Launch Regional Report on Epilepsy Epilepsy in the WHO European Region Fostering Epilepsy Care...

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Launch Regional Report on Epilepsy Epilepsy in the WHO European Region Fostering Epilepsy Care Hanneke M. de Boer – Global Campaign Co- ordinator

Transcript of Launch Regional Report on Epilepsy Epilepsy in the WHO European Region Fostering Epilepsy Care...

Page 1: Launch Regional Report on Epilepsy Epilepsy in the WHO European Region Fostering Epilepsy Care Hanneke M. de Boer – Global Campaign Co-ordinator Launch.

Launch

Regional Report on Epilepsy

Epilepsy in the WHO European Region Fostering Epilepsy Care

Hanneke M. de Boer – Global Campaign Co-ordinator

Launch

Regional Report on Epilepsy

Epilepsy in the WHO European Region Fostering Epilepsy Care

Hanneke M. de Boer – Global Campaign Co-ordinator

Page 2: Launch Regional Report on Epilepsy Epilepsy in the WHO European Region Fostering Epilepsy Care Hanneke M. de Boer – Global Campaign Co-ordinator Launch.

Regional Reports on Epilepsy

Regional Reports on Epilepsy

Epilepsy: The Figures Globally

250.000.000 one seizure in a life time 50.000.000 people with active epilepsy 42.500.000 pwe in developing countries 2.500.000 new cases each year 70% pwe seizure free with treatment 80% not properly diagnosed/treated

Epilepsy: The Figures Globally

250.000.000 one seizure in a life time 50.000.000 people with active epilepsy 42.500.000 pwe in developing countries 2.500.000 new cases each year 70% pwe seizure free with treatment 80% not properly diagnosed/treated

Page 3: Launch Regional Report on Epilepsy Epilepsy in the WHO European Region Fostering Epilepsy Care Hanneke M. de Boer – Global Campaign Co-ordinator Launch.

Regional Reports on Epilepsy

Regional Reports on Epilepsy

Epilepsy: The Figures in Europe

WHO EURO Region: 53 countries (27 EU countries)

15.000.000 one seizure in a life time 6.000.000 people with active epilepsy 300.000 new cases each year 70% pwe seizure free with treatment 40% not properly diagnosed/treated

Epilepsy: The Figures in Europe

WHO EURO Region: 53 countries (27 EU countries)

15.000.000 one seizure in a life time 6.000.000 people with active epilepsy 300.000 new cases each year 70% pwe seizure free with treatment 40% not properly diagnosed/treated

Page 4: Launch Regional Report on Epilepsy Epilepsy in the WHO European Region Fostering Epilepsy Care Hanneke M. de Boer – Global Campaign Co-ordinator Launch.

Regional Reports on Epilepsy

Regional Reports on Epilepsy

ILAE + IBE + WHO = ILAE/IBE/WHO Global Campaign Against Epilepsy

Campaign mission statement:Improve acceptability, treatment, services and prevention worldwide

Campaign strategy• Raising general awareness• Supporting national deptmants of health to identify needs, promote

education, training, services and prevention worldwide

ILAE + IBE + WHO = ILAE/IBE/WHO Global Campaign Against Epilepsy

Campaign mission statement:Improve acceptability, treatment, services and prevention worldwide

Campaign strategy• Raising general awareness• Supporting national deptmants of health to identify needs, promote

education, training, services and prevention worldwide

Page 5: Launch Regional Report on Epilepsy Epilepsy in the WHO European Region Fostering Epilepsy Care Hanneke M. de Boer – Global Campaign Co-ordinator Launch.

Regional Reports on Epilepsy

Regional Reports on Epilepsy

Campaign tactics

• Producing regional reports• Incorporating epilepsy in national health plans• Facilitating establishments professional and lay organisations• Setting up Demonstration Projects that illustrate good practice in the

provision of epileps care

Campaign tactics

• Producing regional reports• Incorporating epilepsy in national health plans• Facilitating establishments professional and lay organisations• Setting up Demonstration Projects that illustrate good practice in the

provision of epileps care

Page 6: Launch Regional Report on Epilepsy Epilepsy in the WHO European Region Fostering Epilepsy Care Hanneke M. de Boer – Global Campaign Co-ordinator Launch.

Regional Reports on Epilepsy

Regional Reports on Epilepsy

Regional Reports - AIMS

- advocacy tool- instrument for dialogue

Regional Reports - AIMS

- advocacy tool- instrument for dialogue

Page 7: Launch Regional Report on Epilepsy Epilepsy in the WHO European Region Fostering Epilepsy Care Hanneke M. de Boer – Global Campaign Co-ordinator Launch.

Regional Reports on Epilepsy

Regional Reports on Epilepsy

Contents

Background information on the RegionEpilepsy (care) in the RegionInitiatives to address epilepsy in the RegionChallengesActions and recommendationsConclusionDeclaration on EpilepsyWHO paper to Cabinet

Contents

Background information on the RegionEpilepsy (care) in the RegionInitiatives to address epilepsy in the RegionChallengesActions and recommendationsConclusionDeclaration on EpilepsyWHO paper to Cabinet

Page 8: Launch Regional Report on Epilepsy Epilepsy in the WHO European Region Fostering Epilepsy Care Hanneke M. de Boer – Global Campaign Co-ordinator Launch.

Regional Reports on EpilepsyRegional Reports on Epilepsy

Reports provide:

“Panoramic view of the epilepsy situation in the Region,

outlines the initiatives taken by ILAE, WHO, IBE and other partners

to address the problems, define the challenges and offer

appropriate recommendations”

Reports are:

“Potent advocacy tools for taking epilepsy “out of the shadows”

Reports provide:

“Panoramic view of the epilepsy situation in the Region,

outlines the initiatives taken by ILAE, WHO, IBE and other partners

to address the problems, define the challenges and offer

appropriate recommendations”

Reports are:

“Potent advocacy tools for taking epilepsy “out of the shadows”

Page 9: Launch Regional Report on Epilepsy Epilepsy in the WHO European Region Fostering Epilepsy Care Hanneke M. de Boer – Global Campaign Co-ordinator Launch.

Regional Reports on EpilepsyRegional Reports on Epilepsy

State of affairs: Regional Reports

Region Published

AFRO 2004AMRO (Spanish version) 2008EMRO 2010EURO 2010SEARO 2004WPRO 2004

State of affairs: Regional Reports

Region Published

AFRO 2004AMRO (Spanish version) 2008EMRO 2010EURO 2010SEARO 2004WPRO 2004

Page 10: Launch Regional Report on Epilepsy Epilepsy in the WHO European Region Fostering Epilepsy Care Hanneke M. de Boer – Global Campaign Co-ordinator Launch.
Page 11: Launch Regional Report on Epilepsy Epilepsy in the WHO European Region Fostering Epilepsy Care Hanneke M. de Boer – Global Campaign Co-ordinator Launch.

Regional Reports on EpilepsyRegional Reports on Epilepsy