Kathleen A. Mussatto€¦ · Tweddell JS, Pelech AN, Frommelt PC, Jaquiss RDB, Hoffman GM, Mussatto...

Milwaukee School of Engineering • 1025 North Broadway • Milwaukee, WI 53202-3109 • (414) 277-7300 • www.msoe.edu

Kathleen A. Mussatto

Associate Professor, School of Nursing

Degree with Fields, Institution, and Date

1986 BSN, Magna Cum Laude Northern Michigan University

2009 PhD, Nursing Science University of Wisconsin – Milwaukee

Years of Service on this Faculty: 1

Date of Original Appointment: October 2019

Advancement in Rank/Position

Clinical Experience

10/09 to 08/19 Nurse Scientist Herma Heart Institute Children’s Hospital of Wisconsin 9000 West Wisconsin Ave., MS 715 Milwaukee, WI 53226

7/17 to 08/19 Associate Adjunct Professor of Surgery – Cardiothoracic Medical College of Wisconsin Milwaukee, WI 53226 7/09 to 6/17 Assistant Clinical Professor of Surgery-Cardiothoracic

Medical College of Wisconsin Milwaukee, WI 53226

3/04 to 10/09 Research Manager Herma Heart Center Children’s Hospital of Wisconsin

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10/98 to 3/04 Outcomes Research Coordinator Cardiovascular Surgery

Children’s Hospital of Wisconsin 2/94 to 10/98 Cardiovascular Surgery Nurse Clinician Pediatric Heart Transplant Coordinator Children’s Hospital of Wisconsin 8/93 to 2/94 Cardiovascular Surgery ICU – Staff RN St. Mary’s Hospital Milwaukee, Wisconsin 3/92 to 8/93 Surgical Stepdown Unit- Charge RN Medical Center Hospital of Vermont Burlington, Vermont 9/88 to 9/92 Pediatric ICU, Intermediate ICU – Staff RN Children’s Hospital of Wisconsin Milwaukee, Wisconsin 3/87 to 9/88 Pediatrics – Staff RN University of Virginia Hospitals Charlottesville, Virginia

Professional Licensure and Certification

• State of Wisconsin Registered Nurse

License No. 100923-30

Expires 02/28/2022

Publications

1. Tweddell JS, Litwin SB, Berger S, Friedberg DZ, Thomas JP, Gallen WJ, Frommelt PC, Frommelt MA, Pelech AN, Lewis DA, Fedderly RT, Mussatto KA, Kessel MA. Twenty year experience with repair of complete atrioventricular septal defects. Annals of Thoracic Surgery, 62:419-24, 1996.

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2. Tweddell JS, Berger S, Frommelt PC, Pelech AN, Lewis DA, Fedderly RT, Frommelt MA, McManus T, Mussatto KA, Kessel MA, Litwin SB. Aprotinin improves outcome of single ventrile palliation. Annals of Thoracic Surgery, 62:1329-36, 1996.

4. Tweddell JS, Pelech AN, Frommelt PC, Wyman JD, Mussatto KA, Fedderly RT, Berger S, Frommelt MA, Lewis DA, Friedberg DZ, Thomas JP, Litwin SB. Factors affecting the longevity of homograft valves utilized in RVOT reconstruction for congenital heart disease. Circulation, 102;(Suppl II), 1999.

5. Tweddell JS, Hoffman GM, Fedderly RT, Ghanayem NS, Kampine JM, Berger S, Mussatto KA, Litwin SB. Patients at risk for low systemic oxygen delivery after the Norwood procedure. Annals of Thoracic Surgery, 69:1898-9, 2000.

6. Hoffman GM, Ghanayem NS, Kampine JM, Berger S, Mussatto KA, Litwin SB, Tweddell JS. Venous saturation and the anaerobic threshold in neonates after the Norwood procedure for hypoplastic left heart syndrome. Annals of Thoracic Surgery, 70: 1515-21, 2000.

7. Rafiee P, Shi Y, Kong X, Pritchard KA, Tweddell JS, Litwin SB, Mussatto KA, Jaquiss RD, Su J, Baker JE. Activation of Protein Kinases in Chronically Hypoxic Infant Human Rabbit Hearts Role in Cardioprotection. Circulation, 106:239-45, 2002.

8. Jaquiss RDB, Ghanayem NS, Zacharisen MZ, Mussatto KA, Tweddell JS, Litwin SB Safety of aprotinin use and re-use in pediatric cardiothoracic surgery Circulation, 106, 2002.

9. Tweddell JS, Hoffman GM, Mussatto KA, Fedderly RT, Berger S, Jaquiss RDB, Ghanayem NS, Frisbee SJ, Litwin SB. Improved Survival of Patients Undergoing Palliation of Hypoplastic Left Heart Syndrome: Lessons Learned from 115 Consecutive Patients. Circulation, 106[suppl I]:I-82-I-89), 2002.

10. Ghanayem NS, Hoffman GM, Mussatto KA, Cava JR, Frommelt PC, Rudd NA, Steltzer MM, Bevandic SM, Frisbee SJ, Jaquiss RDB, Litwin SB, Tweddell JS. Home surveillance program prevents interstage mortality following the Norwood procedure. Journal of Thoracic and Cardiovascular Surgery, 126(5): 1367-77, 2003.

11. Rafiee P, Shi Y, Pritchard KA Jr, Ogawa H, Eis AL, Komorowski RA, Fitzpatrick CM, Tweddell JS, Litwin SB, Mussatto K, Jaquiss RD, Baker JE. Cellular redistribution of

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inducible Hsp70 protein in the human and rabbit heart in response to the stress of chronic hypoxia: role of protein kinases,. J Biol Chem., 278(44):43636-44, 2003.

12. Huth, MM, Broome, ME, Mussatto, KA, & Morgan, SW. A study of the effectiveness of a pain management education booklet for parents of children having cardiac surgery. Pain Management Nursing, 4(1), pp. 31-39, 2003.

13. Jaquiss RDB, Ghanayem NS, Hoffman GM, Fedderly RT, Cava JR, Mussatto KA, Tweddell JS. Early cavopulmonary anastomosis in very young infants after the Norwood procedure: Impact on oxygenation, resource utilization, and mortality. Journal of Thoracic and Cardiovascular Surgery, 127: 982-9, 2004.

14. Hoffman GM, Tweddell JS, Ghanayem NS, Mussatto KA, Stuth EA, Jaquiss RDB, Berger S. Alteration of the critical arteriovenous oxygen saturation relationship by sustained afterload reduction after the Norwood procedure. Journal of Thoracic and Cardiovascular Surgery, 127(3): 738-45, 2004.

15. Soetenga, D. & Mussatto, K. Management of the infant with hypoplastic left heart syndrome: Integrating research into nursing practice. Critical Care Nurse, 24(6): 46-66, 2004.

16. Tweddell JS, Pelech AN, Frommelt PC, Jaquiss RDB, Hoffman GM, Mussatto KA, Litwin SB. Complex aortic valve repair provides a durable and effective alternative to valve replacement in children with aortic valve disease. Journal of Thoracic and Cardiovascular Surgery, 129(3): 551-8, 2005.

17. Tweddell JS. Pelech AN. Jaquiss RD. Frommelt PC. Mussatto KA. Hoffman GM. Litwin SB. Aortic valve repair. Seminars in Thoracic & Cardiovascular Surgery. Pediatric Cardiac Surgery Annual, 112-21, 2005.

18. Mussatto, KA & Tweddell, JS. Quality of life following surgery for congenital cardiac malformations in neonates and infants. Cardiology in the Young, 15(Suppl. 1): 174-178, 2005.

19. Mussatto, KA & Wernovsky, G. Challenges facing the child, adolescent, and young adult after the arterial switch operation. Cardiology in the Young, 15(Suppl. 1): 111-121, 2005.

20. Hoffman GM, Mussatto KA, Brosig CL, Ghanayem NS, Musa N, Fedderly RT, Jaquiss RD, Tweddell JS. Systemic venous oxygen saturation after the Norwood procedure and

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childhood neurodevelopmental outcome. Journal of Thoracic and Cardiovascular Surgery, 130(4):1094-100, 2005.

21. Brown, MD, Wernovsky, G, Mussatto, KA & Berger, S. Long-term and developmental outcomes of children with complex congenital heart disease. Clinics in Perinatology, 32(4): 1043-57, 2005.

22. Ghanayem NS. Tweddell JS. Hoffman GM. Mussatto K. Jaquiss RD. Optimal timing of the second stage of palliation for hypoplastic left heart syndrome facilitated through home monitoring, and the results of early cavopulmonary anastomosis. Cardiology in the Young, 16 Suppl 1: 61-6, 2006.

23. Peterson, AL, Frommelt, PC, Mussatto, KA. Presentation and echocardiographic markers of neonatal hypertensive cardiomyopathy. Pediatrics, 118(3): e782-5, 2006.

24. Zangwill, SD, Ellis, TM, Zlotocha, J, Jaquiss, RD, Tweddell, JS, Mussatto, KA, Berger, S. The virtual crossmatch—a screening tool for sensitized pediatric heart transplant recipients. Pediatric Transplantation, 10(1): 38-41, 2006.

25. Ghanayem, NS, Jaquiss, RDB, Cava, JR, Frommelt, PC, Mussatto, KA, Hoffman, GM, & Tweddell, JS. Right ventricle to pulmonary artery conduit versus Blalock-Taussig shunt: A hemodynamic comparison. The Annals of Thoracic Surgery, 82(5): 1603-1609, 2006.

26. Jaquiss, RDB, Siehr, SL, Ghanayem, NS, Hoffman, GM, Fedderly, RT, Cava, JR, Mussatto, KA, Tweddell, JS. Early cavopulmonary anastomosis after Norwood procedure results in excellent Fontan outcome. The Annals of Thoracic Surgery, 82(4): 1260-1265, 2006.

27. Mussatto, KA. Beyond survival: What are the outcomes that really matter to our patients? [Editorial] Cardiology in the Young, 16(2): 125-7, 2006.

28. Brosig, C, Mussatto, KA, Kuhn, E, & Tweddell, JS. Neurodevelopmental outcome in preschool survivors of complex congenital heart disease: Implications for clinical practice. Journal of Pediatric Health Care, 21(3): 3-12, 2007.

29. Mussatto, KA. Adaptation of the Child and Family to Life with a Chronic Illness. Cardiology in the Young, 16(Suppl. 3), 110-116, 2007.

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30. Brosig, C, Mussatto, KA, Kuhn, E, & Tweddell, JS. Psychosocial outcomes for preschool children and families after surgery for complex congenital heart disease. Pediatric Cardiology, 28(4): 255-62, 2007.

31. Litwin SB. Tweddell JS. Mitchell ME. Mussatto KA. The double patch repair for complete atrioventricularis communis. Seminars in Thoracic & Cardiovascular Surgery. Pediatric Cardiac Surgery Annual, 21-7, 2007.

32. Tweddell, JS, Ghanayem, NS, Mussatto, KA, Mitchell, ME, Lamers, LJ, Musa, NL, Berger, S, Litwin, SB, Hoffman, GM. Mixed venous O2 saturation monitoring following stage 1 palliation for hypoplastic left heart syndrome. Annals of Thoracic Surgery, 84:1301-1311, 2007.

33. Frommelt PC. Sheridan DC. Mussatto KA. Hoffman GM. Ghanayem NS. Frommelt MA. Tweddell JS. Effect of shunt type on echocardiographic indices after initial palliations for hypoplastic left heart syndrome: Blalock-Taussig shunt versus right ventricle-pulmonary artery conduit. Journal of the American Society of Echocardiography, 20(12):1364-7, 2007.

34. Johnson BA. Mussatto K. Uhing MR. Zimmerman H. Tweddell J. Ghanayem N. Variability in the preoperative management of infants with hypoplastic left heart syndrome. Pediatric Cardiology, 29(3):515-20, 2008.

35. Frommelt P. Gorentz J. Deatsman S. Organ D. Frommelt M. Mussatto K. Digital imaging, archiving, and structured reporting in pediatric echocardiography: impact on laboratory efficiency and physician communication. Journal of the American Society of Echocardiography, 21(8):935-40, 2008.

36. Marino BS. Shera D. Wernovsky G. Tomlinson RS. Aguirre A. Gallagher M. Lee A. Cho CJ. Stern W. Davis L. Tong E. Teitel D. Mussatto K. Ghanayem N. Gleason M. Gaynor JW. Wray J. Helfaer MA. Shea JA. The development of the pediatric cardiac quality of life inventory: a quality of life measure for children and adolescents with heart disease. Quality of Life Research, 17(4):613-26, 2008.

37. Colon M. Anderson RH. Weinberg P. Mussatto K. Bove E. Friedman AH. Anatomy, morphogenesis, diagnosis, management, and outcomes for neonates with common arterial trunk. Cardiology in the Young, 18 Suppl 3:52-62, 2008.

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38. Peterson AL. Deatsman S. Frommelt MA. Mussatto K. Frommelt PC. Correlation of echocardiographic markers and therapy in persistent pulmonary hypertension of the newborn. Pediatric Cardiology, 30(2): 160-5, 2009.

39. Johnson BA. Hoffman GM. Tweddell JS. Cava JR. Basir M. Mitchell ME. Scanlon MC. Mussatto KA. Ghanayem NS. Near-infrared spectroscopy in neonates before palliation of hypoplastic left heart syndrome. Annals of Thoracic Surgery, 87(2):571-7, 2009.

40. Tweddell JS. Nersesian M. Mussatto KA. Nugent M. Simpson P. Mitchell ME. Ghanayem NS. Pelech AN. Marla R. Hoffman GM. Fontan palliation in the modern era: factors impacting mortality and morbidity. Annals of Thoracic Surgery, 88(4):1291-9, 2009.

41. Sawin KJ, Gralton KS, Harrison TM, Malin S, Balchunas MK, Brock LA, Cavegn B, Cisler-Cahill L, Graves SM, Mussatto KA, O’Brien ME, Sherburne EC, Schiffman RF. Nurse researchers in children’s hospitals. Journal of Pediatric Nursing, 25:408-17, 2010.

42. Ghanayem NS, Hoffman GM, Mussatto KA, Frommelt MA, Cava JR, Mitchell ME, Tweddell JS. Perioperative monitoring in high-risk infants after stage 1 palliation of univentricular congenital heart disease. Journal of Thoracic and Cardiovascular Surgery, 140: 857 – 863, 2010.

43. Marino BS. Tomlinson RS. Wernovsky G. Drotar D. Newburger JW. Mahony L. Mussatto K. Tong E. Anderson C. Shera D. Khoury PR. Wray J. Gaynor JW. Helfaer MA. Kazak AE. Shea JA. Pediatric Cardiac Quality of Life Inventory Testing Study Consortium. Validation of the pediatric cardiac quality of life inventory. Pediatrics, 126(3):498-508, 2010.

44. Kwon EN. Mussatto KA. Simpson PM. Brosig C. Nugent M. Samyn MM. Children and adolescents with repaired tetralogy of Fallot report quality of life similar to healthy peers. Congenital Heart Disease, 6: 18-27, 2011.

45. Marino BS, Drotar D, Cassedy A, Davis R, Tomlinson RS, Mellion K, Mussatto K, Mahony L, Newburger JW, Tong E, Cohen M, Helfaer MA, Kazak AE, Wray J, Wernovsky G, Shea JA, Ittenbach R. External validity of the pediatric cardiac quality of life inventory. Quality of Life Research, 20: 205-214, 2011.

46. Brosig C, Olude O, Hoffmann R, Bear L, Chin A, Dasgupta M, Mussatto KA. Implementation of a routine developmental follow-up program for children with congenital heart disease: Early results. Congenital Heart Disease, 6(5):451-60, 2011.

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47. Goldberg CS, Mussatto KA, Licht D, Wernovsky G. Neurodevelopment and quality of life for children with hypoplastic left heart syndrome: current knowns and unknowns. Cardiology in the Young, 21(suppl. 2), 88-92, 2011.

48. Feinstein JA, Benson DW, Dubin AM, Cohen MS, Maxey DM, Mahle WT, Pahl E, Villafañe J, Bhatt AB, Peng LF, Johnson BA, Marsden AL, Daniels CJ, Rudd NA, Caldarone CA, Mussatto KA, Morales DL, Ivy DD, Gaynor JW, Tweddell JS, Deal BJ, Furck AK, Rosenthal GL, Ohye RG, Ghanayem NS, Cheatham JP, Tworetzky W, Martin GR: Hypoplastic Left Heart Syndrome: Current Considerations and Expectations: A JACC White Paper. Journal of the American College of Cardiology. 59(1 Suppl S), 2012.

49. Lamers LJ, Frommelt PC, Mussatto KA, Jaquiss RD, Mitchell ME, Tweddell JS. Coarctectomy combined with an interdigitating arch reconstruction results in a lower incidence of recurrent arch obstruction after the Norwood procedure than coarctectomy alone. Journal of Thoracic and Cardiovascular Surgery, 143(5):1098-102, 2012. PMID 22050986.

50. Hehir DA, Rudd N, Slicker J, Mussatto KA, Simpson P, Li SH, Frommelt MA, Tweddell JS, Ghanayem NS. Normal interstage growth after the Norwood operation associated with interstage home monitoring. Pediatric Cardiology, 20 April 2012 [Epub ahead of print]. DOI: 10.1007/s00246-012-0320-x. PMID: 22526219.

51. Newburger JW, Sleeper LA, Bellinger DC, Goldberg CS, Tabbutt S, Lu M, Mussatto KA, Williams IA, Gustafson KE, Mital S, Pike N, Sood E, Mahle WT, Cooper DS, Dunbar-Masterson C, Krawczeski C, Lewis A, Menon S, Pemberton VL, Ravishankar C, Atz TW, Ohye RG, Gaynor JW for the Pediatric Heart Network Investigators. Early developmental outcome in children with hypoplastic left heart syndrome and related anomalies: the single ventricle reconstruction trial. Circulation, 125(17):2081-2091, 2012. PMID: 22456475.

52. Marino BS, Lipkin PH, Newburger JW, Peacock G, Gerdes M, Gaynor JW, Mussatto KA, Uzark K, Goldberg CS, Johnson WH Jr, Li J, Smith SE, Bellinger DC, Mahle WT; on behalf of the American Heart Association Congenital Heart Defects Committee of the Council on Cardiovascular Disease in the Young, Council on Cardiovascular Nursing, and Stroke Council. Neurodevelopmental outcomes in children with congenital heart disease: evaluation and management: a scientific statement from the American Heart Association. Circulation, 126(9):1143-72, 2012. PMID 22851541.

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53. Mahle WT, Lu M, Ohye RG, Gaynor JW, Goldberg CS, Sleeper LA, Pemberton VL, Mussatto KA, Williams IA, Sood E, Krawczeski CD, Lewis A, Nirarchi N, Scheruer M, Pasquali SK, Pinto N, Jacobs JP, McCrindle BW, Newburger JW. A predictive model for neurodevelopmental outcome after the Norwood procedure. Pediatric Cardology, Published Online, August 2012.

54. Imielski BR, Woods RK, Mussatto KA, Cao Y, Simpson PM, Tweddell JS. Fontan fenestration closure and event-free survival. J Thorac Cardiovasc Surg. 2013 Jan;145(1):183-7. Epub 2012 Oct 9.

55. Hoffman GM, Brosig CL, Mussatto KA, Tweddell JS, Ghanayem NG. Perioperative cerebral oxygen saturation in neonates with hypoplastic left heart syndrome and childhood neurodevelopmental outcome. Journal of Thoracic and Cardiovascular Surgery, Published Online, January 2013.

56. Brosig C, Mussatto KA, Hoffman G, Hoffmann R, Dasgupta M, Tweddell J, Ghanayem N. Neurodevelopmental Outcomes for Children With Hypoplastic Left Heart Syndrome at the Age of 5 Years. Pediatr Cardiol 2013;[Epub ahead of print].

57. Kunz JH, Greenley RN, Mussatto KA, Roth-Wojcicki B, Miller T, Freeman ME, Lerand S. Personal attitudes, perceived social norms, and health risk behavior among female adolescents with chronic medical conditions. Journal of Health Psychology, Published Online, March 2013.

58. Cassedy A, Drotar D, Ittenbach R, Hottinger S, Wray J, Wernovsky G, Newburger JW, Mahony L, Mussatto K, Cohen MI, Marino BS. The impact of socio-economic status on health related quality of life for children and adolescents with heart disease. Health Qual Life Outcomes. 2013 Jun 18;11:99. doi: 10.1186/1477-7525-11-99. PMID: 23777248.

59. Mussatto KA, Sawin KJ, Schiffman R, Leske J, Simpson P, Marino BS. The importance of self-perceptions to psychosocial adjustment in adolescents with heart disease. Journal of Pediatric Health Care, 2013;[Epub ahead of print].

60. Park MV, Fedderly RT, Frommelt PC, Frommelt MA, Pelech AN, Jaquiss RD, Mussatto K, Tweddell JS. Leftward displacement of septum primum in hypoplastic left heart syndrome. Pediatr Cardiol. 2013;34(4):942-7.

61. Mussatto, KA, Hoffmann R, Hoffman G, Tweddell JS, Bear L, Cao Y, Brosig, C. Risk and prevalence of developmental delay in young children with congenital heart disease. Pediatrics. 2014; 133(3):e570-7.

http://www.ncbi.nlm.nih.gov/pubmed?term=Imielski%20BR%5BAuthor%5D&cauthor=true&cauthor_uid=23062415

http://www.ncbi.nlm.nih.gov/pubmed?term=Woods%20RK%5BAuthor%5D&cauthor=true&cauthor_uid=23062415

http://www.ncbi.nlm.nih.gov/pubmed?term=Mussatto%20KA%5BAuthor%5D&cauthor=true&cauthor_uid=23062415

http://www.ncbi.nlm.nih.gov/pubmed?term=Cao%20Y%5BAuthor%5D&cauthor=true&cauthor_uid=23062415

http://www.ncbi.nlm.nih.gov/pubmed?term=Simpson%20PM%5BAuthor%5D&cauthor=true&cauthor_uid=23062415

http://www.ncbi.nlm.nih.gov/pubmed?term=Tweddell%20JS%5BAuthor%5D&cauthor=true&cauthor_uid=23062415

http://www.ncbi.nlm.nih.gov/pubmed/23062415

https://www.researchgate.net/researcher/39634820_George_M_Hoffman/

https://www.researchgate.net/researcher/40059092_Cheryl_L_Brosig/

https://www.researchgate.net/researcher/39462876_Kathleen_A_Mussatto/

https://www.researchgate.net/researcher/39457046_James_S_Tweddell/

https://www.researchgate.net/researcher/38676588_Nancy_S_Ghanayem/

http://www.researchgate.net/publication/234132966_Perioperative_cerebral_oxygen_saturation_in_neonates_with_hypoplastic_left_heart_syndrome_and_childhood_neurodevelopmental_outcome?ch=reg&cp=re215_x_p7&pli=1&[email protected]



http://intranet.chw.org/display/displayFile.asp?docid=46037&filename=/Groups/Intranet/HHC2013Apr19Brosig.pdf#_blank

http://intranet.chw.org/display/displayFile.asp?docid=46037&filename=/Groups/Intranet/HHC2013Apr19Brosig.pdf#_blank



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62. Mellion, K, Uzark, L, Cassedy, A, Drotar, D, Wernovsky, G, Newburger, JW, Mahony, L, Mussatto, K, Cohen, M, Limbers, C, Marino, BS. Health-Related Quality of Life Outcomes in Children and Adolescents with Congenital Heart Disease. The Journal of Pediatrics, Available online 9 January 2014.

63. Rudd, NA, Frommelt, MA, Tweddell, JS, Hehir, DA, Mussatto, KA, Frontier, KD, Slicker, JA, Bartz, PJ, Ghanayem, NS. Improving interstage survival after Norwood operation: Outcomes from 10 years of home monitoring. Journal of Thoracic and Cardiovascular Surgery, Available online 14 February 2014.

64. Goldberg CS, Lu M, Sleeper LA, Mahle WT, Gaynor JW, Williams IA, Mussatto KA, Ohye RG, Graham EM, Frank DU, Jacobs JP, Krawczeski C, Lambert L, Lewis A, Pemberton VL, Sananes R, Sood E, Wechsler SB, Bellinger DC, Newburger JW. Factors Associated with Neurodevelopment for Children with Single Ventricle Lesions. J Pediatr 2014;[Epub ahead of print]. PMID: 24952712.

65. Brosig C, Yang K, Hoffmann RG, Dasgupta M, Mussatto KA. The Role of Psychology in a Pediatric Outpatient Cardiology Setting: Preliminary Results from a New Clinical Program. Journal of Clinical Psychology in Medical Settings. Published online: 14 September 2014.

66. Costello JM, Mussatto K, Cassedy A, Wray J, Mahony L, Teele SA, Brown KL, Franklin R, Wernovsky G, Marino BS. Prediction of Quality of Life by Clinicians for Children and Adolescents with Cardiac Disease. The Journal of Pediatrics: 2015; 166:679-83.

67. Czosek RJ, Cassedy AE, Wray J, Wernovsky G, Newburger JW, Mussatto KA, Mahony L, Tanel RE, Cohen MI, Franklin RC, Brown KL, Rosenthal D, Drotar D, Marino BS. Quality of Life in Pediatric Patients Affected by Electrophysiologic Disease. Heart Rhythm. 2015 Jan 17. [Epub ahead of print] PMID: 25602174

68. Mussatto KA, Hoffmann R, Hoffman G, Tweddell JS, Tanem J, Bear L, Cao Y, Brosig, C. Risk Factors for Abnormal Developmental Trajectories in Young Children with Congenital Heart Disease. Circulation. 2015;132:755-761.

69. Hoffman GM, Brosig CL, Bear LM, Tweddell JS, Mussatto KA. Effect of intercurrent operation and cerebral and systemic hemodynamics on developmental trajectory in infants and children with congenital heart disease. Annals of Thoracic Surgery. 2016;101(2):708-716.

http://www.sciencedirect.com/science/article/pii/S0022347613015011

http://www.sciencedirect.com/science/article/pii/S0022347613015011


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70. Jacobsen RM, Ginde S, Mussatto K, Neubauer J, Earing M, Danduran M. Can a home-based cardiac physical activity program improve the physical function quality of life in children with Fontan circulation? Congenital Heart Disease. 2016;11:175-182.

71. O’Connor AM, Wray J, Tomlinson RS, Cassedy A, Jacobs JP, Jenkins KJ, Brown KL, Franklin RC, Mahoney L, Mussatto KA, Newburger JW, Wernovsky G, Ittenbach RF, Drotar D, Marino BS. Impact of surgical complexity on health-related quality of life in congenital heart disease surgical survivors. Journal of the American Heart Association. 2016; 5(7).

72. Geddes GC, Stamm K, Mitchell M, Mussatto KA, Tomita-Mitchell A. Ciliopathy variant burden and developmental delay in children with hypoplastic left heart syndrome. Genetics in Medicine. 2016. Published online 27 October 2016.

73. Brosig CL, Bear L, Allen S, Hoffmann RG, Pan A, Frommelt M, Mussatto KA. Preschool neurodevelopmental outcomes in children with congenital heart disease. Journal of Pediatrics. 2017; 183:80-86.

74. Hoffman GM, Ghanayem NS, Scott JP, Tweddell JS, Mitchell ME, Mussatto KA. Postoperative cerebral and somatic near-infrared spectroscopy saturations and outcome in hypoplastic left heart syndrome. Annals of Thoracic Surgery. 2017; 103(5):1527-1535.

75. Mussatto KA, Hollenbeck-Pringle D, Trachtenberg F, Sood E, Sananes R, Pike NA, Lambert LM, Mahle WT, Goldberg DJ, Goldberg CS, Dunbar-Masterson C, Otto M, Marino BS, Bartle BH, Williams IA, Jacobs JP, Zyblewski SC, Pemberton VL. Utilisation of early intervention services in young children with hypoplastic left heart syndrome. Cardiology in the Young. 2017; 28(1):126-133.

76. Brosig CL, Bear L, Allen S, Simpson P, Zhang L, Frommelt M, Mussatto KA. Neurodevelopmental outcomes at 2 and 4 years in children with congenital heart disease. Congenital Heart Disease. 2018. Published online 07 September 2018. DOI: 10.1111/chd.12632.

77. Handisides JC, Hollenbeck-Pringle D, Uzark K, Trachtenberg FL, Pemberton VL, Atz TW, Bradley TJ, Cappella E, De Nobele S, Groh GK-T, Hamstra MS, Korsin R, Levine JC, Lindauer B, Liou A, Neal MKM, Markham LW, Morrison T, Mussatto KA, Olson AK, Pierpont MEM, Pyeritz RE, Radojewski EA, Roman MJ, Xu M, Lacro RV, Pearson G, Stylianou M, Mahony L, Sleeper L, Tennstedt S, Colan S, Klein G, Guey L, Wruck L, Travison T, Chen S, Gerstenberger E, Olesker T, Teitel DF, Newburger J, King M, Dunbar-Masterson C, Posa A, Nang Q, Hass C, Hsu D, Lai W, Hellenbrand W, Printz B,

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Devereux R, Sherwood G, Vetter V, Paridon S, Gleason M, Mirarchi N, DiLullo S, Ejembi A, Morgan R, Benson DW, Border W, Cnota J, Heydarian H, James J, Hogan K, Bogenschutz L, Benham MP, Barnard T, Anderson PAW, Li JS, Wechsler SB, Cook A, Sang C, Covitz W, Sutton LJ, Crawford K, Roberts S, Palmer D, Saul JP, Atz A, Forbus G, Infinger P, Choudhury A, Minich L, Williams R, Yetman A, Shearrow M, Robinson M, Porter J, McCrindle B, Russell J, Colman J, Khaikin S, Slater N, Dietz HC, Ravekes WJ, Rykiel M, Sparks E, MacCarrick G, Leadroot J, Canter C, Sharkey A, Braverman A, Rainey C, Jefferies JL, Slesnick T, Martinez H, Menesses A, Tenende T, Liang D, Merkel E, Loeys B, De Backer J, Cobben JM, Sluysmans T, De Paepe A, Gelb B, Srivastava S, Mendiz-Ramdeen T, Weismann C, Lawrence E, Chin S, Ko H, Le Yau J, Webber S, Drant S, Luce J, Stiegler K, Kinnard C, Stewart C, Sommers S, Madison C, Young L, Domenico M, Waitzman K, Lozano C, Baker C, Zielinski E, Velden HV, Overman A, Lewin M, Payne A, Rimoin D, Pariani M, Siegel R, Rafique A, Grossfeld P, Smith A, McLees-Palinkas T, Colan SD, Tierney ESS, Trevey S, Rivera M, Artman M, Austin E, Baldwin HS, Bernstein D, Feltes T, Johnson J, Klitzner T, Krischer J, Matherne GP, Zahka KG, Kugler J, Driscoll DJ, Galantowicz M, Hunsberger SA, Knight TJ and Taylor H. Health-Related Quality of Life in Children and Young Adults with Marfan Syndrome. The Journal of Pediatrics. 2018. PMID: 30270167.

78. Pridham KF, Harrison TM, Brown R, Mussatto KA. Collaborative caregiving of parents who have an infant with congenital heart disease. Journal of Specialists in Pediatric Nursing. 2019;e12283.

79. Goldberg CS, Hu C, Brosig C, Gaynor JW, Mahle WT, Miller T, Mussatto KA, Sananes R, Uzark K, Trachtenberg F, Pizarro C, Pemberton VL, Lewis AB, Li JS, Jacobs JP, Cnota J, Atz AM, Lai WW, Bellinger D, Newburger JW, and the PHN INVESTIGATORS. Behavior and Quality of Life at 6 Years for Children With Hypoplastic Left Heart Syndrome. Pediatrics. 2019; 144(5) e20191010; DOI: 10.1542/peds.2019-1010.

80. Devlin PJ, Jegatheeswaran A, Williams WG, Blackstone EH, DeCampli WM, Lambert LM, Mussatto KA, Prospero CJ, Bondarenko I, McCrindle BW. Late Survival and Patient-Perceived Health Status of the Congenital Heart Surgeons’ Society Dextro-Transposition of the Great Arteries Cohort. The Annals of Thoracic Surgery. 2019; 108(5): 1447–55. https://doi.org/10.1016/j.athoracsur.2019.05.081.

81. Jegatheeswaran A, Devlin PJ, DeCampli WM, Welke KF, Williams WG, Blackstone EH, Fuller S, Jacobs ML, Mussatto KA, Woods RK, McCrindle BW, Longitudinal functional health status in young adults with repaired dextro-transposition of the great arteries: A Congenital Heart Surgeons' Society study. The Journal of Thoracic and Cardiovascular Surgery. 2020; 159(2): 604-614.e. doi.org/10.1016/j.jtcvs.2019.07.072.

https://doi.org/10.1016/j.athoracsur.2019.05.081

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82. Hoffman GM, Scott JP, Ghanayem NS, Stuth EA, Mitchell ME, Woods RK, Hraska V, Niebler RA, Bertrandt RA, Mussatto KA, Tweddell JS. Identification of Time-Dependent Risks of Hemodynamic States After Stage 1 Norwood Palliation. The Annals of Thoracic Surgery. 2020; 109(1): 155–62. https://doi.org/10.1016/j.athoracsur.2019.06.063.

BOOK CHAPTERS:

1. Tweddell JS, Litwin SB, Thomas JP, Mussatto KA. Recent advances in the surgical management of the single ventricle pediatric patient. In The Pediatric Clinics of North America. Berger S (ed). WA Saunders Co. Publishers, Philadelphia, PA. Vol 46, No 2, 1999.

2. Tweddell JS, Andrew N. Pelech, Robert D.B. Jaquiss, Peter C. Frommelt, Kathleen A. Mussatto, George M. Hoffman, and S. Bert Litwin. Aortic Valve Repair. In, Seminars in Thoracic and Cardiovascular Surgery Pediatric Cardiac Surgery Annual 2005. WB Saunders Co. Publishers, Philadelphia, PA. 8:12-21, 2005.

3. Mussatto, KA. Psychosocial aspects of acute and chronic heart failure in children. In Pediatric Heart Failure, Eds. Shaddy, RE & Wernovsky, G. Marcel Dekker, New York, 2005.

4. Tweddell JS. Hoffman GM. Ghanayem NS. Frommelt MA. Mussatto KA. Berger S. Hypoplastic left heart syndrome. In Moss and Adams’ Heart Disease in Infants, Children, and Adolescents, 7th Edition. 2007.

5. Balistrieri T & Mussatto K. Disorders of cardiac function. In Pathophysiology: Concepts of Altered Health States, 8th Edition, Ed. Porth, CM. Lippincott, Williams & Wilkins. 2008.

6. Mussatto KA. Psychological and social aspects of paediatric cardiac disease. In Paediatric Cardiology, 3rd Edition, Ed. Anderson, RH. Churchill Livingstone, London. 2009.

7. Tweddell JS. Hoffman GM. Ghanayem NS. Frommelt MA. Mussatto KA. Berger S. Hypoplastic left heart syndrome. In Moss and Adams’ Heart Disease in Infants, Children, and Adolescents, 8th Edition. 2012.

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8. Mussatto KA & Kessel, MA. Using data to drive change and improvement: The legacy of Florence Nightingale. In Pediatric and Congenital Cardiac Care, Ed.Barach PR, Jacobs JP, Lipschultz SE & Laussen PC. Springer. 2015.

9. Allen KY, Smith-Parrish M, Mussatto KA, Marino BS. Neurodevelopmental and psychosocial outcomes in children with congenital heart disease. In Common Cardiac Issues in Pediatrics, Ed. Johnson JN & Karmat DM. American Academy of Pediatrics. 2018.

10. Landry K, Mussatto KA, Pridham KF. Supporting a school-age child with complex healthcare needs. In Guided Participation in Pediatric Nursing Practice. Ed. Pridham KF, Limbo R & Schroeder MM. Springer Publishing Company, LLC, New York, NY. 2018. * Awarded American Journal of Nursing Child Health Book of the Year 2018

Scientific and Professional Societies of Which a Member

1995 – Member, Society of Pediatric Cardiovascular Nurses

1997 – 2015 Evidence Based Practice and Nursing Research Council, Children’s Hospital of Wisconsin, Co-Chair 2013-2015

1998 – Member, AHA Council of Cardiovascular Disease in the Young

1998 – Member, AHA Council of Cardiovascular & Stroke Nursing (CVSN)

2010-2013 - Member, AHA Early Career Committee CVSN

2012-2016 - Vice Chair, AHA Pediatric Committee CVSN

2016-2018 – Chair, AHA Pediatric Committee CVSN

2018-2020 – Immediate Past Chair, AHA Pediatric Committee CVSN

2018-2020 – Member, Committee on Scientific Session Programming

2007 – Member, Midwest Nursing Research Society

2007 – Member, Sigma Theta Tau International Honor Society of Nursing Eta Nu Chapter

2008 – Member, Nursing Research Committee, Pediatric Heart Network, NHLBI, NIH

2009 – 2014 Assoc. Member, Society of Thoracic Surgeons

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2009 – Editorial Board, World Journal for Pediatric and Congenital Heart Surgery, Marshall L. Jacobs, M.D., Editor

2010 – 2012 Member, International Society for Quality of Life Research

2010 – Center Scientist, Self-Management Science Center, University of Wisconsin – Milwaukee

2012 – Steering Committee Member, Cardiac Neurodevelopmental Outcomes Collaborative

2014 – Member, Medical Advisory Board, Pediatric Congenital Heart Association

2015 – Co-Chair, Cardiac Neurodevelopmental, Psychosocial and Quality of Life Working Group (CNPQ), Congenital Heart Public Health Consortium

2015 – Member, Observational Study Monitoring Board of the NIH-funded Pediatric Cardiac Genomics Consortium

2015 – Member, Institutional Review Board, Children’s Hospital of Wisconsin

2015 Member, External Review Committee, Division of Pediatric Cardiology, Children’s Hospital Los Angeles

2018 - American Academy of Pediatrics Section on Cardiology and Cardiac Surgery, Congenital Heart Disease and Public Health Workgroup

Honors

2004 Julie Lathrop Nursing Research Award – Children’s Hospital of Wisconsin

2006 Invited Speaker: T. Garrett Rauch Memorial Nursing Plenary Lecture Cardiology 2006

2006 Sigma Theta Tau International Honor Society of Nursing Graduate Student Research Award

2009 Julie Lathrop Nursing Research Award – Children’s Hospital of Wisconsin, Co-Recipient

2009 Invited Speaker: Landmark Lecture in Nursing – 5th World Congress of Pediatric Cardiology and Cardiac Surgery, Cairns, Australia

2011 – 2013 National Institutes of Health Loan Repayment Award – Pediatric Research

2011 – 2013 Clinical Research Scholars Program. CTSI of Southeastern Wisconsin: Selected to participate in two-year program for promising young investigators; NIH UL1RR031973

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2014 American Association for Thoracic Surgery Allied Health poster award winner

2014 Julie Lathrop Nursing Research Award – Children’s Hospital of Wisconsin

2016 University of Wisconsin – Milwaukee, College of Nursing, 50 Distinguished Alumni

2017 Cardiac Neurodevelopmental Outcome Collaborative Newburger-Bellinger Award

2018 Fellow in the American Heart Association (FAHA)

2018 Pediatric Cardiac Intensive Care Society Patricia Hickey Award for Excellence in Cardiovascular Nursing

Professional Service

Professional Development

Grants Received

Completed Research Support: Children’s Research Institute and Children’s Hospital Foundation 02/01/2016 – 12/31/2019 Neurodevelopmental, Psychosocial and Quality of Life Outcomes Research in Children and Families with Congenital Heart Disease Role: Principal Investigator

American Heart Association (PI: Pridham) Parent Communication for Feeding an Infant with a Heart Defect 07/01/2014 – 06/30/2017 The overall goal of this project is to test an intervention designed to improve communication between parents of infants with congenital heart disease, in order to enhance parent-infant interaction during feeding, and ultimately improve developmental and feeding outcomes for infants with congenital heart disease. Role: Co-Investigator

Pediatric Heart Network/New England Research Institute 09/30/14 – 08/31/2017

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Family Adaptation Study Statistical analysis of data from a multicenter study evaluating family stress, coping and adaptation to the diagnosis of a child with single ventricle congenital heart disease. Role: Principal Investigator

Pediatric Heart Network/New England Research Institute 01/09/2012 – 06/30/2017 The Relationship of Family Factors on Developmental and Psychosocial Outcomes in Children with Hypoplastic Left Heart Syndrome (HLHS) at 6 Years of Age This multicenter study is an ancillary project to the Pediatric Heart Network Single Ventricle Reconstruction Trial. The purpose of this study is to improve understanding of how and when family factors such as, parent mental health, parent quality of life, family resources and family function, influence child development and psychosocial outcomes in children with HLHS. Role: Principal Investigator

Mend a Heart Foundation 04/01/2014 – 3/30/2016 Feeding Experiences and Developmental Outcomes in Young Children with Congenital Heart Disease: The FEED ME Study The overall goal of this project is to characterize the feeding patterns for young children with congenital heart disease and identify risk factors for the development of feeding problems. Role: Principal Investigator Children’s Hospital of Philadelphia Foundation/Cincinnati Children’s Hospital Medical Center

06/01/2005 – 06/30/2016 Quality of Life Assessment in the Pediatric Cardiac Population: Testing the Pediatric Cardiac Quality of Life Inventory This multicenter study is the psychometric testing phase of an instrument development study to create a pediatric cardiac-specific measure of quality of life. Role: Site Principal Investigator

American Nurses Foundation – Dorothy Cornelius Scholar Award 11/01/2006 – 10/31/2008 Family Stress, Coping and Outcomes Following the Diagnosis of Hypoplastic Left Heart Syndrome in a Newborn This grant provided support for research assistance, supplies, and a participant stipend for this study designed to evaluate the parental response to the diagnosis of critical heart disease in a newborn. This is a multicenter study that has been active at 11 different study sites. Role: Principal Investigator

Children’s Hospital of Wisconsin Foundation 09/01/2003 – 08/30/2004

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Health-Related Quality of Life and Family Impact in Subjects with Complex Congenital Heart Disease This grant provided support for research assistance and statistical analysis for quality of life and family impact data representing 182 children and their parents. Role: Principal Investigator

Presentations Given

Regional/Local (not inclusive of local teaching/mentoring presentations):

1. Nursing Research in Children and Families with Congenital Heart Disease. Graduate Student Speaker. University of Wisconsin – Milwaukee College of Nursing Research Day, November 1, 2006.

2. The Nurse Scientist in Interdisciplinary Research. Building Bridges to Research Based Nursing Practice Conference, Milwaukee, WI, May 2010.

3. Lessons Learned From Quality of Life Research in Pediatric Heart Disease. Pediatric Grand Rounds, Children’s Hospital of Wisconsin, August 2010.

4. The Path to a PhD. Advanced Practice Nursing Retreat. Children’s Hospital of Wisconsin, September 2011.

5. Psychosocial Outcomes in Pediatric Heart Disease: A Beginning Program of Research. CRI Research Conference. Children’s Hospital of Wisconsin, October 2011.

6. CTSI Work in Progress Seminar. November 2012, Milwaukee, WI.

7. Collaborative Interdisciplinary Research Teams: Keys to Success. Building Bridges to Research Based Nursing Practice Conference, May 15, 2013, Marquette University, Milwaukee, WI.

8. Building a Program of Research. Children’s Hospital of Wisconsin Advance Practice Nursing Retreat, September 24, 2014, Milwaukee, WI.

9. Psychosocial Impact of Pediatric Heart Disease for Children and Families. 2014 Pediatric Nursing Conference, Nov. 5, 2014, Milwaukee, WI.

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10. Lessons Learned from Quality of Life Research in Pediatric Heart Disease. 19th Annual Midwest Child Life Conference, Nov. 9, 2014, Milwaukee, WI.

11. Tackling Developmental Risk for Children with CHD through Early Intervention Services. Children’s Research Institute Research Conference, March 27, 2015, Milwaukee, WI.

12. Why We Care. Congenital Heart Gala. Pediatric Congenital Heart Association. Sept. 24, 2016, Milwaukee, WI.

13. Psychosocial Impact of Pediatric Heart Disease for Children and Families: A Nursing Career Trajectory. Carthage College. April 23, 2018, Kenosha, WI.

National:

1. Building an Interdisciplinary Research Program in a Congenital Heart Center: Why and How. 1st T. Garrett Rauch Memorial Nursing Lecture. Cardiology 2006 – 9th Annual Update on Pediatric Cardiovascular Disease, Scottsdale, AZ, February 2006 and Pediatric Heart Network Steering Committee Meeting, Bethesda, MD, April 2006.

2. Child and Family Adaptation to Life with a Chronic Illness. Cardiology 2006 – 9th Annual Update on Pediatric Cardiovascular Disease, Scottsdale, AZ, February 2006.

3. Data Collection from the Clinician’s Perspective. Cardiology 2006 – 9th Annual Update on Pediatric Cardiovascular Disease, Scottsdale, AZ, February 2006.

4. A New Vital Sign: Regional Perfusion Monitoring with Near Infrared Spectroscopy (NIRS). National Conference of Neonatal Nursing, Las Vegas, NV, June, 2006.

5. Beyond Survival: The Psychosocial Implications of Congenital Heart Disease. National Conference of Neonatal Nursing, Las Vegas, NV, June, 2006.

6. Regional Tissue Perfusion Monitoring with Near Infrared Spectroscopy (NIRS): Applications in Heart Failure. The Second International Conference on Heart Failure in Children and Young Adults, Laguna Niguel, CA, November, 2006.

7. Psychosocial Implications of Heart Failure in Children and Families. The Second International Conference on Heart Failure in Children and Young Adults, Laguna Niguel, CA, November, 2006.

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8. Family Stress and Coping Following the Diagnosis of Complex Congenital Heart Disease. Cardiology 2007 – 10th Annual Update on Pediatric Cardiovascular Disease, Orlando, FL, February, 2007.

9. Difficult Cases and Issues in ACHD. Adult Congenital Heart Disease: Past, Present and Future – 17th Annual Course on Adult Congenital Heart Disease, Philadelphia, PA, May, 2007.

10. Grant Writing 101. Congenital Heart Disease: Past, Present and Future – 17th Annual Course on Adult Congenital Heart Disease, Philadelphia, PA, May, 2007.

11. Quality of Life in Children and Young Adults with Conduits. Cardiology 2008 – 11th Annual Update on Pediatric Cardiovascular Disease, Scottsdale, AZ, February, 2008.

12. Psychological Implications of Congenital Heart Disease for Patients, Siblings, and Families. Cardiology 2008 – 11th Annual Update on Pediatric Cardiovascular Disease, Scottsdale, AZ, February, 2008.

13. Nursing Research “How-To”: Quality of Life Assessment – Choosing an Instrument. Cardiology 2008 – 11th Annual Update on Pediatric Cardiovascular Disease, Scottsdale, AZ, February, 2008.

14. Nursing and Outcomes Analysis. The Pediatric Cardiac Intensive Care Society, 7th International Conference, Miami, FL, December 2008.

15. Routine Developmental Follow-Up in Children with Congenital Heart Disease: Early Results and Lessons Learned. Cardiology 2010, Orlando, FL, February, 2010.

16. Research Methods: Lessons Learned in the Family Adaptation Study. Cardiology 2011, Scottsdale, AZ, February 2011.

17. Health Risk Behavior in Adolescent Girls with Heart Disease: Impact of Mother-Daughter Communication. Cardiology 2011, Scottsdale, AZ, February 2011.

18. Optimizing Outcomes: Bringing Research to the Bedside. CHD11, St. Petersburg, FL, February 2011.

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19. Developmental and Psychosocial Follow-Up in Congenital Heart Disease. Cardiac Grand Rounds, Children’s Mercy Hospital, Kansas City, MO, September 2011.

20. What Should a Long-Term Follow-up Program Look Like? American Heart Association Scientific Sessions November 2011, Orlando, FL.

21. How to Assess Quality of Life of Parents/Families. American Heart Association Scientific Sessions November 2011, Orlando, FL.

22. CHD and the Brain: How Significant Is It, Really? Cardiology 2012, Orlando, FL, February 2012.

23. The Vulnerable Family. Cardiology 2012, Orlando, FL, February 2012.

24. Neurodevelopmental Follow-Up Programs – Panel Presentation. 1st Annual Cardiac Neurodevelopmental Symposium, Boston, MA, May 2012.

25. 5 Years of Developmental Follow-Up: What Have We Learned? 1st Annual Cardiac Neurodevelopmental Symposium, Boston, MA, May 2012.

26. Follow-Up Management: High-Risk Clinics – Who, When, How? American Heart Association Scientific Sessions November 2012, Los Angeles, CA.

27. Pediatric Heart Network Research Opportunities for Study Personnel. April 2, 2014. Webinar with NHLBI Bench to Bedside Study Coordinator group.

28. Risk and Prevalence of Developmental Delay in Young Children with Congenital Heart Disease. Midwest Pediatric Cardiology Society Annual Meeting, September 11, 2014, Ann Arbor, MI.

29. Symposium: Optimization of Neurodevelopmental Outcomes: Where We Are and What it Will Take. Are There Genetic Factors Involved in the Determination of Neurodevelopmental Outcomes? American Academy of Pediatrics National Conference, October 10, 2014, San Diego, CA.

30. Tackling Developmental Risk for Children with CHD through Early Intervention Services. Society of Pediatric Cardiovascular Nurses Annual Meeting, Nov. 15, 2014, Chicago, IL.

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31. The Impact of Congenital Heart Disease on Parents and Families. American Heart Association Scientific Sessions, Nov. 18, 2014, Chicago, IL.

32. Neurodevelopmental Outcomes: Evaluation, Management, Risk and Prevalence of Delays in Early Childhood. Pediatric Cardiac Intensive Care Society 10th International Conference, Dec. 13, 2014, Miami, FL.

33. Neurocardiac Follow-Up. Cardiology 2015, Scottsdale, AZ, February 2015.

34. Building a Cardiac Research Program. Cardiology 2015, Scottsdale, AZ, February 2015.

35. Family Stress and Neurodevelopment in the Patient with CHD: From Fetus to Adolescence. Cardiology 2015, Scottsdale, AZ, February 2015.

36. A Neurodevelopmental Care Pathway From Hospital Discharge to First Day at School. American College of Cardiology, March 14, 2015, San Diego, CA.

37. Prevalence of Neurodevelopmental Abnormalities in Congenital Heart Disease. Pediatric Academic Societies Annual Meeting, April 27, 2015, San Diego, CA.

38. Predictors of Long-term Quality of Life in Children and Adolescents with CHD. 4th Annual Cardiac Neurodevelopmental Symposium, June 4, 2015, Milwaukee, WI.

39. Balancing Prenatal Selective Hearing with Parental Expectations from the Team. International Cardiology Neonatology Symposium, Oct. 8, 2015, Miami, FL.

40. Neo-Cardio Family Support: A Nurse’s Perspective. International Cardiology Neonatology Symposium, Oct. 10, 2015, Miami, FL.

41. Neurodevelopmental and Psychosocial Issues in Children with Congenital Heart Defects: Expected, Not Accepted. American Academy of Pediatrics webinar, Nov. 12, 2015.

42. Cardiac, Neurodevelopmental, Psychosocial Quality of Life Work Group. Congenital Heart Public Health Consortium Steering Committee Meeting, Jan. 31, 2016, Washington, D.C.

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43. Neurocardiac Follow-Up: Why, When and How. Cardiology 2016, Orlando, FL, February 2016.

44. Learning Issues: To What Extent, Why and in Whom? Cardiology 2016, Orlando, FL, February 2016.

45. Experience from 10 Years of Cardiac Neurodevelopmental Follow-Up. 5th Annual Cardiac Neurodevelopmental Symposium, June 3, 2016, Philadelphia, PA.

46. Family Dynamics in Congenital Heart Disease. American Academy of Pediatrics National Conference, October 21, 2016, San Francisco, CA.

47. Neurodevelopmental Follow-Up: What Have We Learned? American Heart Association Scientific Sessions, November 15, 2016, New Orleans, LA.

48. Why and How We Got Here. Where Do We Need to Go? Newburger-Bellinger Award Lecture. 6th Annual Cardiac Neurodevelopmental Outcome Collaborative Symposium. June 2017, Ann Arbor, MI.

49. Neurodevelopmental and Psychosocial Support. Public Policy Controversies and Their Effect on Children and Adults with CHD. American Academy of Pediatrics. September 15, 2017, Chicago, IL.

50. Nursing With Heart. The Patricia Hickey Excellence in Cardiovascular Nursing Award Lecture. Pediatric Cardiac Intensive Care Society. December 15, 2018, Miami, FL.

International:

1. Adaptation of the Child and Family to Life with Congenital Heart Disease. 5th World Congress of Pediatric Cardiology and Cardiac Surgery, Cairns, Australia, June 2009.

2. Nursing & Allied Health Contribution to the Management of Patients and Families: Towards Excellence in Team Communication and Collaboration. 5th World Congress of Pediatric Cardiology and Cardiac Surgery, Cairns, Australia, June 2009.

3. The Nurse as a Research Leader. 5th World Congress of Pediatric Cardiology and Cardiac Surgery, Cairns, Australia, June 2009.

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4. Landmark Lecture in Nursing – Lessons Learned From Quality of Life Research in Pediatric Heart Disease. 5th World Congress of Pediatric Cardiology and Cardiac Surgery, Cairns, Australia, June 2009.

5. Regional Tissue Perfusion Monitoring with Near Infrared Spectroscopy. Aspects of Paediatric Cardiac Care. Children’s Hospital at Westmead, Sydney, Australia, June 2009.

6. Home Monitoring: A Nurse-Led Intervention That Changed Outcomes. Cardiology in the Young 2010, London, England, April 2010.

7. Beyond Survival: Psychosocial Aspects of Pediatric Heart Disease. Cardiology in the Young 2010, London, England, April 2010.

8. Nurse-led care in patients with adult congenital heart disease. 6th World Congress of Pediatric Cardiology and Cardiac Surgery, February 2013, Cape Town, South Africa.

9. Optimizing neurodevelopmental outcomes: Consensus out of conflict – Nursing perspective. 6th World Congress of Pediatric Cardiology and Cardiac Surgery, February 2013, Cape Town, South Africa.

10. Optimum utilization of the skills of a practice nurse. 6th World Congress of Pediatric Cardiology and Cardiac Surgery, February 2013, Cape Town, South Africa.

11. The true meaning of informed consent in pediatric practice. 6th World Congress of Pediatric Cardiology and Cardiac Surgery, February 2013, Cape Town, South Africa.

12. Herma Heart Center Developmental Follow-Up Program Structure and Outcomes. July 17, 2013 videoconference with Mater Children’s Hospital in Brisbane, Australia.

13. Neurodevelopmental & Psychosocial Issues for Children & Families Living with Pediatric Heart Disease. Keynote Speaker University of Alberta Congenital Cardiac Symposium: This Time it’s Not the Heart. September 2015, Edmonton, Alberta, Canada.

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