Karen Morgan Business Lead Welsh Legislation Project Organ Donation and Transplantation The Human...

Karen Morgan Business Lead Welsh Legislation Project Organ Donation and Transplantation

The Human Transplantation (Wales) Act 2013

Making it work

13/10/2014


Human Transplantation (Wales) Act 21013

• Human Transplantation (Wales) Bill received Royal Assent September 2013

• Not all of the act came into force immediately

• Main sections will not apply until 01/12/2015

• Communications campaign began in Dec 2013 to ensure everybody is aware of their choices.


What does the Act do?

Sets out how consent

is to be given in Wales

to the donation of

organs and tissues for

transplantation.


4 Choices

• Opt in – When somebody registers their express intent to be a donor (express consent)

• Opt out – When somebody registers their express intent not to be a donor

• Appoint a representative to make a decision on their behalf

• Deemed consent the default position which will apply if the person has not indicated an express intent


Deemed consent

Will apply to • People over the age of 18 who ordinarily live in Wales and who also die in Wales

Will not apply to• People who have opted in or opted out• Under 18s• People who lack capacity to understand the notion of

deemed consent• Individuals who appoint a representative• People whose family or friends object because they

know the deceased would not have consented• Living donors


Communications campaign

• The communications campaign started Dec 2013

• A media services agency has been appointed to create and manage the advertising

• It will last two years and consist of different phases of information, including writing to every household and engagement with hard to reach groups

• People will be given plenty of time to decide whether to register an express wish and be encouraged to talk to their families


New ODR

• All four UK countries have agreed the specification for a new, single UK-wide register

• Steering Board is overseeing the work which is being led by NHSBT

• The advantage for clinicians is that there will be only one place to look

• The register will be technically more robust than the existing ODR and will be capable of registering opt-in and opt-out decisions as well as up to two appointed representative details


Registering a No on the ODR

• Any person from Scotland, N. Ireland, England and Wales who wishes to register a No to organ donation will be able to do so on the new ODR

• There won’t be any promotion in England, Scotland and N. Ireland to inform the general public of this option


Human Tissue Authority Code of Practice

• Public consultation took place from September – December 2013

– Public facing events– Drop-in sessions at hospitals for

staff – A&E and Intensive Care– Important this consultation is well

publicised

• The Code will then need to be agreed by the UK Govt and Welsh Assembly.


Training for healthcare professionals

• There is a large number of different groups of people who will be either affected by the new legislation or the implementation of the new ODR


Training approach

Priority 1 • ODR team • Duty office• SNODs• CLODs• RCLODs• National referral centre• Call centre

Priority 2 • Tissue services• Eye retrieval• ICU clinicians/ nurses• ED clinicians/ nurses• ODCC• Independent tissue

organisations• Other staff involved in

the consent process


Priority 3 • Wider NHS Wales staff

(GPs; non ICU/ED clinicians and nurses)

Priority 4 • Wider NHS staff in the

UK


Objectives/ Goals

• All users of the ODR are proficient in the use of the ODR system to carry out their roles;

• All SN-ODs and clinicians directly involved in the consent process fully understand the types of organ donation decisions which can be registered and their implications in detail;

• Other hospital staff have an understanding the of the legislation, code of practice and the processes;

• Wider NHS stakeholders are aware of the legislation and code of practice for organ donation.


Training Content

• Type 1: Being able to access and use the ODR;• Type 2: Understanding what to do based on the

information in the ODR;• Type 3: Being aware of possible organ donation

decisions and their implications.


Training Delivery (yet to be determined)


General Public Wales

• Awareness of the new legislation and organ donation decisions for the general public in Wales will be addressed by the Welsh Govt communications strategy and the Welsh Implementation project.

• Awareness for the general public in the rest of the UK is not being undertaken.


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