12:00pm Sumeet Vadera, MD

UCI Health Advances in Epilepsy Surgery Technology

1:00pm Gerald Grant, MD, FACS William Gallentine, DO Stanford Medicine

The ABC’s of Pediatric Epilepsy Surgery: From Presurgical Evaluation to the Operating Room, What to Expect

2:00pm Aria Fallah, MD UCLA Mattel Children's Hospital

Surgery after Surgery 3:00pm P. David Adelson, MD

Barrow Neurological Institute at Phoenix Children's Innovations in the Diagnosis and Surgical Management

of Epilepsy

TIME TUESDAY, NOVEMBER 3 9:00am TBA

10:00am Vivek Mehta, MD Pickup Family Neurosciences Institute/HOAG

Ablation and Minimally Invasive Techniques 11:00am Steve Tulius, DC, ACP

ACP Center for Health & Human Potential Structure Affects Function: Structural Considerations in

the Evaluation and Management of Epilepsy 12:00pm Deborah Holder, MD

Children's Hospital, Los Angeles (CHLA) An In Depth Look into VNS therapy

1:00pm Sharona Ben-Haim, MD UC San Diego Health

Advanced Surgical Management of the Adult Epilepsy Patient 2:00pm Lily Tran, MD & Joffre Olaya, MD

Children's Hospital Orange County (CHOC)

Understanding Pediatric Epilepsy Surgery 3:00pm Joseph Sirven, MD & Sanjeet Grewal, MD

Mayo Clinic Jacksonville The Epilepsy Team: Surgical Choices from Working Together

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The “expert” speaker paints a powerful image on the subject on which you are about to hear him/her speak. These presentations may include slides and/or movies. EADDL makes no claims as to the accuracy of any of these statements. It is up to you as the listener to evaluate these statements. This is for educational purposes only, and not intended for treatment. You agree by listening or watching any of these presentations, slide shows, or movies to not hold EADDL liable for any consequences that may result from relying on any of the advice given in these presentations.

Page 6: Newly Diagnosed Children · Newly Diagnosed Children Click Here to Enter the Presentation TIME MONDAY, NOVEMBER 2 10:00am Maija Steenari, MD Children's Hospital Orange County (CHOC)

All Dogs, All Day Click Here to Enter the Presentation

TIME Mon, November 2 & Tue, November 3 9:00am Little Angels Service Dogs

How Dogs Alert to Seizures

10:00am Little Angels Service Dogs

How to Obtain a Service Dog

11:00am Little Angels Service Dogs

Demo, Q&A, and Facilities Tour

12:00pm Domesti-Pups

Demo

1:00pm Little Angels Service Dogs

How Dogs Alert to Seizures

2:00pm Little Angels Service Dogs

How to Obtain a Service Dog

3:00pm Little Angels Service Dogs

Demo, Q&A, and Facilities Tour

4:00pm Domesti-Pups

Demo

Click here to go back to ALL LIVE PRESENTATIONS Schedules

The “expert” speaker paints a powerful image on the subject on which you are about to hear him/her speak. These presentations may include slides and/or movies. EADDL makes no claims as to the accuracy of any of these statements. It is up to you as the listener to evaluate these statements. This is for educational purposes only, and not intended for treatment. You agree by listening or watching any of these presentations, slide shows, or movies to not hold EADDL liable for any consequences that may result from relying on any of the advice given in these presentations.

Page 7: Newly Diagnosed Children · Newly Diagnosed Children Click Here to Enter the Presentation TIME MONDAY, NOVEMBER 2 10:00am Maija Steenari, MD Children's Hospital Orange County (CHOC)

ASK THE PHARMACISTS Click Here to Enter the Presentation

TIME MONDAY, NOVEMBER 2

10:00am

Sunita Dergalust, PharmD VA Greater LA Healthcare System

10am-12pm

11:00am

12:00pm

TIME TUESDAY, NOVEMBER 3

1:00pm

Sunita Dergalust, PharmD VA Greater LA Healthcare System

1pm-3pm

2:00pm

3:00pm

Click here to go back to ALL LIVE PRESENTATIONS Schedules

The “expert” speaker paints a powerful image on the subject on which you are about to hear him/her speak. These presentations may include slides and/or movies. EADDL makes no claims as to the accuracy of any of these statements. It is up to you as the listener to evaluate these statements. This is for educational purposes only, and not intended for treatment. You agree by listening or watching any of these presentations, slide shows, or movies to not hold EADDL liable for any consequences that may result from relying on any of the advice given in these presentations.

Page 8: Newly Diagnosed Children · Newly Diagnosed Children Click Here to Enter the Presentation TIME MONDAY, NOVEMBER 2 10:00am Maija Steenari, MD Children's Hospital Orange County (CHOC)

Expo Highlights: Innovative Products, Services & Advocacy Messages

Click Here to Enter the Presentation

TIME MONDAY, NOVEMBER 2 10:00am SK LifeScience

XCOPRI Product Talk 10:30am Medtronics

Product Talk 11:00am ASET, Lifelines, Rhythmlink 12:00pm 1:00pm Aquestive

SIMPAZEM Product Talk 1:30pm ZOGENIX

FINTEPLA Product Talk 2:00pm Tom Stanton

Danny Did Foundation The Risk of SUDEP

TIME TUESDAY, NOVEMBER 3 10:00am

ASET + EEG Professionals 10:30am 11:00am 12:00pm Holly Brady

Purple Peace Foundation What is SUDEP?

1:00pm Aquestive SIMPAZEM Product Talk*

1:30pm SK LifeScience XCOPRI Product Talk*

2:00pm Medtronics Product Talk*

2:30pm ZOGENIX FINTEPLA Product Talk*

Click here to go back to ALL LIVE PRESENTATIONS Schedules

The “expert” speaker paints a powerful image on the subject on which you are about to hear him/her speak. These presentations may include slides and/or movies. EADDL makes no claims as to the accuracy of any of these statements. It is up to you as the listener to evaluate these statements. This is for educational purposes only, and not intended for treatment. You agree by listening or watching any of these presentations, slide shows, or movies to not hold EADDL liable for any consequences that may result from relying on any of the advice given in these presentations.

*This talk is pre-recorded from the previous day

Page 9: Newly Diagnosed Children · Newly Diagnosed Children Click Here to Enter the Presentation TIME MONDAY, NOVEMBER 2 10:00am Maija Steenari, MD Children's Hospital Orange County (CHOC)

Rare Epilepsies: Updates on Dravet, LGS & more Dr. Perry, TDS, PhD, and Special Guests Click Here to Enter the Presentation TIME MONDAY, NOVEMBER 2

8:00AM Elaine Wirrell, MD Mayo Clinic

Understanding the Difference between Syndrome and Etiology

8:40am Tracy Dixon-Salazar, PhD LGS Foundation

LGS: The Syndromic Example 9:20am M. Scott Perry, MD

Cook Children's Medical Center, Fort Worth, TX Dravet Syndrome/SCN1a Epilepsy: The Etiology

10:00am Dee McKnight from Invitae & Anne O’Donnell from the Broad Institute

Getting a Genetic Diagnosis 10:40am Mary Anne Meskis

Dravet Syndrome Foundation Getting to the Right Care

11:10am Kari Rosbeck TS Alliance

Getting to the Right Support 11:40am Panel Discussion 12:00pm LGS Foundation - Dance Party 1:00pm Dravet Syndrome Foundation -

Dance Party 2:00pm Rare Epilepsies - Dance Party

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The “expert” speaker paints a powerful image on the subject on which you are about to hear him/her speak. These presentations may include slides and/or movies. EADDL makes no claims as to the accuracy of any of these statements. It is up to you as the listener to evaluate these statements. This is for educational purposes only, and not intended for treatment. You agree by listening or watching any of these presentations, slide shows, or movies to not hold EADDL liable for any consequences that may result from relying on any of the advice given in these presentations.

THANK YOU TO

Page 10: Newly Diagnosed Children · Newly Diagnosed Children Click Here to Enter the Presentation TIME MONDAY, NOVEMBER 2 10:00am Maija Steenari, MD Children's Hospital Orange County (CHOC)

KETO DIET Click Here to Enter the Presentation

TIME MONDAY, NOVEMBER 2 9:00am Charlie Foundation

Videos 10:00am Ketogenic diet therapy for pediatrics 11:00am *Keto Program interviews + Q&A 12:00pm Interview w/ Jim & Nancy Abrahams 1:00pm Recipe demonstrations 2:00pm Charlie Foundation

Videos 3:00pm *Keto Program interviews + Q&A

TIME TUESDAY, NOVEMBER 3 9:00am Charlie Foundation

Videos 10:00am Ketogenic diet therapy for pediatrics 11:00am *Keto Program Interviews + Q&A 12:00pm Interview w/ Jim & Nancy Abrahams

*Previously RECORDED* 1:00pm Recipe Demonstrations 2:00pm Charlie Foundation

Videos 3:00pm *Keto Program interviews + Q&A

Click here to go back to ALL LIVE PRESENTATIONS Schedules

The “expert” speaker paints a powerful image on the subject on which you are about to hear him/her speak. These presentations may include slides and/or movies. EADDL makes no claims as to the accuracy of any of these statements. It is up to you as the listener to evaluate these statements. This is for educational purposes only, and not intended for treatment. You agree by listening or watching any of these presentations, slide shows, or movies to not hold EADDL liable for any consequences that may result from relying on any of the advice given in these presentations.

*Interviews of ketogenic specialists from hospitals from ketogenic diet therapy programs

Page 11: Newly Diagnosed Children · Newly Diagnosed Children Click Here to Enter the Presentation TIME MONDAY, NOVEMBER 2 10:00am Maija Steenari, MD Children's Hospital Orange County (CHOC)

Advocates Across America Click Here to Enter the Presentation

TIME MONDAY, NOVEMBER 2

1:00pm

Epilepsy Alliance of America, Epilepsy

support network of orange county (ESNOC) & Epilepsy Association of Utah

Meet real life advocates!

These Epilepsy warriors are in the trenches daily, educating the community, advocating for those who need help, and overall, fighting for better care for everyone with epilepsy. Come meet

these heroes, network, make a life-long connection!

2:00pm

3:00pm

4:00pm

TIME TUESDAY, NOVEMBER 3

10:00AM

Epilepsy Alliance of America, Epilepsy support network of orange county

(ESNOC) & Epilepsy Association of Utah

Meet real life advocates!

These Epilepsy warriors are in the trenches daily, educating the community, advocating for those who need help, and overall, fighting for better

care for everyone with epilepsy. Come meet these heroes, network, make a life-long connection!

11:00am

12:00pm

Click here to go back to ALL LIVE PRESENTATIONS Schedules

The “expert” speaker paints a powerful image on the subject on which you are about to hear him/her speak. These presentations may include slides and/or movies. EADDL makes no claims as to the accuracy of any of these statements. It is up to you as the listener to evaluate these statements This is for educational purposes only, and not intended for treatment. You agree by listening or watching any of these presentations, slide shows, or movies to not hold EADDL liable for any consequences that may result from relying on any of the advice given in these presentations.