Learning Together, Helping Each Other - Kadlec Regional …€¦ ·  · 2016-11-21... his behavior...

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kadlec.org/knrc July / August 2016 Newsletter of Kadlec Neurological Resource Center KNRC is a not-for-profit organization sponsored by Kadlec. All programs and resource materials are available through the generosity of our members and donors. Learning Together, Helping Each Other Attend & Learn KNRC News & Autism Spectrum Disorder July Calendar Meet Morgen August Calendar 2016 Northwest Autism Conference Library New Arrivals A Volunteer Heart Sponsorship Learning Togeer, Helping Each Oer See page 2 2 | 3 | 4 | 6 | 7 | 8 | 9 | 10 | 11 | 12 | Photo credit Kim Fetrow Photography

Transcript of Learning Together, Helping Each Other - Kadlec Regional …€¦ ·  · 2016-11-21... his behavior...

Page 1: Learning Together, Helping Each Other - Kadlec Regional …€¦ ·  · 2016-11-21... his behavior became more aggressive; it became ... and Intervention ... Hayley Waltz, MS, BCBA,

kadlec.org/knrc

July / August 2016

Newsletter of Kadlec Neurological

Resource Center

KNRC is a not-for-profit organization sponsored by Kadlec. All programs and resource materials are available through the generosity of our members and donors.

Learning Together, Helping Each Other

Attend & Learn

KNRC News & Autism Spectrum Disorder

July Calendar

Meet Morgen

August Calendar

2016 Northwest Autism Conference

Library New Arrivals

A Volunteer Heart

Sponsorship

Learning Together, Helping Each Other See page 2

2 |

3 |

4 |

6 |

7 |

8 |

9 |

10 |

11 |

12 |

Photo credit Kim Fetrow Photography

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Learning Together, Helping Each Other

www.kadlec.org/knrc

Learning Together, Helping Each Other | By Mary Lynn Merriman

It would be easy to say that the lives of Amanda and Andy Crawmer were changed the day they received the news that both of their sons had autism, but in reality, they had lived with the challenges long before that official diagnosis.

They had suspected autism with their younger son, Jack, but a friend suggested that Amanda should also have Morgen evaluated. She began studying more about the disorder.

She soon realized that both boys, although very different, each had many of the symptoms of autism.

“I had a sinking feeling. The more I learned, it became obvious,” said Amanda.

Jack, 9, is more impacted, diagnosed as nonverbal. Morgen, 10, is higher functioning.

“That alone is a challenge, because they are so different,” she said. “Often much of the support goes to the child that is low functioning, but we needed services for Morgen, too.”

As Jack got older, his behavior became more aggressive; it became impossible to go out in public as a family.

“We felt total isolation,” she said.

All the while they were trying to learn as much as they could to help their children, feeling the isolation of having children with special challenges, and looking for the support they needed. They were navigating through an unfamiliar world.

CREATING A NEW RESOURCEIt wasn’t too many years ago that information was extremely limited for families such as the Crawmers. Parents, educators, medical professionals and those with autism spectrum disorder (ASD) all struggled to find help and resources.

As more students with autism were mainstreamed into classrooms,

“we started asking questions,” said Carol Girard, MAT, teacher of students of autism for the Kennewick School District. “We were asking ‘What is autism? How do we help? How do we encourage the strengths of these students so they succeed?’ We needed to understand autism and find better ways to assist these students and families, but resources were hard to find. Even an internet search at the time had few results. We knew that families also needed support and good, accurate information.”

That desire lead to the creation of the Southeastern Washington Autism Conference in 2005. It was organized by Kadlec Foundation, the Carson Kolzig Foundation, educators and medical care providers.

“It was our vision to bring in well-known speakers who had the information we needed to hear. We wanted to learn from those with the best knowledge. We asked ourselves, ‘Can we do this?’ The answer was ‘Yes we can,’” Girard said.

That is just what happened. Through the years, the conference has featured nationally known autism experts, educators, parents and people with ASD. Speakers have included Temple Grandin (twice), Paula Kluth, Jed Baker and Eric Courchesne.

“When we bring in specialists who are on the forefront of education and information, it provides important access that many of our families and professionals would not otherwise have,” she said. “Our participants don’t have to travel. It’s more affordable for families.”

One of those who has attended the conference every year is Melissa Brooks, rn.

“My two children with autism were diagnosed over 11 years ago, and this conference has been a crucial part of helping me know how to help them,” she said. “Every year I have benefited in some way from the conference, learning from the leaders in the

“I had a sinking feeling. The more I learned, it became obvious.”

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Learning Together (cont'd ) & Meet Morgen

July / August 20163

autism community, and also just being able to walk around and connect with others here, locally. I have a loaded 'toolbox' of ideas and information to help me not only with my daughter who is nonverbal and considered to have severe autism, but also my teen, who is high functioning.”

Girard agrees that networking is a key component.

“This is a huge benefit. For families who are struggling, the support is there from people who understand the same issues,” said Girard. “The conference is a place to find authentic information and knowledge. The presenters, and the families, are truthful and honest. We hear from families that this conference is incredibly helpful in so many ways.”

Parents have experienced the value of the information gained by the educators who attend.

“My children with autism have greatly benefited from the training those working with them in school have gained from the conference,” said Brooks. “The school staff working with my daughter has attended every year. Without this conference, it would be very difficult for them to learn from some of the leaders in autism training.”

For Girard, who attends autism conferences across the country, “this one ranks consistently as one of the best. Each year it features more than one major speaker and each year they are different. It is of great benefit to everyone who attends.”

The conference continues to grow. This year its name has been changed to the Northwest Autism Conference, to better reflect the geographic reach of the program, said Girard. Keynote speakers are Arthur Fleischmann and Alix Generous. (See additional information on page 4).

UNDERSTANDING OF AUTISM EXPANDSWhen the conference first started, there was a stigma attached to using the word autism, Girard said. Through the years, the understanding of autism has developed.

“What we have learned is that people on the autism spectrum have a unique way of seeing the world. It is how the brain works and processes information. People with autism don’t learn in the traditional way. Many have strong visual skills, and we have to design systems that use that strength.”

There is also now a better understanding on how to help those with autism strengthen their executive function skills. There is a better understanding of the role of helping each family determine what works for their family and their child.

“Every person with autism is different. It is often said if you know one person with autism, you know one person with autism,” she said.

“The brain is wonderful; for someone with autism, it just works differently. We celebrate that difference and help the child and parents understand that,” said Girard.

Andy and Amanda Crawmer continue to learn, to advocate for Jack and Morgen, and to seek resources such as the Northwest Autism Conference.

“With our children, we are parents for life,” said Amanda. ■

Ten-year-old Morgen Crawmer is in 4th grade at Sunset View Elementary School in Kennewick. He’s good with art, likes science and computer programs. He doesn’t like singing.

He has a good heart, compassion and cares about people.

He’s gregarious and kind. “Morgen feels too much,” said his mother, Amanda Crawmer.

“ He doesn’t know what to do with those feelings.

“We are continually teaching Morgen, but I never teach him academics. He’s brilliant; he taught himself to read and write at 2. What we work on are social skills and what is socially appropriate.

What we are doing is creating a stable structure, the scaffolds, for his success,” she said. “He’s a good kid. He struggles with behavior, but those behaviors don’t define him.”

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Northwest Autism Conference 2016

Additional Day for Educators | August 11, 2016Autism Institute presented by Kennewick School District & WSU Tri-CitiesRegistration fee is $55. Contact Laura Laing for more information and to register at (509) 222-6570 or [email protected].

F O R M E R L Y T H E Southeastern Washington

Autism Conference

KADLEC NEUROLOGICAL RESOURCE CENTERPRESENTS THE 12TH ANNUAL

August 9-10, 2016 | Three Rivers Convention Center7016 W Grandridge Blvd, Kennewick

PROFESSIONALAugust 9-10 . . . . . . . . . . $195August 9 . . . . . . . . . . . . . $145August 10 . . . . . . . . . . . . $145

FAMILY MEMBERAugust 9-10 . . . . . . . . . . $120August 9 . . . . . . . . . . . . . . $95August 10 . . . . . . . . . . . . . $95

STUDENTAugust 9-10 . . . . . . . . . . $120August 9 . . . . . . . . . . . . . . $95August 10 . . . . . . . . . . . . . $95

To register or to see the full list of featured presenters, call (509) 943-8455 or visit kadlec.org/knrc.

CONFERENCE ADMISSION:KEYNOTE SPEAKER: Arthur FleischmannPRESIDENT & CEO, JOHN ST. ADVERTISING (TORONTO)Together with his daughter, Arthur wrote a best-selling account of their struggles and successes entitled Carly’s Voice, which has been translated into six languages.

FEATURED PRESENTER:Karen McKibbin, PsyD CLINICAL PSYCHOLOGISTDr. McKibbin is a Licensed Clinical Psychologist who has worked with individuals with Autism Spectrum Disorder for over 15 years. She has trained at John Hopkins University and has been mentored by Dr. Tony Attwood, spending time working with him in his clinics in Australia. She is the author of “Life on the Autism Spectrum: A Guide for Girls and Women.”

AND MORE!

KEYNOTE SPEAKER: Alix GenerousMENTAL HEALTH ADVOCATE, MOTIVATIONAL SPEAKERAlix Generous’ childhood was hindered with undiagnosed Autism Spectrum Disorder. Now at 23 years old, she has appeared before the United Nations, made a significant contribution to science, given three TED talks, and traveled the world.

A conference aimed at making life easier for those impacted by autism. For families, providers, and educators . Gain tools and resources, listen to and interact with speakers, and participate in sessions designed to give you practical information on Autism topics . Executive function, anxiety, emotion regulation, food selectivity, challenging behaviors, girls and women, transitions, parenting, and more .

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5July / August 2016

Northwest Autism Conference 2016

Arthur Fleischmann, KEYNOTE SPEAKER

› Carly's Voice: Breaking through Autism (KEYNOTE)› The Joys and Collateral Damage of Autism

Alix Generous, KEYNOTE SPEAKER

› HOW TO THINK BIG: Harnessing Mental Diversity to Solve Big Problems (KEYNOTE)› Autism Assistive Technology: Implications for Treatment

Karen McKibbin, PsyD PORTLAND AUTISM CENTER, LLC

› Food Selectivity and the Autism Spectrum

› Females on the Autism Spectrum

› College Life, Independence and the Autism Spectrum

Christine Lindgren, MEd RESPONDING TO AUTISM CENTER, KENNEWICK, WA

› Navigating Chronic Behavior Problems at Home and at School

Renae Yecha, MAEd RICHLAND SCHOOL DISTRICT

› Effectively Using iPads in the Special Needs Classroom

Laurie Faith, MEd MONTCREST SCHOOL, TORONTO, CANADA

› Boosting Executive Skills with Powerful Assessment, Feedback, and Intervention

John Ellis, ND HEALTHY TINY HOMES, LACROSSE, WA

› 10 Ways to Make Your Home Less Toxic

Arzu Forough WASHINGTON AUTISM ALLIANCE & ADVOCACY, REDMOND, WA

› Autism Insurance Benefits in Washington State

Don't miss a special program performed and presented by

Patricia Matestic, PhD UNIVERSITY OF WASHINGTON AUTISM CENTER

› Autism and Anxiety› Teaching Emotion Regulation› How to Motivate the

Unmotivated Learner› Strategies for Supporting High

Functioning ASD Students

Hayley Waltz, MS, BCBA, CCC UNIVERSITY OF WASHINGTON AUTISM CENTER

Keynote Presentations & Breakout Sessions:

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KNRC News & Autism Spectrum Disorder

As Kadlec Neurological Resource Center strives to improve the quality of life for those affected by neurological disorders, we are ultimately striving to help our community members be as healthy as possible.

And we are.

The 5th Annual Prescription for Caregivers Conference was held on June 9. Attendees gained tools and tips for navigating caregiving, finding strength and resiliency, and savoring moments of joy along the way — and so much more — that help them stay as healthy as possible while caring for others. Thank you to our sponsors for making this conference possible!

The 12th Annual Northwest Autism Conference (formerly the Southeastern Washington Conference) offers attendees ways to improve the health and well-being of those with autism spectrum disorders. It is a great opportunity for those living with an autism spectrum disorder, family members, educators and healthcare professionals to learn, to be entertained, to be inspired and to connect.

In our efforts to help our community members be as healthy as possible, we are planning a unique event for Saturday, October 29, “Head Smart: It’s a helmet thing”. We will be hosting Kevin Pearce, a 2010 Vancouver Olympic contender, who suffered a traumatic brain injury while training for the Olympic trials in Park City, Utah. Kevin’s experience is chronicled in the documentary, “Crash Reel” which is available for check out from the KNRC Library.

Kevin shares Kadlec Neurological Resource Center’s passion for educating the public on brain injury prevention and brain health.

The goal of the event is to make it cool for kids of all ages to want to protect their brains. There will be a giant walk-through inflated brain, the Pacific Science Center’s brain power exhibit, and so much more. If you want to be involved as a volunteer or sponsor, let us know! Mark your calendar.

Thank you to Kadlec Neurological Resource Center’s sponsors and members. As a member or sponsor, you are ensuring our community members have resources to be as healthy as possible. ■

Autism spectrum disorder (ASD) refers to a group of complex neurodevelopment disorders characterized by repetitive and characteristic patterns of behavior and difficulties with social communication and interaction. The symptoms are present from early childhood and affect daily functioning.

The term “spectrum” refers to the wide range of symptoms, skills, and levels of disability in functioning that can occur in people with ASD. Some children and adults with ASD are fully able to perform all activities of daily living while others require substantial support to perform basic activities.

The Diagnostic and Statistical Manual of Mental Disorders (DSM-5, published in 2013) includes Asperger syndrome, childhood disintegrative disorder, and pervasive developmental disorders not otherwise specified (PDD-NOS) as part of ASD rather than as separate disorders. A diagnosis of ASD includes an assessment of intellectual disability and language impairment.

ASD occurs in every racial and ethnic group, and across all

socioeconomic levels. However, boys are significantly more likely to develop ASD than girls. The latest analysis from the Centers for Disease Control and Prevention estimates that 1 in 68 children has ASD. ■

Autism Spectrum Disorder Fact Sheet. (2016). National Institute of Neurological Disorders and Stroke.

Letter from Executive Director

What is Autism Spectrum Disorder?

KNRC Autism ResourcesKadlec Neurological Resource Center has a number of ways to help those with Autism Spectrum Disorder, families, educators and providers, including:

• The KNRC library has a large section of materials devoted to ASD.

• Support groups including the Young Adults Support Group (meeting the second Wednesday of the month at 3:00 pm at Kadlec Healthplex).

• The annual Northwest Autism Conference.

For more information, visit the KNRC website, kadlec.org/knrc.

Photo by Kim Fetrow Photography

featuringKevin PearceFORMER PROFESSIONAL SNOWBOARDER Expo, activities, exhibits & more!

Three Rivers Convention Center

Karen Hayes, MA Executive Director

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FEATURED KNRC EVENTS

Living with Alzheimer's: Early Stage Memory Loss - For those with early stage Alzheimer's and their caregiversCo-Sponsored by the Alzheimer’s AssociationSpeaker: Joan Acres

July 21, 20161:30 pm - 3:30 pm

Kadlec Healthplex, Sycamore Room 1268 Lee Blvd, Richland, WA 99352

Living with Alzheimer’s: Late Stage - For caregiversCo-Sponsored by the Alzheimer’s AssociationSpeaker: Joan Acres

August 17, 20161:30 pm - 3:30 pm Kadlec Healthplex, Sycamore Room 1268 Lee Blvd, Richland, WA 99352

Positive Physical Approach™

and Hand-Under-Hand™ Trainers: Cathy Manderbach & Sue Pinard

August 26, 20162:00 pm - 4:00 pm Kadlec Healthplex, Cedar & Sycamore Rooms 1268 Lee Blvd, Richland, WA 99352This workshop focuses on Positive Approach™ to Care “care partnering” techniques, including Positive Physical Approach™ and Hand Under Hand™. Attendees will learn to shift from simply “dealing with behaviors” to creating a positive and caring environment.

MTHFRSpeakers: Neil Rawlins, md

August 30, 2016 6:00 pm - 7:30 pm Kadlec Healthplex, Cedar & Sycamore Rooms 1268 Lee Blvd, Richland, WA 99352

Co-Sponsored by

Alzheimer’s Disease/DementiaAmyotrophic Lateral Sclerosis (ALS)AnxietyAtaxiaAttention Deficit Disorder (ADD)Autism Spectrum DisordersAutoimmune DiseasesBipolar DisorderBrain HealthCaregiving

Chronic Fatigue SyndromeChronic Pain ConcussionDepressionDystoniaEarly Stage Memory LossEpilepsy/Seizure DisorderFetal Alcohol SyndromeFibromyalgiaGrief

Headaches & MigrainesHuntington’s DiseaseLearning DisabilitiesLupusLyme DiseaseMindfulnessMultiple SclerosisNeuropathyNutritionObsessive Compulsive Disorder (OCD)

Parenting Parkinson’s DiseasePost-PolioSensory Processing DisordersSleep DisordersSpecial EducationStrokeTourette's SyndromeTraumatic Brain Injury (TBI)

KNRC PROVIDES INFORMATION & SUPPORT TO THOSE AFFECTED BY NEUROLOGICAL DISORDERS

For additional information and to register for one of these events online, go to kadlec.org/knrc or call (509) 943-8455.

THESE PROGRAMS ARE PROVIDED TO YOU FREE OF CHARGE.

7July / August 2016

Attend & Learn

The material in The NeuroTransmitter is not intended for diagnosing or prescribing. Consult your physician before undertaking any form of medical treatment or adopting any exercise program or dietary guidelines. Information in The NeuroTransmitter comes from a wide range of medical experts.

Photo by Kim Fetrow Photography

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July 2016 Calendar

SUNDAY MONDAY TUESDAY WEDNESDAY THURSDAY FRIDAY SATURDAY

1 2

3 4

KNRC LIBRARY CLOSED FOR

INDEPENDENCE DAY

5MS

SUPPORT GROUP2:00 pm

ROOM (O)

6POST POLIO

SUPPORT GROUP1:00 pm

ROOM (M)

TBI SUPPORT GROUP

3:00 pm

ROOM (M)

7 8CHRONIC PAIN

SUPPORT GROUP1:00 pm

ROOM (M)

9

10 11PARKINSON'S

TELECONNECTION BROADCAST

NOT MEETING

12 13

14 15 16

17 18PARKINSON'S

SUPPORT GROUP1:30 pm

ROOM (S)

19ART EXPRESSIONS

10:00 am ROOM (O)

CAREGIVERS SUPPORT GROUP

1:00 pm ROOM (O)

STROKE SUPPORT GROUP3:00 pm

ROOM (M)

20YOUNG ADULTS

SUPPORT GROUP3:00 pm

ROOM (M)

21PARKINSON'S SUPPER CLUB

4:30 pm

LOCATION (TBA1)

CAREGIVERS FOR ALZ/DEM

SUPPORT GROUP5:30 pm

LOCATION (CG)

ALZHEIMER'S EDUCATION (SEE PAGE 7)

22CHRONIC PAIN

SUPPORT GROUP1:00 pm

ROOM (M)

23PARKINSON'S

DANCE11:00 am

ROOM (S)

24 / 31 25CAREGIVERS

SUPPORT GROUP (MEN ONLY)

12:30 pm

LOCATION (CG)

26CAREGIVERS FOR

ALZ/DEM SUPPORT GROUP

5:30 pm

LOCATION (CG)

PARKINSON'S SUPPORT GROUP

6:30 pm

LOCATION (BMS)

27ALS

SUPPORT GROUP12:00 pm

ROOM (M)

28 29 30

BMS Brookdale Meadow Springs | 770 W Gage Blvd, Richland

C Cedar Room

CG Callaway Gardens | 5505 W Skagit Ct, Kennewick Light meal served, RSVP is requested. Call (509) 783-5433.

M Maple Room

O Oak Room

S Sycamore Room

TBA To Be Announced

1 Please call KNRC at (509) 943-8455 for location and to RSVP. Get together and enjoy!

CALENDAR KEY

ALL SUPPORT GROUPS MEET AT KADLEC HEALTHPLEX, 1268 LEE BLVD, RICHLAND WA, EXCEPT WHERE NOTED OTHERWISE.

CONFERENCE ROOMS NOT AVAILABLE

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9July / August 2016

August 2016 Calendar

SUNDAY MONDAY TUESDAY WEDNESDAY THURSDAY FRIDAY SATURDAY

1 2MS

SUPPORT GROUP2:00 pm

ROOM (O)

3POST POLIO

SUPPORT GROUP1:00 pm

ROOM (M)

TBI SUPPORT GROUP

3:00 pm

ROOM (M)

4 5 6

7 8PARKINSON'S

TELECONNECTION BROADCAST

2:00 pm

ROOM (C1)

9ART EXPRESSIONS

NOT MEETING

KNRC LIBRARY CLOSED

FOR AUTISM CONFERENCE

SEE PAGE 4 & 5

10YOUNG ADULTS

SUPPORT GROUP3:00 pm

ROOM (S)

KNRC LIBRARY CLOSED

FOR AUTISM CONFERENCE

SEE PAGE 4 & 5

11 12CHRONIC PAIN

SUPPORT GROUP1:00 pm

ROOM (M)

13

14 15PARKINSON'S

SUPPORT GROUP1:30 pm

ROOM (S)

16CAREGIVERS

SUPPORT GROUP 1:00 pm

ROOM (O)STROKE SUPPORT

GROUP 3:00 pm

ROOM (M)

17ALZHEIMER'S EDUCATION (SEE PAGE 7)

18PARKINSON'S SUPPER CLUB

4:30 pm

LOCATION (TBA2) CAREGIVERS FOR

ALZ/DEM SUPPORT GROUP

5:30 pm

LOCATION (CG)

19 20

21 22CAREGIVERS

SUPPORT GROUP (MEN ONLY)

12:30 pm

LOCATION (CG)

23CAREGIVERS FOR

ALZ/DEM SUPPORT GROUP

5:30 pm

LOCATION (CG)

PARKINSON'S SUPPORT GROUP

6:30 pm

LOCATION (BMS)

24

ALS SUPPORT GROUP

12:00 pm

ROOM (M)

25 26

CHRONIC PAIN SUPPORT GROUP

1:00 pm

ROOM (M)

PAC ACTIVITIES (SEE PAGE 7)

27

PARKINSON'S DANCE NOT

MEETING

28 29 30MTHFR

(SEE PAGE 7)

31

BMS Brookdale Meadow Springs | 770 W Gage Blvd, Richland

C Cedar Room

CG Callaway Gardens | 5505 W Skagit Ct, Kennewick Light meal served, RSVP is requested. Call (509) 783-5433.

M Maple Room

O Oak Room

S Sycamore Room

TBA To Be Announced

1 Parkinson's Teleconnection For monthly topic please visit www.spokaneparkinsons.org or call KNRC at (509) 943-8455.

2 Please call KNRC at (509) 943-8455 for location and to RSVP. Get together and enjoy!

CALENDAR KEY

ALL SUPPORT GROUPS MEET AT KADLEC HEALTHPLEX, 1268 LEE BLVD, RICHLAND WA, EXCEPT WHERE NOTED OTHERWISE.

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For thirty years, Mildred Walton has been utilizing the center’s library to help herself with caregiving for friends and family with a multitude of neurological disorders, that include traumatic brain injury, multiple sclerosis, Asperger's syndrome, Alzheimer's disease, stroke, Parkinson's disease, Friedreich’s ataxia, and spinal cord injury. You, too, can help yourself, your friends and family. Stop by the Library at the Healthplex.

10www.kadlec.org/knrc

A Volunteer Heart

A Volunteer Heart | By Mary Lynn Merriman

Mildred Walton can trace her involvement with Kadlec Neurological Resource Center to its beginnings in 1981 as the Battelle/Kadlec Epilepsy Center.

In those early years, she helped with newsletters and other volunteer work.

“I always had an interest in neurological disorders,” she said. “We had several in our family, and I was always helping find materials. The research I did helped our family understand these disorders. Plus, I love to learn.”

So the fit was natural between what has grown to become KNRC and Mildred -- helping provide educational and additional support services to those living with neurological disorders and their families in this community.

“At that time, it was a little, independent organization in a tiny office,” she said.

Eventually, as the organization expanded, Mildred began helping in the office more.

“I was asked to help cover the front desk for a few hours per week, and I found I really enjoyed it,” Mildred said.

It’s something she is still doing today. She’s there every Monday, still covering the front desk.

“People come in troubled, and I try to help put their mind at ease,” she said. “We have lots of information to help them. I tell them, ‘You already know how to do this, you just need to build on what you’ve got, and we can help.’ We have a really good library. Knowledge is power.”

FIRSTHAND EXPERIENCEThrough the years, Mildred has helped hundreds of others tap into the resources available at KNRC. Yet little did she know that she would someday turn to KNRC for help, knowledge and support herself.

In 2002, her husband John was diagnosed with Alzheimer’s disease. She turned to the resource center’s library for information and joined its Alzheimer’s disease support group. Before long, she was serving as the group’s leader.

“Being involved in the support group helped me learn about Alzheimer’s and how it affects a person,” she said. “The more you learn, the better you are able to understand what is happening.

It makes it easier on you, whether it’s Alzheimer’s or another neurological disorder.”

John passed away in 2008; they had been married over 65 years.

“Alzheimer’s is the reward for being able to grow old,” she said. “He was 85 when he was diagnosed and 91 when he died. He had survived so many things in his life to even get to the point of getting Alzheimer’s. He didn’t feel upset; he just started to teach me everything he could about maintaining the house.”

Meanwhile, Mildred starting learning all she could about Alzheimer’s, much of it through KNRC, to help herself and John, too.

A VOLUNTEER HEARTMildred’s volunteer work is not limited to KNRC. She’s also involved in Team Read and SIGN Fracture Care International.

“I think we live in a world that depends on work as our identity. We always ask, ‘What do you do?’ Once we retire, we should still contribute. It’s important. We are all in this world together, and we need to help each other.”

Those are not just words to Mildred; she puts them into action every week at KNRC.

“People are empowered by knowing what’s going on,” she said. “We have really helped people. I’ve seen it. I believe it. I have firsthand experience with what a difference we can make.

“When you are dealing with something there is no cure for, you have to face how you are going to live with it. We help people live with it,” she said. ■

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LIBRARY NEW ARRIVALS

July / August 2016

Library New Arrivals

THE LIBRARY IS FUNDED BY YOUR GENEROUS DONATIONSSpanish Resources Available

ADD/ADHDTeaching Life Skills to Children and Teens with ADHD: A Guide for Parents and Counselors Vincent J. Monastra, phd

ALZHEIMER’S/DEMENTIAA Heart Full of GEMSTeepa Snow, ms, otr/l, faota & Linn Possell, ma, m.div

The Memory Workbook (Teach Yourself)Mark Channon

Songs You Know By Heart: A Simple Guide for Using Music in Dementia Care Mary Sue Wilkinson, & Teepa Snow, ms, otr/l, faota

What the Hell Happened to My Brain? Living Beyond DementiaKate Swaffer

ALSALS Caregivers Guide & Journal: Amyotrophic Lateral SclerosisSandra Donalds

Joy and Suffering: My Life with ALSMartin J. D’Amore, md

Lou Gehrig Disease, ALS, or Amyotrophic Lateral Sclerosis ExplainedRobert Rymore

Swallow Safely: How Swallowing Problems Threaten the Elderly and Others: A Caregiver’s Guide to Recognition, Treatment, and PreventionRobert Sayadi, phd, ccc-slp & Joel Herskowitz, md

ANXIETYIndigo Dreams: Kids Rainforest Relaxation Music, Decreased Worry, Fear, Anxiety, Well Being, Creativity Lori Lite

Mindfulness for Teen Anxiety: A Workbook for Overcoming Anxiety at Home, at School, & Everywhere ElseChristopher Willard, psyd

Sea Otter Cove: A Relaxation Story to Lower Anxiety, Decrease Stress and Control Anger While Promoting Peaceful SleepLori Lite

AUTISMAutism and the Extended Family Raun Melmed, md & Maria Wheeler, med

Love That Boy: What Two Presidents, Eight Road Trips, and My Son Taught Me about a Parent’s ExpectationsRon Fournier

The Parent’s Guide to the Medical World of Autism: A Physician Explains Diagnosis, Medications, & TreatmentsEdward, Aull, md & Temple Grandin, phd (Foreword)

Quest Program I: Social Skills Curriculum for Elementary School Students with AutismJoEllen Cumpata, ma, ccc-slp & Susan Fell, lmsw

Quest II: Social Skills Curriculum for Middle School Students with AutismJoEllen Cumpata, ma, ccc-slp & Susan Fell, lmsw

Sensitive Sam Visits the DentistMarla Roth-Fisch

BIPOLARBrandon and the Bipolar Bear: A Story for Children with Bipolar DisorderTracy Anglada

DYING/GRIEFFinal Gifts: Understanding the Special Awareness, Needs, and Communications of the DyingMaggie Callanan, rn & Patricia Kelley, rn

Grief Is a Journey: Finding Your Path Through LossKenneth J. Doka, phd

EXERCISESeated Tai Chi for ArthritisPaul Lam, md

Tai Chi Tang Style 40 Forms Paul Lam, md

Tai Chi Sun Style 73 Forms Paul Lam, md

MINDFULNESSAngry Octopus: An Anger Management Story Introducing Active Progressive Muscular Relaxation and Deep Breathing Lori Lite

Bubble Riding: A Relaxation Story Designed to Teach Children Visualization Techniques Lori Lite

Mindfulness Meditation for TeensBodhipaksa

Page 12: Learning Together, Helping Each Other - Kadlec Regional …€¦ ·  · 2016-11-21... his behavior became more aggressive; it became ... and Intervention ... Hayley Waltz, MS, BCBA,

www.kadlec.org/knrcwww.kadlec.org/knrc

2016 BOARD OF DIRECTORSJodi Melland, Chair Pam Knutson, Vice Chair Steve Arneson, Treasurer Debra Lang-Jones, RN, Secretary Bob De Lorenzo Terry Marie Fleischman Rose Gray Linda Gustafson LaRayne Jackson Pat Lacey Yosen Liu, PhD Robbie Loomis, MHA Chris Rawlins, RN Bill Stahl Dianna Veleke

KADLEC OFFICERSLane Savitch, President & Chief Executive Kadlec Regional Medical Center Glenn Welch, Vice President Resource Development

STAFFKaren Hayes, MA, Executive Director Nicole Grove, Assistant Sue Linn, Program Specialist Cathy Manderbach, Outreach Specialist Sue Pinard, Resource Specialist

KNRC BOARD & STAFF

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NONPROFIT ORGANIZATIONU.S. POSTAGEP A I DPERMIT No. 178SALEM, OR

1268 Lee BoulevardRichland, WA 99352(509) 943-8455kadlec.org/knrc

NEURO CONNECTIONS

SAGE RAT RUNBill Stevens and his daughter, Danielle Jackson ran with notable success at the Sage Rat Run on Saturday May 21, 2016. Their team “Will Run for Dopamine” raised $3,802 for Parkinson’s Research!

LIVING WELL–CHRONIC CONDITIONS WORKSHOPThe Living Well self-management workshop is designed to help people with chronic conditions improve the quality of their lives.

July 18, 2016 – August 22, 2016 5:00 pm – 7:30 pm Kadlec Healthplex 1268 Lee Blvd, Richland, WA 99352

There is also a “Thriving and Surviving Cancer Workshop”. To learn more about both workshops or to register, call (509) 946-4611, ext 5593.

SUMMER SENSORY FRIENDLY MOVIESJoin The Arc of Tri-Cities for a Sensory Friendly Movie Night! Anyone with sensory differences is welcome.

August 2, 2016 Fairchild Cinemas 5020 Convention Drive, Pasco, WA 99301

To register or learn more, contact Melissa Brooks at (509) 783-1131, ext 108 or [email protected].

Showcase your business by sponsoring an upcoming issue of the NeuroTransmitter. Contact Cathy Manderbach, (509) 943-8455 or [email protected].

KNRC NeuroTransmitter Sponsorships

Garrett Electric Stan Spohr

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