NARPAA E-Class Module 3 - Historical Definitions of Autism

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    MODULE THREE

    HISTORICAL DEFINITIONS

    OF AUTISM

    www.narpaa.org

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    MODULE THREE

    HISTORICAL DEFINITIONS OFAUTISM

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    MODULE THREE

    As a result of completion of this module, theparticipant will be able to:

    Identify people and organizations that have

    played and play an important role in Autismresearch.

    Recall why Autism is considered to be a

    biological condition.

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    EARLY DESCRIPTIONS

    Throughout history, people have probably livedwith what we know today as Autism SpectrumDisorder. Some of the earliest published

    descriptions of behavior that resemble Autismdate back to the 18th century.

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    EARLY DESCRIPTIONS

    The term Autism was, for years, only used in somecircles of psychiatrists and psychologists. It isbelieved to have been first introduced around

    1911 by noted Swiss psychiatrist Eugen Bleuler,who used the term to describe an individual'sexclusion of the outside world and virtualwithdrawal from social life. The words "autistic"and "autism" are developed from the Greek word"autos" meaning "self."

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    KANNER AND ASPERGER

    TheAutism was first described as a specificcondition by Dr. Leo Kanner, who published hisfamous paper on the disorder in 1943. In 1944,

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    KANNER AND ASPERGER

    Dr. Hans Asperger, of Vienna, Austria, publishedanother famous paper that first described asimilar condition that later became known as

    Asperger Syndrome.

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    KANNER AND ASPERGER

    Dr. Hans Asperger, of Vienna, Austria, publishedanother famous paper that first described asimilar condition that later became known as

    Asperger Syndrome.

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    KANNER AND ASPERGER

    These landmark papers featured the firsttheoretical attempts to explain these

    complex disorders.

    Despite the papers published by Kanner and

    Asperger in the 1940s, Autism has longbeen a mystery to the medical community

    even today.

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    MID-20TH

    CENTURY DESCRIPTIONS

    In the 1950s and 1960s, the medical communitygenerally incorrectly believed Autism was apsychological disturbance caused by detached

    or uncaring mothers (refrigerator mothers). Thisbelief, later completely disproved, was based onthe observations and opinions of Dr. BrunoBettleheim, one of the first child developmentspecialists to focus on Autism.

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    CHANGING THOUGHT

    For decades, generations of mothers of childrenwith Autism were unfairly accused of causingtheir child's disorder. In the early 1960s, a few

    people in the medical community, such as Dr.Bernard Rimland and Dr. Eric Schopler, began tochallenge Bettleheim's opinion. In 1964, Dr.Rimland provided a definitive review of evidence

    that established Autism as a biological condition thus demonstrating Bettleheim's theory waswrong.

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    CHANGING THOUGHT

    Soon after Autism was proven to be a biologicalcondition, Dr. Andreas Rett first described RettSyndrome as a specific condition in a paper

    published in 1966.

    http://en.wikipedia.org/wiki/Rett_syndromehttp://en.wikipedia.org/wiki/Rett_syndromehttp://en.wikipedia.org/wiki/Rett_syndromehttp://en.wikipedia.org/wiki/Rett_syndrome
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    CHANGING THOUGHT

    In 1977, Dr. Susan Folstein and Dr. Michael Rutterpublished the first Autism twin study, whichrevealed evidence of a genetic basis for Autism.

    Over the next ten years, researchers conductedadditional studies that further yielded evidence ofa genetic component to Autism as well as refinedthe symptoms of Autism.

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    CHANGING THOUGHT

    In 1991, Drs. Catherine Lord, Michael Rutter andAnn LeCouteur published the AutismDiagnostic Interview. In 1992, the American

    Psychiatric Association released the Diagnosticand Statistical Manual (DSM-IV), which refineddiagnostic criteria for autistic disorder. TheWorld Health Organization released a similardiagnostic manual

    http://en.wikipedia.org/wiki/World_Health_Organizationhttp://en.wikipedia.org/wiki/World_Health_Organization
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    GENETIC LINKS

    In 1994, the National Alliance for Autism Researchin the United States was established, becomingthe first organization in the U.S. dedicated to

    funding and accelerating biomedical researchinto the Autism Spectrum Disorder. Founded byKaren and Eric London and other parents ofchildren with Autism, NAAR allocates millions of

    dollars each year to funding the finest Autismresearch worldwide and has played a key role inincreasing federal spending on Autism.

    http://en.wikipedia.org/wiki/National_Alliance_for_Autism_Researchhttp://en.wikipedia.org/wiki/National_Alliance_for_Autism_Research
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    GENETIC LINKS

    In the early to mid 1990s, genetic researchersbegan to link Autism to people with abnormalitieson chromosome 15. In 1998, researchers had

    reported evidence of a link between Autism andchromosomes 15q and 7q. By 2001, severalresearchers had completed genetic screens thatidentified several genomic regions containinggenes that could be associated with Autism.

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    AUTISM TISSUE PROGRAM

    The Autism Tissue Program was initiallyestablished and funded in 1998 by NAAR andthe Autism Society of America Foundation. Later,

    the M.I.N.D. Institute (Medical Investigation ofNeurodevelopmental Disorders) at the Universityof California at Davis joined as a co-sponsor ofthe program.

    http://www.brainbank.org/http://www.autism-society.org/site/PageServerhttp://en.wikipedia.org/wiki/MIND_Institutehttp://en.wikipedia.org/wiki/MIND_Institutehttp://www.autism-society.org/site/PageServerhttp://www.brainbank.org/
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    AUTISM TISSUE PROGRAM

    The Autism Tissue Program is the first parent-ledbrain tissue donation program dedicated forAutism research. Post-mortem brain tissue is the

    most fundamental, rare and precious resourcethat allows scientists to go far beyond theconstraints of other technologies to study Autismon both a cellular and molecular level.

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    AUTISM TISSUE PROGRAM

    Recent epidemiology studies have shown thatAutism Spectrum Disorder is ten times moreprevalent than it was just ten years ago. Autism

    is the second most common developmentaldisability, next to intellectual disability. AutismSpectrum Disorder occurs in an estimated one inevery 110 births.