Movement Disorders research - Patient experience survey 2016
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What were the best or most positive aspects of your research experience? Stephen Harwood Patient and Public Involvement Officer Movement Disorders Research Email: [email protected] Tel: 0207 7940500 x 36927 Mobile: 0787 107 4774 “That everything about the research is explained in detail and there is no rush.” “Having time to be fully assessed and listened to.” Movement Disorders research Patient experience survey 2016 Some of your views “Feeling that I am making a positive contribution.”
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Transcript of Movement Disorders research - Patient experience survey 2016
What were the best or most positive aspects of your research experience?
Stephen HarwoodPatient and Public Involvement OfficerMovement Disorders Research
Email: [email protected] Tel: 0207 7940500 x 36927Mobile: 0787 107 4774
“That everything about the research is
explained in detail and there is no rush.”
“Having time to be fully assessed and
listened to.”
Movement Disorders researchPatient experience survey 2016
Some of your views
“Feeling that I am making a positive
contribution.”
What benefits did taking part in the research give you?
Stephen HarwoodPatient and Public Involvement OfficerMovement Disorders Research
Email: [email protected] Tel: 0207 7940500 x 36927Mobile: 0787 107 4774
“A feeling that I'm helping to improve the
situation, albeit in a small way.”
“None directly but it may benefit me or my family in the future.”
Movement Disorders researchPatient experience survey 2016
Some of your views
“It gives me more of an insight into my
condition.”
“I do feel positive about contributing and the fact that
research is going on is all very positive.”
Movement Disorders researchPatient experience survey 2016
Some of your views
Any part of the research process you did not enjoy?
Stephen HarwoodPatient and Public Involvement OfficerMovement Disorders Research
Email: [email protected] Tel: 0207 7940500 x 36927Mobile: 0787 107 4774
“Taking of my blood sample.”
“Coping with the tiredness from taking part.”
Movement Disorders researchPatient experience survey 2016
Some of your views
What helped you decide to take part in research?
Stephen HarwoodPatient and Public Involvement OfficerMovement Disorders Research
Email: [email protected] Tel: 0207 7940500 x 36927Mobile: 0787 107 4774
“If my participation can help to improve treatment
or achieve a better understanding of the
illness, then I'm happy to participate.”
“I feel that if my contribution may make
a difference then I should take part.”
“I think that taking part in research is something I
can give when my condition is trying to take
things from me.”
