Let's Talk Research Annual Conference - 24th-25th September 2014 (Clare Mercer)
Let's Talk Research 2015 -Diane Roberts - Interactive Ways of Bringing Research to Life
-
Upload
nhsnwrd -
Category
Health & Medicine
-
view
300 -
download
0
Transcript of Let's Talk Research 2015 -Diane Roberts - Interactive Ways of Bringing Research to Life
![Page 1: Let's Talk Research 2015 -Diane Roberts - Interactive Ways of Bringing Research to Life](https://reader031.fdocuments.us/reader031/viewer/2022030305/58739f551a28ab85438b7381/html5/thumbnails/1.jpg)
Let’s Talk Research!
Interactive Ways of Bringing Research to Life
Workshop presented by: Dr Diane Roberts (PhD), University of Manchester
![Page 2: Let's Talk Research 2015 -Diane Roberts - Interactive Ways of Bringing Research to Life](https://reader031.fdocuments.us/reader031/viewer/2022030305/58739f551a28ab85438b7381/html5/thumbnails/2.jpg)
What’s in the Workshop?
• Objective of today’s session
• Objective of original workshop
• Format of original workshop
• What we learned
• Why interactivity is important and valuable
![Page 3: Let's Talk Research 2015 -Diane Roberts - Interactive Ways of Bringing Research to Life](https://reader031.fdocuments.us/reader031/viewer/2022030305/58739f551a28ab85438b7381/html5/thumbnails/3.jpg)
What IS research dissemination?
• Why do we do it?
• How do we do it?
• Interactivity, Multi-disciplinarity, topic engagement
• Encouraging examination of individual practice
• ‘Take-home’ messages
![Page 4: Let's Talk Research 2015 -Diane Roberts - Interactive Ways of Bringing Research to Life](https://reader031.fdocuments.us/reader031/viewer/2022030305/58739f551a28ab85438b7381/html5/thumbnails/4.jpg)
The original workshop was to…
• Present study findings
• Compare perspectives of patients, carers and
practitioners
• Consider impact of findings on practice
• Highlight follow-on questions
![Page 5: Let's Talk Research 2015 -Diane Roberts - Interactive Ways of Bringing Research to Life](https://reader031.fdocuments.us/reader031/viewer/2022030305/58739f551a28ab85438b7381/html5/thumbnails/5.jpg)
Psychological Wellbeing in Advanced Cancer
What can we learn from Patients and Carers?
Dr Catherine Walshe (PhD) and Dr Diane Roberts (PhD)
Presented May 2014 by:
![Page 6: Let's Talk Research 2015 -Diane Roberts - Interactive Ways of Bringing Research to Life](https://reader031.fdocuments.us/reader031/viewer/2022030305/58739f551a28ab85438b7381/html5/thumbnails/6.jpg)
Study Design:
• Interviews
• Focus Groups
• Strong PPI
• Practitioner engagement
![Page 7: Let's Talk Research 2015 -Diane Roberts - Interactive Ways of Bringing Research to Life](https://reader031.fdocuments.us/reader031/viewer/2022030305/58739f551a28ab85438b7381/html5/thumbnails/7.jpg)
What did the session look like?• Half day: Lunch + 3 linked but stand-alone sessions
• Presentation of study design and findings
• Interactive– Electronic voting - 13 topics identified by study focus groups
– Small group breakouts and lunch
• Plenary– Graphical comparison of patient, carer and professional priorities
– Open discussion, audience questions
![Page 8: Let's Talk Research 2015 -Diane Roberts - Interactive Ways of Bringing Research to Life](https://reader031.fdocuments.us/reader031/viewer/2022030305/58739f551a28ab85438b7381/html5/thumbnails/8.jpg)
What coping strategies do
they use?
How do patients with advanced cancer and their carers maintain or develop psychological wellbeing?
How can we support coping
strategies?
Study Summary
![Page 9: Let's Talk Research 2015 -Diane Roberts - Interactive Ways of Bringing Research to Life](https://reader031.fdocuments.us/reader031/viewer/2022030305/58739f551a28ab85438b7381/html5/thumbnails/9.jpg)
Findings indicate Coping Strategies:
• Often exist at the point of diagnosis
• Are learned from previous experience of stressful situations,
• Develop specifically in response to the everyday impact of cancer
• Evolve over time
• May be used differently by patients and carers
![Page 10: Let's Talk Research 2015 -Diane Roberts - Interactive Ways of Bringing Research to Life](https://reader031.fdocuments.us/reader031/viewer/2022030305/58739f551a28ab85438b7381/html5/thumbnails/10.jpg)
And that:
• Effectiveness may fluctuate,
• Strategies evolve or are supplemented by specific learning
• Informal sharing of experience with peers is valuable
• Peer information is often a pragmatic, non-clinical, non-medical ‘work around’ and emerges from lived experience.
![Page 11: Let's Talk Research 2015 -Diane Roberts - Interactive Ways of Bringing Research to Life](https://reader031.fdocuments.us/reader031/viewer/2022030305/58739f551a28ab85438b7381/html5/thumbnails/11.jpg)
Final Phase
• Identify coding subset of major themes with potential for intervention development
• Use subset as stimulus material for Focus Groups to consider patients’ and carers’ priorities.
![Page 12: Let's Talk Research 2015 -Diane Roberts - Interactive Ways of Bringing Research to Life](https://reader031.fdocuments.us/reader031/viewer/2022030305/58739f551a28ab85438b7381/html5/thumbnails/12.jpg)
I’ve always wanted to be….
1. A trapeze artist2. A lion tamer3. A clown
1. 2. 3.
0% 0%0%
![Page 13: Let's Talk Research 2015 -Diane Roberts - Interactive Ways of Bringing Research to Life](https://reader031.fdocuments.us/reader031/viewer/2022030305/58739f551a28ab85438b7381/html5/thumbnails/13.jpg)
I’ve always wanted to be….
1. A trapeze artist2. A lion tamer3. A clown4. A ringmaster
1. 2. 3. 4.
0% 0%0%0%
![Page 14: Let's Talk Research 2015 -Diane Roberts - Interactive Ways of Bringing Research to Life](https://reader031.fdocuments.us/reader031/viewer/2022030305/58739f551a28ab85438b7381/html5/thumbnails/14.jpg)
ProfessionalsBeing confident in, comfortable with and trusting of health professionals
1. High priority2. Important but
not essential3. Nice to have
1. 2. 3.
0% 0%0%
![Page 15: Let's Talk Research 2015 -Diane Roberts - Interactive Ways of Bringing Research to Life](https://reader031.fdocuments.us/reader031/viewer/2022030305/58739f551a28ab85438b7381/html5/thumbnails/15.jpg)
Pleasing yourselfPutting pleasure above duty
1. High priority2. Important but
not essential3. Nice to have
1. 2. 3.
0% 0%0%
![Page 16: Let's Talk Research 2015 -Diane Roberts - Interactive Ways of Bringing Research to Life](https://reader031.fdocuments.us/reader031/viewer/2022030305/58739f551a28ab85438b7381/html5/thumbnails/16.jpg)
Switching OffFinding ways to 'switch off' thinking about illness, impact, prognosis
1. High priority2. Important but
not essential3. Nice to have
1. 2. 3.
0% 0%0%
![Page 17: Let's Talk Research 2015 -Diane Roberts - Interactive Ways of Bringing Research to Life](https://reader031.fdocuments.us/reader031/viewer/2022030305/58739f551a28ab85438b7381/html5/thumbnails/17.jpg)
InformationGetting information in enough detail at the ‘right’ time
1. High priority2. Important but not
essential3. Nice to have
1. 2. 3.
0% 0%0%
![Page 18: Let's Talk Research 2015 -Diane Roberts - Interactive Ways of Bringing Research to Life](https://reader031.fdocuments.us/reader031/viewer/2022030305/58739f551a28ab85438b7381/html5/thumbnails/18.jpg)
SocialisingFeeling able to socialise with existing friends/family or to meet new people
1. High priority2. Important but
not essential3. Nice to have
1. 2. 3.
0% 0%0%
![Page 19: Let's Talk Research 2015 -Diane Roberts - Interactive Ways of Bringing Research to Life](https://reader031.fdocuments.us/reader031/viewer/2022030305/58739f551a28ab85438b7381/html5/thumbnails/19.jpg)
Responding to othersBeing able to see other people’s behaviour as supportive (even where this may previously have been unwelcome).
1. High priority2. Important but not
essential3. Nice to have
1. 2. 3.
0% 0%0%
![Page 20: Let's Talk Research 2015 -Diane Roberts - Interactive Ways of Bringing Research to Life](https://reader031.fdocuments.us/reader031/viewer/2022030305/58739f551a28ab85438b7381/html5/thumbnails/20.jpg)
Having people to turn toBeing able to confide, offload, share time without a focus on illness, rely on help when needed
1. High priority2. Important but
not essential3. Nice to have
1. 2. 3.
0% 0%0%
![Page 21: Let's Talk Research 2015 -Diane Roberts - Interactive Ways of Bringing Research to Life](https://reader031.fdocuments.us/reader031/viewer/2022030305/58739f551a28ab85438b7381/html5/thumbnails/21.jpg)
Being self awareThinking about own strengths or weaknesses, especially where these help in coping - with or without help from others
1. High priority2. Important but not
essential3. Nice to have
1. 2. 3.
0% 0%0%
![Page 22: Let's Talk Research 2015 -Diane Roberts - Interactive Ways of Bringing Research to Life](https://reader031.fdocuments.us/reader031/viewer/2022030305/58739f551a28ab85438b7381/html5/thumbnails/22.jpg)
Being realisticAccepting need for change, being ‘sensible’, balancing what gets done against available energy
1. High priority2. Important but
not essential3. Nice to have
1. 2. 3.
0% 0%0%
![Page 23: Let's Talk Research 2015 -Diane Roberts - Interactive Ways of Bringing Research to Life](https://reader031.fdocuments.us/reader031/viewer/2022030305/58739f551a28ab85438b7381/html5/thumbnails/23.jpg)
A Good DayReflecting on what makes a day feel like a ‘good day’.
1. High priority2. Important but
not essential3. Nice to have
1. 2. 3.
0% 0%0%
![Page 24: Let's Talk Research 2015 -Diane Roberts - Interactive Ways of Bringing Research to Life](https://reader031.fdocuments.us/reader031/viewer/2022030305/58739f551a28ab85438b7381/html5/thumbnails/24.jpg)
Everyday thingsManaging the things that make up ‘normality’ and everyday tasks/activities
1. High priority2. Important but
not essential3. Nice to have
1. 2. 3.
0% 0%0%
![Page 25: Let's Talk Research 2015 -Diane Roberts - Interactive Ways of Bringing Research to Life](https://reader031.fdocuments.us/reader031/viewer/2022030305/58739f551a28ab85438b7381/html5/thumbnails/25.jpg)
Communicating differentlyBeing able to talk or act differently to allow feelings/needs to be shared
1. High priority2. Important but
not essential3. Nice to have
1. 2. 3.
0% 0%0%
![Page 26: Let's Talk Research 2015 -Diane Roberts - Interactive Ways of Bringing Research to Life](https://reader031.fdocuments.us/reader031/viewer/2022030305/58739f551a28ab85438b7381/html5/thumbnails/26.jpg)
Changing PrioritiesRevaluing priorities within new limits created by illness
1. High priority2. Important but
not essential3. Nice to have
1. 2. 3.
0% 0%0%
![Page 27: Let's Talk Research 2015 -Diane Roberts - Interactive Ways of Bringing Research to Life](https://reader031.fdocuments.us/reader031/viewer/2022030305/58739f551a28ab85438b7381/html5/thumbnails/27.jpg)
Comparing viewpoints
• Patients
• Carers
• Health Professionals – Clatterbridge Session
• Health Professionals – The Christie Session• Today’s audience! What do YOU think?
![Page 28: Let's Talk Research 2015 -Diane Roberts - Interactive Ways of Bringing Research to Life](https://reader031.fdocuments.us/reader031/viewer/2022030305/58739f551a28ab85438b7381/html5/thumbnails/28.jpg)
0102030405060708090
100
High Priority Important Nice to Have
Patient
Carer
CCC
Christie
Bolton
ProfessionalsBeing confident in, comfortable with and trusting of health professionals
![Page 29: Let's Talk Research 2015 -Diane Roberts - Interactive Ways of Bringing Research to Life](https://reader031.fdocuments.us/reader031/viewer/2022030305/58739f551a28ab85438b7381/html5/thumbnails/29.jpg)
Pleasing yourselfPutting pleasure above duty
0102030405060708090
High Priority Important Nice to Have
Patient
Carer
CCC
Christie
Bolton
![Page 30: Let's Talk Research 2015 -Diane Roberts - Interactive Ways of Bringing Research to Life](https://reader031.fdocuments.us/reader031/viewer/2022030305/58739f551a28ab85438b7381/html5/thumbnails/30.jpg)
Switching OffFinding ways to 'switch off' thinking about illness, impact, prognosis
0
10
20
30
40
50
60
70
High Priority Important Nice to Have
Patient
Carer
CCC
Christie
Bolton
![Page 31: Let's Talk Research 2015 -Diane Roberts - Interactive Ways of Bringing Research to Life](https://reader031.fdocuments.us/reader031/viewer/2022030305/58739f551a28ab85438b7381/html5/thumbnails/31.jpg)
InformationGetting information in enough detail at the ‘right’ time
0
10
20
30
40
50
60
70
80
High Priority Important Nice to Have
Patient
Carer
CCC
Christie
Bolton
![Page 32: Let's Talk Research 2015 -Diane Roberts - Interactive Ways of Bringing Research to Life](https://reader031.fdocuments.us/reader031/viewer/2022030305/58739f551a28ab85438b7381/html5/thumbnails/32.jpg)
SocialisingFeeling able to socialise with existing friends/family or to meet new people
0
10
20
30
40
50
60
70
High Priority Important Nice to Have
Patient
Carer
CCC
Christie
Bolton
![Page 33: Let's Talk Research 2015 -Diane Roberts - Interactive Ways of Bringing Research to Life](https://reader031.fdocuments.us/reader031/viewer/2022030305/58739f551a28ab85438b7381/html5/thumbnails/33.jpg)
Responding to othersBeing able to see others’ behaviour as supportive (even where this may previously have been unwelcome).
0102030405060708090
High Priority Important Nice to Have
Patient
Carer
CCC
Christie
Bolton
![Page 34: Let's Talk Research 2015 -Diane Roberts - Interactive Ways of Bringing Research to Life](https://reader031.fdocuments.us/reader031/viewer/2022030305/58739f551a28ab85438b7381/html5/thumbnails/34.jpg)
Having people to turn toBeing able to confide, offload, share time without a focus on illness, rely on help when needed.
0
10
20
30
40
50
60
70
80
High Priority Important Nice to Have
Patient
Carer
CCC
Christie
Bolton
![Page 35: Let's Talk Research 2015 -Diane Roberts - Interactive Ways of Bringing Research to Life](https://reader031.fdocuments.us/reader031/viewer/2022030305/58739f551a28ab85438b7381/html5/thumbnails/35.jpg)
Being self awareThinking about own strengths or weaknesses, especially where these help in coping with or without help from others
0
10
20
30
40
50
60
70
High Priority Important Nice to Have
Patient
Carer
CCC
Christie
Bolton
![Page 36: Let's Talk Research 2015 -Diane Roberts - Interactive Ways of Bringing Research to Life](https://reader031.fdocuments.us/reader031/viewer/2022030305/58739f551a28ab85438b7381/html5/thumbnails/36.jpg)
Being realisticAccepting need for change, being ‘sensible’, balancing what gets done against available energy
0
10
20
30
40
50
60
70
High Priority Important Nice to Have
Patient
Carer
CCC
Christie
Bolton
![Page 37: Let's Talk Research 2015 -Diane Roberts - Interactive Ways of Bringing Research to Life](https://reader031.fdocuments.us/reader031/viewer/2022030305/58739f551a28ab85438b7381/html5/thumbnails/37.jpg)
A Good DayReflecting on the what makes a day feel like a ‘good day’
0
10
20
30
40
50
60
70
High Priority Important Nice to Have
Patient
Carer
CCC
Christie
Bolton
![Page 38: Let's Talk Research 2015 -Diane Roberts - Interactive Ways of Bringing Research to Life](https://reader031.fdocuments.us/reader031/viewer/2022030305/58739f551a28ab85438b7381/html5/thumbnails/38.jpg)
Everyday thingsManaging the things that make up ‘normality’ and everyday tasks/activities
0
10
20
30
40
50
60
70
High Priority Important Nice to Have
Patient
Carer
CCC
Christie
Bolton
![Page 39: Let's Talk Research 2015 -Diane Roberts - Interactive Ways of Bringing Research to Life](https://reader031.fdocuments.us/reader031/viewer/2022030305/58739f551a28ab85438b7381/html5/thumbnails/39.jpg)
Communicating differentlyBeing able to talk or act differently to allow feelings/needs to be shared.
0
10
20
30
40
50
60
High Priority Important Nice to Have
Patient
Carer
CCC
Christie
Bolton
![Page 40: Let's Talk Research 2015 -Diane Roberts - Interactive Ways of Bringing Research to Life](https://reader031.fdocuments.us/reader031/viewer/2022030305/58739f551a28ab85438b7381/html5/thumbnails/40.jpg)
Changing PrioritiesRevaluing priorities within new limits created by illness
0
10
20
30
40
50
60
70
High Priority Important Nice to Have
Patient
Carer
CCC
Christie
Bolton
![Page 41: Let's Talk Research 2015 -Diane Roberts - Interactive Ways of Bringing Research to Life](https://reader031.fdocuments.us/reader031/viewer/2022030305/58739f551a28ab85438b7381/html5/thumbnails/41.jpg)
Key comments re study:
• Positive framing of coping (v negative psychological considerations)
• Understanding coping strategies• Understanding that patient/carer/HP perspectives
differ and may surprise HPs• Thematic presentation informative• Confirmation of HP experiential knowledge• Topic often forgotten in focus on physical wellbeing
![Page 42: Let's Talk Research 2015 -Diane Roberts - Interactive Ways of Bringing Research to Life](https://reader031.fdocuments.us/reader031/viewer/2022030305/58739f551a28ab85438b7381/html5/thumbnails/42.jpg)
Observations on CPD relevance
• Useful to practice• Networking• Bringing research findings ‘alive’• Awareness of cues from patients• Self-examination re negative impacts• Accessible research and ‘real’ researchers
![Page 43: Let's Talk Research 2015 -Diane Roberts - Interactive Ways of Bringing Research to Life](https://reader031.fdocuments.us/reader031/viewer/2022030305/58739f551a28ab85438b7381/html5/thumbnails/43.jpg)
Format
• Interactive technology• Good pace but not pressurised• Opportunity to network/interact with people in a
variety of roles• Audience mix of patients, carers and
professionals• Engaged audience
![Page 44: Let's Talk Research 2015 -Diane Roberts - Interactive Ways of Bringing Research to Life](https://reader031.fdocuments.us/reader031/viewer/2022030305/58739f551a28ab85438b7381/html5/thumbnails/44.jpg)
What we learned…Presenting research
≠to simple knowledge giving
• One audience – multiple perspectives• We can learn from patients and carers• Visualising difference is effective• Time to reflect, discuss and reflect is key
![Page 45: Let's Talk Research 2015 -Diane Roberts - Interactive Ways of Bringing Research to Life](https://reader031.fdocuments.us/reader031/viewer/2022030305/58739f551a28ab85438b7381/html5/thumbnails/45.jpg)
Going forward…
• Why IS interactivity important and valuable?• Research and Practice• Research Implementation