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![Page 1: New Approaches To Quality: Why Do We Think Self- Determination Works? James W. Conroy, Ph.D. Center for Outcome Analysis Southern Immersion Learning About.](https://reader035.fdocuments.us/reader035/viewer/2022070308/551c06fa550346ad4f8b4ef5/html5/thumbnails/1.jpg)
New Approaches To Quality:Why Do We Think Self-Determination Works?
James W. Conroy, Ph.D.
Center for Outcome Analysis
Southern Immersion Learning About Self-Determination
January, 2003
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How Do We Know If Something Works?
• Measurement!
• At the INDIVIDUAL level!
• Are people better off than they were before?
• This is the definition of outcomes
• “Before and after” measurement of qualities of life
• We have just completed this body of work for self-determination
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But What Is Quality?
• Isn’t it pretty much the same for everyone?
• Regardless of disability?
• Haven’t we been confusing
• Quality of Services– with
• Quality of Life?
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What Are the Common Foundations of Quality?
• Having something meaningful to do– (most common first
question - what do you do?)
• Having friends• Being loved• Being welcomed into the
life of the community• Having control over
your life
• And doing it as well as you can– (taking pride in work
or contributions, an activity identity)
• And being a friend• And loving others• And welcoming others
into your own life• And sharing control with
those you trust
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This Is Very Different Thinking Than:
• Service standards • Licensing• Certification• Accreditation• Facility reviews• ICF/MR surveys• This is not about
facilities or services – it’s about real lives, lives that make sense
out come
out·come (out¹kùm´) noun A natural result; a
consequence.
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Where’s the Data!!!???
• Robert Wood Johnson Foundation• We did our first outcome study in NH• Funded a national impact assessment• (Outcomes)• 1998-2002• Excellent “Before and After” data from six states• We also did studies in two non-RWJF states (CA
and NJ) and are still working on NC• We have solid data now from NINE states
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The Original Concept
• Self Determination:• If people gain control,
• Their lives will improve,• And costs will decrease
•(or not increase)
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Power and Control
• In order for people to gain power and control over their lives,
• First the individual planning process has to become highly person-centered,
• Respecting the wishes and hopes of the person and the person’s freely chosen allies first and foremost.
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Did Planning Become More Person-Centered?
0.0 20.0 40.0 60.0 80.0 100.0
Wisconsin*
Texas*
O hio*
New Jersey*
New Hampshire
Michigan
Maryland
Hawaii*
California*
After Before
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The Decision Control Inventory
• Asks people (or their allies) to rate who holds how much power
• In 35 areas• Paid staff – or you and your allies• Reliable (0.86 interrater)• Measures shift from paid folks to people
and their freely chosen allies• Including family, friends, and also paid
folks if the person so chooses
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OK, PCP Increased – But Did Power Shift Toward the People?• It’s important to know • Because PCP is only a
process• A genuine shift in
power would be an outcome –
• A change that a lot of people would really like!
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Did Power Really Shift?
0.0 20.0 40.0 60.0 80.0 100.0
Wisconsin*
Texas*
Ohio*
New Jersey*
New Hampshire*
Michigan*
Maryland*
Hawaii*
California*
After Before
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How Much Power Shift?
3.7
5.1
7.2
6.4
4.1
13.1
19.2
7.3
8.0
0.0 5.0 10.0 15.0 20.0 25.0
Wisconsin*
Texas*
O hio*
New Jersey*
New Hampshire*
Michigan*
Maryland*
Hawaii*
California*
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Power Over Resources?
• Yes, that definitely shifted
• Choice of home
• Choice of how personal funds are spent
• Choice of how residential public funds are spent
• Choice of provider
• Choice of support coordinator
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OK, Power Shifted Toward the People – But Did The Qualities of Their Lives
Improve?• The Quality of Life Changes Scale• Asked people to rate the qualities of their
lives• In 14 areas• When they were just beginning self-
determination• And at about 3 years into the process• Data from 9 states:
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Improvement in Perceived Quality of Life in 14 Out of 14 Areas – in Every State!
0.0 20.0 40.0 60.0 80.0 100.0
Wisconsin*
Texas*
Ohio*
New Jersey*
New Hampshire*
Michigan*
Maryland*
Hawaii*
California*
After Before
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How Large Were These Perceived Improvements in Quality?
6.5
5.6
11.2
12.6
11.3
14.3
6.6
10.2
18.4
0.0 5.0 10.0 15.0 20.0
Wisconsin*
Texas*
Ohio*
New Jersey*
New Hampshire*
Michigan*
Maryland*
Hawaii*
California*
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Those Reports Were From the People, and From Paid Folks – What Did the Families Perceive?
0.0 1.0 2.0 3.0 4.0 5.0
Family relationships
Health
Food
Health care including dental
Safety
Privacy
Comfort
Treatment by staff/attendants
What s/he does all day
Overall Quality of Life
Happiness
Seeing friends, socializing
Running own life, making choices
Getting out and getting around
After Before
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What Were the Largest Benefits the Families Saw?
0.0 0.2 0.4 0.6 0.8
Family
Health
Food
Health Care
Safety
Privacy
Comfort
Supports
Day
Life Quality
Happiness
Friends
Choices
Getting Out
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How About Friendships – That’s A Very Large Factor in Quality
0.0 5.0 10.0 15.0 20.0 25.0
California
Hawaii*
Maryland*
Michigan
New Hampshire
New Jersey
Ohio
Texas
Wisconsin*
After Before
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What About the Workers?
• The workforce is a critical issue, right?• Workers are really the determinant of
quality when all is said and done• Doesn’t self-determination just make their
jobs even harder?• Isn’t there resentment about giving up
power and control?• Won’t they like their jobs less?
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Workers’ Qualities of Work Life, Before and After
0 2 4 6 8 10
Wisconisn*
Texas*
O hio*
New Jersey
New Hampshire
Michigan
Maryland
Hawaii*
California
After Before
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Money
• The third part of the theory was that costs would stay the same
• Or go down• When people and
their allies got control of resources
• Did that happen?
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Three Solid Studies
• Good solid cost data from three states• NH
– Down 12% to 15%, depending on estimates
• MI– Down 6% to 9%, depending on estimates
• CA– All the participants’ costs went up over 3 years– But a lot less than comparable non-participants
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Cost Increases in CA, 2000-2002
Start End
Percent Change
Participants $976 $1,581 62%
Comparison $632 $1,378 118%
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The Strength of the Evidence
• Hard data from samples of participants
• In NINE states
• Over 800 people tracked for up to 3 years
• Remarkably consistent in positive direction
• Variable in size of the effects
• Partly because of recruitment of different kinds of people
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Conclusions
• With this evidence, we must conclude:• Person-centered planning increases for the
most part• Power does shift, consistently• Quality of life as judged by participants,
close workers, and families, is enhanced in 14 out of 14 areas
• Costs do stay the same or go down.
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Conclusions II
It Works
!
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Implications, Recommendations
• Better lives?• At the same or lower cost?• Who would say NO to such an
idea?• This approach works extremely
well• It should be expanded more
rapidly now• And extended and tested in
other human service fields – particularly in joining with Cash & Counseling.
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Time to Take Off?
• The Southern Collaborative
• And Louisiana• Our host this MLK
weekend• Thank you• And Godspeed in
your efforts
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Thank You – Great Conference!
Center for Outcome Analysis, 2003