NetLink - ESRD Network of Texas...Page 4 NetLink December 2015 F ed ilit P Y ilit 17 R ng e n M i n...

What is the current status of the ESRD QIP?

December 2015

Finalize PY 2017 Clinical measures

3

CMS 2744 Annual Facility Survey

6

Correcting CMS Forms

in CROWNWeb

7

News from NHSN HelpDesk

8

5-Diamond Patient Safety Program

9

KCER/FDA Alerts 10

KCER Disaster Training Materials

10

Patient Engagement Materials

10

Calendar 11

Patient’s Corner 12

Inside this Issue:

NetLink

The ESRD QIP establishes incentives for dialysis facilities serving the ESRD population to meet performance standards established by CMS. The quality measures are improved every year via rulemaking. Facility evaluations and payment reductions in a given payment year (PY) are based on performance during a prior year.

PY2016 Final Performance Score Certificates (PSCs) will be available in December 2015. All facilities are required to download, print, and display the PSC by December 31, 2015. The certificate must be posted for the entire year (January 1, 2016–December 31, 2016) in a place where other patient-directed materials are posted so that it is in plain view and easily visible for all patients (or their parents/guardians or representatives) and surveyors to inspect (76 FR 637). Facilities are required to post both English and Spanish versions of the PY2016 PSC by the first business day of 2016.

How to view the PY 2016 Final Performance Score Certificate (PSC)?

Approved users can access the QIP 1.0.0 system via www.qualitynet.org with their QualityNet Identity Management System (QIMS) ID and password, along with two-factor authentication. There are two types of accounts:

Facility Point of Contact (POC): this role has the ability to submit unlimited clarification questions, unlimited systemic clarification questions, and one formal inquiry on the facility’s behalf during the Preview Period (note: A facility can have only one Facility POC, but a user may be the Facility POC for multiple facilities).

Facility Viewer: this role will provide members with read-only access to ESRD QIP information and reports regarding members’ facilities.

Continued on page 2...

http://www.qualitynet.org

NetL ink December 2015

...Continued from page 1

If your facility needs training materials, please review the QIP 1.0.0 System Training PowerPoint presentation presented by CMS, posted on our website at http://esrdnetwork.org/professionals/qip/.

Key ESRD QIP Dates to Remember

PY2017 Performance Period (January 1-December 31, 2015)

PY2019 Rulemaking

Proposed rule published (displayed June 26, 2015)

- 60-day comment period (ended August 25, 2015)

- Final rule published (November 6, 2015)

PY2016 PSC available for download in December 2015; post within 15 business days

PY2016 payment reductions effective January 1, 2016

Problems?

If you need QualityNet.org System Assistance, please contact the QualityNet Help Desk at 866.288.8912 or [email protected].

Like us on Facebook.

To access go to www.facebook.com and log in to your account. Look under “liked pages,” and type in ESRD Network of Texas.

Follow us on Twitter

@ESRDNetworkofTX

The ESRD Network 14 NetLink is created and published under CMS contract number:

HHSM-500-2013-NW014C

End Stage Renal Disease Network of Texas, Inc. (aka: ESRD Network 14)

4040 McEwen Road, Suite 350 * Dallas, Texas * 75244

www.esrdnetwork.org * [email protected]

“Believe in yourself! Have faith in your abilities! Without a humble but reasonable confidence in your own powers you cannot be successful or happy.”

- Norman Vincent Peale

http://esrdnetwork.org/professionals/qip/

http://esrdnetwork.org/professionals/qip/

mailto:[email protected]

http://www.brainyquote.com/quotes/quotes/n/normanvinc132560.html?src=t_motivational

http://www.brainyquote.com/quotes/quotes/n/normanvinc132560.html?src=t_motivational

December 2015 NetL ink Fin

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sions:

Patien

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unger th

an 1

8 y

ears

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atients

Patien

ts on d

ialysis fo

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eek o

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ts treated at th

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es durin

g th

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onth

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ts no

t on c

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ialysis as d

efin

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rm, a R

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dd

ition

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r-

ma

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m th

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t of th

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e calculated

usin

g UK

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r Dau

girdas II m

etho

d.

Dialysis sessio

ns p

er week

is calculated

as the n

um

ber o

f dialysis sessio

ns in

the claim

divid

ed b

y the tim

e perio

d co

vered

by th

e claim, w

ith n

o ro

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-

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r the n

um

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etermin

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y (i) calculated

sessions p

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is 4 or

mo

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.88 o

n claim

; (iii) Oth

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ata (e.g. CR

OW

NW

eb) in

dicates 4

or m

ore sessio

ns p

er week.

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orted

spK

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sho

uld

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ual ren

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n.

Patien

ts with

missin

g spK

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valu

es or sp

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V=

9.9

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NetL ink December 2015 Fin

alize

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atients fo

r who

m a facility

do

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it a claim

durin

g th

e claim m

onth

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g fe

wer th

an 1

1 p

atients d

urin

g th

e perfo

rmance p

eriod

who

are (i) in-cen

ter M

edicare p

atients w

ho

hav

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at least 7 tim

es b

y th

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urin

g th

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onth

; or (ii) h

om

e dialy

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icare patien

ts for w

ho

m th

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bm

its

a claim d

urin

g th

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rting m

onth

.

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ts no

t on c

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nic d

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efined

by a co

mp

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rm o

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MIS

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OW

NW

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rd

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ta S

ou

rces

Med

icare Claim

s

RE

MIS

, CR

OW

NW

eb, an

d o

ther C

MS

ES

RD

adm

inistrativ

e d

ata (form

27

44

to o

btain

certification d

ate)

Ad

ditio

na

l Info

rma

tion

The seru

m p

ho

spho

rus v

alues rep

orted

by th

e facility are u

sed

. The facility

may o

btain

these v

alues fro

m a

n e

xtern

al source.

The m

easure w

ill be sco

red acco

rdin

g to

the fo

llow

ing fo

rmula:

Num

ber o

f Month

s Facility

Successfu

lly R

eports x

12 - 2

N

um

ber o

f Month

s in th

e Perfo

rman

ce Perio

d F

acility h

as CC

N

December 2015 NetL ink

Fin

alize

d P

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017 R

eportin

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A d

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ge (as ap

plicab

le) and

hem

oglo

bin

/hem

atocrit fo

r each M

edicare p

atient at least

once p

er mo

nth

. E

xclu

sion

s

Facilities w

ith a C

MS

certificatio

n o

n o

r after July

1, 2

01

5

In-cen

ter hem

od

ialysis p

atients treated

at a facility fe

wer th

an 7

times d

urin

g claim

mo

nth

Ho

me d

ialysis p

atients fo

r who

m a facility

do

es n

ot su

bm

it a claim

durin

g th

e claim m

onth

Facilities treatin

g fe

wer th

an 1

1 p

atients d

urin

g th

e perfo

rmance p

eriod

who

are (i) in-cen

ter M

edicare p

atients w

ho

hav

e b

een treated

at

least 7 tim

es by th

e facility d

urin

g th

e repo

rting m

onth

; or (ii) h

om

e dialy

sis Med

icare patien

ts for w

ho

m th

e facility su

bm

its a

claim d

urin

g th

e repo

rting m

onth

Patien

ts no

t diag

no

sed w

ith E

SR

D as d

efin

ed b

y a co

mp

leted 2

72

8 fo

rm o

r a RE

MIS

/CR

OW

NW

eb reco

rd D

ata

So

urces

Med

icare Claim

s

RE

MIS

, CR

OW

NW

eb, an

d o

ther C

MS

ES

RD

adm

inistrativ

e d

ata (form

27

44

to o

btain

certification d

ate) A

dd

ition

al In

form

atio

n

Hem

oglo

bin

valu

e of 9

9.9

9 is n

ot co

nsid

ered v

alid fo

r purp

oses o

f measu

re.

No

te: we w

ill no

t penalize facilities fo

r usin

g th

e defa

ult 9

9.9

9 v

alue fo

r a patien

t in h

is/her first m

onth

of treat-

ment at th

at facility.

The h

em

oglo

bin

/hem

atocrit rep

orted

by th

e facility is u

sed. T

he facility

may o

btain

this v

alu

e from

an e

xtern

al source.

No

ES

A d

osa

ge n

eed b

e record

ed if p

atient is n

ot treated

with

ES

As.

ES

A d

osag

e must b

e repo

rted v

ia HC

PC

S co

des a

nd

corresp

ond

ing u

nits, as ap

plicab

le.

The m

easure w

ill be sco

red acco

rdin

g to

the fo

llow

ing fo

rmula:

Num

ber o

f Month

s Facility

Successfu

lly R

eports x

12 - 2

N

um

ber o

f Month

s in th

e Perfo

rman

ce Perio

d F

acility h

as CC

N


CMS-2744 Annual Facility Survey

What is the CMS-2744 Form?

Each spring, representatives from Medicare-certified dialysis facilities and transplant centers work to ensure that the CMS-2744 Annual Facility Surveys are completed for their units, but many do not know for what the forms are used. The CMS-2744 form is used to record information such as treatment trends, utilization of services, and patterns of practice in treating ESRD patients. The CMS-2744 form is the only Office of Management and Budget survey of all facilities that provides valid census and dialysis patient movement information. This information is used to assess and evaluate the local, regional, and national levels of medical and social impact of ESRD care.

Each facility must complete a CMS-2744 via CROWNWeb. It captures facility, treatment, and staffing data for the survey year (January 1 – December 31 of the previous year).

CMS-2744 Completion Timeline

When should you begin the process of completing the CMS-2744 form for Survey Year 2015 in

CROWNWeb? Facilities may begin the process of completing the CMS-2744 form for

Survey Year 2015 as early as February 1, 2016, as long as ALL patient events and data

for the 2015 calendar year are in CROWNWeb prior to beginning the form. CROWNWeb

uses data from the Facility Details, Admit/Discharge Summary, Treatment Summary, and Patient

Attributes screens to auto-populate the CMS-2744 form. Missing or incorrect data will impact your

counts and your form data. Facilities will receive further communication from the ESRD Network

regarding submission deadlines.

DO NOT EMAIL any patient-specific information (name,

date of birth, Social Security Number, etc.) to the

Network 14 office.


NHSN Enrollment

The link http://www.cdc.gov/nhsn/enrollment/index.html provides a step-by-step guide for successful completion of enrollment into NHSN.

Correcting Submitted CMS forms in CROWNWeb

Double check data entries before submitting a CMS form in CROWNWeb.

In CROWNWeb, facility-level users cannot make changes to submitted CMS forms. Users must submit a ticket to the QualityNet Help Desk (phone: 866-288-8912) to request a change. The TOP 5 reasons that facilities request CMS-2728 changes are:

1. Incorrect Social Security Number (SSN)

2. Incorrect Date Patient Started Chronic Dialysis at Current Facility

3. Incorrect Date of Birth

4. Incorrect First and Last Name

5. Incorrect Date Regular Chronic Dialysis Began

Closely review information on the Patient Attributes, Admit/Discharge Summary and Form 2728 screens in CROWNWeb to help prevent the need for form modifications or deletions.

CMS-2728/CMS-2746 Modification Tips

Before submitting a service request to the QualityNet Help Desk (866-288-8912 or [email protected]) to modify or delete a submitted CMS-2728 or CMS-2746 form, please do the following:

1. Review and correct any patient attributes: e.g., SSN, Medicare Claim Number, Name, and Primary Cause of Renal failure. Note: Never send patient specific information (PII and PHI) via email to the ESRD Network or QualityNet Help Desk.

2. Review and correct applicable treatment data: e.g., treatment start dates, attending physician, and modality.

3. Review and correct applicable lab dates: i.e., for 2728, lab dates must be within 45 days of Date Regular Chronic Dialysis Began.

4. Update your internal EMR or BSO system with any corrections applied to CROWNWeb.

http://www.cdc.gov/nhsn/dialysis/enroll.html




News from the NHSN Help Desk

How to Improve Positive Blood Culture Surveillance in Your Facility

Your facility is responsible for reporting positive blood cultures among your in-center hemodialysis outpatients. This includes positive blood cultures from specimens that were collected in any outpatient setting, or on the day of,or on the day after, a hospital admission.

Therefore, the Dialysis Event form prompts you to answer the following question when reporting a positive blood culture:

Q1: Other than the dialysis clinic, where could my hemodialysis outpatient have a positive blood culture that my facility is responsible for reporting?

Hospital (on the day of or the day following admission) or E.D. –

- Including the emergency department (E.D.) or blood specimens collected on the day of or the day after a hospital admission

Other location –

- Other outpatient locations such as a physician’s office, or a nursing home

Q2: How can I improve my facility’s surveillance for positive blood cultures?

Follow up on every hospitalization for every patient

- Ask your patients if they went to the hospital since their last treatment

- Request hospital microbiology lab results that include pathogen and susceptibility information

- Develop communication strategies with infection preventionists and other staff at local hospitals

- Investigate opportunities to share the electronic medical record system with local hospitals

Collect blood samples for culture whenever a bloodstream infection is suspected and before antimicrobials are administered

Remember, a positive blood culture should be reported regardless of whether or not a true infection is suspected or whether the infection is thought to be related to

hemodialysis

Questions about NHSN? Email the NHSN helpdesk at [email protected] with “Dialysis” in the subject line and we will respond to your inquiry within 5 business days.


Network 14’s 5-Diamond Patient Safety Program

5 DIAMOND STATUS

1 DaVita Facility in El Paso

Ameri-Tech Kidney Center Bedford

Christus Children’s Kidney Center

Cielo Vista Dialysis

FMC Austin South

FMC Greenway Kidney Center

Liberty Dialysis Bryan

NNA Marble Falls

Plaza Drive Dialysis

RCG Center Dialysis

Reeves County Hospital Dialysis

Renal Center of Frisco

Renal Center of Lewisville

Renal Center of Nederland

Renal Center of Orange

Satellite Dialysis Kyle

Satellite Dialysis Round Rock

Satellite Dialysis Southwood

Satellite Healthcare Metric

Satellite Healthcare Mueller

Scott & White Artificial Kidney Unit

Scott & White Killeen Dialysis Unit

Stafford Dialysis

Texas Children’s Hospital Dialysis

University Dialysis West

USRC Delta Dialysis

USRC Mid Valley Weslaco Dialysis

USRC Rio Grande Dialysis

UTSW Dallas Dialysis

Wilbarger General Hospital Dialysis of Vernon

4 DIAMOND STATUS

Angelo Kidney Connection

Dialysis Services of West Texas

Global Dialysis Plus

1 Renal Ventures Facility in Dallas

Renal Center of Plano

Satellite Healthcare South Austin University Dialysis South

3 DIAMOND STATUS

DSI Bryan Dialysis FMC West Seguin 1 Renal Ventures Facility in Dallas

2 DIAMOND STATUS

1 Independent Facility in Houston

NRI El Paso East

Renal Care Group Alice

South Austin Dialysis

USRC Friendswood Dialysis

1 DIAMOND STATUS

Childress Regional Medical Center Dialysis

Dialysis Services of Allen

1 DSI Facility in El Paso

1 DSI Facility in Laredo

FMC Dialysis Services of Waxahachie

Scott & White Killeen Dialysis West

Shannon Dialysis Center

1 Independent Facility in Brady

SNG Renal Solutions Dialysis Center

SNG Sandcastle Dialysis

KCER and FDA Alerts and Recalls The ESRD Network of Texas, Inc. is notified by both the Kidney Community Emergency Response (KCER) and the Federal Drug Administration (FDA) when there is a product alert or recall.

You can access information concerning recalls and alerts from our website at

http://esrdnetwork.org/our-network/news under Special Alerts and Recalls.


PATIENT ENGAGEMENT MATERIALS FOR DECEMBER 2015

Materials for the Patient Engagement Calendar for the month of December 2015 can be located on

our website at http://esrdnetwork.org/patients-families/pfcc/.

www.esrdnetwork.org Patients and Families Patient Engagement and Patient-and

Family-Centered Care

KCER has emergency preparedness training modules for dialysis facilities, pandemic planning, and

personal preparedness available. Slides and training scripts are also available on the ESRD Network

14 website at http://esrdnetwork.org/disaster-planning/.

KCER Emergency Preparedness Resources


Sun Mon Tue Wed Thu Fri Sat

1 2 3 4 5

6 7 8

EMResource

and PART

updates due

9 10 11

AQKC

Report Card

release

12

13 14 15 16 17 18 19

20 21 22 23 24 25 26

27 28 29 30 31

October

clinical

month

closure

December 2015

Network office closed

Network office closed

12/31/15 until 1/4/16


Patient’s Corner

Written for patients

Facility staff: Post both the English and Spanish pages by the patients’ scales, as well

as near the sink that the patients use to wash their accesses, and in the lobby/waiting

room.

To contact the Network for assistance or to file a grievance:

Patient Toll-free Number: 1-877-886-4435 (patients only please)

Facility staff: 972-503-3215

Email: [email protected]

The National Kidney Foundation has patient education, tips, recipes, and a lot more

available on its website at https://www.kidney.org/.

Follow us on Twitter

@ESRDNetworkofTX

Like us on Facebook.

To access go to www.facebook.com and log in to your account. Look under “liked pages,” and type in ESRD Network of Texas.

2015 Patient Engagement Calendar Each month a new educational topic is available for Texas ESRD patients. December’s

topic is “Plan For End of Life.” If you have not received your education flyer for

December, ask your social worker for a copy, or these materials can be located on the

ESRD Network 14 website at http://esrdnetwork.org/patients-families/pfcc/

(www.esrdnetwork.org Patients and Families Patient Engagement

and Patient-and Family-Centered Care).

The DPC Education Center is a great resource for dialysis patients and their families. For more information, go to the DPC website at http://dpcedcenter.org/.


You are invited to the

National Kidney Foundation's

Patient and Community Education Seminar and Luncheon

Everyday Heroes Living with Kidney Disease

Featuring "Ask the Nephrologist" and sessions covering transplant, nutrition and cooking demonstration, podiatry, and

much more!

Sunday, March 13, 2016 12:00-4:00 pm

DoubleTree by Hilton-Campbell Centre 8250 North Central Expressway

Dallas, TX 75026

For anyone who has kidney disease or has one of the risk factors including diabetes, high blood pressure, over the age of 60, or a family history of kidney

failure.

Space is limited! Plated lunch provided.

Tickets are $5 in advance or $10 at the door.

Registration forms can be located at http://kidney-14.informz.net/z/cjUucD9taT00ODEzNTYxJnA9MSZ1PTc1ODY5OTQ4NyZsaT0zMTE0OTMzMA/index.html or call (877) 543-6397 for more information.


Is No Treatment an Option?

As a patient, there may be times when you might consider the thought of discontinuing dialysis. You may have reasons to believe dialysis is no longer a choice, but a burden. You may have reasons to believe that dialysis is no longer improving your quality of life, but worsening it. If you are experiencing any of these feelings, it is important to know that you have rights, choices, and a voice.

Rarely offered as a choice, no treatment is an option. However, before you decide to make this crucial decision, it is important that you have an honest and careful discussion with your family, loved ones, and care team. Yes, even though the decision of stopping dialysis is ultimately yours, we would like to encourage you to share your reasons for making this decision with those who care about you. There may be an unclear understanding of why you may be considering ending dialysis. In some instances, your healthcare team can help you determine if the reasons may be associated with manageable health issues or treatment complications. In some cases, being unaware of problems such as depression and inadequate dialysis may be hampering your ability to think clearly, feel better, and make the best treatment choices.

There is always a helping hand. Many patients find it difficult to talk about their feelings because they don’t know how people will react or who to talk to. Your doctor, social worker or nurse can help you navigate through this uncomfortable but important conversation. Many health and emotional problems can be successfully addressed and improved through interventions such as therapy, peer and family support, professional counseling and, if needed, medication.

Yes, dialysis is considered a life-sustaining procedure, but it is also a very beneficial and efficient treatment when managed appropriately. Before you consider ending your treatment, make sure you have a clear understanding of what your options are. Allow yourself and your loved ones, as well as your care team, to have an open conversation. Feel empowered to discuss any options that may be beneficial to your health and that may change the way you feel. Keep in mind that when it comes to treatment options, the decision is still yours. Therefore, give yourself a fair chance to utilize all the support that’s available to you and that will help you make the best choice.


Reasons why patients should not miss dialysis treatments often

Let’s remember the purpose of why you are receiving dialysis treatment. You want to live a longer life. Without working kidneys, salts and waste products build up in your blood. Dialysis helps do the actions your kidneys can’t; it stops the storage of waste and fluids in your body. Dialysis also helps to control your blood pressure and allows for a much higher quality of life.

When you miss dialysis treatments, you are putting yourself at risk; you’re letting your body build up the toxins that you need removed and basically hurting your well-being. The next time you feel like missing a treatment, remember your purpose and the reasons why you are receiving dialysis treatment.

If you think you are going to miss a treatment contact your facility and make them aware that you might not be able to make it. Always make sure to schedule an appointment for the following day or as soon as possible.

If you do not have transportation to get to the dialysis center, contact a family member to take you or, if you are able to, take public transportation. Explore options, contact your facility or insurance provider for transportation resources.

If you feel tired and want to stay home instead of going to the dialysis center, remember your purpose for receiving treatment. Motivate yourself by talking to family, friends, other patients, or staff members for support.

If you have considered receiving treatment from home or receiving treatment at night in the clinic while you sleep, speak with your kidney doctor regarding other modalities. Your kidney doctor will help you determine what is best for you.

Dialysis is important when your kidney is not working correctly. Take care of yourself and let yourself be cared for.

Contact ESRD Network of Texas if you have any questions or concerns regarding the care and services you receive in your dialysis center at 1-877-886-4435.


As 2015 comes to an end, we look forward to a fresh start in the new year. For dialysis patients, a new year also means a new annual care plan. Your care plan covers many important topics. These include:

How much dialysis you need

What to include or avoid in your diet

The minerals and vitamins you need to take

The medications you need to take to avoid anemia

Information about creating and monitoring your vascular access

Your status for home dialysis or transplantation

Counseling services and other support services to help you lead a productive, more active life

Your dialysis care team meets to discuss your treatment expectations and goals once a year. This is called your annual care plan meeting. You have the right to attend this meeting. Being part of your care plan meeting helps to make sure that what’s important to you is included in your care plan. Before this meeting takes place, it’s important to think about what went well over the past year and what health goals you want to focus on moving forward.

Here are some questions to help you prepare for your meeting.

Did you keep the right fluid balance?

Were you able to avoid infections?

If you have diabetes or other chronic illnesses, is your condition well controlled?

If the answer to any of these is “no,” you can talk with your dialysis care team about what can be done to improve your treatments and overall health.

You may also want to think about your goals for next year.

Is there a special event you want to attend, like a wedding or a graduation?

Do you want to travel somewhere?

Would you like to have more time or energy to spend with your loved ones?

Do you want to lose weight or find an exercise routine that works well for you?

These goals may affect your care plan. Discuss your goals with your dialysis care team. They can help you plan ahead for your treatments, and share resources with you that can help you meet your goals.

Your active involvement and your care team’s support can help you have a happier and healthier new year!

Preparing for the New Year and a New Care Plan

1979 Marcus Avenue, Suite 105 · Lake Success, NY 11042-1072

Phone: 516-209-5253 · Fax: 516-326-7805 · [email protected]

www.esrdncc.org · www.kcercoalition.com

http://www.esrdncc.org/


Nancy is an ordained minister, a retired nurse, and a medical administrator. When she retired at an early age she wanted to travel. Four years after retiring, plans changed when Nancy went into kidney failure.

She had been diagnosed with type 2 diabetes years earlier. One day in 2004, she suddenly lost her sight. “I went to a meeting, and I couldn’t find my car,” Nancy said. “Everything was white.” Nancy waited a week to visit her doctor. A few days later, she went home to rest, and wasn’t able to get up from the couch. She went to the emergency room and was diagnosed with kidney failure. Nancy began dialysis in March 2004.

Nancy’s daughter wanted to donate a kidney to her. When they went for testing, Nancy discovered that she had breast cancer. This diagnosis made her unable to have a transplant until she was cancer-free for three years. “None of this stopped me,” Nancy said. “I went on the waiting list for a deceased donor kidney in 2007 and got a transplant in 2011. I’ve been a breast cancer survivor for 11 years and a transplant recipient for four years.”

Nancy is a great believer in the connection between the mind and body. Her positive attitude has motivated her to overcome her health challenges and become more involved in her care. She wants to help others do the same. Her goal for the future is to educate others about kidney disease and to emphasize prevention. “I had this same energy when I was on dialysis,” she said. “I let my mess be my message!”

Publications on page 16 and 17 were developed under Contract Number HHSM-500-2013-NW002C, titled “End Stage

Renal Disease National Coordinating Center (ESRD NCC)”, sponsored by the Centers for Medicare & Medicaid

Services (CMS), Department of Health and Human Services. The contents presented do not necessarily reflect CMS

policy.

Nancy: My Mess is My Message





NetL ink

Rincón del paciente

Escrito por pacientes

Diciembre 2015

Para comunicarse con la Red y pedir ayuda o presentar una queja:

Número de Teléfono Gratuito para Pacientes: 1-877-886-4435 (solamente pacientes por favor)

Personal de las Instalaciones: 972-503-3215

Correo electrónico: [email protected]

Instrucciones al Personal de las Instalaciones- cuelgue las paginas en inglés y español

cerca de las basculas de los pacientes y el fregadero que usan los pacientes para

lavar sus accesos y en el vestíbulo/sala de espera.

La Fundación Nacional del Riñón (NKF) tiene educación para el paciente, sugerencias, recetas y mucho más. Para acceder esta información, consulta https://www.kidney.org.

Diga que le agrada nuestro sitio (Like) en Facebook

¡¡¡La Red de ESRD de Texas ha entrado al mundo de los Medios Sociales!!!

Diga que le agrada nuestro sitio (Like) en Facebook

https://www.facebook.com/pages/ESRD-Network-of-Texas/415497655222823

Calendario de Participación del Paciente para 2015

Cada mes hay un nuevo tema educativo disponible para los pacientes de ESRD de

Texas. El tema de Diciembre es "Planear el final de la vida”. Si todavía no ha recibido

su volante educativo de Diciembre, pida una copia a su trabajador social o puede en-

contrar estos materiales en el sitio web de Network 14 en http://esrdnetwork.org/

patients-families/pfcc/.


https://www.facebook.com/pages/ESRD-Network-of-Texas/415497655222823

Diciembre 2015 NetLink

El Centro de Educación de DPC El Centro de Educación de DPC es un magnífico recurso para los pacientes de diálisis y sus familias. Si desea obtener más información, visite el sitio de DPC en http://dpcedcenter.org/.

Usted está invitado al

Seminario sobre Educación para pacientes y la comunidad y a un Almuerzo

de la Fundación Nacional del Riñón

Héroes normales que viven con insuficiencia renal

Presentando "Pregunte al nefrólogo" y sesiones que abarcan trasplante, nutrición y demostración de cocina, podología y

¡mucho más!

Domingo, 13 de marzo de 2016 de 12:00 a 4:00 p. m.

DoubleTree por Hilton-Campbell Centre 8250 North Central Expressway

Dallas, TX 75026

Para toda persona que padezca insuficiencia renal o tenga uno de los factores de ries-go, incluyendo:

diabetes, hipertensión, ser mayor de 60 años de edad o tenga un historial familiar de insuficiencia renal.

¡Espacio limitado! Plato servido en la mesa.

Los boletos tienen un valor de $5 si se compran por anticipado o $10 el día del evento.

Los formularios de registro se pueden encontrar en http://kidney-14.informz.net/z/cjUucD9taT00ODEzNTYxJnA9MSZ1PTc1ODY5OTQ4NyZsaT0zMTE0OTMzMA/index.html o llame al (877) 543-6397 para obtener más información.

Diciembre 2015 NetL ink

¿Es una opción no recibir tratamiento?

Como paciente, es posible que haya ocasiones en que pudiera considerar la idea de suspender la diálisis. Puede tener razones para considerar que la diálisis ya no es una opción, sino una carga. Puede tener razones para creer que la diálisis ya no está mejorando su calidad de vida, sino empeorándola. Si está sintiendo alguno de estos pensamientos, es importante saber que usted tiene derechos, opciones y una voz.

Con poca frecuencia ofrecida como una opción, el no recibir tratamiento es una opción. Sin embargo, antes de que decida tomar esta decisión trascendental, es importante que sostenga una conversación honesta y cuidadosa con su familia, seres queridos y equipo a cargo de los cuidados. Sí, aunque la decisión de suspender la diálisis es finalmente suya, nos gustaría invitarle a compartir sus razones para tomar esta decisión con las personas que cuidan de usted. Es posible que exista un conocimiento no claro de por qué usted pueda considerar suspender la diálisis. En algunos casos, su equipo de atención médica puede ayudarle a determinar si las razones pueden estar asociadas con problemas de salud que se pueden manejar o complicaciones en el tratamiento. En algunos casos, no estar consciente de problemas como depresión y diálisis inadecuada puede estar alterando su capacidad de pensar claramente, sentirse mejor y tomar las mejores opciones de tratamiento.

Siempre hay una mano amiga. Muchos pacientes encuentran difícil hablar sobre sus sentimientos porque no saben cómo reaccionarán las personas o a quién hablarle. Su médico, trabajador social o enfermera puede ayudarle a atravesar esta incómoda, pero importante conversación. Muchos problemas de salud y emocionales pueden atenderse con éxito y mejorarse a través de intervenciones como terapia, apoyo de amigos y familia, asesoría profesional y, si es necesario, medicamentos.

Sí, la diálisis es considerada como un procedimiento para mantener la vida, pero

también es un tratamiento muy beneficioso y eficiente cuando se maneja

apropiadamente. Antes de considerar terminar su tratamiento, asegúrese de que tiene

una comprensión clara acerca de cuáles son sus opciones. Permítase usted y a sus

seres queridos, así como a su equipo de cuidados, tener una conversación abierta.

Siéntase con la facultad de conversar sobre cualquier opción que pudiera ser

beneficiosa para su salud y que pudiera cambiar la forma en que se siente. Tenga

presente que cuando se trata de opciones de tratamiento, la decisión aún es suya. Por

lo tanto, tome la oportunidad de utilizar todo el apoyo que está disponible para usted

y que le ayudará a tomar la mejor decisión.


Razones por las que los pacientes no deben faltar a los tratamientos de diálisis con frecuencia

Recordemos el propósito de por qué está recibiendo tratamiento de diálisis. Usted desea tener una vida más larga. Sin unos riñones que funcionen, las sales y los productos de desecho se acumulan en su sangre. La diálisis ayuda a realizar las acciones que sus riñones no pueden; detiene el almacenamiento de desechos y fluidos en su organismo. La diálisis también puede controlar su presión arterial y permite una calidad de vida mucho mayor.

Cuando falta a tratamientos de diálisis, está poniéndose en riesgo; está permitiendo que su cuerpo acumule las toxinas que debe eliminar y básicamente está dañando su bienestar. La próxima vez que piense que va a faltar a un tratamiento, recuerde su propósito y las razones por las que está recibiendo el tratamiento de diálisis.

Si piensa que va a faltar a un tratamiento, comuníquese con su centro y hágales saber que es posible que no pueda asistir. Asegúrese siempre de programar una cita para el día siguiente o lo más pronto posible.

Si no cuenta con transporte para llegar al centro de diálisis, comuníquese con un familiar para que le lleve o, si puede, tome el transporte público. Explore opciones, comuníquese con su centro o aseguradora para conocer los recursos de transporte.

Si se siente cansado o desea quedarse en casa en lugar de ir al centro de diálisis, recuerde su propósito para recibir tratamiento. Motívese hablando con su familia, amigos, otros pacientes o con los miembros del personal para obtener apoyo.

Si ha considerado recibir tratamiento desde su hogar o recibirlo por la noche en la clínica mientras duerme, hable con su nefrólogo con relación a otras modalidades. Su nefrólogo le ayudará a determinar lo que es mejor para usted.

La diálisis es importante cuando sus riñones no funcionan adecuadamente. Cuídese y permita que le cuiden.

Comuníquese con la Red de Texas ESRD si tiene alguna pregunta o inquietud con

relación a la atención y servicios que recibe en su centro de diálisis al 1-877-886-

4435.


Preparación para el nuevo año y un nuevo plan de atención Conforme el 2015 llega a su fin, esperamos un nuevo comienzo en el año nuevo. En el caso de los pacientes de diálisis, un año nuevo también significa un nuevo plan de atención anual. Su plan de atención cubre muchos temas importantes. Estos incluyen:

Qué cantidad de diálisis necesita

Qué incluir o evitar en su dieta

Los minerales y vitaminas que debe tomar

Los medicamentos que debe tomar para evitar la anemia

Información acerca de crear y monitorear su acceso vascular

Su estado para diálisis en el hogar o trasplante

Servicios de asesoría y otros servicios de apoyo para ayudarle a llevar una vida productiva y más activa

Su equipo de diálisis se reúne una vez al año para conversar acerca de sus expectativas de tratamiento y objetivos. A esto se le llama su reunión anual para planificación de atención. Usted tiene el derecho de asistir a esta reunión. Ser parte de la reunión de su plan de atención ayuda a garantizar que lo que es importante para usted se incluya en el mismo. Antes de que se lleve a cabo esta reunión, es importante pensar acerca de lo que funcionó durante el último año y en qué metas de salud desea enfocarse cuando siga adelante.

A continuación se presentan algunas preguntas para ayudarle a prepararse para su reunión.

¿Mantuvo el balance de líquidos adecuado?

¿Pudo evitar infecciones?

Si tiene diabetes u otras enfermedades crónicas, ¿su condición está bien controlada?

Si la respuesta es "no" a cualquiera de estas preguntas, puede hablar con su equipo de atención de diálisis acerca de lo que se puede hacer para mejorar sus tratamientos y su salud en general.

Es posible que también desee pensar en sus objetivos para el próximo año.

¿Hay algún evento especial al que desee asistir, como una boda o una graduación?

¿Desea viajar a algún lugar?

¿Le gustaría tener más tiempo o energía para pasar con sus seres queridos?

¿Desea bajar de peso o encontrar una rutina de ejercicios que funcione bien para usted?

Estas metas pueden afectar su plan de atención. Discuta sus metas con su equipo de atención de diálisis. Ellos pueden ayudarle a planificar sus tratamientos y compartir recursos con usted que pueden ayudarle a cumplir sus metas.

Su participación activa y el apoyo de su equipo de atención pueden ayudarle a tener ¡un

año nuevo más feliz y más saludable!


Nancy: Mi complicación es Mi mensaje

Nancy es una ministra ordenada, una enfermera jubilada y una administradora médica. Cuando se jubiló a una edad temprana quería viajar. Cuatro años después de jubilarse, los planes cambiaron cuando Nancy empezó con insuficiencia renal.

Años atrás, ella había sido diagnosticada con diabetes tipo 2. Un día en el año 2004, repentinamente perdió la vista. “Fui a una reunión y no podía encontrar mi automóvil”, dijo Nancy. “Todo estaba blanco”. Nancy esperó una semana para ver a su médico. Varios días después, fue a casa a descansar y no pudo levantarse del sofá. Fue a la sala de emergencias y se le diagnosticó insuficiencia renal. Nancy empezó con diálisis en marzo de 2004.

La hija de Nancy quería donarle un riñón. Cuando fue a realizarse las pruebas, Nancy descubrió que tenía cáncer de seno. Este diagnóstico no le hizo posible someterse a un trasplante hasta que estuviera libre de cáncer durante tres años. “Nada de esto me detuvo”, indicó Nancy. “Entré en la lista de espera para obtener un riñón de un donador fallecido en el 2007 y me realizaron el trasplante en el 2011. He sido una sobreviviente de cáncer de seno durante 11 años y una receptora de un trasplante durante cuatro años”.

Nancy es una gran creyente en la conexión entre la mente y el cuerpo. Su actitud positiva la ha motivado a superar sus retos de salud y a llegar a estar más involucrada en su atención. Ella desea ayudar a otras personas a que hagan lo mismo. Su objetivo para el futuro es educar a otras personas sobre insuficiencia renal y enfatizar en la prevención. “Yo tuve esta misma energía cuando estuve en diálisis”, dijo. “¡Dejo que mi complicación sea mi mensaje!”

Las publicaciones en la página 22 y 23 se desarrollaron bajo el Contrato número HHSM-500-2013-NW002C, con el

título "Centro de Coordinación Nacional de la Insuficiencia Renal en Etapa Terminal (ESRD NCC, en inglés)”,

patrocinado por los Centros para Servicios de Medicare y Medicaid (Centers for Medicare & Medicaid Services, CMS),

Departamento de Salud y Servicios Humanos. El contenido presentado no necesariamente refleja la política de CMS.





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