6370 LBJ Freeway Suite 170

Dallas, TX 75240(972) 620-7600 www.daps.us

JUNE 2020

INSIDEspeaker bio 2

thank you 3spotlight on daps instructor 4

music therapy 5

memorials, honors, donations 6cc young webinar 7

virtual classes & webinars 8upcoming events 9

upcoming meetings 10

SAME MISSION — NEW LOOKA Message from Executive Director Mike Miles

DAPS – Dedicated to impacting and improving the lives of those affected

by Parkinson’s disease.The email asked the question, “What was the most useless purchase in 2019?” I thought of several things and then scrolled down to find the answer: “The most useless purchase in 2019 was your 2020 calendar planner.”

I had a good laugh and thought, “How true!” At DAPS, the year starts with our calendars full with DAPS group meetings, Educational Series,

and major events. Then suddenly, this year our conversations begin to be filled with words and phrases we had seldom used, such as social distancing and quarantine, and the new term COVID-19. DAPS 2020 calendar planners did not become useless, but they did take on a whole new look.

Things DAPS has been doing for over 40 years changed. We suspended all in-person group meetings. Then, thanks to a very strong and dedicated team, we quickly got up to speed on Zoom meetings and began to offer exercise, speech, and support groups virtually. Learn more about DAPS Virtual Exercise, Speech, Support Groups, and Educational Series on the DAPS website.

Aloha! Welcome to Hawaii!Who could have known that shortly after kicking off the Hawaiian-themed Non-Event we would be faced with the uncertainties and challenges of COVID-19? Immediately, DAPS’ focus shifted from fundraising to the safety and well-being of all our members. Then we thought carefully and proceeded softly as we continued to ask those who could to support DAPS. Even in the midst of those challenges, you rose to the occasion and continued to generously support the work of DAPS.

DAPS is Zooming! (Learn more on Page 8)

Visit daps.us and follow us on Facebook for the most up-to-date information and links to webinars.NEW LOOK continues on Page 3

JUNE Virtual

Educational SEriES

Tuesday, June 16 at 1:00 p.m.

SPEAKER:

Nancy Jensen, LCSW

TOPIC:Counseling Care in the

Age of COVID-19

(Speaker bio on Page 2)

Mark Your calEndar

JULY JUBILEEMonday, July 13 at 1:00 p.m.

Join us for a special virtual celebration!

(More information on Page 10)

Dedicated to impacting and improving the lives of those affected by

Parkinson’s disease

Executive DirectorMike Miles

Board of DirectorsBentley Foster, President Jo Klein, Vice President

Barbara Glass, Secretary Greg Wood, Treasurer

Advisory CouncilSarah Atwood Charlene Noe Ben Casey Sandi Pautler Carlie Dorshaw-Moe Joyce Susman Pat Goukler Barbara Taylor Shirley Hand

Medical Advisory BoardShilpa Chitnis, M.D., Ph.D. Richard B. Dewey, Jr., M.D.

Thomas D. Franklin, Jr., Ph.D. Richard L. Fulbright, Ph.D. Dwight C. German, Ph.D. Aashoo Mentreddi, M.D.

Padraig O’Suilleabhain, M.D. Nirav Pavasia, M.D.

Alexander Peralta, M.D. R. Malcolm Stewart, M.D.

Gary L. Tunell, M.D.

NewsletterJill Dominguez, Managing Editor Pam Michel, Production Editor

DAPS StaffCarrie Marquis, Administrative Assistant

carrie@daps.org Leisha Phipps, Program Director

leisha@daps.org

The DAPS newsletter is published monthly as an information guide only, and does not

serve as legal or medical advice.

Martha BonillaMike BraitschJared CaplanChris ClausenMartha FiddesStephen Holman

Harold KelloggJim LynchGreg RectorMarcie SalamoneChuck Stewart

PAGE 2 • DAPS • JUNE 2020

JUNE EDUCATIONAL SERIES SPEAKER:Nancy C. Jensen, LCSW, MS, GC

Nancy C. Jensen, LCSW, MS, GC, is a licensed clinical social worker with a private counseling practice devoted to the mental health needs of older adults. Nancy has worked in the health care industry for 19 years and before she became a clinical social worker, she held positions in the aging services industry (Area Agency on Aging) and served as a university instructor in gerontology at Indiana University-Purdue University. Nancy

is a Midwestern native, from St. Louis, Missouri, and completed her Master’s Degree in Social Work from Indiana University-Purdue University, Indianapolis. She also completed a Graduate Certificate Program in Gerontology at Georgia State University and has a Master’s Degree in Health Care Policy and Administration. Since graduating with her Clinical Social Work Degree in 2008, Nancy has held several positions in clinics, hospitals and nonprofits doing geriatric mental health assessments and counseling. In 2015, she opened her private practice. Nancy truly enjoys working with elders and their families to strengthen the family caregiving team, reduce stress, and enhance communication.

The quote “Be yourself, everyone else is taken” describes my desire as a therapist to help my clients clarify and discover their individual path to emotional wellness. I believe that therapy helps us accept what is out of our control, like health changes, loss or illness of a loved one, while committing to taking action toward the life we envision. Using evidence based practices, I work to produce a positive outcome for older people dealing with a broad range of emotional health issues such as anxiety, depression, substance misuse, family conflict and life stress.

How does counseling work and what benefits can you expect from it? As a licensed counselor with a private practice, Nancy will share the practical aspects, such as insurance, privacy and how to find a counselor, along with the potential benefits — reduced anxiety, depression relief and better relationships. Many of Nancy’s clients are seeking relief from the chronic stress that is commonly found in those impacted by Parkinson’s disease. Her experience, qualifications and passion allow her to effectively help those dealing with challenges such as these.

Because of the pandemic, we extended the Non-Event deadline to the end of May and reached the $20,000 level that was then matched by our very generous Anonymous Donor for the sixth year!

As of today we have reached 70% of our Non-Event goal with $52,311 donated (including the match). Thank you to everyone who has participated! A listing of all 2020 Non-Event donors will appear in next month’s newsletter.

DAPS July Jubilee – July 13The July Jubilee is one of those gatherings we look forward to every year. It is a time to see everyone and enjoy fellowship while remembering and honoring DAPS founder Clarice Dougherty. Over 40 years ago, in 1978, Clarice founded the Dallas Area Parkinsonism Society to help her husband and others confront the daily challenges of Parkinson’s disease. Since then, thousands of people and families have been impacted for the better because of the work of DAPS.

In addition to honoring our founder, this year’s July Jubilee will recognize DAPS’ Outstanding Volunteers. We will not be able to meet at University Park United Methodist Church as we normally would. However, we will soon be announcing this year’s Outstanding Volunteers, and then in July we will gather via Zoom for a time of celebrating DAPS and recognizing our volunteers. Although we will miss seeing each other in person, this is an opportunity for all of us to invite family and friends who otherwise may not have been able to join us in person. We will share more details as we get closer to the event.

DAPS Today and TomorrowWe have put together an Advisory Committee called “DAPS, Today and Tomorrow.” Today refers to DAPS events and programs in the midst of the virus outbreak. Tomorrow refers to what DAPS will look like when we begin to resume meetings in person. The committee is very well suited to help us as we establish protocol/standards for resuming DAPS in-person events. We have enlisted people to represent the following: exercise leaders, facilitators, group participants, board members, people with Parkinson’s, caregivers, and others.

Among other things, this committee will be creating a survey that we will ask our DAPS members to complete. This will help us to understand your comfort levels regarding in-person meetings.

Mondays with MikeMonday, May 18, we began a new Zoom opportunity called Monday’s with Mike. I gather with any who choose to join for a brief update regarding anything happening at DAPS. But, the official business is only part of why we gather. It is also a good time for us to see, hear from, and encourage one another. It is a way of staying in contact with each other. We meet every Monday at 3:00 pm. The meeting is scheduled for 10 to 15 minutes, but, if the group interaction goes longer, we will continue on and people may leave the meeting at will.

Despite the fact that it is not safe to gather in person right now, DAPS continues to make a difference in the lives of many with connections to Parkinson’s disease. We are as busy as ever and appreciate your continued support.

Stay safe. Check on each other. And I hope to see you at one of our Zoom opportunities.Blessings,

PAGE 3 • DAPS • JUNE 2020

NEW LOOK continued from front page

The May Educational Series were sponsored by:

We appreciate their generosity!

PAGE 4 • DAPS • JUNE 2020

Carol Franzen has worked as an elder care consultant/care manager in the Dallas area for the past twenty plus years. She has a master’s degree in Gerontology and is a Licensed Master Level Social Worker–Advanced Practitioner. She also received her Care Manager Certification and has been a member of a national care management association, now Aging Life Care Association, since 2000. Carol established a care management company in 1990 and has been actively assisting the elderly and disabled in the Dallas area by providing individuals and families guidance in navigating difficult transitions in life. Carol is an advocate for the patient and serves as a liaison to family members. She coordinates and attends medical appointments, helps find resources, and sets up and monitors services for clients.

Carol served for many years on the board of the Dallas Area Gerontological Society, the boards of Senior Adult Services and Metrocrest Services. She speaks regularly to groups on aging-related topics,

sharing stories, resources, and advice gained from her experience. Carol facilitates several support groups for caregivers, including DAPS at Hunters Glen, and also works with the Candle Lighters Memory activity day program at Horizon UU Church. She also volunteers at the Metrocrest Food Pantry and their Thrift Store.

Carol is married to videographer Steve Klarer, and they have two grown daughters, Alex and Sheridan. Their oldest daughter and her husband have a 10-month old baby girl. Carol is thrilled to be a new grandmother, but is struggling right now during “social distancing” with the inability to hold and hug her grandchild. She enjoys playing tennis, outdoor games like croquet, and spending time with family and friends.

Carol remarks, “I have been doing the Care Partner Support group at Hunters Glen for three years now. The attendees are there for help in how to manage the difficult day-to-day problems that come up when someone is a care partner. They are so good at connecting with the other people, sharing how they handled similar problems, sharing doctors or therapists they have liked (or disliked), and being there during the tough times. I know that one person commented when we all showed up at her husband’s funeral service that ‘you are like my second family’. As the facilitator, I share resources, try to help them stay connected, and am a sounding board for them regarding situations that come up. They are welcoming and helpful to new people, especially now that we are doing sessions on Zoom. I am happy to be a very small part of helping people through these difficult times.”

Spotlight on DAPS Instructor...

CarolFranzen

Thank you to all who have donated to the 2020 Non-Event

Those who have given through the end of May will be

recognized in next month’s July edition of the DAPS newsletter. We appreciate the generosity of so many, especially during the uncertainty of

shelter-in-place orders. Because of you, DAPS has continued meeting the needs in the lives of those affected by Parkinson’s disease.

awaiiHAloha! Welcome to

You may have heard of music therapy—or even participated in it—but still have some questions. What is music therapy? Why use music? Who qualifies for music therapy? What does a session look like? My name is Madison Michel, a Board Certified Music Therapist from Heart and Harmony Music Therapy, and I am going to provide some answers to these questions for you today.

What is music therapy?

The American Music Therapy Association states: “Music Therapy is the clinical and evidence-based use of music interventions to accomplish individualized goals within a therapeutic relationship by a credentialed professional who has completed an approved music therapy program.” Music therapists are nationally certified and must have degrees in music therapy from an AMTA-approved university, and many music therapists have advanced degrees and specializations.

Why use music?

Music is a uniquely rich sensory tool. Entraining or matching a non-musical task to music not only involves areas of the brain engaged in music perception but also those areas controlling the non-music task. This synchronicity increases neural firing, strengthening the synapses and leading to growth in neuroplasticity. Repetition is the key to plasticity, and the natural structure of music provides opportunity for coordinated repetition while accessing more sensory areas of the brain. In other words, by combining programmed music with tasks like walking or coordinating fine motor control in the hands, the neural control over those motor tasks builds in a new way by accessing different areas of the brain along with the premotor and motor areas.

Who qualifies for music therapy?

Music therapists work with a wide variety of people, including persons with Parkinson’s disease, in group and individual settings. We use music as our tool to address motor, social, emotional, communication, and cognitive needs and assess on a case-by-case basis. Music therapists specialize in making music accessible to all. Even if you have never played an instrument, read music, or sung in a choir, you could benefit.

What does a session look like?

Dependent on the needs of the individual, a session could be catered in different ways. For example, if you were working on varying pitch in your speaking voice and enjoyed blues, I would facilitate a scatting exercise supported by a blues pattern on piano which would work on various vowels and pitch intervals in a highly engaging way. If you were working on bilateral coordination, and loved the song, “Proud Mary,” I would have you practice using both arms to reach and hit two drums at the same time first entraining with a metronome, then adding guitar and singing, varying speed, and varying range of motion. If you were working on keeping your hand steady and loved the song, “Love Me Tender,” I would take you through learning to play the melody while entraining your fingers to a steady beat. Other goals music therapists might work on with Parkinson’s include vocal dynamics, speech articulation, lower and upper extremity strength and coordination, fine-motor coordination, and relaxation. Music therapists can also co-treat or coordinate with other therapeutic disciplines.

For more information or to set up a free consultation about teletherapy or in-person music therapy with Heart and Harmony Music Therapy, please visit: www.heartandharmony.com.

About the author:Madison Michel, MT-BC, graduated from The University of Alabama with her BM in Music Therapy in 2015, interned with Heart and Harmony Music Therapy, and is currently pursuing her MM in Music Therapy specializing in Neurological Music Therapy from Colorado State University (distance program). Madison has been supervising interns

since July 2017 and became the Heart and Harmony Internship Director in July 2018.

In addition to her work at Heart and Harmony, Madison has presented at both regional and national music therapy conferences and enjoys doing advocacy presentations in the DFW community. Madison is fascinated by the interaction of the brain and music, and strives to implement principles of neuroscience in her practice.

PAGE 5 • DAPS • JUNE 2020

Let’s Talk Music Therapyby Madison Michel, MT-BC

PAGE 6 • DAPS • JUNE 2020

Anonymous Sarah Atwood Laura Boyle Carol Brandle Shirley Brouillette Edna Buentipo Scott Buzzell John & Wanda Call Malinda Cannon Larry Christensen Mitzi Clark Christian Clausen Bruce & Janiece Crozier Kim Dague John Davis Richard & Rita Doelling Betty Dorsey Raul & Jill Dominguez Katie & Manford Edgington Bentley & Iris Foster William & Karen George Barbara Glass

Barry & Pat Goukler Steven Holman Margery Hunter Michael Jones Geri & Harold Kellogg Jo & Bert Klein Leon & Marilyn Levin Scott MacPherson John Marty Glen & Frances Main Chip & Ginny Melara Pam & Matt Michel Donna Miles Mike Miles Carlie Moe Bobbi & John Myers Rod Myers Coco Nix Susan Norvell Tom & Cecilia Pajda Sandi Pautler Leisha Phipps

Fred Ransdell John Rapier Greg Rector Marguerite Riccardi David & Beverly Rivers Salvatore & Marcie Salamone Adana & Samuel Sanford Nancy Scaramella Charles Schlinke Robyn & Bud Seitzler Shelby Smith Jim Struble Joyce Susman Dr. Chad Swank Linda & Mike Swanson Randy Visser John & Ruth Walker Carole Ann Watson Michele White Diana Winkelmann Sharon & Greg Wood

GEMs are donors who Give Every Month.

Our GEMs are very valuable!

Sign up on

the DAPS website:http://bit.ly/DAPSGEM

Memorials • Honors • DonationsApril 2020

In memory of Ottilla (Tilly) BorgesFrom: Vicki Richards

In memory of Marilyn GoldfingerFrom: Albert & Dorothy Krafcheck

In memory of Claudia HardenburgFrom: Bentley Foster Barbara Glass Harold Kellogg Mike Miles Marcie Salamone Charles Stewart Jonathan Wilson

In memory of Ray SkilesFrom: Helen Quintanilla

Donation to DAPSFrom: Marie Dowling Sally Drayer Jeff Frauenheim Barbara Pace Glen Reznicek Mr. Neil Saunders

Amneal Pharmaceuticals Benevity Causes Facebook The Kroger Company Thrivent Choice

Giving TuesdayFrom: Melissa Barrow in honor of Linus Miller Wendy Bennett Anthony Brouillette Mollie & Michael Catron Pat Clifton Rita & Richard Doelling Martha Fiddes Carol Franzen Colette Harmon Amy Hite Frank & Barbara Lane Ann & Chick Martin Peggy Martin Mike Miles Linda Peavy Solange Shapira in honor of Angie Shapira Chuck Stewart Lue Taff Cindy Weatherall

4847 West Lawther Drive, Suite 100 | Dallas, Texas 75214 | ccyoung.org

Studies show rigorous exercise, emphasizing gross motor movement, balance, core strength, and rhythm, could favorably impact range of motion, flexibility, posture, gait, and activities of daily living. CC Young is proud to host two informative webinars with Dallas area fitness instructors who focus on helping those living with Parkinson’s disease.

With an ideal location next to White Rock Lake, CC Young offers unmatched care to our Assisted Living, Memory Support and Short Term/Respite Care residents. We provide three healthy meals daily, countless life enrichment opportunities, 24-hour care and much more.

For more than 97 years, CC Young has been of service to seniors who need comprehensive support. Our five-star rated community is comprised of caring experts to help you gain strength and confidence to live life to the fullest. If you’d like to learn more, join us!

CALL TO RSVP: 214-241-4041

Call to RSVP 214-241-4041

PAGE 7 • DAPS • JUNE 2020

PAGE 8 • DAPS • JUNE 2020

Virtual Classes & Webinars

Are you Zooming with DAPS?Join us for a virtual class!DAPS is working hard to continue providing the classes that we know you miss and love. Join us for recorded EXERCISE class any time at https://bit.ly/DAPSYouTubeChannel.

Below are the LIVE CLASSES DAPS is offering each week via Zoom.You can join our live exercise, speech, and support groups by contacting us at daps@daps.org for login details.

If you are interested in joining a DAPS class virtually for the first time, please be aware that response times to receive login information are generally during office hours: Monday – Thursday, 9:00 am–2:00 pm.

June Webinars from Other PD OrganizationsEvery major Parkinson’s organization has pre-recorded webinars available.

These are available during June:

Newly Diagnosed: Living Your Best Life with Parkinson’s with Jenna Iseringhausen BSN, RN Tuesday, June 9, 12 pm CDT

www.parkinson.org/get-involved/events/2019/Expert-Briefing-Newly-Diagnosed-Living-Your-Best-Life

Tips for Better Living with Parkinson’s with Dr. Michael Okun – Wednesday, June 24,1 pm CT https://www.davisphinneyfoundation.org/webinar-better-living/

MONDAYS

9:45 am EXERCISE with Angie 10:45 am SUPPORT GROUP with Carol 1:00 pm SPEECH with Danielle

TUESDAYS

9:00 am SPEECH with Pat 10:00 am EXERCISE with Diana 11:30 am SPEECH with Lynn

WEDNESDAYS

9:45 am EXERCISE with Barb 11:00 am SPEECH with Lynn 12:30 pm EXERCISE with Tammy

THURSDAYS

10:00 am EXERCISE with Amanda 2:00 pm SPEECH with Pat

FRIDAYS

9:45 am EXERCISE with Barb 12:30 pm EXERCISE with Tammy

SATURDAYS

1:00 pm EXERCISE with Tammy

SUNDAYS

11:00 am EXERCISE with Diana 2:30 pm EXERCISE with Tammy

Upcoming Events

Rescheduled:Join us in September!

Friday, September 18, 2020

7:30am – 4:30pm

Lovers Lane United Methodist Church

9200 Inwood Rd, Dallas TX 75220

www.educaredallas.com/cfs

MARK YOUR CALENDARSaturday, September 26, 2020

9 a.m. to 3:30 p.m. Lover’s Lane United Methodist Church

9200 Inwood Rd., Dallas, TX 75220

Keep an eye here for more info:

bit.ly/2020KMS-info

PAGE 9 • DAPS • JUNE 2020

Event Details

Location: Lone Star Park

Registration Begins: 8:30 a.m.

Walk Begins: 10:00 a.m.

Contact: Debbie Nathan ph: 214-328-4769 dnathan@parkinson.org

PEoPlE who MoVE changE thE world!Moving Day is an inspiring and empowering annual fundraising walk event that unites people around the country living with Parkinson’s disease (PD), their care partners, and loved ones to help beat PD. Moving Day is more than just a walk; it’s a celebration of the benefits of movement—proven to help manage the symptoms of Parkinson’s disease.Leading up to the event, participants and teams fundraise to help the Parkinson’s Foundation provide everything people with Parkinson’s need to live better—from lifesaving resources to delivering quality care to more than 193,500 people living with Parkinson’s to improving Parkinson’s treatments through research.

rEgiStEr Your tEaM todaYhttps://movingdaywalk.org/event/moving-day-dfw/

PAGE 10 • DAPS • MAY 2020

JUNE EDUCATIONAL SERIES

Tuesday, June 16, 2020, 1:00 p.m.Please visit bit.ly/16Jun2020-ES-info for information on joining the webinar.

Speaker: Nancy Jensen, LCSWTopic: Counseling Care in the Age of COVID-19

ALL PROGRAMS ARE CURRENTLY ONLINE ONLY

Please check the DAPS website at daps.us for schedule changes.

For assistance, contact the DAPS office Monday–Thursday, 9am–2pm at 972-620-7600 or daps@daps.org

UPCOMINGMEETINGS

JULY JUBILEE

monday, July 13, 2020, 1:00 p.m.

Join us for a virtual celebration!

At this webinar, we will celebrate the birthday of DAPS founder, Clarice Dougherty, and recognize this year’s DAPS Outstanding Volunteers.

Please visit bit.ly/Jubilee-072020-info for information on joining the webinar.

Sponsored by

Disclaimer: The contents or opinions expressed in this newsletter are those of the individual writers or presenters and do not constitute an endorsement or approval by DAPS staff.

Please consult your personal physician regarding your individual medical problems.

@dapsinfodaps.us

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This month’s newsletter is sponsored by: