New Horizons for Children and Young Adults with Medical Complexity in New York Thursday, November...

New Horizons for Children and Young Adults with Medical Complexity in New York

Thursday, November 12, 2015

New Group Home Model for Young Adults with Medical Complexity


Moderator: Richard G. Timo, Ph.D., Director of Psychology and Behavior Supports - Family Residences and Essential Enterprises

Panel: Anita Dowd-Neufeld, Sr. Vice-President – Family Residences and Essential Enterprises

Judith Vigliotti, R.N., Nurse Manager Childrens 4, St. Mary’s Hospital for Children

Josephine Rumman, R.N., Assistant Director of Nursing - Family Residences and Essential Enterprises


Vision Statement:

TOGETHER…FINDING THE RIGHT SOLUTION FOR ANY NEED

+“Emerging Population”


Spring 2014 • St. Mary’s identifies 17 older MFC & MFYA enrolled in SNF in need of complex skilled nursing care.

• Several hundred more in St. Mary’s home care programs.

• St. Mary’s partners with Family Residences and Essential Enterprises (FREE) to address the needs of this population.

Fall 2014• BIP Transformation Fund Awarded to St. Mary’s in partnership with Family Residences and Essential Enterprises. Awarded to assess and respond to the needs of aging out Medically Fragile Young Adults with I/DD diagnosis.


What is a BIP?

New York State Balancing Incentive Program (BIP) Transformation Fund was created to provide an unprecedented opportunity for organizations to make strategic investments to transform non-institutional Long Term Services and Supports (LTSS) for individuals with developmental disabilities.


Project Goals• Develop a medical supervised IRA model to support MFYA with I/DD who are aging out of pediatric care.

• Identify initial residents and carry out transitional family planning.

• Conduct formal assessments of needs of young adults with medical complexity in NYS as well as housing stock currently available to them.


Project Goals

• Convene a summit to provide an overview of this model and the needs of MFC/MFYA.

• Identify, secure, and prepare a viable facility to serve as the pilot residence.

• Recruit and train pilot team members.

• Open the first medical IRA designed to better serve young adults with I/DD and medically fragile conditions.

*Note: some goals conducted with non-BIP funding


The PROCESS:

Office for People With Developmental Disabilities (OPWDD)

DDP / TABS Front Door


STAKEHOLDERS:

•Children and Young Adults

•Parents and Families

•Community

•Government

•Model for NYS


Government and CommunityNYS Mental Hygiene Law, Section 41.34 Site Selection of Community Residential Facilities

Padavan LawNYS Olmstead PlanNeighbors


Medical Model

From PEDIATRIC to ADULT Healthcare

Staffing – Nursing and Direct Support

Policies and Procedures (DOH + OPWDD)

External Supports


Medical Model

24/7 ServicesTeam member training to initiate at St. Mary’s

Respiratory Needs Hospital Accessibility Integrated Health Case Reviews – Biopsychosocial model


FACILITY

•Parent and Family Preferences

•Property Search

•Other Program Models


Photos of Some of Family Residences and Essential Enterprises’ Existing Residences………….


TRANSITIONS

•Children / Young Adults

•Families

Balancing Safety with Letting Go


Transition eToolkit website: http://etoolkit.stmaryskids.org

Online Resource Directory: http://resources.stmaryskids.org/


GROWTHHealthSocial EmotionalSelf Actualization…


Disseminate best practices and population assessment findings to scale project statewide.


Thank you!

Contact Information: Richard G. Timo, Ph.D. [email protected]

Anita Dowd-Neufeld [email protected]

Josephine Rumman, R.N. [email protected]

Judith Vigliotti, R.N. [email protected]

mailto:[email protected]




New Horizons for Children and Young Adults with Medical Complexity in New York Thursday, November...

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