Lone wolves, mobilisers and organisers: learning from civic activists

Helen Bevan

@HelenBevan

@HelenBevan #CoPro2016

“Tomorrow’s management systems will need to value diversity, dissent and

divergence as highly as conformance, consensus and cohesion.”

Gary Hamel

Image by neilperkin.typepad.com

is the new normal!

Which kind of activists are most

successful at delivering change?

@HelenBevan #CoPro2016

Which kind of activists are most successful at delivering change?

Lone wolvesBuild power by expertise and information — through advocacy, oversight, contributing to committees, public comments and other forms of consultation

Source: Hahrie Han How Organizations Develop Activists: Civic Associations and Leadership in the 21st Century

@HelenBevan #CoPro2016

Patient leaders as “lone wolves”

“What I am ranting about is the way in which patients are being streamed into advisory sub committees, the way we are

being used as tokens and to help tick off the right box…..

Where is the attitude that patients are part of the team in healthcare, that we are partners? Why are we always asked to participate inside a pre-determined frame? When will we

see co-design of new policies, and ultimately co-production?”

Annette McKinnon

@HelenBevan #CoPro2016

Which kind of activists are most successful at delivering change?

Lone wolvesBuild power by expertise and information — through advocacy, oversight, contributing to committees, public comments and other forms of consultation

MobilisersBuild power by mobilising people – being able to call on large numbers of people to contribute, engage in change and take action

Source: Hahrie Han How Organizations Develop Activists: Civic Associations and Leadership in the 21st Century

@HelenBevan #CoPro2016

Which kind of activists are most successful at delivering change?

Lone wolvesBuild power by expertise and information — through advocacy, oversight, contributing to committees, public comments and other forms of consultation

MobilisersBuild power by mobilising people – being able to call on large numbers of people to contribute, engage in change and take action

OrganisersBuild power by growing leaders – identifying, recruiting and training future leaders in a distributed network: building a community and protecting its strength

Source: Hahrie Han How Organizations Develop Activists: Civic Associations and Leadership in the 21st Century

@HelenBevan #CoPro2016

Which kind of activists are most successful at delivering change?

Lone wolvesBuild power by expertise and information — through advocacy, oversight, contributing to committees, public comments and other forms of consultation

MobilisersBuild power by mobilising people – being able to call on large numbers of people to contribute, engage in change and take action

OrganisersBuild power by growing leaders – identifying, recruiting and training future leaders in a distributed network: building a community and protecting its strength

Source: Hahrie Han How Organizations Develop Activists: Civic Associations and Leadership in the 21st Century

@HelenBevan #CoPro2016

Which kind of activists are most successful at delivering change?

Lone wolvesBuild power by expertise and information — through advocacy, oversight, contributing to committees, public comments and other forms of consultation

MobilisersBuild power by mobilising people – being able to call on large numbers of people to contribute, engage in change and take action

OrganisersBuild power by growing leaders – identifying, recruiting and training future leaders in a distributed network: building a community and protecting its strength

Source: Hahrie Han How Organizations Develop Activists: Civic Associations and Leadership in the 21st Century

@HelenBevan #CoPro2016

Focus on the “We”

“Great social movements get their energy by growing a distributed

leadership”

Joe Simpson

@HelenBevan #CoPro2016

Research shows that diverse groups of people consistently make better

decisions than small groups of “experts”

@HelenBevan #CoPro2016

Here Come The Patientistas!Now we need ‘inreach’ – we need to be like an octopus and reach into the systems and the organisational structures and change them. Ironically, the citadels of power are desperate to change. Healthcare professionals are beginning to reach out to work with us – can see that we can reframe problems, bring different solutions, change dynamics, etc…….

We don’t need permission. We are everywhere, working in diverse ways. But we have to step up and talk properly about power

David Gilbert

@HelenBevan #CoPro2016

Building AGENCY in health & healthcare

Agency is about the patient being the "agent" (or person with the active role)

When patients have agency, they are making, creating, doing, sharing,

collaborating

Individual agency

versus

Collective agency

Copyright: <a href='http://www.123rf.com/profile_iqoncept'>iqoncept / 123RF Stock Photo</a>

Beyond top down and bottom up change……. Beyond the service lens through which systems

leaders typically conceive the problems we’re trying

to solve….Bringing positive

disruption into the system for faster change & bigger

outcomes

Disruptive co-creation

Adapted from SOLACE

@HelenBevan #CoPro2016

ReferencesHelen Bevan: What I learnt about disruptive co-creation of the health and care system at Stanford Medicine Xhttps://www.linkedin.com/pulse/what-i-learnt-disruptive-co-production-health-care-system-helen-bevan

David Gilbert: Let’s talk about power – here come the patientistas https://futurepatientblog.com/2016/10/19/lets-talk-about-power-here-come-the-patientistas/

Annette McKinnon: The authentic patient voice http://yourgoldwatch.blogspot.ca/2015/08/the-authentic-patient-voice.html

Nesta: Health as a social movement http://www.nesta.org.uk/sites/default/files/health_as_a_social_movement-sept.pdf