Keystone Institute Schedule 2015

Philippe Pinel Jean Marc Gaspard Itard Samuel Gridley Howe Dorthea Dix Édouard Séguin Carrie Buck

Gunnar Dybwad Elizabeth Boggs John F Kennedy Burton Blatt Justin Dart Wolf Wolfensberger

Marc Gold Ed Roberts Judi Chamberlin Roland Johnson Herb Lovett

Harriet McBryde Johnson

2015 Schedule of Events

K E Y S T O N E I N S T I T U T E

Elizabeth “Betsy” Neuville

Betsy has served as the Executive

Director of The Keystone Institute for

well over a decade. She has over 25

years of experience within Keystone

as a human service worker,

administrator, agency director,

evaluator, educator and personal

advocate. She has extensive experience designing and

developing supports for very vulnerable people and has

developed regionally recognized leadership teams,

meaningful quality measurements and extraordinary

employee development programs.

She served for many years as the Executive Director of

Keystone Human Services of Lancaster, where she

designed and directed supports for adults and children

experiencing developmental disabilities and/or mental

disorders. During this time, she assisted over 200 people to

leave institutions and establish themselves as valued and

contributing members of their communities. She has been

deeply involved with the closure of several large institutions

in the US and abroad and established the use of person-

centered processes to assist people to gain a vision of full,

rich community life.

Betsy has worked extensively with the ideas of

Normalization and Social Role Valorization and provides a

great deal of training and consultation nationally and

internationally. She has worked in de-institutionalization

and community-based service development projects in

many places, with an emphasis on Eastern Europe.

Betsy is accredited by the North American Social Role

Valorization Council as a trainer of SRV.

Contact: [email protected]

Pamela Seetoo

Pam has worked to assist people to

live rich, full community lives for over

25 years. Over the course of her

life's work, she has assisted people

to leave institutions and establish

themselves in the communities,

supported children and families

within foster care and host home programs, provided

service leadership, and focused on values-based

education and facilitation.

Since 2005, Pam has directed her work toward educating

others about the effects of social devaluation of

vulnerable populations. She provides many presentations

at a variety of SRV and related workshops, leads small

group learning, and has been a team leader at Passing

events. She develops and organizes an extraordinary

employee development program for the Keystone

Institute, and serves as a mentor and role model to many

others. She has a strong interest in preserving and

safeguarding the personal histories of vulnerable people,

and has developed workshops around this topic.

Pam has been accredited as an SRV teacher by the North

American Social Role Valorization Council.


Eileen Scott

Eileen Scott leads the person

centered planning education

across Keystone Human Services.

She has over 30 years of experience

in human services and

organizational development. She

has a special interest in building

communities and developing inclusive person-centered

supports. Her knowledge and experience in the principles

of Social Role Valorization and extensive training in person-

centered planning tools are assets to the Institute.

As a leader in Social Role Valorization, Eileen has

developed a strong foundation in understanding the

profound effects of social devaluation, oppression and

marginalization of many individuals in our society. She

teaches about the importance of assisting people to fulfill

valued roles in their relationships, community, spiritual life

and civic life.

Eileen believes that creating a culture that is responsive to

and supportive of all people is our highest responsibility,

and the Person-Centered Planning process facilitates our

ability to carry out that responsibility.


Keystone Institute:

940 East Park Drive, 3rd Floor Harrisburg, PA www.keystoneinstitute.com

Best Western Conference Center:

800 East Park Drive Harrisburg, PA www.thecentralhotelharrisburg.com/directions.cfm

Black Rock Retreat:

1345 Kirkwood Pike Quarryville, PA www.blackrockretreat.com/directions/

Camp Hebron:

957 Camp Hebron Road Halifax, PA www.camphebron.org/directions.htm

Fort Hunter Centennial Barn:

5300 North Front Street Harrisburg, PA www.forthunter.org

Giant Community Room:

2300 Linglestown Rd Harrisburg, PA www.giantfoodstores.com/shareddev/storelocator/

HACC Lancaster Campus:

1641 Old Philadelphia Pike Lancaster, PA www.hacc.edu/Lancaster/Directions

Temenos Retreat Center 1564 Telegraph Rd West Chester, PA www.temenoscommunity.org/directions.html

KEYSTONE INSTITUTE FACULTY

WORKSHOP LOCATIONS:

mailto:[email protected]

REGISTER EARLY! WORKSHOPS FILL QUICKLY!

717-909-9425 • [email protected] • keystoneinstitute.com • onbeingofservice.wordpress.com

WHY A HISTORICAL FIGURES EDITION?

Keystone has a long history of preserving history, teaching it, considering our role in it, and

guiding our actions because of it. History creates the backdrop for our present and drives

us toward our future. Our actions become history the moment we engage in them.

Our roles in people’s lives today come after centuries of history – replete with oppression,

signs of hope, brutalization, and emerging ideas which moved circumstances forward at

times and at other times have caused great disappointment and betrayal. Understanding

our society through history will help us do the best work that we can on behalf of others,

and to know that we are part of a social movement, a change, a possibility for this to be

the kind of world where everyone belongs and where everyone has a chance for the

good life. That kind of world is safer for everyone.

This edition of the Keystone Institute schedule is a tribute to the many dedicated,

courageous, thoughtful, and often unknown, historical leaders in the field of disability. We

acknowledge that many have been left out of this recognition, though their efforts are no

less appreciated or important. We encourage you to learn more about the many change

agents in personal human service, past and present, and use this knowledge to spur you

on and inspire you to be an agent of change yourself.

REGISTRATION GUIDELINES:

Registrations for educational events will be taken by

telephone, email, or mail. Unless otherwise noted, events are

on a first come/first served basis, so early registration is

recommended. Waiting lists will be maintained for events

which are filled to capacity, and cancelled spaces will be

offered to those people on the waiting list.

For all events contained within the annual Keystone Institute

Events Schedule, there is no per-event fee for tuition, materials,

or training space for employees and board members of

Keystone Human Services. For other attendees, fees will be

charged as outlined in the Keystone Institute Event Fees listing

(available by contacting us at 717-909-9425). Unless otherwise

noted, a simple lunch will be provided for each full day

workshop.

In order to make the most of the educational opportunities for

all attendees, we ask that all participants make every effort to

arrive on time to all events, return from breaks and lunch on

time, and to stay until the event has concluded. Any plans to

leave early or arrive late should be discussed with Institute staff

and one’s supervisor prior to the event.

Cancellations for registrations are accepted up to three

business days prior to the event. For cancellations received

with less than three business days notice, there may be a pro-

rated event fee charged to the agency .

Facilitator Development Series:

3/18, 3/19, 4/22, 4/23, 5/20, 5/21, 6/9

All sessions are 9:30am-4pm

The Facilitator Development series includes training in Person

Centered Planning, PATH, MAPs, Tools for Change, Art of

Facilitation, and Mindfulness.

Participants must receive the endorsement of their agency’s

Executive Director and must commit to the full 50 hours of

training in order to participate.

History Series:

2/5, 2/12, 2/25

All sessions are 9:00am-12:30pm

The History Series includes The

History of Byberry; Eugenics - Past,

Present, and Future; and Moral

Treatment - A Forgotten Success.

Person Centered Approaches Series:

3/25, 4/29, 5/27

All sessions are 9:00am-1:00pm

The Person Directed Approaches Series includes

An Introduction to Person Centered Planning;

Designing and Implementing the Person

Centered Planning Process; and From Planning

to Action - Person Centered Teams.

Social Role Valorization Study Groups:

1/27, 3/26, 5/14, 8/18, 11/10

All study groups are 10am-12pm

The Social Role Valorization Study Groups are organized for all graduates of a 3 or 4 day SRV

course. This year’s study groups include: On Broken Crowns, Seven Dwarves, and Beauties

& Beasts; Politics and Disability Mix-Up; Passion, Purpose, and Reality: Implementing SRV

in a Complex Landscape; CinemAbility - The Portrayal of Disability in Film and Television;

and, SRV Between the Cracks - Finding Possibility in a “Rule-Bound Human Service World”

The Road Most Traveled: Using the Culturally

Valued Analogue as Your Guide

January 7

9am-4pm

The Community Room at Giant

2300 Linglestown Rd Harrisburg PA

Mapping out a vision of a big, full, inclusive life for

vulnerable people can be full of road bumps.

Sometimes we don’t know people very well;

sometimes people are uncertain themselves about

their identity, gifts, talents and what their future

could hold; and sometimes we are so lost in

“human service land” that we lose sight of the

typical pathways of life and all they have to offer

people. But when we are struggling in developing

roles, designing services or even planning a house

warming party for someone, using the culturally

valued analogue can provide us some tried and

true guidance to get started, by reminding us to

consider “What happens for people with a valued

status?”

Join us to learn more about using the CVA to keep

us moving in the right direction as we walk with

vulnerable people.

The Results are In: De-Institutionalization and its

Legacy in the US by Dr. James Conroy

January 15

9am-3pm

Keystone Institute

940 East Park Dr Harrisburg PA

Changing from an institutional model to a small,

family-like community living model has had two

faces in America. One involved people with mental

illness, and can be rightfully considered a national

disgrace; the other involved people with

intellectual and developmental disabilities, and

was one of the most successful social changes of

the twentieth century. This discussion, presented by

Dr. Jim Conroy, who has deep roots and long-

standing accomplishment in our field, serving today

as Chairman of the Pennhurst Alliance, will offer the

history, facts, and outcomes of both movements,

and spark a discussion of current crises and future

challenges to full social participation of people with

disabilities.

Dr. Conroy is founder and director of the nonprofit

Center for Outcome Analysis, devoted to the study

and implementation of support models that

produce the best outcomes. Dr. Conroy has

directed more than a dozen longitudinal studies of

the impacts of human service programs, including

moving from institutional and nursing home

situations to community living. He headed the

national impact evaluation on the individual

outcomes of self-determination for the Robert

Wood Johnson Foundation. He has studied the

nature of quality of life, particularly among citizens

with disabilities, for several decades, and has been

particularly interested in the size of homes and

residential options and how that impacts people.

Pathways to the Good Life:

A Practical Workshop on Helping People to Have

a Rich and Meaningful Life

January 21 & 22

9am-5pm both days

Best Western Conference Center


Valued roles are the pathway to the good things in

life; things like acceptance and belonging, abiding

relationships, a positive self-image, opportunity and

experience, growth and learning. For many

devalued people, the forces of social devaluation

prevent them from having access to valued roles as

well as the “good life.”

This workshop explores the importance of helping

people fill valued roles in the face of vulnerability.

Several tools (relationship mapping, personal profile

development, culturally valued analogue, and a

vision of valued roles) are offered to participants via

short presentations, followed by facilitated small

group work, to use the ideas and craft a plan to

move forward in the life of one person. Each

person prepares for the work ahead of time by

learning about one person they serve or know, with

permission, and brings that knowledge to fully

participate in an action planning process. Come

prepared to think and plan on behalf of someone

you support– or better yet, come as a team ready

to create change together!

SRV Study Group*:

On Broken Crowns, Seven Dwarves, and Beauties

& Beasts

January 27

10am-12pm

Keystone Institute

940 East Park Dr Harrisburg, PA

Children’s literature is FULL of messages about

disability, social value, valuation, and devaluation -

let’s explore some of our childhood stories and the

lessons that were deeply etched into our

pliable, receptive and easily influenced young

hearts and minds about disability. Betsy Neuville

and Sandi Strobel will facilitate this study group, as

we search for a source of the foundation of our

unconscious belief systems about who matters, who

counts, and what “wholeness” and “brokenness” is.

*All graduates of a 3 or 4 day SRV course are welcome

to attend.

Sun Mon Tue Wed Thu Fri Sat

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In the late 18th century, Philippe Pinel, a physician in France, was appointed to care for the inmates at two institutions. At the time, the inmates were chained to the walls and left to starve. The death rate was 50% annually. Pinel noted that when people were treated decently, they behaved in a fairly orderly fashion. He understood what others saw as violent and uncontrollable behavior, as ways of protesting inhuman treatment. He became famous for “unchaining the lunatics” as he entered the courtyard of the institution and began liberating people from the chains which bound them to buildings.

His work in France influenced a generation of thinkers and physicians in the US who followed his lead and together they led the very successful movement known as Moral Treatment. They believed that, with kind and loving care and a beautiful environment, people with mental illness would make great gains. The results were remarkable. In this gentle environment, few needed to be confined and what have been shown to be some of the most remarkable gains in the lives of people with mental disorders were seen.

Philippe Pinel 1745-1826

Led the movement known as Moral Treatment. January

The History Series Part 1:

The History of Byberry

February 5

9am-12:30pm

Keystone Institute


Much can be learned about human effort, societal

forces of oppression and marginalization and the

possibilities for change, by studying the rise and fall

of “The Great Institutions”. This presentation will

describe the fascinating history of the Philadelphia

State Hospital, known as Byberry.

Through photos, stories of people’s lives, and

narrative, we will explore the initial hopeful vision of

a positive future for Pennsylvanians experiencing

mental illness and how that vision resulted in one of

the most inhumane, brutal and corrupt institutions in

the country.


Eugenics - Past, Present, and Future

February 12

9am-12:30pm

Keystone Institute


There are many ideologies that have influenced

the evolution of our society and how we have

chosen to treat others. Few of them are more

powerful or have had more devastating impact

than the Eugenics movement, the ideas of which

were most fully developed in this country and

passed on to Germany in the early 1920’s with

horrific consequences that are well known.

This presentation will initially focus on the American

Eugenics movement, its champions, its foes, and its

work to wage war against the least of us through

massive sterilization, brutalization, segregation, and

euthanasia. We will then explore eugenics ideas

and ideals at work within our society today, and

what that can mean for vulnerable people.

SRV Refresher Course*

February 17 & 18

8:30am-4:30pm & 8:30am-12:30pm


800 East Park Dr. Harrisburg PA

Haven’t been to SRV for a while and are looking for

a refresher course?

Join us as we review the themes of SRV, and discuss

how we have used these ideas over our years in

serving others. A series of short presentations will be

followed by chances to illustrate, discuss, and share

ideas and struggles. Join us to learn about the

several new themes of SRV, sharpen your grasp of

the principles, recommit to using and teaching the

ideas, and do it all in a relaxed atmosphere.

*Prior attendance at a three-day Introduction to Social

Role Valorization workshop is required to register for this

event.


Moral Treatment - A Forgotten Success

February 25

9am-12:30pm

Keystone Institute


Time after time, the history of society’s treatment of

people with mental disorders reveals that

backsliding nearly always follows progress in our

understanding of and response to mental disorders.

Periods of enlightenment have been followed by

periods of darkness, with long stretches of periods

of neglect in between.

The reformation period of Moral Treatment during

the 19th century is of great significance in the

history of psychiatry, followed by some of the worst

abuses and most brutal treatment of people with

mental illness.

Moral treatment was responsible for some of the

greatest successes in terms of outcomes for the

people in whose lives it was used. The ideas and

assumptions of this movement remain highly

positive, useful, and yet barely acknowledged,

studied or taught. Come learn about the history of

Moral Treatment in the US and abroad.


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Jean Marc Gaspard Itard 1775-1838

Held revolutionary mindsets about growth and learning.

Recognized today as one of the founding fathers of special education and one of the first child and youth counselors, Jean Marc Gaspard Itard gained international recognition for his work with a young boy known as “The Wild Boy of Averyon.” This boy had been abandoned in the woods for many years, and was deaf and considered by many to be an “incurable idiot.” Itard believed quite differently. He cared for the boy named Victor and devoted the next five years to educating him. Victor excelled in many ways and as one writer put it, Itard's work with Victor "did away with the paralyzing sense of hopelessness and inertia that had kept the medical profession and everybody else from trying to do anything constructive for mental defectives." The ideas of Itard were revolutionary for the time and formed the foundation for many effective educational pedagogies today including individualized instruction, emphasis on stimulation, awakening the learner’s senses, and high expectations for all children’s growth and development.

February

A Day with David Pitonyak:

Beyond Behavior - Supporting Competence,

Confidence and Well-Being

March 3

9am-5pm

Camp Hebron

957 Camp Hebron Rd Halifax PA

A current day leader in the field of disability, David

Pitonyak, is driven by a deep understanding of

vulnerability and an even deeper commitment to

understanding people’s unmet needs in the face of

that vulnerability. David recognizes that most

difficult behaviors develop because people are

misunderstood and because of that, they are living

lives that don't make sense. Often they are lonely,

powerless or without joy; they are devalued by

others or they lack the kinds of educational

experiences that most of us take for granted; or,

their troubling behaviors are the result of an illness,

or even a delayed response to traumatic events.

Together with the belief that "a person’s needs are

best met by people whose needs are met," he

teaches that supporting a person with difficult

behaviors also involves an honest assessment of

and attention to the needs of a person's

supporters. As an organization of people providing

very personal human service to others, Keystone

has long been committed to moving beyond

control and quick fixes to meet people’s true needs

and helping people experience belonging and

opportunity, the good things of life. Yet we

continue at times to struggle, addressing people’s

needs through medication, physical management

and behavior plans. This day is intended to give us

focus and direction as we move beyond managing

behavior and towards helping people to develop

competence, confidence and well-being.

Power of Roles*:

A One Day Overview of Social Role Valorization

March 12

9am-4:30pm

Keystone Institute


This workshop provides an engaging and

enlightening overview of the framework known as

Social Role Valorization, the foundation of both our

philosophy and practice at Keystone Human

Services. It gives participants a practical

introduction to the principles of Social Role

Valorization. Developed over the last 30 years, the

principles of SRV provide steady guidance on how

to assist vulnerable people to have full, rich and

meaningful lives. It also fuels our passion for service

and gives us direction to do good work on behalf

of others, Through a combination of multimedia

presentation and small group discussion,

participants explore the phenomenon of social

devaluation, and how it plays out in people’s lives,

as well as explore “what works” to lift people out of

devaluation and open up the possibilities in their

lives. Small group work towards practical translation

of the ideas, from theory to practice, rounds out the

experience for each participant.

*This educational event meets the minimum standards

for the KHS Statement of Program Philosophy for each

employee required within the first year of employment.

Facilitator Development Series* Session 1 & 2:

Intro to Person Centered Planning & PATH

March 18 & 19

9:30am-4pm

Keystone Institute


Session 1 includes an introduction to the Person

Centered Planning process, Throwing Away the

Garbage exercise, Judge’s Wig exercise, a look at

Learning Styles, Koru Question, several tools of the

process (Circle of Relationships, MAPS, PATH), North

Star exercise, and Change Gauge.

Session 2 is a PATH practice session. Participants

take on the role of focus person, graphic facilitator

and process facilitator. Each person leaves having

been in each role at least once.

*The Facilitator Development series is open to

employees who have received the endorsement of

their agency’s Executive Director and requires a

commitment to participate in the complete series for a

total of 50 hours of training.

Person Centered Approaches Series Session 1 of

3: Introduction to Person Centered Planning

March 25

9am-1pm

Keystone Institute


This workshop introduces participants to the basic

principles and techniques of person centered

planning. It is a philosophy and an approach to

respectful listening and meaningful planning. The

planning process focuses on creating a positive

vision of the future for the person based on his or

her capacities, strengths, and preferences, and

creates a support network built around personal

commitment and community involvement.

SRV Study Group*: Politics and Disability Mix-Up

March 26

10am-12pm

Keystone Institute


In a country that is politically divided, where

elections seem to loom large at all times, it’s a

great time to explore and examine messages

about disability being sent and received from all

sides of the political spectrum. Join SRV leaders

Ellwyn Andres, Emily Robinson, and Ben Fierer for a

lively look at what politicians and their campaigns

have to say about disability, ability, & social value.


to attend.


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Samuel Gridley Howe 1801-1876

Raised awareness of education for people with disabilities.

Physician, reformer, educator and abolitionist, along with his contemporary and fellow teacher, James Richards, Samuel Gridley Howe is most notably credited with founding the Perkins School for the Blind, through which a new level of awareness was raised for the education of people with disabilities. Suffering himself from lifelong depression, he also advocated for those with mental disorders and was compelled to change what he saw as a flawed and “wholly inadequate” system. And he fought with great fervor for the integration of African Americans before and after the Civil War. Gridley Howe was ahead of his time, a true visionary, with the highest of expectations for all people to be fully included in society and honored for their talents.

“Now the danger of misdirection in this pious and benevolent work is, that two false principles may be incorporated with the projected institutions which will be as rotten piles in the foundations and make the future establishments deplorably defective and mischievous. These are first, close congregation; and, second, life-long association … whereas, the true, sound principles are: separation from each other; and then diffusion among the normal population. For these and other reasons it is unwise to organize establishments for teaching and training, upon such principles as will tend to make them become asylums for life… Even people with intellectual disabilities have rights which should be carefully considered.”

March

Introduction to Social Role Valorization

in Three Days*

April 7-9

8am-6:30pm, 8am-6:30pm, 8am-4:30pm

Camp Hebron

957 Camp Hebron Rd Halifax PA

This intensive workshop introduces participants to

the principles of Social Role Valorization, the

philosophical and practical foundation of the

community system to serve people with disabilities

and other vulnerabilities. Developed by Dr. Wolf

Wolfensberger beginning in the early 1970s and

continuously refined, further developed over the

ensuing decades, the body of SRV material speaks

powerfully to those who are committed to working

by, with, and for people who have been

marginalized and oppressed. This theory workshop

is intended to acquaint participants with the major

themes and ideas contained within “SRV”, give

them a foundation for action, and a valuable

source of inspiration and ideas to move forward. At

Keystone Human Services, we are fortunate to

have the opportunity to offer, study, and explore

this body of knowledge which drives us to “do right”

by the people we serve, and offers us direction and

understanding.

The workshop blends multimedia presentation,

including a multitude of photographic slides and

video, with significant lecture style modules, written

materials, group learning exercises and small and

large group discussion sessions and reflections.

*This workshop fulfills the pre-requisite for attendance

at an Introductory PASSING workshop, the practicum

experience for Social Role Valorization training.

What is a Home?*

April 15

9am-4:30pm

Wilkes-Barre PA

This day of reflection, discussion, and discovery will

focus on the concept of home – what does it mean

to have a home, the importance and meaning of

home, how do we create home for others? Through

small group work, presentation, and discussion, we

will explore ways to assess how we are doing in this

area, which is so central to much of the work that

we do.

*This popular event has frequently been requested, so

please sign up early.


in Three Days*

April 21-23

8am-6:30pm, 8am-6:30pm, 8am-4:30pm

Key Human Services

Connecticut




















understanding.






Facilitator Development Series*

Session 3 & 4: MAPs & Tools for Change

April 22 & 23

9:30am-4pm

Keystone Institute


Session 3 is a MAP practice session. Participants

take on the role of focus person, graphic facilitator

and process facilitator. Each person leaves having

been in each role at least once.

Session 4 includes a look at other tools of the Person

Centered Planning process including Personal

Futures Planning, Essential Lifestyles Planning,

Negotiating Roadblocks, Four Questions, Color, Six

Thinking Hats, Mind Mapping and others.






Person Centered Approaches Series - Session 2

of 3: Designing and Implementing the Person

Centered Planning Process

April 29

9am-1pm

Keystone Institute


This second workshop of the series focuses its

attention on developing a personal profile using

person centered thinking tools. Participants will be

exposed to a variety of tools that aide in getting to

know the person they support in a fundamentally

different way and how to use the knowledge

gained to develop a “One Page Profile” as well as

an action-oriented plan for the future.


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Dorthea Dix 1802-1886

Galvanized reform for people with mental disorders.

Dorothea Dix was the most influential and important reformer of the mental illness and the prison system in the United States and Europe. An abusive household characterized her early life and she eventually moved in with her grandmother who nurtured her passion and gift for teaching. As a young woman she took a teaching job in a prison and was appalled by the abysmal state and inhumane treatment she witnessed there. She immediately began agitating for change. She visited facilities and asylums tirelessly, documenting with unflinching honesty the conditions she saw.

Dix collected her numerous observations and compiled them into a report that was presented to the Massachusetts legislature in 1843 which galvanized a movement of change and reform for both prisoners and those with mental disorders. Dix expanded her reform efforts to include almost all the states east of the Mississippi and travelled around Europe spreading her message of reform.

“While we diminish the stimulant of fear, we must increase to prisoners the incitements of hope: in proportion as we extinguish the terrors of the law, we should awaken and strengthen the control of the conscience.”

April

Power of Roles*:


May 12

9am-4:30pm

HACC Lancaster Campus

Old Philadelphia Pike Lancaster PA
























SRV Study Group*:

Passion, Purpose, and Reality: Implementing SRV

in a Complex Landscape

May 14

10am-12pm

Keystone Institute


How do we maintain our focus on the good things

of life for people when crisis and distraction gets in

the way? How is mission and margin reconciled?

How do leaders make decisions and lead towards

the vision? Join Charlie Hooker, Pam Foreman and

other organizational leaders who are also SRV

leaders from several levels of Keystone for a

discussion on compromise, risk-taking, balancing

priorities, steadfastness, loyalty to people, and

more. That's a lot to talk about in two hours, but let's

give it a shot.


to attend.

Transformation and Change Agentry

by Dr. Thomas Neuville

May 19

9am-4pm

Camp Hebron

957 Camp Hebron Dr Halifax PA

Over the years, many of us have entered human

services with a deep commitment to community,

societal and personal change. Struggles and

hardships, bureaucracy, resource issues, and

mounting dysfunctional systems have robbed many

of us, perhaps even most of us, of our hope for

positive change, our desire to engage fully with the

people we serve, and our belief that our work is

contributing to a vision of a positive future. Please

join us for a day of reconnecting with our earliest

hopes and ideals, renewing our passion for service,

and crafting a vision of what is truly possible

through personal service to others. Uncover your

gifts, the things which you uniquely bring that others

can share, and find renewed energy and vitality in

your search for meaning in your work.

Join master educator, Dr. Thomas Neuville as he

leads us through the day, using his own very

powerful story of transformation and change

agentry in developing the first inclusive university

program at Millersville University.

Facilitator Development Series*

Session 5 & 6:

The Art of Facilitation & Mindfulness Forum

May 20 & 21

9:30am-4pm

Keystone Institute


Session 5 looks at what is masterful facilitation and

the personal qualities, skills and abilities needed

within this role, reviews of the person centered

planning cycle, selecting the tool, and the role of

the facilitator throughout the process.

Session 6 is an exploration into each participant’s

motivations and values surrounding the role of

facilitator. The purpose of the forum is to increase

our mindfulness about those motivations and values

in order to gain clarity and more fluidly and

consciously step into the role of facilitator.






Person Centered Approaches Series

Session 3 of 3: From Planning to Action – Person

Centered Teams

May 27

9am-1pm

Keystone Institute


This third workshop in the series introduces

participants to the idea that in order for effective

planning to be successful, the people we support

must be surrounded by a team that is person

centered…otherwise we just end up with pretty

paper. This workshop will focus on how work teams

can improve their approach to helping the people

they support move closer to a meaningful life.


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Édouard Séguin 1812-1880

Worked to improve life for children with disabilities.

Édouard Séguin established the first private school in Paris dedicated to the education of individuals with intellectual disabilities and in 1846 published Traitement Moral, Hygiène, et Education des Idiots (The Moral Treatment, Hygiene, and Education of Idiots and Other Backward Children). This work is considered to be the earliest systematic textbook dealing with the special needs of children with intellectual disabilities. In the United States, he made efforts to improve conditions of children with disabilities at Randall's Island asylum.

He established a number of schools in various cities for treatment of people with mental disorders. In 1866 he published Idiocy: and its Treatment by the Physiological Method; a book in which he described the methods used at the "Séguin Physiological School" in New York City. Programs used in Séguin's schools stressed the importance of developing self-reliance and independence in the intellectually disabled by giving them a combination of physical and intellectual tasks.

Édouard Séguin became the first president of the "Association of Medical Officers of American Institutions for Idiotic and Feebleminded Persons", an organization that would later be known as the American Association on Mental Retardation. His work with individuals with intellectual disabilities was a major inspiration to Italian educator Maria Montessori. Seguin is considered the first great teacher in the field of disabilities.

May

A particularly stark time in the history of disability was the era of eugenics. While some eugenicists privately supported practices such as euthanasia or even genocide, legally-mandated sterilization was the most radical policy supported by the American eugenics movement. Eugenicists argued that all people who were mentally ill, mentally retarded or physically disabled were polluting the gene pool of the country. Such individuals were seen as a threat to society and the probable cause of most of the criminal activity and social problems in the country. In many states, support for the Eugenics movement resulted in legislation requiring mandatory sterilization, incarceration, and in many cases, the

castration of persons with disabilities. By the 1930’s over 30 states had laws legalizing and even mandating sterilization of “the feeble-minded” ultimately resulting in over 70,000 people being forcibly sterilized.

Carrie Buck was one such person. In 1927, after being raped and giving birth at the age of 17, she was the first person to be sterilized in the state of Virginia under a law which included sterilizing anyone who was “feeble-minded, an imbecile or epileptic.” Shortly after, Carrie was admitted to an institution on the basis that she was promiscuous and therefore also feeble-minded. The superintendent selected her as a “test-case” for the constitutionality of Virginia’s recently enacted sterilization laws. The Supreme Court upheld the decision in Buck v. Bell, validating sterilization and increasing sterilizations throughout the country. Nazis on trial at Nuremberg after World War II cited the influence of American eugenics programs on their policies and mentioned Buck v. Bell in their testimony.

Virginia Dobbs, the daughter who was separated from Carrie after her birth, died at the age of 8. Years later, married, and moving forward with her life, Carrie was known by friends and family as an independent, caring and helpful woman. Carrie’s life is one example of the brutalization and devastation that comes from the false assumptions and mindsets our society holds about its most vulnerable citizens.

Carrie Buck 1906-1983

Stands as a symbol of the reminder of the

perilous repercussions of eugenics.

Facilitator Development Series* Session 7: Series Wrap-Up

June 9

9:30am-4pm

Keystone Institute


Session 7 wraps up the series by bringing everyone together to review the series,

future facilitation ideas, personal action statements, upcoming learning

opportunities, questions, and sharing of resources.

*The Facilitator Development series is open to employees who have received the

endorsement of their agency’s Executive Director and requires a commitment to

participate in the complete series for a total of 50 hours of training.

Supported Decision-making:

Common Sense, Wisdom and

Life Experience Needed by Darcy Elks

June 23

9am-4pm

Giant Community Room


Just like everyone else, the people who are

vulnerable and use human service support have to make many decisions about

and in life areas e.g., home, relationships, financial situations, health, employment,

spirituality, etc. It is challenging for anyone to make decisions about life and even

harder for people who require support from others to assist with decision-making.

This workshop will cover many of the important considerations that others need to

be aware of if they are to be the best possible support for vulnerable people to

make decisions (from small to very important) for their lives. Practical guidelines

on how to advise people with disabilities will be offered.

6th International SRV Conference

Enriching Lives through Valued Roles: Gaining Depth and Setting Direction

June 10-12 (pre-conference days June 8 & 9)

Providence Rhode Island

For the first time in over a decade the International SRV Conference will be

held here in the United States! This is an incredible opportunity to learn from

leaders in the community of SRV and from other people who are also working

hard to use the ideas of Social Role Valorization to enrich the lives of people

they support and care about. For all the details and to register go to

www.srvconference.com.


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Gunnar Dybwad 1909-2001

Promoted framing disability as an issue of civil rights.

Dr. Gunnar Dybwad is credited with being one of the first in the world to frame mental disability as an issue of civil rights, rather than as a medical or social work “problem”. He and his wife, Rosemary were agents for change not only in the U.S. but all over the world as they traveled extensively, particularly in support family advocacy, but also in building organizations from a values based perspective and changing legislation and policies that truly shaped the development of human service systems.

Dr. Dybwad played a critical part in persuading leaders of the Pennsylvania Association for Retarded Children to take legal action on behalf of disabled children. The case, PARC v. Pennsylvania, 1972, is credited with establishing the right of disabled children to get a public education and with helping lead to laws about disability rights.

He was uncompromising in his efforts to indict low quality services that served to force low expectancies and stereotypes on people with cognitive impairments. His lifetime of efforts on behalf of devalued people spanned over 6 decades.

June

An Event about Service*

July 15 & 16

9am-5pm; 9am-3pm

Black Rock Retreat

1345 Kirkwood Pike Quarryville PA

If there is any work that calls us to do it well, it is the

work of personal human service. Being in service to

another implies respect, support and putting aside

your own needs on behalf of another. What does it

mean to engage in personal human service? What

draws me to the work and why is the work we do so

important? How can I be of true service to others?

Event About Service is an opportunity for people

from all parts of the organization to come together

to engage in thoughtful reflection and discussion

about the nature of our work. Through some

facilitated discussion and lots of small group work

and projects, we will explore social dynamics, the

role of helper, and the obligations we have to one

another as we engage in pursuit of our vision to

truly assist vulnerable people to realize life in its

fullest and most meaningful forms.

Dr. Thomas Neuville, master facilitator and

educator, will guide our learning with his powerful

insight, creativity and thought-provoking

approaches to bringing out the wisdom in each of

us and all of us.

*Held over two days in a beautiful wooded retreat

setting, participants are welcome and encouraged to

stay overnight at no cost (includes dinner).

Exploring the Places and Spaces Where

Community Happens: A Workshop on

Community Mapping ~ Session 1 of 2

July 23

8:30am-1pm

Keystone Institute


"Community is a place on the ground around

where you live and where you work, and it's where

your people are. Community is a place of

belonging where we can show up and make a

difference in valued ways as citizens." -- Dr. Beth

Mount

How can we make connections to places,

associations and opportunities that will give the

people we support a chance to participate and

contribute their gifts, talents and passions?

We teach and talk a lot in our work about helping

vulnerable people get involved in their

communities, yet many of us are unsure how to

proceed in our own lives, much less in the lives of

others. We invite you to explore community with us

in an experiential fashion, using a process of

discovery called community mapping. Where does

community life take place? Where are the places

that people gather together? How can we join in

authentically, and assist others to do so as well?

Most importantly, how might life change if we are

successful?

This two day event (July 23 & August 19) takes an in-

depth look at what is involved in Community

Mapping and provides an opportunity to

experience it for yourself - be prepared to explore,

research, travel the neighborhood, and talk to

others - the first step in understanding where people

can offer their gifts is learning the paths and places

that already exist, and that others have traveled.

Elizabeth Boggs 1913-1996

Worked to improve life for children with disabilities.

Family members of people with disabilities have been an enduring force in moving things forward and making life better for vulnerable people and we acknowledge that most of them do so with a quiet strength that nearly never brings them recognition. Of course there are also those families whose work resulted in known efforts and organizations and so they represent so many others in many regards.

Elizabeth Boggs is such a family member. She is the founder of the national association for Retarded Citizen’s and served as that association’s first woman president. Working with the International League of Societies for the Mentally Handicapped, she was a principal author of the United Nations Declaration of General and Special Rights of the Mentally Retarded. With Justin Dart, Elizabeth co-chaired the congressionally appointed Task Force on Rights and Empowerment of People with Disabilities, an important impetus to the development of the Americans with Disabilities Act. Elizabeth served on the SSI Modernization Project and, at the time of her death, was serving on the Social Security Administration's Task Force on Representative Payees.

Such mothers and reformers reflect the fortitude and drive, and persistence in love that has driven families over the centuries to push for a better life for their disabled family members.


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John F Kennedy 1917-1963

Prescribed taking action in the field of mental retardation.

While much change throughout history was led by the typical citizens, advocates and workers, there were times when change had to be legitimized and came through politicians. What we often find is that when this type of change comes, it comes because the politicians themselves, deeply identify with vulnerable people. John F. Kennedy's brief but powerful presidency was a turning point in the history of disability rights. He himself, had a sister, Rosemary, who had a disability and so his administration made a real commitment to change.

Through his legislative efforts prescribing a program of action in the field of mental retardation came The National Institute of Child Health and Human Development and the Mental Retardation and Community Mental Health Construction Act opening the doors to the replacement of isolation in state institutions to community homes and services where people could start to take back their homes and families.

“Those of us who have seen children live in the shadow know that a country as rich as ours can’t possibly justify this neglect.”

July

Adventures in Attitudes

August 5 & 6

8:30am-4:30pm each day

Fort Hunter Centennial Barn

5300 North Front St Harrisburg PA

Everyone a student, everyone a teacher...this is the

AIA experience! This active, participatory workshop

focuses on leadership development and personal

and professional enrichment through an engaging

process. Effective listening, communication skills,

attitudes of empowerment, creative problem

solving, team building strategies, and reaching

one’s potential are focal points around which

participants both learn and teach.

SRV Study Group*:

CinemAbility - The Portrayal of Disability in Film

and Television

August 18

9:30am-12:30pm

Keystone Institute


During this SRV study group, we will take a peek at

“CinemAbility”, the acclaimed star-studded 2013

documentary by award-winning Director

Jenni Gold exploring the relationship between

disability and society. Do portrayals of disability in

the media impact society, or does the media

simply reflect back our ever-changing attitudes?

Has the media had a hand in transforming the

inclusion of people with disabilities? Alongside SRV

leaders Ann Gelvin and Sue Rowell, we’ll view this

film and consider the SRV themes that are

illustrated, and think through the power of imagery

and media on devaluation and inclusion.


to attend.

Exploring the Places and Spaces Where

Community Happens: A Workshop on

Community Mapping ~ Session 2 of 2

August 19

8:30am-1pm

Keystone Institute


"Community is a place on the ground around

where you live and where you work, and it's where

your people are. Community is a place of

belonging where we can show up and make a

difference in valued ways as citizens." -- Dr. Beth

Mount

How can we make connections to places,

associations and opportunities that will give the

people we support a chance to participate and

contribute their gifts, talents and passions?

We teach and talk a lot in our work about helping

vulnerable people get involved in their

communities, yet many of us are unsure how to

proceed in our own lives, much less in the lives of

others. We invite you to explore community with us

in an experiential fashion, using a process of

discovery called community mapping. Where does

community life take place? Where are the places

that people gather together? How can we join in

authentically, and assist others to do so as well?

Most importantly, how might life change if we are

successful?

This two day event (July 23 & August 19) takes an in-

depth look at what is involved in Community

Mapping and provides an opportunity to

experience it for yourself - be prepared to explore,

research, travel the neighborhood, and talk to

others - the first step in understanding where people

can offer their gifts is learning the paths and places

that already exist, and that others have traveled.

Burton Blatt was a pioneer in humanizing services for people with intellectual disabilities. He is perhaps best remembered as author of the photographic exposé Christmas in Purgatory (1966), a searing portrait of life in an institution that brought national

attention to the abuse of people with intellectual disabilities in America's institutions; and the follow-up study, The Family Papers: A Return to Purgatory (1979). In these and his many books and writings, Blatt emphasized the humanity of all people, regardless of the nature or severity of their disability. As an advocate of deinstitutionalization, he helped initiate community living programs and family support services. In his clinical work he emphasized the provision of education to children with severe disabilities, and as a national leader in special education, he called for programs to integrate students with disabilities into public schools and worked to promote a more open society.

“Every person must have a place, must be here for a special reason, or no one has a place, or no one has a special reason for being. Either everybody counts or nobody counts.”

Burton Blatt 1927-1985

Emphasized the humanity of all people.


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Justin Dart 1930-2002

Called for every person to govern his or her own life.

Justin Dart Jr. was an activist and advocate for people with disabilities. Best known as the father of the Americans with Disabilities Act and often called the Martin Luther King of the disability civil rights movement, he thought of himself in much more humble terms—simply as a soldier of justice.

Dart attended the University of Houston from 1951 to 1954, earning his bachelor’s and master’s degrees in political science and history. He wanted to be a teacher, but the university withheld his teaching certificate because he was a wheelchair user. These events inspired him to begin his first human rights group, but surely not his last. His quest for justice incited marginalized people worldwide to recognize and utilize their political power and rights. Dart’s politics of “inclusion, principle, solidarity and love” and “revolution of empowerment” guided his advocacy efforts on behalf of countless people experiencing devaluation and discrimination.

“I call for solidarity among all who love justice, all who love life, to create a revolution that will empower every single human being to govern his or her life, to govern the society and to be fully productive of life quality for self and for all.”

August

From Building on Capacities to Supporting

Valued Experiences and Full Citizenship

September 10

9am-3:30pm

Fort Hunter Centennial Barn

5300 North Front Street Harrisburg PA

What are we working toward? The Keystone vision

points us in the direction of supporting people to

live their fullest life through participation and

presence in community life, building and

maintaining relationships, making choices, being a

respected member of our communities and making

a contribution. This workshop will look at how

developing a capacity view of the people and

supporting them to have valued experiences can

help them move into a more full and meaningful

life.


in Three Days*

September 15-17

8am-6:30p, 8am-6:30p, 8am-4:30p






















understanding.






*This workshop fulfills the pre-requisite for attendance

at an Introductory PASSING workshop, the practicum

experience for Social Role Valorization training.

Model Coherency*

September 29

8:30a-4:30p



One of the most important things that a service

provider can do in protecting vulnerable people,

and helping to create the conditions for people to

experience a full and rich life, is to assure that

services are proposed, designed, and planned with

great care and caution to assure that they truly

meet the needs of the people that are to be

served. Model Coherency embodies the idea that

all elements of practice in a service should be in

harmony with each other, and follow from a

unifying set of principles. It requires people to think

about the identity of the people who are to be

served, what is it that would be required to support

people well, who could do the work well, and in

what ways the work could be done with consistent,

high quality. Model

Coherency is a unique and

very helpful tool which can

be used to both

conceptualize positive service

designs, and help participants

develop a framework for

services which increase the

likelihood of a coherent

match between people’s

identities, their most pressing

needs, and the supports to

actually meet those needs.

*Prior attendance at a three-

day Introduction to Social Role Valorization workshop is

required to register for this event.

Best Part of Me Retreat*

September 30 & October 1

9am-5pm; 9am-3pm

Temenos Retreat Center

1564 Telegraph Rd West Chester PA

Best Part of Me is aimed at identifying and

acknowledging the best parts of ourselves that we

bring to our work. Through a series of exercises,

people who work in human services, especially

direct support workers, are able to recognize the

importance our values and gifts play in the lives of

people we serve. By providing the opportunity to

leave one’s regular work environment, people are

better able to gain a clearer perspective on their

contributions. This workshop includes individual

reflection and group discussion.

*Held over two days in a beautiful wooded retreat

setting, participants are welcome and encouraged to

stay overnight at no cost (includes dinner).


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Wolf Wolfensberger 1934-2011

Developer of the principles of Social Role Valorization.

Dr. Wolf Wolfensberger dedicated his life’s work to helping devalued people experience the “good things of life.” His efforts in the 1960’s at teaching normalization forged the way for de-institutionalization and his re-conceptualization of the idea eventually and now known as Social Role Valorization, have proved tried and true in helping to understand people’s genuine needs and provide quality services to them. To accomplish that work, he and his associates authored, the PASS and PASSING evaluation tools, which are based on Social Role Valorization theory, to assess human service quality.

Dr. Wolfensberger was a Professor of Education at Syracuse University and the Director of the Training Institute for Human Service Planning, Leadership and Change Agentry. He was also powerful voice of “truth telling” who committed his life’s work to raising our collective consciousness about the perils of devaluation that people with societally marginalized conditions face and what we can do to take action against those forces to make life better for devalued people.

He was a prolific writer, a challenging and sometimes controversial teacher, and a deep thinker who served to develop strong leaders in our field and create change for innumerable vulnerable people.

September

Pathways to the Good Life: A Practical Workshop

on Helping People to Have a Rich and

Meaningful Life

October 6 & 7

9am-5pm each day



Valued roles are the pathway to the good things in

life; things like acceptance and belonging, abiding

relationships, a positive self-image, opportunity and

experience, growth and learning. For many

devalued people, the forces of social devaluation

prevent them from having access to valued roles as

well as the “good life.”

This workshop explores the importance of helping

people fill valued roles in the face of vulnerability.

Several tools (relationship mapping, personal profile

development, culturally valued analogue, and a

vision of valued roles) are offered to participants via

short presentations, followed by facilitated small

group work, to use the ideas and craft a plan to

move forward in the life of one person. Each

person prepares for the work ahead of time by

learning about one person they serve or know, with

permission, and brings that knowledge to fully

participate in an action planning process. Come

prepared to think and plan on behalf of someone

you support– or better yet, come as a team ready

to create change together!

The Search for Belonging

October 15

9am-3pm

Keystone Institute


A sense of belonging appears to be one of the

most basic human needs, perhaps even as basic as

food, shelter and water. And yet so many people

we support live lives of extreme loneliness and

isolation, often with devastating consequences.

Helping the people we support to find connection,

deep, sustaining relationships and belonging is

some of the best work that we can do. Drawing

upon the work of Jean Vanier, join us for this day of

reflection and discussion as we seek to understand

wounds of lost relationships and exclusion and find

and restore places of belonging for the people we

support.

Marc Gold was an absolute pioneer and master teacher. As a special education teacher in Los Angeles, he formulated a values based systematic training approach, “Try Another Way.” This approach was based on a few fundamental beliefs: Everyone can learn but we have to figure out how to teach; students with developmental disabilities have much more potential than anyone realizes; and all people with disabilities should have the opportunity to decide how to live their lives.

Dr. Gold’s life ended much too soon, but his gift of teaching and powerful message about the capabilities and competencies of people are time-tested and continues to offer us wisdom and instruction on how we can be effective teachers.

Many of our inclusive vocational strategies today, including job coaching and supported and customized employment, were built from Dr. Gold’s seminal work and pioneering efforts. In his words, “If a student fails to learn, the teacher has failed to teach.”

Marc Gold 1939-1982

Believed “everyone can learn”.


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Edward Roberts 1939-1995

Role modeled “fighting for what you need.”

Edward Roberts was the first student with severe disabilities to attend the University of California, Berkeley. He was a pioneering leader of the disability rights movement. Roberts had contracted polio at the age of fourteen and spent eighteen months in hospitals, returning home paralyzed from the neck down except for two fingers on one hand and several toes. He attended school by telephone hook-up until his mother insisted that he go to school once a week for a few hours. At school he faced his deep fear of being stared at and transformed his sense of personal identity. He gave up thinking of himself as a "helpless cripple," and decided to think of himself as a "star." He credited his mother with teaching him by example how to fight for what he needed.

His career as an advocate began when a high school administrator threatened to deny his diploma because he had not completed driver's education and physical education. He had to fight for the support he needed to attend college from the California Department of Vocational Rehabilitation because his rehabilitation counselor thought he was too severely disabled to ever get a job. When his search for housing met resistance in part because of the 800 pound iron lung that he slept in at night, the director of the campus health service offered him a room in an empty wing of the Cowell Hospital. Roberts accepted on the condition that the area where he lived be treated as dormitory space, not a medical facility. His admission broke the ice for other students with severe disabilities to attend.

October

Protecting the Health and Lives of Hospital

Patients, Especially Those Who are Societally

Devalued by Jo Massarelli

November 4

9am-5pm

Keystone Institute


This workshop provides an in-depth and detailed

explanation of the many types and sources of

dangers confronting all people who become

hospital patients, and additional perils that face

people who are especially vulnerable and

societally devalued. Strategies for increasing our

awareness of the “quality of life” mindset and the

many ways it is expressed in hospital practice,

language and decision- making processes will be

taught as will the role and functions of the

protector of a patient, including the crafting of a

protective mindset.

This workshop was developed and will be

presented by Jo Massarelli, Director of the SRV

Implementation Project, a human service training

and consultation concern based in Worcester,

Massachusetts. She is an associate of Shriver

Clinical Services Corporation and a consultant to its

Medical Safeguards Project, an effort of physicians

and nurses who seek to protect the lives of

impaired people in medical settings. She also works

with an in-home nursing agency called Family Lives,

which provides round-the-clock nursing support for

medically compromised children so that they can

live at home. Jo has a particular interest in

advocacy in hospitals and presents workshops on

protecting vulnerable people in hospitals and on

medical decision-making.

SRV Study Group*:

SRV Between the Cracks - Finding Possibility in a

“Rule-Bound Human Service World”

November 10

10am-12pm

Keystone Institute


A wise friend once told us “don’t let what you can’t

do get in the way of what you can do” – It seems

harder and harder to help people move into

valued roles and towards big, good lives when we

remain focused on all the myriad rules and

regulations governing many of our more formal

services. And yet, still, many of us have found ways

to promote and assist people, in spite of this. In

fact, SRV use can be powerful and impactful in the

most unlikely places. Laura Kuchta and Vicki

Hoshower lead this study group, pondering how big

ideas can take root and flourish around the edges

and in the most unlikely places.


to attend.

Introduction to PASSING*

November 16-20

5 days, late nights, overnight stays

Black Rock Retreat

1345 Kirkwood Pike Quarryville PA

This five day workshop is for those who are

interested in deepening their knowledge about the

principles of Social Role Valorization. The workshop

involves learning to use the PASSING assessment

tool, which looks at the realities of Social Role

Valorization in practice. Most of the work done in

PASSING is done in teams and involves visiting and

assessing the quality of two human service

programs based on SRV criteria. The week’s work is

conducted under the guidance of an experienced

team leader.

*Prior attendance at a three-day Introduction to Social

Role Valorization workshop is required to register for this

event.

At the forefront of moving disability rights forward on behalf of people with mental disorders, was Judi Chamberlin. At the age of 21, hospitalized against her will for depression, she was shaken by the conditions of what was called treatment for people with

mental illness. Places that were supposed to be restorative, were exacerbating people’s conditions and damaging their health and well-being at best; in many ways they were controlling, abusive, discriminatory, and even deadly. She was a force for advocacy, using strong and powerful leaders from the civil rights movement as models and mentors and began her own ignited campaign for reform.

Her book called On Our Own, which was published in 1978, became a manifesto for people receiving mental health treatment and had great influence on many people in the mental health field too.

Judi Chamberlin 1944-1990

A force for advocacy.


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Roland Johnson 1946-1998

Gave energy to the community movement in Pennsylvania.

Powerful teachers emerged out of the ashes of the institution, people with disabilities who experienced segregation and brutalization, and yet were willing to help others see what was and is important. They fought hard for legal rights, fair treatment, and to have their voices respected and heard. This struggle continues today. Roland Johnson, author and advocate, was one such powerful leader. He spent much of his childhood at Pennhurst State School, and endured brutal treatment and abuse for years.

“After that long ride up there, it was just horrible. That was very scary. Very, very frightening. I was crying that I would never see them again, my family or sisters. We went out into this great big institution that I didn't know anything about. Where you come down on the main road you see this big thing up at Pennhurst, the water tower, coming in to Pennhurst. Things looked different to me -- because it wasn't like a house that I lived in. I'm out here in this gray institution with three thousand people that live in it. It was just something that I didn't like.”

Roland Johnson’s powerful advocacy gave energy to the community movement in Pennsylvania and nationally.

November

Power of Roles*:


December 3

9am-4:30pm


























What is a Home?*

December 7

9am-4:30pm



This day of reflection, discussion, and discovery will

focus on the concept of home – what does it mean

to have a home, the importance and meaning of

home, how do we create home for others? Through

small group work, presentation, and discussion, we

will explore ways to assess how we are doing in this

area, which is so central to much of the work that

we do.

*This popular event has frequently been requested, so

please sign up early.

Herb Lovett 1949-1998

Waged a battle to stop the use of punishment for people with autism.

Dr. Herbert Lovett was a leader, scholar, teacher, and advocate for people with disabilities and their families. He promoted inclusive supports and equal access in the areas of education, meaningful work, housing, and human rights for children and adults with disabilities; and worked with national and state leaders to develop public policies that outlawed the use of aversive procedures in favor of respectful, decent, and positive supports.

He was the co-founder and president of the Autism National Committee, was a faculty member at the University of New Hampshire, and traveled throughout the United States and the world as a consultant who helped to bring about fundamental changes in the way that people with behavioral difficulties are viewed and treated.

Dr. Lovett waged an intensive battle to stop the use of punishment and aversive procedures with people who had autism and people with difficult behaviors; a struggle that continues in many places and for many people, today.


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Harriet McBryde Johnson 1957-2008

Challenged pity-based fundraising tactics.

Harriet McBryde Johnson was an American author, attorney, professor and disability rights activist. She was disabled due to a neuromuscular disease and learned at an early age, the power of devaluation and its consequences. In her 2005 memoir, “Too Late to Die Young,” she said it was the Jerry Lewis muscular dystrophy telethon that sent her the message, for the first time, that her neuromusclular disease would kill her, which powerfully framed her early vision for her life.

McBryde attended self-contained special-education classes until age 13, when she was invited to leave because she was campaigning to get the teacher fired. At that time, there was no right to appeal; she would have been limited to home-bound instruction had her parents not convinced a private high school to give her a try. Johnson became a powerful voice for change, speaking out with fervor against “pity-based tactics and a charity based mentality” of fundraising and in an ongoing debate with Peter Singer, she challenged beliefs that parents ought to be able to euthanize their disabled children. "Unspeakable Conversations," is her account of the debates with Singer and the pro-euthanasia movement.

December

Keystone Institute Schedule 2015

Documents

Transcript of Keystone Institute Schedule 2015