Lantos GrantAwareness Campaign 2012

Hot Holders for Hope

Ryan Juntti – PH PatientBonnie Patricelli – Mom/Caregiver

Lantos ????

• Living with daily pulmonary hypertension challenges, patients, families and caregivers form plenty of ideas for making the PH journey better. Those ideas may become reality through the Tom Lantos Awards for Innovation in Community Service.

• The grant program is named after the late Rep. Tom Lantos, a longtime congressman from California who was the original sponsor of our bill in Congress after his granddaughter was diagnosed with PH.

Hot Holders for Hope

2012 – Grant ApplicationSubmitted 1/25/2012

Project Name: Hot Holders for Hope

Describe the need for your project and how it will benefit the PH community1) It will provide an Avenue of Awareness spanning a diversified group of people. People are given "hot sleeve holders" for their cup at no extra cost at most coffee shop locations. It is estimated that the average Hot Drink consumer spends 70 minutes with their hot drink and in addition it is viewed by approximately 6 others, whether sitting and chatting or in passing.2) People in transit, walking to college, to work, hurrying for train or plane or bus may feel some of the PH symptoms but people brush it off until it happens again and again. The sleeve holder could be a handy "brain trigger" to have it checked out and an easily kept reference stuck in a pocket or purse as a reminder to look up more information at phassociation.org.

List the goal(s) of your projectThe goal would be to have disbursed monthly, approximately 4,160, to a different target group. For example 3 months - like May, September and January they would be disbursed at College Campus areas throughout the country, 3 months at Airports and Train Stations throughout the country, 3 months in Big Center Cities throughout the country, 3 months in or near Tourist Attractions throughout the country.

Describe your plans for carrying it outWe have been conversing with a company who has given us a quote of $5,000 for a custom supply of 50,000 sleeves for non-profit groups. We submit the logo, wording, design and they will do the imaging, up to 4 color print, printing, promoting, distributing to the target groups of our choice, shipping, tracking, all included.

Describe how your project could be adopted in other communitiesThis project could be promoted around the world, wherever they sell "Hot Drinks"

Estimate your timetable for execution of the grantBeginning in mid-May having 4,160 Hot Holders distributed to College Campus areas, and thereafter distributing 4,160 Hot Holders to a different target group every month across the country for one year.

Please describe the roles that other individuals or groups will playSon and Mother, Patient and Caregiver will be designing and wording Hot Holders. Also working together coordinating with Hot Holder company. We will be asking our PH email and facebook online friends opinions on our proposed designs when ready.

Itemized budget for the funds you are requesting for your project Budget: All inclusive quote for imaging, 4 color printing, shipping, distributingCost item 1: $5,000

Hot Holders for Hope2012 – Grant Award

Notice of Award - May 05/07/12

Bonnie and Ryan:

Congratulations! The review committee of the Tom Lantos Innovation in Community Service Awards has granted your request for funding of $5,000 for your project entitled “Hot Holders for Hope.”

We are very pleased that with funding from Gilead Sciences, Inc., PHA is able to provide you with the resources to carry out this innovative project.

Within the next two weeks, we will send you a check to cover your award as well as information on reporting on your project when it is completed. In the meantime, it is my pleasure to share this good news with you today!

Mollie Katz

Vice President, Community EngagementPulmonary Hypertension Association

2012 - Grant Goals

The goal would be to have disbursed monthly, approximately 4,160, to a different target group. For example 3 months - like May, September and January they would be disbursed at College Campus areas throughout the country, 3 months at Airports and Train Stations throughout the country, 3 months in Big Center Cities throughout the country, 3 months in or near Tourist Attractions throughout the country.

The Work Begins….

Hot Holders for HopeGoals

Hot Holders for HopeFinal Proof

Approved 6-18-12

Hot Holders for Hope - 1st Distribution Summer Tourist Spots

BRITEVISION MEDIACOFFEE SLEEVE ADVERTISINGPreliminary VENUE LISTCAMPAIGN: PHA AwarenessDATE: July 2012DMA Café Name Street City ST ZipBoston (Manchester) Caffe Dello Sport 308 Hanover St Boston MA 02113Chicago Bombon Cafe 36 S Ashland Ave Chicago IL 60607Chicago Le Peep Grill 1000 W Washington Blvd Chicago IL 60607

Denver Taza de Cafe 3565 W 44th Ave Denver CO 80211Houston Café Yvino 208 Travis St. Houston TX 77002Los Angeles Hollywood Coffee 6464 Sunset Blvd Hollywood CA 90028New York New Twin Deli 162 Madison Ave New York NY 10016Orlando-Daytona Bch-Melbrn

Stardust Coffee 1842 E Winter Park Rd Orlando FL 32803

Philadelphia Java Jane's 5421 Somer's Point Rd Mays Landing NJ 08330Philadelphia Tuscany Cafe 230 S Broad St Philadelphia PA 19102Phoenix (Prescott) Mountain Park

Community Church2408 East Pecos Rd Phoenix AZ 85048

San Francisco-Oak-San Jose

Cafe Francisco 2161 Powell St San Francisco CA 94133

Savannah Plantation Station 111 Lighthouse Rd Hilton Head Island SC 29928Seattle-Tacoma 1201 Caffe 1201 3rd Ave Seattle WA 98101Washington, DC (Hagrstwn) Jack's Fresh 1015 18th St NW Washington DC 20036

This preliminary list consists of target locations only and is subject to change without notice.

Hot Holders for Hope – 2nd Distribution Colleges Starting Fall Session

BRITEVISION MEDIA

COFFEE SLEEVE ADVERTISINGPreliminary VENUE LISTCAMPAIGN: PHA AwarenessDATE: August 2012DMA Café Name Street City ST ZipAtlanta Dania's Gourmet- 26 Peachtree St NW Atlanta GA 30303

Baltimore One World Cafe 100 W University Pkwy Baltimore MD 21210

Cincinnati Kaldi's Catering 1212 Jackson St Cincinnati OH 45202Detroit Amer's Deli 312 S State St Ann Arbor MI 48104Hartford & New Haven College Coffee 258 College St New Haven CT 6510

Indianapolis Cafe Royale 620 W Stadium Ave West Lafayette IN 47906

Kansas City Global Cafe 8200 Massachussetts St Lawrence KS 66044

Minneapolis-St. Paul Taraccino Coffee 224 E Hennepin Ave Minneapolis MN 55414

Philadelphia Lola Bean 1325 Frankford Ave Philadelphia PA 19125

Phoenix (Prescott) CUPZ Coffee 777 S College Ave Tempe AZ 85281

Portland, OR Finickys Bagel C 5127 SW MacAdam Ave Portland OR 97201

Salt Lake City Coffee Noir 1035 E 200 S Salt Lake City UT 84102San Diego Working Educatio 1313 Park Blvd San Diego CA 92101

Spokane Kafe America 406 Burrell Ave Lewiston ID 83501This preliminary list consists of target locations only and is subject to change without notice.

Hot Holders for Hope – 3rd Distribution Train Stations

BRITEVISION MEDIA

COFFEE SLEEVE ADVERTISING

Preliminary VENUE LIST

CAMPAIGN: PHA Awareness

DATE: November 2012

DMA Café Name Street City ST Zip

Atlanta Food Land Go 74 Northside Dr SW Atlanta GA 30313

Baltimore Cafe Saint Paul 7 Saint Paul St Baltimore MD 21202

Boston (Manchester) Au Petit Pain 11 College Ave Somerville MA 2144

Chicago 7-Eleven 200 N Dearborn Chicago IL 60686

Los Angeles Yamazaki Bakery 123 Japanese Village Plaza Los Angeles CA 90012

Los Angeles Cafe Express 1000 E Santa Ana Santa Ana CA 92701

New York American Newstand 10 Cyprus Ave Brentwood NY 11717

New York Bagels By The Park 323 Smith St Brooklyn NY 11231

PhiladelphiaArdmore Station Café

6 Station Ave Ardmore PA 19003

San Francisco-Oak-San Jose Royal Donut 1090 Burlingame Ave Burlingame CA 94010

San Francisco-Oak-San Jose Caffe Roma 143 S El Camino Real Millbrae CA 94030

Seattle-Tacoma Coffee Junction 401 Harris Ave Bellingham WA 98225

This preliminary list consists of target locations only and is subject to change without notice.

Hot Holders for HopePersonally Distributed

We received an initial preview shipment of 1,200 Hot Holders so we distributed them to coffee shops in several towns near us, Barrington, Stratford and Voorhees, New JerseyRyan was able to talk to people about PH in the process

“There is coffee shop on my into work that is on the corner of one of the busiest streets in Philadelphia, PA (18th and Market) near the train station, etc. It is small but inside one of the hotels that people stay at for conventions.” Bonnie

Hot Holders for HopePersonally Distributed

Hot Holders for HopeMailed to PH Friends for Their Awareness Events

We received 1,200 more free Hot Holders from . We offered these to other PH Friends on through Facebook and PH contacts for Awareness Events

Pam Carner – 800 Hot Holders - Cincinnati Group, OhioDistributed at Christ Hospital, also a restaurant Country Inn. Also at University Hospital with a display and I gave some of the cup sleeves to the : "Log Cabin Herb Society" and the Anderson Township Historical Society.Dr. Engel's talked to over 50 nurses last week, United Therapeutics provided lunch and gave out your hot cup sleeves.

Diane Dauwalder – Fort Worth, TX – Used for Awareness Event Bonnie and Ryan – Shoprite – Laurel Springs, New Jersey

Hot Holders for Hope Used at Awareness Functions

Hot Holders for Hope Used at Awareness Functions - continued

Hot Holders for Hope Used at Awareness Functions - continued

Some Hot Holders were used at a Church coffee time table. We were told several people there needed the PHA Information.

Women’s Health Conference – 1,200 Women attended Camden County, New Jersey

Hot Holders for Hope Used at Awareness Functions - continued

Hot Holders for Hope Distributedby

Across the Country to Select Cafes

Chicago, IL

Hot Holders for Hope Distributed by

Across the Country to Select Cafes continued

Washington, DC Philadelphia, PA

Hot Holders for HopeGoal Success

Our Goal was met and more– The Hot Holders were distributed across the

country, in various seasons, in various areas– Also we did not realize so many PH Friends would

be interested in having them at Awareness Events– We thank BriteVision for giving us 2,400 to

distribute above and beyond what they agreed to distribute

Lantos Grant 2013Sometimes it’s PH – Early Diagnosis

Campaign

Hot Holders for HopeRyan Juntti – PH Patient

Bonnie Patricelli – Mom/Caregiver

Sometimes it’s PH – Early Diagnosis Goals of 2013 Grant

Project Name: Hope Hot Holders - Early Diagnosis Describe the need for your project and how it will benefit the PH community –

“The average time between PH Symptoms onset and diagnosis is 2.8 years".We need to get the information to doctors, and especially doctors just beginning their career, to at least be aware

of PH. To know that "even a small delay in diagnosis has a dramatic impact on prognosis". The Hope is the more awareness the doctors have of PH, and more doctors working for the cure, the earlier and faster it can be treated.

List the goal(s) of your project 1) To distribute the Hope Holders in cafeteria's in Medical Teaching Hospitals and Universities, and coffee shops near Medical

Teaching facilities. 2) Also plan to have a small amount held aside for Support Groups that would like to incorporate the Hot Holders into their

Awareness Events, perhaps at health fairs in their area. Also our goal is to reach each part/area of the country –North, South, East and West.

Describe your plans for carrying it out3) We have a company that has quoted us $5,000 for 50,000 holders - includes printing, revamping the design to fit the holders,

and distributing them. The sales representative we would be working with help organize a target group at teaching hospitals, he also familiar with working with non-profit fundraising organizations.

4) Also we will enlist the help of other PH patients and Medical members of the PH communities for ideas of Medical Facilities to distribute to where it would be most effective.

5) We plan to incorporate the Early Diagnosis Campaign - the Zebra and Horses with the PHA logo and website and the Sometimes it's PH link.

Sometimes it’s PH – Early Diagnosis Goals of 2013 Grant cont.

Describe how your project could be adopted in other communitiesThe project could implemented in any part of the world the uses hot drinks and gives out hot holders. Estimate your timetable for execution of the grantWould start working on in May and distributing by August and continue through end of April 2014. Please describe the roles that other individuals or groups will play1) Mother - caregiver and Son - PH patient working together to spread awareness and fighting for a cure. 2) Also we will enlist the help of other PH patients and Medical members of the PH communities for ideas of

Medical Facilities to distribute to where it would be most effective. 3) Also plan to have a small amount held aside for Support Groups that would like to incorporate the Hot

Holders into their Awareness Events, perhaps at health fairs in their area. Itemized budget for the funds you are requesting for your project - Budget Item 1: All inclusive quote for imaging, printing, shipping and distributing - from Mike Adler at

Cost item 1: $5,000

Hot Holders for HopeSometimes it’s PH – Early Diagnosis

Final ProofAugust 1, 2013

Sometimes it’s PH – Early DiagnosisCompiling the Distribution List

Involving the PH CommunityWe sent emails to Support Group LeadersAlso, put a message on facebook offering the

Hot Holders to others for PH Awareness month. We received over 30 responses We mailed boxes of 100, 300, 600 to 20 people

Our goal is to reach each part/area of the country – trying to reach North, South, East and West. We ask for suggestions from Support Group Leaders and PHA Staff . Here is the original list below listed by State. Working with Mike Adler of BriteVision we used the Cafes they have connections with near as many of these suggestions as possible to come up with a distribution list. The Cafes have to be willing to accept them also.

Person submitted Drs. Hospital or Cafe LocationMolly Katz (Dr. Fagan) *University of South Alabama AlabamaMatty Heenan Franz Rischard; Dr. Steve

Knoper*University Medical Center at the University of Arizona

Arizonia also serving New Mexico

Molly Katz (Dr. Oudiz) UCLA School of Medicine - (Los Angeles) CaliforniaMolly Katz (Dr. Zamanian, Dr. Perez) Stanford University Medical School California

Perry Mamigonian Dr. Vijay Balasubramanian

UCSF Fresno Center for Medical Education and Research

California 93701-2302

Molly Katz (Dr. Badesch, Dr. Bull, Dr. Ivy)

University of Colorado Denver Medical School Colorado

Doug Taylor Emory University in Atlanta, GA GeorgiaDoug Taylor *Georgia Regents University in Augusta, GA (Where

I go!)Georgia

Molly Katz (Dr. Lahm Indiana University Medical School) IndianaKim Lamon-Loperfido *University of Iowa Hospitals and Clinics – Java

House or Coralville, IowaIowa

Molly Katz (Dr. Park) University of Maryland Medical Center MarylandMolly Katz (Dr. Channick) Massachusetts General Hospital MassachusettsMolly Katz (Dr. McLaughlin) University of Michigan Medical School MichiganMolly Katz (Louise Durst, PHA

nurse leaders)Mayo Clinic, Rochester, Minn. Minnesota

Molly Katz (Dr. Chakinala) Washington University School of Medicine Missouri (?)Carol Lindstrom Dr. Austin Thompson University of Nebraska Medical Center in Omaha,

NE.Nebraska

Melanie UMDNJ - Newark New Jersey - NorthMelanie Newark Beth Israel New Jersey - North

Sometimes it’s PH – Early DiagnosisCompiling the Distribution List

Sometimes it’s PH – Early DiagnosisCompiling the Distribution List

**Janet Plock -Pulmonary Hypertension Awareness/Support Group of Binghamton, NY

*Our Lady of Lourdes Hospital, 169 Riverside Drive, Binghamton, NY 13905

New York

Janet Plock Wilson Memorial Regional Medical Center, 33-57 Harrison Street, Johnson City, NY 13790

New York

Janet Plock *Binghamton General Hospital, 10-42 Mitchell Ave., Binghamton, NY 13903

New York

Bonnie Patricelli Cooper Hospital New Jersey South CamdenBonnie Patricelli Kennedy Hospital - Stratford – next to UMDNJ school New Jersey South Stratford

Doug Taylor - Marilyn Mears -

Duke in Raleigh/Durham, NC North Carolina

Doug Taylor - Wake Forest in Wake Forest, NC North CarolinaPam Carner Here are teaching hospitals in

Cincinnati , Ohio area:Christ Hospital --513-585-200, University of Cincinnati Hospital--513-584-1000,Kettering Medical Center--Dayton Ohio

Ohio

Molly Katz (Dr. Erzurum) Cleveland Clinic OhioKim Lamon-Loperfido Case Western Hospitals Ohio - ClevelandMolly Katz (Dr. Taichman, Dr. Palevsky) Penn Presbyterian Medical Center Pennsylvania

Molly Katz (Dr. Mathier, Dr. George, Dr. Champion)

University of Pittsburgh Medical Center Pennsylvania

Janet Plock *Robert Packer Hospital, 1 Guthrie Square, Sayre, PA 18840 Pennsylvania

Mary Svikhart

Hershey Medical Center Pennsylvania

Doug Taylor Medical College of SC in Charleston, SC South CarolinaEvette Britton Vanderbilt University Medical Center in Nashville, TN Tennessee

Molly Katz (Dr. Torres, Dr. Levine) University of Texas Health Science Center TexasMarcia Beverly UTSW in Dallas TexasMolly Katz (Dr. Elliott, Dr. Brown) University of Utah Medical School UtahSusan Temple - Pulmonary Clinic at The University of Virginia VirginiaCharlotte McCabe

Dr Ralph The University of Washington Medical Center in Seattle WA Washington (Seattle)

August 8, 2013 -

We just received the initial shipment hot holders - box of 1,200. They look great, thank you.

Do you have the final shipping list of cafe's that will be getting them?

Thank you for all your work.

Bonnie and Ryan

Sometimes it’s PH – Early Diagnosis Exciting - First Shipment

Sometimes it’s PH – Early DiagnosisFinal Distribution List ofCafes through

DMA Café Name Street City ST Zip

Binghamton Nezuntoz 50 Pennsylvania Ave Binghamton NY 13903

Boston (Manchester) Fill-A-Buster 142 Bowdoin St Boston MA 02108

Denver Evil Bean 1515 Arapahoe St Denver CO 80202

Indianapolis Cafe Zuppa 320 N Meridian St Indianapolis IN 46204

Los Angeles Boba Loca 10946 Weyburn Ave Los Angeles CA 90024

Mobile-Pensacola (Ft Walt) Satori Coffee 5460 Old Shell Rd Mobile AL 36608

Nashville Carrie's Coffee 3102 W End Ave Nashville TN 37203

New York North Broad Food Mart 1410 N Broad St Hillside NJ 07205

New York Green Room 201 Lyons Ave Newark NJ 07112

San Francisco-Oak-San Jose Benkyoko - Japanese Bakery

1747 Buchanan St San Francisco CA 94115

San Francisco-Oak-San Jose Cafe Murano 1777 Steiner St San Francisco CA 94115

San Francisco-Oak-San Jose Quickly 1522 Fillmore St San Francisco CA 94115

San Francisco-Oak-San Jose Terrace Cafe 2100 Webster St San Francisco CA 94115

San Francisco-Oak-San Jose Lutticken's 269 Campus Dr Stanford CA 94305

Washington, DC (Hagrstwn) Bun Cafe 6070 Greenbelt Rd Greenbelt MD 20770

COFFEE SLEEVE ADVERTISINGPreliminary VENUE LISTCAMPAIGN: PHA AwarenessDATE: September 2013

Sometimes it’s PH – Early DiagnosisTotal List Mailed/Distributed

Hot Holders for Hope – Early Diagnosis- Sometimes its PH – 2013 Distribution

Mailed Holders Contact Name Address Location Distributed State9.1–9.31.13 46,000 BriteVision–M. Adler** List – All Country BriteVision–M. Adler Mobile AL BriteVision–M. Adler Los Angeles CA BriteVision–M. Adler San Francisco CA BriteVision–M. Adler San Francisco CA BriteVision–M. Adler San Francisco CA BriteVision–M. Adler Stanford CA BriteVision–M. Adler Greenbelt CA BriteVision–M. Adler Denver CO BriteVision–M. Adler Indianapolis IN BriteVision–M. Adler Boston MA BriteVision–M. Adler Hillside NJ BriteVision–M. Adler Greenbelt, MD MD BriteVision–M. Adler Newark NJ BriteVision–M. Adler Binghamton, NY NY BriteVision–M. Adler Nashville TN MAILED TO PH FRIENDS SO THEY COULD DISTRIBUTE TO CAFES AND USE FOR AWARENESS EVENTS10.16.13 600 Matty Heenan Tucson, AZ Univ. Med. At Un. of Arizona AZ11.12.13 200 Evan White Bloomington, CA Hospital, University CA11.12.13 130 Lori Wilkerson Turlock, CA CA11.17.13 300 Kristine Green** Grand Junction, CO Cafes in town-where S.G. meets CO10.9.13 300 Doug Taylor** Augusta, GA/SC Regent Hospital GA3.21.14 new 300 Jan Neumann Houma, LA. 70360 LA11.12.13 200 Melissa Boster Foxtrot, MA Deli – she used to work MA10.7 600 Stephanie Layer** St. Paul, MN United Hospital, St, Paul MN Stephanie Layer Rochester, MN Sent to Dr. McGoon MN9/15/13 200 Bonnie Patricelli Stratford, NJ Top Docs, Blood Lab, Rowan Univ. NJ 100 Bonnie Patricelli** Voorhees, NJ Coffee Shop NJ 200 Ryan Juntti Audubon, NJ Coffee House NJ1.27.14 250 Brenda Gibson Canal Winchester, OH OH11.10.13 150 Anne Stanton Philadelphia, PA Coffee Shops in Fairmont PA11.12.13 200 Jody Lynn Dawson Pittsburgh, PA Allegheny General PA11.21.13 300 Diane Roberts Pittsburgh, PH Children’s Hospital, Pitts. PA9.23.13 250 Gloria Hamm Wilkes Barre, PA PA11.7.13 300 Jeanine DiMauro Spring, TX Little Rock Med. School TX 4,580

Sometimes it’s PH – Early DiagnosisPH Friends Spreading Awareness

I distributed 300 hot holders to four local coffee shops in Grand Junction, Colorado. Each business I went to was super supportive and glad to help. I distributed them (with my three year old son's help) in November as part of bringing awareness to our community along with accepting a proclamation (with Anna Bower)declaring Grand Junction Pulmonary Hypertension Awareness month. I am grateful to have had the opportunity to bring awareness to our community! Thank you!Blessed be,Kristine Green

Sometimes it’s PH – Early DiagnosisPH Friends Spreading Awareness

“One place is where we have started having our PH support group meetings for LiPHe in the Grand Valley (Colorado's western slope group) and it is called Four Winds Coffee and Tea.

Sometimes it’s PH – Early DiagnosisPH Friends Spreading Awareness

Here is a picture of the coffee cup sleeves that we gave away at United Hospital in St. Paul Minnesota on November 7, 2013. We also had the coffee sleeves in the cafeteria. They were a big hit.Thank you so much for getting the Tom Lantos grant and thinking of such a great idea and most of all for sharing with all of us.Stephanie Layer

I sent some to the Rochester, MN support group and to Dr. And Bonnie McGoon in Rochester. They were going to put them in the coffee shops in Rochester and maybe try to get them in the mayo Clinic cafeteria. Thank you again! Great PH awareness!Stephanie Layer

Sometimes it’s PH – Early DiagnosisPH Friends Spreading Awareness

Sometimes it’s PH – Early DiagnosisPH Friends Spreading Awareness

Ryan took Hot Holders to Audubon, NJ, they were glad to help spread the word.

Sometimes it’s PH – Early DiagnosisPH Friends Spreading Awareness

Hey, Bonnie--I took the hot holders to Georgia Regents University in Augusta, GA. My PH specialist is there and I showed the hot holders to him and asked if he would endorse placing them in the cafeteria. Of course he did. The cafeteria manager could not have been more accommodating! He asked if I could send him PH information/brochures to place next to the hot holders. If the hot holders go back into production, I would love to take them to GRU again along with some of the brochures PHA has.Great job you and Ryan did!Best-- Doug Taylor

Sometimes it’s PH – Early DiagnosisPH Friends Spreading Awareness

Lori Wilkerson Salazar – California“I gave them to the coffee shop at my local hospital, they used them on cups of coffee sold to doctor, support staff and visitors. From what I was told they were a big hit.”

Emanuel Medical Center Turlock, CA. Jeannie DiMauro – Texas Cafes in Bellville and Spring, Texas

Sometimes it’s PH – Early Diagnosis PH Friends Spreading Awareness

Pictures from PHA Daily Beat article to promote applying for Lantos Awareness Grant

1099 Gayley Ave, Los Angeles, CA 90024

1522 Fillmore St, San Francisco, CA 94115

Sometimes it’s PH – Early DiagnosisSpreading Awareness

142 Bowdoin St, Boston, MA 02108

1515 Arapahoe St, Denver, CO 80202

Sometimes it’s PH – Early Diagnosis Spreading Awareness

List the goal(s) of your project(1) To distribute the Hope Holders in cafeteria's in Medical Teaching Hospitals and

Universities, and coffee shops near Medical Teaching facilities. (2) Also plan to have a small amount held aside for Support Groups that would like to

incorporate the Hot Holders into their Awareness Events, perhaps at health fairs in their area. Also our goal is to reach each part/area of the country –North, South, East and West.

Our Goal was Met! The Hot Holders – Sometimes it’s PH - were

distributed North, South, East and West - 28 states - in and near Medical teaching facilities.

Sometimes it’s PH – Early DiagnosisGoal Was Met

Hot Holders for Hope - 2012Sometimes it’s PH – Early Diagnosis – 2013

USA Coverage - PH Awareness

Who are responsible for Grant

Gilead for sponsoring the Grant

The Committee Members that vote on the Award WinnersTo everyone at PHA Association for all your time, work, love

Mike Adler at BriteVision for all his help and concern

To all the PH Friends who supported us and spread Awareness – Early Diagnosis - through this project.

Sometimes it’s PH – Early DiagnosisTHANK YOU TO ALL