Slide 1

Living With and Beyond Cancer (LWBC)

Sharon Cavanagh

Allied Health Professional and Living with and Beyond Cancer Lead

Rachel Burrows

Project Manager – Living with and Beyond Cancer

Slide 2 What is the Living with and Beyond Cancer workstream?

• Focuses on recovery, health and wellbeing of individuals

living with cancer.

• Appropriate level of support for those with active and

advanced disease

• Aims to integrate a model within all pathways to ensure

that all individuals diagnosed with cancer receive co-

ordinated and personalised care/support

Slide 3

What matters most to our patients

1. Early diagnosis

2. Ethos

3. Communications

4. Choice

5. Support

6. Carers

7. Holistic assessment

8. Seamless care

9. Transport

10. Discharge

Slide 4

LWBC as a priority in London Cancer

• Key priority in improving those things that matter most to patients -

patient experience

• Goals of our workstream are in line with recommendations of the

National Cancer Survivorship Initiative (NCSI)

• A high commissioning priority due to the increasing number of

survivors

Slide 5

What we now know

2 Million

4 Million

5 Million

3.2%

Slide 6

LWBC: Our objectives

Focusing on tangible benefits for patients:

• Integrate rehabilitation into all pathways

• Improve access to lymphoedema services

• Embed a recovery package into all pathways

Slide 7

NCSI Living with and Beyond Cancer: Taking Action to Improve Outcomes (2013)

Slide 8

Holistic Needs Assessment

Slide 9 Treatment summary and cancer care review

Aims:

• To ensure that GP has the information they need to best

support the individual in the community

• To provide patients with information on diagnosis, summary of

treatment received and future management

• Includes information on medications, possible side effects, and

contact details for health professionals in secondary care

should concerns arise

Slide 10

Health and wellbeing clinics

Slide 11

Progress to date

• Pan-London holistic needs assessment (HNA) tool

• Pilot Macmillan electronic HNA tool

• Treatment summary template for embedding in all pathways

• Mapping of current cancer rehabilitation and survivorship services

• Directory of services

• Working with individual pathway boards to introduce new LWBC

initiatives

• Development of community of practice

Slide 12

Sharon Cavanagh

Sharon.cavanagh@londoncancer.org

Rachel Burrows

Rachel.Burrows@londoncancer.org

Date: 20 November 2013 Venue: The Great Hall, St. Bartholomew's Hospital

Living With and Beyond Cancer engagement event