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Lessons from an Empowered Patient and Her Caregiver · 2017-05-22 · Lessons from an Empowered...
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Lessons from an Empowered Patient and Her Caregiver
Session 228, February 23, 2017
Kristina Sheridan, Principal Investigator, MITRE
Kate Sheridan, Student, George Mason University
© 2017 The MITRE Corporation. All rights reserved. Approved for public release. Distribution unlimited. Case number 17-0132
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Speaker Introduction
Kristina Sheridan, MSPrincipal Investigator
MITRE
Kate SheridanStudent, Health Administration and Policy
George Mason University
© 2017 Image Source: Kristina Sheridan
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Conflict of Interest
Kristina Sheridan, MSHas no real or apparent conflicts of interest to report
Kate SheridanHas no real or apparent conflicts of interest to report
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Learning Objectives
• Describe patient-facing tools and strategies that support bi-directional communication between patients, providers and other healthcare professionals and discuss how these strategies result in improved health outcomes
• Demonstrate tools and best practices for enabling patient self-management outside the clinical setting and discuss how to integrate the patient-generated data from these tools into the clinical setting
• Show how real world experiences in engaging patients and their caregivers with their health and healthcare activities improve outcomes
• Demonstrate application of IT best practices and methodologies to enable patients to optimize their daily activities
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An Introduction of How Benefits Were Realized for the Value of Health IT
Satisfaction: Patient engagement improves communication
between patients and providers
Treatment/Clinical: Empowering patients to gather symptom data
between appointments and clearly communicate the information
to their care team supports clinical decision-making and treatment
evaluation
Electronic Data: Increased availability of patient-generated data
increases data sharing and reporting
Patient Engagement: Longitudinal patient-generated health data
supports analysis, improves patient engagement and increases
patient self-awareness
Savings: Increased patient engagement has been demonstrated
to reduce costs
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A Patient’s Story
Copyright 2016 Kate Sheridan All Rights Reserved
© 2017 Image Source: Kristina Sheridan
© 2017 Kate Sheridan. All rights reserved.
Kate SheridanStudent, Health Administration and Policy
George Mason University
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The Beginning
First 3 years...30 Providers, 15 diagnoses, 5 hospitalizations
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Healthy to Sick
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Soccer to Wheelchair
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10© 2017 Kate Sheridan. All rights reserved.
High Pain Levels
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Communicating with Doctors
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Communicating Socially
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Maintaining Normal
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14© 2017 Kate Sheridan. All rights reserved.
Building Relationships
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Emergency Shoes
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Self-Management
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Identity
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Balance
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Empowered
Copyright 2016 Kate Sheridan All Rights Reserved© 2017 Kate Sheridan. All rights reserved.
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A Caregiver’s Story
Kristina Sheridan, MSDepartment Head/Principal Investigator
MITRE
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Overwhelmed
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Patient’s Data
© 2017 Image Source: Kristina Sheridan
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Patient’s Information
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Patient’s Story
© 2015 Image Source: Kristina Sheridan© 2017 Image Source: Kristina Sheridan
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Patient and Caregiver Experts
“People are experts in everyday living. Physicians are
experts in clinical care. Technologies bring them
together.”
– Patricia Brennan, RN, PhD, FAAN, FACMI
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National Challenge
One Chronic Condition
Multiple Chronic Condition
No Chronic Condition
Caregivers
More than 3/4
of US
healthcare
dollars are spent on their
behalf
Almost 1/3 people
in the US manage at least one
chronic condition1
1Ward BW, Schiller JS, Goodman RA. Multiple chronic conditions among US adults: a 2012 update. Prev Chronic Dis.
2014;11:130389. DOI: http://dx.doi.org/10.5888/pcd11.130389.
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Benefits of Patient Engagement
Communication CostQuality of Care Efficiency
$
- Kristin L. Carman, Pam Dardess, Maureen Maurer, Shoshanna Sofaer, Karen Adams, Christine Bechtel and Jennifer Sweeney. Developing Interventions And Policies Patient And Family Engagement: A Framework For Understanding The
Elements And Developing Interventions and Policies. Health Affairs, 32, no. 3 (2013): 223-231 doi 10.1377.
- Klea D. Bertakis, MD, MPH and Rahman Azari, PhD. Determinants and outcomes of patient-centered care. Patient Educ Couns 7 August 2010.
- Klea D. Bertakis, MD, MPH and Rahman Azari, PhD. Patient-Centered Care is Associated with Decreased Health Care Utilization. Journal of the American Board of Family Medicine. Doi: 103122/jabfm.2011.03.100170 J AM Board Fam Med
May-June 2011 vol. 24 no. 3 229-239
- Ronald M. Epstein, MD, Peter Franks, MD, Cleveland G. Shields, PhD, Sean C. Meldrum, MS, Katherine N. Miller, BS, Thomas L. Campbell, MD, Kevin Fiscella, MD, MPH. Patient-Centered Communication and Diagnostic Testing. Ann Fam
Med. 2005 Sep; 3(5): 415–421. doi: 10.1370/afm.348
- Patrick A. Charmel and Susan B. Frampton. Building the Business Case for Patient-Centered Care. Healthcare Financial Management Association. March 2008.
- Moira Steward, PhD, Judith Belle Brown, PhD, Allan Donner, PhD, Ian R. McWhinney, OC, MD, Julian Oates, MD, W. Wayne Weston, MD, John Jordan, MD. The Impact of Patient-Centered Care on Outcomes. J Fam Pract 2000;49:796 – 804
- Ronald M. Epstein, Kevin Fiscella, Cara S. Lesser and Kurt C. Stange. Why the Nation Needs a Policy Push on Patient-Centered Health Care. Health Affairs, 29, no. 8 (2010):1489-1495 doi: 10.1377/hlthaff.2009.0888
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Cultural Shift
Current Future
Clinical Experts and
Clinical & Passive
Patient-Generated
Health Data
Engaged Patient
Expert and Active
Patient-Generated
Health Data
Patient- Provider
Partnership
+ =
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Why is it so hard?
Engaged
Pro-Active
Shared Decision-Makers
Partners
EmpoweredX
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Patient Workflow
Track – Manage - Share© 2015 Image Source: The MITRE Corporation
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© 2017 Image Source: The MITRE Corporation
Track – Symptom Picker
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Track – Symptom Tracker
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Track - Medications
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Track – Medication Reminders
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Manage: Home Page
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Share: Trends
How did they
respond to
that new
medication?
Are they
developing a new
comorbid
condition?
These symptoms
are getting worse
My mood is
a lot better lately
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Share: Layers of Detail
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Share: Dashboard View
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Infrastructure Considerations
Symptoms
Problems
Procedures
Allergies
Patient/Family History RxNorm
Medications
Data Standards
Encrypted
Database
Secure Login
Device agnostic
capabilities
Systematized
Nomenclature of Medicine-
-Clinical Terms
(SNOMED-CT)
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Evidence from Providers
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Evidence from Patients
Matthew M. Engelhard, Stephen D. Patek, Kristina Sheridan, John C. Lach, Myla D. Goldman. Remotely engaged: Lessons from remote
monitoring in multiple sclerosis. International Journal of Medical Informatics. http://dx.doi.org/10.1016/j.ijmedinf.2017.01.006
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• Remote collection of Patient
Reported Outcomes: Reliable
and Feasible
• Improved understanding of
disease
• Potential to improve patient-
centered care and
communication between patient
and provider
• Tailored content and other
innovations needed to combat
declining adherence
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Patient Engagement Policy
• MACRA introduced several reforms that will have a positive impact on patient engagement
• MIPS is an opportunity for providers to improve the quality of care they provide by engaging patients through the use of Patient Generated Health Data in the clinical setting
• Key tenet behind Alternative Payment Models is patient engagement
Value Based Care
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In Summary: Current State
Patient
GP
Caregiver
Psychiatrist
NP PT
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In Summary: Future State
Patient
GP
Caregiver
Psychiatrist
NP PT
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An Introduction of How Benefits Were Realized for the Value of Health IT
Satisfaction: Patient engagement improves communication between patients and providers
Treatment/Clinical: Empowering patients to gather symptom data between appointments and clearly communicate the information to their care team supports clinical decision-making and treatment evaluation
Electronic Data: Increased availability of patient-generated data increases data sharing and reporting
Patient Engagement: Longitudinal patient-generated health data supports analysis, improves patient engagement and increases patient self-awareness
Savings: Increased patient engagement has been demonstrated to reduce costs
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Questions
Kristina Sheridan, MS
@k_sheridan1
@MITREhealth
https://www.linkedin.com/in/kristina-sheridan-b880168
Kate Sheridan
@kate_sheridan1
https://www.linkedin.com/in/kate-sheridan-62a016127
© 2017 The MITRE Corporation. All rights reserved. Approved for public release. Distribution unlimited. Case number 17-0132