Krisztina Horvat: The Importance of Self Advocacy of People with Autism in the Context of...
-
Upload
beitissie1 -
Category
Services
-
view
277 -
download
0
Transcript of Krisztina Horvat: The Importance of Self Advocacy of People with Autism in the Context of...
![Page 1: Krisztina Horvat: The Importance of Self Advocacy of People with Autism in the Context of Progressive Reforms: A Good Practice from Hungary - Slide presentation](https://reader036.fdocuments.us/reader036/viewer/2022081521/58ef468e1a28ab1e568b45a9/html5/thumbnails/1.jpg)
![Page 2: Krisztina Horvat: The Importance of Self Advocacy of People with Autism in the Context of Progressive Reforms: A Good Practice from Hungary - Slide presentation](https://reader036.fdocuments.us/reader036/viewer/2022081521/58ef468e1a28ab1e568b45a9/html5/thumbnails/2.jpg)
THE IMPORTANCE OF AUTISTIC SELF- ADVOCACY IN THE CONTEXT OF PROGRESSIVE REFORMS - GOOD PRACTICE FROM HUNGARY
Kriszta Horvát – Gábor Petri
Equal Opportunities for Disabled People Non-profit Ltd.Eight Points Project (TAMOP-5.4.11.)
![Page 3: Krisztina Horvat: The Importance of Self Advocacy of People with Autism in the Context of Progressive Reforms: A Good Practice from Hungary - Slide presentation](https://reader036.fdocuments.us/reader036/viewer/2022081521/58ef468e1a28ab1e568b45a9/html5/thumbnails/3.jpg)
„tudás”- Naprakész információ- Kommunikáció
Eight Points Project Core Activities
Supporting Institutions (27+10)
Parent Training, Family Programs
Set of Criteria
Training Programs for Professionals, Accredited Trainings
Professional Consultancy Network
AutismInformation System
National Autism Coordination Center
![Page 4: Krisztina Horvat: The Importance of Self Advocacy of People with Autism in the Context of Progressive Reforms: A Good Practice from Hungary - Slide presentation](https://reader036.fdocuments.us/reader036/viewer/2022081521/58ef468e1a28ab1e568b45a9/html5/thumbnails/4.jpg)
Eight Points Project: Practice Oriented Events and Training
![Page 5: Krisztina Horvat: The Importance of Self Advocacy of People with Autism in the Context of Progressive Reforms: A Good Practice from Hungary - Slide presentation](https://reader036.fdocuments.us/reader036/viewer/2022081521/58ef468e1a28ab1e568b45a9/html5/thumbnails/5.jpg)
![Page 6: Krisztina Horvat: The Importance of Self Advocacy of People with Autism in the Context of Progressive Reforms: A Good Practice from Hungary - Slide presentation](https://reader036.fdocuments.us/reader036/viewer/2022081521/58ef468e1a28ab1e568b45a9/html5/thumbnails/6.jpg)
![Page 7: Krisztina Horvat: The Importance of Self Advocacy of People with Autism in the Context of Progressive Reforms: A Good Practice from Hungary - Slide presentation](https://reader036.fdocuments.us/reader036/viewer/2022081521/58ef468e1a28ab1e568b45a9/html5/thumbnails/7.jpg)
Historical Review – Mitzi Waltz (2013)
• Medical model – focuses on the impairment of the individual based on a medical, diagnostic, therapeutical approach, describes the individual by focusing on defects and deficiencies.
• Social model – analyses the social interaction of the individual. It states that the disability becomes an impairment if the individual does not get appropriate support in his/her social interactions, if society fails to make reasonable adjustments.
• The framework of the social model is defined by the combination of the individual and the social situation of the individual.
• The multitude of different types of support that meet the needs of the individual play a key role for autistic people, not their physician or therapist.
![Page 8: Krisztina Horvat: The Importance of Self Advocacy of People with Autism in the Context of Progressive Reforms: A Good Practice from Hungary - Slide presentation](https://reader036.fdocuments.us/reader036/viewer/2022081521/58ef468e1a28ab1e568b45a9/html5/thumbnails/8.jpg)
We are making advances…
• in the direction of self-advocacy
• Parent networking and advocacy began despite the opposition of professionals about 40 years ago.
• Self-advocacy emerged in parallel with the appearance of the internet, despite the fact that autistic people were and still are unwanted participants of parent movements.
![Page 9: Krisztina Horvat: The Importance of Self Advocacy of People with Autism in the Context of Progressive Reforms: A Good Practice from Hungary - Slide presentation](https://reader036.fdocuments.us/reader036/viewer/2022081521/58ef468e1a28ab1e568b45a9/html5/thumbnails/9.jpg)
I am very proud who I am.Always remember that difference is cool. (Jackson, 2003)
![Page 10: Krisztina Horvat: The Importance of Self Advocacy of People with Autism in the Context of Progressive Reforms: A Good Practice from Hungary - Slide presentation](https://reader036.fdocuments.us/reader036/viewer/2022081521/58ef468e1a28ab1e568b45a9/html5/thumbnails/10.jpg)
Effective Self-AdvocacyGoodley (1998) Llewellyn and Northway (2008)
• It is not sufficient for self-advocacy groups to be formed or autistic people to be consulted, self-advocacy groups must be supported too.
• The mode of support, the attitude and role of the supporter determine the nature and effectiveness of self-advocacy.
• Tokenism offers no progress.
• It must be ensured that the group really advocates its own goals and that the supporter has no influence over the content and exercises no control over the group.
![Page 11: Krisztina Horvat: The Importance of Self Advocacy of People with Autism in the Context of Progressive Reforms: A Good Practice from Hungary - Slide presentation](https://reader036.fdocuments.us/reader036/viewer/2022081521/58ef468e1a28ab1e568b45a9/html5/thumbnails/11.jpg)
Neurodiversity - Jim Sinclair (1993)
Autism• is not a disease• is not a sin• is not immoral• is a way of being, a natural expression of human
diversity• represents a human value ”Don’t Mourn for Us” (Sinclair, 1993)• ”We are not sick, we don’t need to be cured”
(Sainsbury, 2011)
![Page 12: Krisztina Horvat: The Importance of Self Advocacy of People with Autism in the Context of Progressive Reforms: A Good Practice from Hungary - Slide presentation](https://reader036.fdocuments.us/reader036/viewer/2022081521/58ef468e1a28ab1e568b45a9/html5/thumbnails/12.jpg)
The ”New Triad”
Pare
nts
Professionals
Autistic People
![Page 13: Krisztina Horvat: The Importance of Self Advocacy of People with Autism in the Context of Progressive Reforms: A Good Practice from Hungary - Slide presentation](https://reader036.fdocuments.us/reader036/viewer/2022081521/58ef468e1a28ab1e568b45a9/html5/thumbnails/13.jpg)
Autistic Pride
Source: Gabrielle Bryden
![Page 14: Krisztina Horvat: The Importance of Self Advocacy of People with Autism in the Context of Progressive Reforms: A Good Practice from Hungary - Slide presentation](https://reader036.fdocuments.us/reader036/viewer/2022081521/58ef468e1a28ab1e568b45a9/html5/thumbnails/14.jpg)
ASAN Autistic Self Advocacy Network
![Page 15: Krisztina Horvat: The Importance of Self Advocacy of People with Autism in the Context of Progressive Reforms: A Good Practice from Hungary - Slide presentation](https://reader036.fdocuments.us/reader036/viewer/2022081521/58ef468e1a28ab1e568b45a9/html5/thumbnails/15.jpg)
Goals and Methods of ASAN
• Full participation• Full representation• Not just in token amounts, but with real representation and real
ability to influence the outcomes• ”Curriculum for Self-Advocates” (in cooperation with other organizations)• Mentorship, terminology, communication, initiative, organizing
meetings, role of sponsors, hints and tips, guidelines
• ”What you do, and who you are, really counts. That is why this is your organization” (People First’s slogan )
![Page 16: Krisztina Horvat: The Importance of Self Advocacy of People with Autism in the Context of Progressive Reforms: A Good Practice from Hungary - Slide presentation](https://reader036.fdocuments.us/reader036/viewer/2022081521/58ef468e1a28ab1e568b45a9/html5/thumbnails/16.jpg)
Autinterest 2015Budapest
• Initiated by autistic adults
• Pilot program run by the Eight Points Project
• Objective: to assist and prepare autistic groups for self-advocacy
• i.e. to express their opinions and needs and to complement the
narratives of professionals and parents.