Judit Sándor JD. LLM. Ph.D. - CEU People · 1998–1999 Research on Human Embryos, Meetings in...

1

Judit Saacutendor JD LLM PhDLawyer Professor of Law and Political Science

Office Central European University 1051 Budapest Naacutedor utca 15 HungaryTel +36-1-327-3083 Email sandorjceuhu

______________________________________________________________________________________________________

CURRICULUM VITAEJuly 1 2013

ACADEMIC EMPLOYMENT

Since 2004 Full Professor at the Legal Studies Political Science and Gender StudiesDepartments of the Central European University (CEU Budapest)

2000ndash2004 Associate Professor at the Legal Studies Political Science and GenderStudies Departments of CEU (member of the faculty since 1993)

Since 1998 Department of Legal Studies CEU (faculty member teaching graduatecourses)

Since 1997 Gender Studies Program CEU (faculty member teaching graduatecourses)

Since 1996 Postgraduate Institute of Law Eoumltvoumls Loraacutend University Budapest(teaching Civil Law and Medical Law)

1995ndash2000 Budapest University of Economic Sciences (teaching in the HealthManagement stream)

1998 University of CaliforniandashUniversity of Wisconsin Budapest ExchangeProgram (JanuaryndashMay)

1995ndash1996 Multidisciplinary Gender Studies Program Eoumltvoumls Loraacutend Universityteaching ldquogender and lawrdquo

1993ndash2000 Assistant Professor at the Central European University1994ndash1996 Haynal Imre University of Health Sciences Budapest (teaching Bioethics)1991 Semmelweis University of Health Sciences Budapest (adjunct professor of

Bioethics)

LEGAL PRACTICE

1991 Simmons amp Simmons London UK (legal internship)1991 Crown Office Row Temple London UK (legal internship)1991 University of Postgraduate Studies of Medicine Budapest (guest lecturer)1986ndash1992 National Health Institute (in-house lawyer legal counsel)

EDUCATION

1996 PhD in Political Science and Law (Hungarian Academy of Sciences) TitleRole of Professional Ethics in Judicial Decision Making (No 16350)

1992ndash1993 LLM (Central European University) Postgraduate studies on ComparativeConstitutional Law

2

1991 Legal Internship at Simmons amp Simmons London UK (LitigationDepartment Company Law Department)

1990 McGill University Montreal Quebec Canada visiting fellow at thePostgraduate Centre for Medicine Ethics and Law

1989 Bar Exam (Hungarian legal post-graduate training and license exam)1986 JD (Faculty of Political Sciences and Law Eoumltvoumls Loraacutend University

Budapest)

OTHER PROFESSIONAL ACTIVITIES

2005ndash Director of the CEU Center for Ethics and Law in Biomedicine (CELAB)2011ndash Member of the International Advisory Board of DRZE (German Reference

Center for Ethics in the Life Sciences)2007ndash Member of the Advisory Committee of the European Privacy Institute1995ndash2011 Member of the National Health Science Council of Hungary (Advisory

Board to the Minister of Health)2008ndash2009 Member of the Hungarian Genetechnology Commission2005ndash2009 Chief of the Council of Presidents World Association for Medical Law2004ndash2005 Chief of Bioethics Section UNESCO Social and Human Sciences Sector2003ndash2004 Expert on genetics and law at the Advisory Group of the Hungarian Prime

Minister2002ndash2003 Member of the Drafting Group of the IBC on the preparation of an

international instrument on genetic data (Paris UNESCO)1996ndash2000 Representative and one of the founders of the Hungarian Patientsrsquo Rights

Foundation ldquoSzoacuteszoacuteloacuterdquo1996ndash1998 Participating as a consultant at the Health Care Legislation Process in

Hungary1991ndash2013 Member of the editorial board of the Lege Artis Medicinae (a medical

journal) Budapest1991ndash1992 Advisor on bioethics to the Parliamentary Committee on medical law and

ethics

FELLOWSHIPS

2000 Visiting Fellow at the University of Chicago Department of Anthropologyand Department of Law (OctoberndashDecember)

1998 Visiting Fellow at Center for Biomedical Ethics Stanford UniversityCalifornia Program in Genomics Ethics and Society (November)

1993ndash2000 Member of the editorial board of Health Care Analysis (An internationaljournal of health philosophy and policy Ed David Seedhouse) ISSN 1065-3058

1996 Fall Visiting Fellow at the Maison des Sciences de lHomme Paris France andvisiting the Comiteacute consultatif national deacutethique pour les sciences de lavie et de la santeacute (Mellon Fellowship)

1994ndash1997 Course Director on Human Rights and Medicine at Inter-University CentreDubrovnik Croatia

1993 Visiting scholar at the Hastings Center (New York)

3

LANGUAGES

Hungarian (native)English (highest level state exam)French (upper-intermediate)Italian (intermediate)Spanish (basic)Russian (intermediate passive)

MEMBERSHIPS IN COMMITTEES OF INTERNATIONAL AND NATIONAL ORGANIZATIONS

Member of the International Advisory Group of DRZE (2011-present)Member of the Board of Trustees National Theatre Hungary (2005-2009)Member of the five-member Advisory Board of the Council of Europe Euro-Forum on

Human Genetics (2002-2003)Member of the Working Party on Biotechnology (CDBI-Biotech) Council of Europe

Strasbourg FranceMember of the European Commission Ad Hoc High Level Expert Group on Health Fifth

Framework (2000)National Board of Health Sciences (ETT TUKEB Hungary)Member of the Drafting Group of the International Declaration on the Human Genetic

Data UNESCO (2000-2003)European Society for the Philosophy in Medicine and Health CareHungarian Society for Bioethics

EUROPEAN UNION SPONSORED RESEARCH PROJECTS

2013-2016 NERRI2010ndash2012 European Living Organ Donation (Acronym EULOD)2008ndash2011 Regenerative medicine in Europe emerging needs and challenges in a

global context (Acronym RemediE)2008ndash2011 Evaluation of Legislation and Related Guidelines on the Procurement

Storage and Transfer of Human Tissues and Cells in the European Unionndashan Evidence-Based Impact Analysis (Acronym TISSEU) Contract No202204

2008ndash2009 Development of a Platform for Deliberative Processes on Nanotechnologyin the European Consumer Market (Acronym NANOPLAT)

2006ndash2009 Genetic Bio- and DataBanking Confidentiality and Protection of DataTowards a European Harmonisation and Policy (Acronym GeneBanC)SA6-CT-2006-036751-GeneBanC Contract Number 036751

2006ndash2009 Privacy in Law and Ethics in Genetic Data (Acronym PRIVILEGED)2002ndash2003 STRATA-ETAN GROUP (EU) (The aim of the group was to produce a

Report on methodologies to identify underlying ethical values in Europe inrelation to science and technology)

2002ndash2004 Public Understanding of Genetics (Acronym PUG)2002ndash2004 European Commission Research Project on Privacy in Research Ethics and

Law (Acronym PRIVIREAL)

4

1998ndash1999 Research on Human Embryos Meetings in Verona October 1998 AthensApril 1999

1994ndash1996 European Commission Research Project of Euroscreen Meetings inManchester

1994ndash1995 European Commission Research Project on Fertility Infertility and theHuman Embryo Meetings in Bath Barcelona Frankfurt Lisbon

PUBLICATIONS

I Books

1 Saacutendor Judit with Aacutedaacuteny Roacuteza and Angela Brand (2013) edited Neacutepegeacuteszseacuteguumlgyigenomika (Public Health Genomics) Budapest Medicina 9-292ISBN 978-963-226-388-5

2 Saacutendor Judit with Christian Lenk and Bert Gordijn (2011) (eds) Biobanks and TissueResearch The Public the Patient and the Regulation Springerhttpwwwbokuscombok9789400716728biobanks-and-tissue-research

3 Saacutendor Judit (ed) (2009) Perfect copy Law and Ethics of Reproductive MedicineBudapest CEU Center for Ethics and Law in Biomedicine 1ndash175httpwwwlibrarythingcomwork9580433 ISBN 978-963-9776-75-3

4 Saacutendor Judit (2003) Medical Law Hungary International Encyclopedia of Laws SeriesThe Hague London New York Kluwer Law International 1-148pp

5 Saacutendor Judit (ed) (2004) Society and Genetic Information Codes and Laws in theGenetic Era Budapest and New York CEU Press (Introduction is written by JuditSaacutendor) 1-422pphttpwwwgooglecombookshl=huamplr=ampid=TqXTb0mcOxUCampoi=fndamppg=PA9ampdq=Judit+Sandor+Society+and+genetic+Informationampots=g255-4CZL-ampsig=IcbRep8Z8fGin2HtwJWRwT-N7Agv=onepageampqampf=false

6 Saacutendor Judit and Andre den Exter (eds) (2003) Frontiers of the European Health CareLaw A Multidisciplinary Approach Rotterdam Erasmus University Press ISBN 90-807487-2-2 219pp (Introduction is written by the editors the volume includes achapter by Judit Saacutendor ldquoData protection in Health Care Beyond Biomedical Userdquopp76ndash96) 1-219 pp

7 Saacutendor Judit (1997) Gyoacutegyiacutetaacutes eacutes iacuteteacutelkezeacutes Orvosi m hiba-perek Magyarorszaacutegon(Medicine and Jurisprudence Medical Malpractice Litigation in Hungary) BudapestMedicina 1-402 pp

8 Saacutendor Judit (1992) Abortusz eacutes jog (Abortion and Law) Budapest Literatura Medica1-204 pp

9 Saacutendor Judit with Ferenc Barta (1990) Egeacuteszseacuteguumlgyi teveacutekenyseacuteg ndash Polgaacuteri jogifelel sseacuteg (Health Care Activity ndash Civil Liability) Budapest OIK

5

II Chapters in Books

1 Judit Saacutendor and Maacuterton Varju (2013) Az embrionaacutelis ssejteken veacutegezhet kutataacutesokeacutes az ezeken alapuloacute talaacutelmaacutenyok etikai aspektusai in Saacutendor K muumlves Erzseacutebet Roacutezsa(2013) A szemeacutely bioetikai kontextusa Debrecen Debrecen University Press ISSN 2064-034X pp 98-134

2 Judit Saacutendor (2013) Ethical and legal debates on a dignified end-of-life and the role ofthe family in Hungary in Brigitte Feuillet Kristina Orfali Theacuteregravese Callus BruxellesBruylant pp 211-221 ISSN 2033-3498

3 Judit Saacutendor Violeta Beširevi Enik Demeacuteny George Tudor Florea Natalia Codreanu(2013) Organ Trafficking Organ Trade Recommendations for a More Nuanced LegalPolicy in F Ambagstsheer W Weimar (eds) The EULOD Project Living Organ Donationin Europe Results and Recommendations Lengerich Pabst Science Publisher pp 147-175

4 Judit Saacutendor with Michaela Frunza(1) Enik Demeacuteny and Betarice Ioan (2013) Toshare or not to share your door status on Facebook in Gurch Randhawa and SilkeSchicktanz (eds) Public Engagement in Organ Donation and Transplantation LengerichPabst Science Publishers pp 27-36

5 Judit Saacutendor and Maacuterton Varju (2013) The Multiplicity of Norms The Bioethics andLaw of Stem Cell Patents in Andrew Webster (ed) The Global Dynamics of RegenerativeMedicine A Social Critique Basingstoke Palgrave Macmillan 169-193

6 Saacutendor Judit (2013) Deacutebats juridiques et eacutethiques sur la vie digne et sur lrsquoeuthanasie enHongrie in Brigitte Feuillet-Liger ( 2013) Les proches et la fin de vie meacutedicaliseacuteeBruxelles Bruylant 221-231

7 Saacutendor Judit (2012) Bioethics and Basic Rights Persons Humans and the Boundariesof Life in Michel Rosenfeld Andraacutes Sajoacute (eds) The Oxford Handbook of ComparativeConstitutional Law Oxford Oxford University Press 1142-1165

8 Saacutendor Judit (2012) Adolescents and medical law in Hungary in Brigitte Feuillet-Liger Ryuichi Ida Therese Callus (eds) Adolescents Autonomy and medical treatmentBruxcelles Bruylant (in English) 189-199

9 Saacutendor Judit with Baacuterd Petra (2011) Anonymisation and Pseudonymisation as Meansof Privacy Protection Second International Workshop of the TissEU Project inKatharina Beier Silvia Schnorrer Nils Hoppe Christian Lenk (eds) The Ethical and LegalRegulation of Human Tissue and Biobank Research in Europe Proceedings of the TissEUProject Goumlttingen Universitaumltverlag 25-34httpwebdocsubgwdgdeuniverlag2011tiss_eu_bookpdf

10 Saacutendor Judit (2011) Az eutanaacutezia mint politikai keacuterdeacutes (Euthanasia as a PoliticalIssue) In Mihaacutely Filoacute (ed) Paacuterbeszeacuted a halaacutelroacutel Eutanaacutezia a jogrend peremeacuten (Dialogue

6

about Death Euthanasia on the Peripheries of the Legal System) Budapest LiteraturaMedica Kiadoacute pp 83ndash95 (Book chapter in Hungarian)

11 Saacutendor Judit with Baacuterd Petra (2011) Anonymity and Privacy in Biobanking inSaacutendor Judit with Christian Lenk and Bert Gordijn (2011) (eds) Biobanks and TissueResearch The Public the Patient and the Regulation Springer 213-230

12 Saacutendor Judit (2011) Lrsquoadoloescent et le droit meacutedical en Hongrie in Brigitte Fuillet-Liger Ryuichi Ida (eds) Adolescent et Acte Meacutedical Regards Croiseacutes Bruxelles Bruylant(in French) 195-205

13 Saacutendor Judit (2010) Anonymity in Assisted Reproduction Gender Equality and aPronatal Reproductive Policy in Hungarian Law In Brigitte Feuillet-Liger Kristina Orfaliand Theacuteregravese Callus (eds) Who Is My Genetic Parent Donor Anonymity and AssistedReproduction A Cross-Cultural Perspective Brussels Bruylant 199-211

14 Saacutendor Judit (2009) From Private to Public Legal Concepts of the Right to Privacyand Ownership in the Regulation of Biobanks In Kris Dierickx and Pascal Borry (eds)New Challenges for Biobanks Ethics Law and Governance Antwerp Intersentia pp 123ndash136

15 Saacutendor Judit (2009) Reacuteglementation libeacuterale et focus sur lrsquoenfant La procreacuteationmeacutedicalement assisteacutee en Hongrie In Enric Porqueres i Geneacute (ed) Deacutefis contemporainsde la paranteacute Paris EHESS pp 107ndash124

16 Saacutendor Judit (2009) A Retoacuterica Legal Em Torno da Reproduccedilatildeo (Legal Rhetoric ofReproduction) In Susana Silva-Luisa Veloso (ed) Representaccedilotildees juriacutedicas dastecnologias reprodutivas contributos para uma reflexatildeo (Legal Representation of NewReproductive Technologies) Porto UP Press pp 21ndash46 (Book chapter in Portuguese)

17 Saacutendor Judit (2009) Introduction In Judit Saacutendor (ed) Perfect Copy Law and Ethicsof Reproductive Medicine Budapest Center for Ethics and Law in Biomedicine pp 7ndash18

18 Saacutendor Judit (2009) Emberi jogok az orvosbioloacutegia teruumlleteacuten A nemzetkoumlzi jogszerepe az emberi jogok eacutes a bioetikai koumlzeledeacuteseacuteben (Human Rights in the Field ofBiomedicine The Role of International Law in Bringing Human Rights and BioethicsCloser) In Gyoumlrgy Viraacuteg (ed) OKRI Szemle Budapest Orszaacutegos Kriminoloacutegiai Inteacutezetpp 124ndash149

19 Saacutendor Judit (2008) Anonymat dans les proceacutedures de pocreacuteation meacutedicalementassisteacutee Eacutegaliteacute des sexes et vision pronatale dans la reacuteglementation hongroise(Anonymity in the procedures of assisted reproduction) In Brigitte Feuillet-Liger(ed) Procreacuteation meacutedicalement assisteacutee et anonymat Panorama internationalCollection droit bioeacutethique et socieacuteteacute No 1 Bruxelles Bruylant pp 203ndash215 (Bookchapter in French)

20 Saacutendor Judit with Balaacutezs Raacutetai (2008) IKT-implantaacutetumok Az ember-szaacutemiacutetoacutegeacutepkommunikaacutecioacute taacutevlatai (ICT Implants ndash Prospects of Communication between

7

Humans and Computers) In Doumlmoumllki Baacutelint (ed) Eacutegen-Foumlldoumln Informatika Azinformaacutecioacutes taacutersadalom technoloacutegiai taacutevlatai (Informatics EverywhereTechnological Prospects of Information Society) Budapest Nemzeti Hiacuterkoumlzleacutesi eacutesInformatikai Tanaacutecs Typotex pp 317ndash333

21 Saacutendor Judit (2007) Body Immortal In Jennifer Gunning Soslashren Holm (eds) EthicsLaw and Society Aldershot Ashgate pp 123ndash135

22 Saacutendor Judit (2007) New Dimensions of Bioethics in the Universal Declaration onBioethics and Human Rights Response to Roberto Andorno In Chris Gastmans KrisDierickx Herman Nys Paul Schotsmans (eds) New Pathways for EuropeanBioethics Antwerpen Intersentia pp139ndash160 ISBN 978-905095-670-3

23 Saacutendor Judit (2006) Az emberi meacuteltoacutesaacuteg tiszteleteacuter l a bioetikaacuteban eacutes azorvosbioloacutegiai jogban (On Respecting Human Dignity in Bioethics and BiomedicalLaw) In Troacutecsaacutenyi Laacuteszloacute (ed) A mi alkotmaacutenyunk (Our Constitution) BudapestComplex Kiadoacute pp 355ndash357

24 Saacutendor Judit (2006) Jogi felel sseacuteg az egeacuteszseacuteguumlgyi teveacutekenyseacutegeacutert (Liability forProviding Health Services) In Attila Olaacuteh and Csaba Gaaacutel (eds) Hibaacutek eacutesszoumlv dmeacutenyek a hasi sebeacuteszetben (Malpractice and Complications in AbdominalSurgery) Budapest Medicina Koumlnyvkiadoacute pp 63ndash70

25 Saacutendor Judit (2005) Reproduction and Genetics Pragmatic and Moral Elements inthe Hungarian Biomedical Law In Yearbook of European Medical Law Lidingouml Instituteof Medical Law pp 112ndash125 ISBN 91-7864-194-2

26 Saacutendor Judit (2005) Research Ethics Committees in Hungary In Deryck BeyleveldDavid Townend Jessica Wright (eds) Research Ethics Committees Data Protection andMedical Research in European Countries Ashgate Aldershot pp 93ndash107

27 Saacutendor Judit (2004) Protection of Health Care Data in Hungarian Law In DeryckBeyleveld David Townend Seacutegolegravene Rouilleacute-Mirza Jessica Wright (eds)Implementation of the Data Protection Directive in Relation to Medical research in EuropeAshgate Aldershot pp 157ndash175

28 Saacutendor Judit (2004) Cells Tissues and Health Care Data In Andreacute den Exter (ed)EU Accession and its Consequences for Candidate Countriesrsquo Health Systems RotterdamErasmus University Press pp 57ndash71

29 Saacutendor Judit (2003) Society and Genetic Information Contemporary Challenges inBiomedical Law In Ethics Science and Society Bioethics Consultative Committee Maltapp 12ndash30

30 Saacutendor Judit (2003) Data Protection in Health Care Beyond Biomedical Use InAndre den Exter and Judit Saacutendor (eds) Frontiers of the European Health Care Law AMultidisciplinary Approach Rotterdam Erasmus University Press pp76ndash96

31 Saacutendor Judit (2004) Ombudspersons and Patientsrsquo Rights Representatives inHungary In Lars Fallberg and Stephen Mackenney (ed) Protecting Patientsrsquo Rights AComparative Study of the Ombudsman in Healthcare Abingdon Oxon Radcliffe MedicalPress pp 55ndash77

8

httpbooksgooglehubooksid=7lI_sDA3amECamppg=PA55amplpg=PA55ampdq=patients+rights+in+Hungary+Judit+sandorampsource=blampots=FxVPVByFajampsig=CRoDAT4hUiqqspyfr3eO-PT7F2camphl=huampei=omdeTanUBo2WOo_8lbwNampsa=Xampoi=book_resultampct=resultampresnum=9ampved=0CDsQ6AEwCAv=onepageampq=patients20rights20in20Hungary20Judit20sandorampf=false

32 Saacutendor Judit (2002) Genetic Data Old and New Challenges for Data Protection InJozef Glasa (ed) Ethics in Human Genetics Challenges of the (Post)Genomic EraBratislava CharisndashIMEB Foundation pp 89ndash99

33 Saacutendor Judit (2001) Parental Identification and Genetic Fingerprinting lsquoSecret orLiesrsquo In Bioethics and the Rights of the Child UNESCO pp 69ndash81

34 Saacutendor Judit (2000) Orvosi jog- Egeacuteszseacuteguumlgyi Jog az ezredforduloacuten In Zoltaacuten Bulaet al (eds) Anno 2000 Orvostudomaacuteny Magyarorszaacutegon Budapest SpringerTudomaacutenyos Kiadoacute pp 151ndash157

35 Saacutendor Judit (2000) The Hungarian Legislative Approach to Assisted ProcreationAn Attempt at Transparency In Jennifer Gunning (ed) Assisted Conception AldershotAshgate Burlington Dartmouth pp 139ndash153

36 Saacutendor Judit (2000) Human Genome Analysis from Ethical and Legal PerspectivesIn International Conference of the Council of Europe on Ethical Issues arising from theApplication of Biotechnology Council of Europe Publishing pp 159ndash165

37 Saacutendor Judit (1999) Genetic Testing Genetic Screening and Privacy In RuthChadwick et al (eds) The Ethics of Genetic Screening Aldershot Kluwer AcademicPublishers pp 181ndash190

38 Saacutendor Judit (1998) A szabaacutelyozaacutes csapdaacutei eacutes dilemma Variaacutecioacutek egy leendtoumlrveacutenyre (Traps and Dilemmas of Regulation Variations of a Draft Bill) In HalmaiGaacutebor (ed) A haacutetraacutenyos megkuumlloumlnboumlzteteacutes tilalmaacutetoacutel a pozitiacutev diszkriminaacutecioacuteig (Fromthe Prohibition of Discrimination to Affirmative Action) Budapest INDOK pp 49ndash71(Book chapter in Hungarian)

39 Saacutendor Judit (1997) Neue Legislative Ansatze fuumlr Patientenrechte in Ungarn InChristoph Kranich and Jan Boumlcken (eds) Patientenrechte und Patientenunter-stuumltzung inEuropa Anregungen und Ideen fuumlr Deutschland Baden-Baden Nomos Verlag pp 10ndash21(Book chapter in German)

40 Saacutendor Judit (1996) Legal Status of the Human Embryo Overview of the HungarianLegislation In Donald Evans (ed) Conceiving the Embryo Ethics Law and Practice inHuman Embryology The HaguendashLondonndashBoston Martinus Nijhoff Publishers pp 269ndash276

41 Saacutendor Judit (1996) Legal Approaches to Motherhood in Hungary In Donald Evansand Neil Pickering (eds) Creating the Child The Ethics Law and Practice of AssistedProcreation The HaguendashLondonndashBoston Martinus Nijhoff Publishers pp 157ndash166

III Selected Articles in Professional Journals (Not a complete list)

9

1 Saacutendor Judit with Maacuterton Varju (2012) Patenting Stem Cells in Europe TheChallenge of Multiplicity in European Union Law in Common Market Law ReviewCommon Market Law Review Vol 3 2012 available at SSRNhttpssrncomabstract=2072255

2 Judit Saacutendor et al (2011) The Case of Biobanks J Med Ethicsdoi101136jme2010041632 Law ethics and medicine The case of biobank with thelaw between a legal and scientific fiction in Journal of Medical Ethics

3 Judit Saacutendor with Graeme Laurie Pierre Mallia et als (2010) Managing Access toBiobanks How Can we Reconcile Individual Privacy and Public Interests in GeneticResearch in Medical Law International 2010 Vol 10 pp 315ndash337httpwwwmedlicoukContents_Vol10No42010html

4Saacutendor Judit (2010) Biobankok Sikeres fikcioacute a tudomaacuteny szolgaacutelataacuteban (BiobanksA Successful Fiction in the Service of Science) JURA vol 16 no 1 116ndash126httpjuraajkptehuJURA_2010_1pdf

5 Saacutendor Judit (2008) Kutataacutesi alanyboacutel alkotoacutetaacuters (From Research Subject toCoauthor) In Lege Artis Medicinae vol 8 no 4 338ndash342 httpwebceuhucelab338-341apdf

6 Saacutendor Judit (2008) Human Rights and Bioethics Competitors or Allies The Role ofInternational Law in Shaping the Contours of a New Discipline Medicine and Law vol 2715ndash28 httpwebceuhucelab02-A02pdf

7 Saacutendor Judit with Guido van Steendam Andraacutes Dinnyeacutes Jacques Mallet et al (2006)Report of the Budapest Meeting 2005 ldquoIntensified Networking on Ethics of Science TheCase of Reproductive Cloning Germline Gene Therapy and Human Dignityrdquo Science andEngineering Ethics vol 12 no 4 pp 731ndash793httpwwwspringerlinkcomcontenta252517v63566213fulltextpdf

8 Saacutendor Judit (2006) Body that Matters Journal de meacutedecine legale droit medicalvictimiologie dommage corporel vol 49 no 2ndash3 (MarsndashMai 2006) p 59

9 Saacutendor Judit (2006) A test halhatatlansaacutega Bioetikai eacutes jogi dilemmaacutek a XXIszaacutezadban (The Immortability of the Body Bioethical and Legal Dilemmas in the 21stCentury) Fundamentum vol 10 no 1 pp 32ndash45 http15718118113dokuk06-01-03pdf

10 Saacutendor Judit (2006) Bioetika eacutes emberi jogok Az emberi jogok uacutej generaacutecioacuteja(Bioethics and Human Rights Towards a New Generation of Human Rights) ActaHumana vol 17 no 1 pp 17ndash29

11 Saacutendor Judit Laacuteszloacute Majtheacutenyi Andraacutes Juhos and Andraacutes Vaacuteradi (2006)Kerekasztal-beszeacutelgeteacutes a genetikai kutataacutes eacutes a biztosiacutetaacutes viszonyaacuteroacutel (Round-TableTalk on Genetic Research and Insurance) In Istvaacuten Hajduacute (ed) Biztosiacutetaacutesi Szemle vol52 no 9 pp 15ndash34

10

12 Saacutendor Judit (2005) A teraacutepiaacutetoacutel a szelekcioacuteig Jogi eacutes etikai vitaacutek a reprodukcioacutesbeavatkozaacutesok uacutej moacutedszereir l (From Therapy to Selection Legal and Ethical Debateson the New Methods of Assisted Reproduction) Acta Humana vol 16 no 4 pp 3ndash20

13 Saacutendor Judit (2003) A genetikai adatok veacutedelme (Protection of Human GeneticData) Acta Humana vol 14 no 3 pp 3ndash21

14 Saacutendor Judit (2002) Reproduction Self and State Social Research vol 69 no 1(Spring 2002) pp 115ndash142

15 Saacutendor Judit (2002) Genomika eacutes jog (Genomics and Law) Magyar Tudomaacuteny(Journal of the Hungarian Academy of Sciences) vol 47 no 5 pp 616ndash626

16 Saacutendor Judit (2001) XXI szaacutezadi emberreceptek jogi szemmel (Recipes for Humansfrom a Legal Perspective in 21st Century) Eacutelet eacutes Irodalom December 2001

17 Saacutendor Judit (2001) Nederland door Hongaaerse ogen Studiebezoek aan NederlandIntermezzo 62001 Utrecht

18 Saacutendor Judit (2000) Geacutenkeacuteszletuumlnkkel magunk is fontos titokhordozoacutekkaacute vaacuteltunk(Does Our Human Genome Carry Secrets) Replika 41ndash42 (2000 november) pp 50ndash52

19 Saacutendor Judit (2000) Lombikbeacutebik eacutes Dolly utaacuten Felfedhetjuumlk-e genetikaiszerencskaacutertyaacuteinkat a biztosiacutetaacutesi piacon (After Test-Tube Babies and Dolly Can WeReveal Our Genetic Lottery) Neacutepszabadsaacuteg December 9 2000 (Heacutetveacutege melleacutekletWeekend Edition)

20 Saacutendor Judit (2000) A leacutet elviselhetetlen neheacutezseacutege A ldquokoumlnny rdquo halaacutel eacutes a jog (TheUnbearable Heaviness of Being Euthanasia and the Law) Magyar Narancs December21 2000 pp 74ndash76

21 Saacutendor Judit (2000) Reproductive Rights in Hungarian Law A New Right toAssisted Procreation Health and Human Rights vol 4 no 2 pp 196ndash219 (HarvardSchool of Public Health Center for Health and Human Rights)

22 Saacutendor Judit (1999) Megrengetik-e a genetika uacutej felfedezeacutesei hagyomaacutenyos emberijogi szemleacuteletuumlnket (Do We Need to Reexamine the Traditional Human RightsPerspectives in Light of New Discoveries in Genetics) Vilaacutegossaacuteg vol 40 no 2 pp 42ndash59

23 Saacutendor Judit (1999) From Ministry Orders towards the Constitutional DebateLessons drawn from the Past 50 Years of Abortion Laws in Hungary In Rebecca J Cookand Bernard M Dickens (eds) Legal and Ethical Aspects of Reproductive and SexualHealth in Central Eastern Europe Medicine and Law special issue vol 18 pp 389ndash409

24 Saacutendor Judit (1998) Uacutejabb eacutervek a terhesseacutegmegszakiacutetaacutes alkotmaacutenyossaacutegaacuteroacutel (NewArguments for the Constitutionality of Abortion) Fundamentum vol 2 no 3 pp 121ndash135

25 Saacutendor Judit (1997) A betegek jogainak kodifikaacutelaacutesaacuteroacutel (On Codifying PatientsrsquoRights) Fundamentum vol 1 no 1 pp 87ndash100

11

26 Saacutendor Judit (1996) A szemeacutelyhez f jogok veacutedelme az egeacuteszseacuteguumlgyi ellaacutetaacutesban(Protecting the Rights of the Person in Health Care Service) Lege Artis Medicinae vol 6no 9ndash10 pp 592ndash596

27 Saacutendor Judit (with Andraacutes Sajoacute) (1996) A gyoacutegyiacutethatatlannak veacutelt lsquohalaacutelosrsquo beteg jogihelyzete a teacuteteles jog tuumlkreacuteben (The Legal Status of the lsquoTerminally Illrsquo under Hungarianlaw) Magyar Tudomaacuteny no 7 pp 771ndash790

28 Saacutendor Judit (with Andraacutes Sajoacute) (1996) The Legal Status of the lsquoTerminally Illrsquo underHungarian law Acta Juridica Hungarica vol 37 no 1ndash2 pp 1ndash21

29 Saacutendor Judit (1996) Veszeacutelyes munkahelyi viszonyok avagy n i ldquofoglalkozaacutesiaacutertalmakrdquo (Dangerous Liaisons at the Workplace or the Harmful Professional Relationsof Women) Lege Atis Medicinae vol 6 no 5ndash6 pp 380ndash384

30 Saacutendor Judit (1996) A humaacuten reprodukcioacutes orvosi eljaacuteraacutesok jogi szabaacutelyozaacutesaacuteroacutel(Regulating Assisted Procreation) Acta Humana vol 25 pp 29ndash46

31 Saacutendor Judit (1995) Az eacutelet vagy az emberi meacuteltoacutesaacuteg (Life or Human Dignity)Vilaacutegossaacuteg vol36 no7 pp 41ff

32 Saacutendor Judit (1995) A gyermekek vagy feln ttek jogai (The Rights of Children orthe Rights of Adults) Lege Artis Medicinae vol5 no8

33 Saacutendor Judit (1995) Judicial Monitoring of Psychiatric Confinement and TherapyEast European Constitutional Review vol 4 no 4 pp 83

34 Saacutendor Judit (1994) Rights to Health Care A Review European Philosophy ofMedicine and Health Care vol 2 p 3

35 Saacutendor Judit (1994) Menteget zeacutes helyett (Instead of Excuses The Legal Concept ofMedical Malpractice) Magyar Orvos vol 2 no 3 (March 1994) pp 25ff

36Saacutendor Judit (1994) Az oumlnrendelkezeacutesi jog korlaacutetozaacutesa a gyoacutegyiacutetaacutesban (Limitationson the Right to Self-Determination in Medicine) Lege Artis Medicinae vol 4 no 8 pp798ff

37Saacutendor Judit (1994) Hogyan eacuterveacutenyesuumllhet a hozzaacutejaacuterulaacutes elve a magyaregeacuteszseacuteguumlgyi rendszerben (How Could Be the Principle of Self-DeterminationEnforced in the Hungarian Health Care System) Lege Artis Medicinae vol 4 no 1pp 84ndash87

38Saacutendor Judit (1994) Kockaacutezatvaacutellalaacutes A szokaacutesos m teacuteti kockaacutezat min siacuteteacutese azigazsaacuteguumlgyi orvosszakeacutert k eacutes a biacuteroacutesaacuteg iacuteteacutelekezeacutesi gyakorlataacuteban I-II-III reacutesz(Taking Risks The Legal Evaluation of Material Risk in Medical Interventions)Magyar Orvos AugustndashSeptemberndashOctoberndashNovember

39Saacutendor Judit (1993) Van-e jogunk a halaacutelhoz Koumlzeacutep-euroacutepai koumlrkeacutep (Do we Have aRight to Die Central European Overview) Lege Artis Medicinae vol 3 no 9 pp900ff

40Saacutendor Judit (1993) Abortion New Law in Hungary Bulletin of Medical Ethics 85(February 1993) pp 24ndash25

12

41Saacutendor Judit (1992) Gyoacutegyiacutetaacutes eacutes igazsaacutegszolgaacuteltataacutes (Health Care and Justice) LegeArtis Medicinae vol 2 no 8 pp 795ndash797

42Saacutendor Judit (1992) A WHO Regionaacutelis Irodaacutejaacutenak szimpoacuteziuma beszaacutemoloacute (Reporton the Symposium of the WHO Regional Office) Lege Artis Medicinae vol 2 no 3 p298

43Saacutendor Judit (1991) Az alternatiacutev gyoacutegyaacuteszat jogi szabaacutelyozaacutesaacuteroacutel (On RegulatingAlternative Medicine) Lege Artis Medicinae vol 1 no 5 pp 1066ndash1068

44Saacutendor Judit (1991) Az egeacuteszseacuteguumlgyi inteacutezmeacuteny felel sseacutege a gyoacutegyiacutetaacutes min seacutegeacuteeacutert(Liability of the Hospitals for Quality of Health Care) Lege Artis Medicinae vol 1 no4 pp 269ndash271

45Saacutendor Judit (1991) A Missing Sentence Bulletin of Medical Ethics March 1991

46Saacutendor Judit (1990) Leacuteteznek-e beteg-jogok (Do Patients Have Specific Rights)Medjuris-fuumlzetek

47Saacutendor Judit (1988) Ceacutelszer seacuteg vagy toumlrveacutenyesseacuteg (Utility or Legality)Orvosegyetemcedil vol 32 no11

CELAB PUBLICATIONS

Saacutendor Judit and Petra Baacuterd (2009) The Legal Regulation of Biobanks National ReportHungary CELAB Paper Series No 1 Budapest CEU CELAB

Saacutendor Judit Aikaterini Drakopoulou and Petra Baacuterd (2009) The Legal Regulation ofBiobanks National Report Greece CELAB Paper Series No 2 Budapest CEU CELAB

Saacutendor Judit Enik Demeacuteny and Petra Baacuterd (2009) The Legal Regulation of BiobanksNational Report Lithuania CELAB Paper Series No 3 Budapest CEU CELAB

Saacutendor Judit and Petra Baacuterd (2009) The Legal Regulation of Biobanks National ReportLatvia CELAB Paper Series No 4 Budapest CEU CELAB

Saacutendor Judit and Petra Baacuterd (2009) The Legal Regulation of Biobanks National ReportEstonia CELAB Paper Series No 5 Budapest CEU CELAB

Saacutendor Judit Judit Schveacuteger and Petra Baacuterd (2009) The Legal Regulation of BiobanksNational Report Malta CELAB Paper Series No 6 Budapest CEU CELAB

Saacutendor Judit and Petra Baacuterd (2009) The Legal Regulation of Biobanks National ReportCyprus CELAB Paper Series No 7 Budapest CEU CELAB

Saacutendor Judit Marcin Sliwka and Petra Baacuterd (2009) The Legal Regulation of BiobanksNational Report Poland CELAB Paper Series No 8 Budapest CEU CELAB

Saacutendor Judit Enik Demeacuteny and Petra Baacuterd (2009) The Legal Regulation of BiobanksNational Report Romania CELAB Paper Series No 9 Budapest CEU CELAB

13

Saacutendor Judit Christiana Mauro and Petra Baacuterd (2009) The Legal Regulation of BiobanksNational Report Italy CELAB Paper Series No 10 Budapest CEU CELAB

Saacutendor Judit and Petra Baacuterd (2009) The Legal Regulation of Biobanks National ReportCzech Republic CELAB Paper Series No 11 Budapest CEU CELAB

Saacutendor Judit Petra Baacuterd (2010) The Legal Regulation of Biobanks National ReportSlovenia CELAB Paper Series No 12 Budapest CEU CELAB

Saacutendor Judit Judit Schveacuteger and Petra Baacuterd (2010) The Legal Regulation of BiobanksNational Report Slovakia CELAB Paper Series No 13 Budapest CEU CELAB

1 CELAB Annual Report 2005-2006Editor Judit SandorExecutive editor Eniko DemenyBudapest AduPrint kftISSN 1992-4038Annual Report 2005-2006pdf

2 CELAB Annual Report 2006-2007Editor Judit SandorExecutive editor Eniko DemenyBudapest AduPrint kftISSN 1992-4038Annual_Report_2006-2007pdf


4 CELAB Annual Report 2008-2009Editor Judit SandorExecutive editor Eniko DemenyBudapest AduPrint kftISSN 1992-4038Celab_Report_2008-2009pdf

5 CELAB Annual Report 2008-2009Editor Judit SandorExecutive editor Eniko Demeny

Budapest AduPrint kftISSN 1992-4038Celab_Report_2009-2010pdf

6 CELAB Annual Report 2009-2010

14

Editor Judit SandorExecutive editor Eniko DemenyBudapest AduPrint kftISSN 1992-4038

Bioetika az UNESCO-ban Szoumlveggy jtemeacutenyCenter for Ethics and Law in Biomedicine Budapest 2008ISSN 978-963-97714-3-8 pp 1-28 in Hungarian

UNESCO i bioetika Zbirka Osnovnih dokumentaCenter for Ethics and Law in Biomedicine Budapest 2008ISBN 978-96387714-6-9 pp 1-28in Croatian

Bioetika v UNESCO Zaacutekladniacute TextyCenter for Ethics and Law in Biomedicine Budapest 2008pp 1-16 in Czech

Lrsquo UNESCO e la BioeticaI testi fondamentaliCenter for Ethics and Law in Biomedicine Budapest 2008pp 1-28 In Italian

Center for Ethics and Law in Biomedicine Budapest 2008pp 1-28 In Serbian

CONFERENCES LECTURES PAPERS DELIVERED AT CONFERENCES AND WORKSHOPMEETINGS IN 2001ndash2012

Approximately 150 papers were presented in different workshops and conferences onhealth care on medical law and on human rights (Barcelona Bonn Bratislava BrusselsBudapest Hamburg Helsinki Jerusalem Kyoto Manchester Montreal Oslo OviedoOxford Palo Alto Paphos Prague Paris Rio de Janeiro Saint-Vincent StrasbourgSigulda Stockholm Sydney Vilnius Verona Warsaw)See some recent conference papers listed

Keynote speaker Genetics and Privacy paper presented at the conference on Bioethics ampGenetics Dilemmas of genetic diagnosis and consultation organized by the BioethicsCommittee of the Polish Academy of Sciences The Institute of Philosophy of theUniversity of Warsaw and the Editorial Board of a Scientific Journal ldquo Ethicsrdquo held on 7-8December 2012 Warsaw

ldquoEmbryos and Genes on Trialrdquo paper presented at 19th World Congress on Medical Law atMaceioacute in Brazil August 7-10 and 10 2012

The Right to Health and the Human Organ A Rights by Consequence paper presentedat the 19th Annual Conference on The Individual vs the State An Enforceable Right toHealth Central European University 10-11 June 2011 Budapest

15

Judit Saacutendor ldquoBody Shoppingrdquo From Cells to Organs Prohibitionist legal Strategy and ItsChallengesrdquo paper presented at the EULOD-ELPAT Workshop 8-10 October 2010Sofia Bulgaria

Judit Saacutendor ldquoEthics of animal and human stem cell research paper presented in Eger atthe PartnErS Project workshop on lsquoComparative embryonic stem cell research inmammaliansrsquo FP7 project on 14-15 September 2010

Judit Saacutendor ldquoHuman Rights and Biopolitics Parens Patriae Politics of Birth in HungaryrdquoPaper presented at the ESFCOST Workshop on Biopolitics Biosociality and the Body -30 August 2010 St Gallen Switzerland

Judit Saacutendor ldquoLost in Translation Relevance of Scientific Terms in ShapingContemporary Medical Lawrdquo paper presented in English on the 18th World Congress onMedical Law 8-12 of August 2010 Zagreb Croatia

Judit Saacutendor ldquoDelineation Problems in Contemporary Bioethics and Lawrdquo keynote Speechon 5 of July 2010 Budapest Hungary NICLAS Summer School Budapest CEU

Judit Saacutendor ldquoLes regravegles de la digniteacute raquoDeacutebats juridiques et eacutethiques sur lrsquointerruptiondigne de la vie et de lrsquoeuthanasie en Hongrie (Paper presented in French 7-28 May 2010Rennes France on the 4th Meeting of the Francophone Network of Lawyers inBiomedicine The title of the workshop was Dying Patients and Their Relatives

Judit Saacutendor ldquoHuman Rights and Biotechnologyrdquo guest lecture on 18-21 May 2010Skopje Macedonia at OSIrsquos Law and Health Initiative Developing Post-GraduateEducation in Law Human Rights and Patient Care in Armenia Georgia KazakhstanKyrgyzstan Macedonia Russia and Ukraine

Judit Saacutendor bdquoChallenges of the Politics of Life in the Twenty First Century ClonesChimeras Supermen and the World of the Human DNA Az eacutelet-politika XXI szaacutezadi etikaikihiacutevaacutesai kloacutenok kimeacuteraacutek szuperemberek eacutes az emberi DNS vilaacutega Lecture presentedat Radnoacuteti Mikloacutes Secondary School (Teaching School of the Eoumltvoumls Loraacutend University)Judit Saacutendor ldquoEthical Legal and Psychosocial Aspects of Organ TransplantationrdquoExpanding the European Platform7-20 April 2010 Rotterdam The NetherlandsWorld Trade Center in Rotterdam (Paper presented via skype)

Judit Saacutendor ldquoEthical and Legal Aspects of Home Child Birthrdquo Reflections on the Bookwritten by Marsden Wagner Born in the USA How a Broken Maternity System Must BeFixed to Put Women and Children First on 7 April 2010 Budapest Hungary workshopat Corvinus University Book Launch and Discussion on the Maternity SystemMarsden Wagner Born in the USA How a Broken Maternity System Must Be Fixed toPut Women and Children First

Judit Saacutendorrdquo Vaacuteltozatok az orvos-beteg kapcsolatra a posztgenomikai korszakbanrdquo paperpresented in Hungarian) on 28 February 2010 Budapest Day of Rare DiseasesVenue Hungarian Museum of Agriculture

16

Judit Saacutendor ldquoAz eutanaacutezia mint politikai keacuterdeacutesrdquo (paper in Hungarian) on 22 January2010 Budapest Hungary Conference on Dying with Dignity bdquoAz emberhez meacuteltoacutehalaacutelrdquoELTE Faculty of Law

Judit Saacutendor ldquoDestiny Lost Ethical and Legal Implications of Genetic Testing forNeurodegenerative Diseasesrdquo lecture on 28 January 2010 Trieste Italy at theconference on Health and DNA My Life My genes

Judit Saacutendor ldquoHuman Enhancement Tools for Ethical and Legal Assessmentrdquo paperpresented on 9-13 October 2009 Linkoumlping Sweden at the Conference The PerfectBody Between Normativity and Consumerism Organized by the European ScienceFoundation

Judit Saacutendor ldquoEtika eacutes jog a korszer betegellaacutetaacutesbanrdquo (paper presented in Hungarian) on2 October 2009 Kaposvaacuter Hungary ldquoEthics and law in the contemporary health carerdquo-Post-graduate training for medical doctors

Judit Saacutendor A regeneratiacutev orvoslaacutes etikai eacutes jogi kihiacutevaacutesai (Ethical and Legal Challengesof Regenerative Medicine)

Judit Saacutendor ldquoPrivate Tissuesrdquo Paper presented on 16-18 July 2009 GoumlttingenGermany at the Second International Conference of the TissEU projectPrivacy Confidentiality and Personality Rights in Biobanking and Genetic Research withHuman Tissue organised by Department for Medical Ethics and History of MedicineGoumlttingen University

Judit Saacutendor ldquoAre There Any Recipes for Making a Good Law onBiobanks- Lessons Drawn from the Previous Law-Making Projectsrdquo keyonote speechdelivered on 8-9 July 2009 Graz Austria Joint Biobank Symposium

Judit Saacutendor ldquoFrom Private to Public Legal Concepts of the Rights to Privacy andOwnership in the Legal Regulation of Biobanksrdquo paper presented on 18 of May 2009Leuven Belgium GeneBanC Final WorkshopJudit Saacutendor ldquoHow to make a good law on biobanksrdquo Paper presented in on 19 of May2009 Brussels Belgium at the GeneBanC Stakeholders Conference

Judit Saacutendor ldquoAnonymity and the Human Tissuerdquo EU Project workshop 6-8 April 2009Budapest

Judit Saacutendor bdquoDNA in Bank Fallacies and Art of Regulating BiobanksrdquoVisiting the International Hereditary Cancer Center (IHCC) and Biobank at theDepartment of Genetics and Pathology Pomeranian Medical University Read-Gene SAChaired by Prof Jan Lubinski 20 February 2009 Szczecin Poland

Judit Saacutendor ldquoAdolescents and Medical Treatment paper presented in French on 5-5January 2009 in Kyoto Japan at the 3rd Meeting of the Francophone Network ofLawyers in the field of Biomedicine presentation in French

17

3rd Meeting of the Francophone Network of Lawyers in the field of BiomedicineAdolescents and Medical Treatment Paper submitted by Judit Saacutendor ( in French)

ldquoConstitutional Axiology or Is there anything behind above ConstitutionsJudit Saacutendor ldquoCentaur laws International Norms Between Law and Ethicsrdquo 6-8 June2008 Budapest Hungary

19-21 June 2008 Zurich SwitzerlandAdvance Directives Towards a Coordinated European PerspectiveWorkshop funded by the European Science Foundation and Research Priority Programof the University of Zurich Updated Country Reports on advance directives are availableat httpwwwethikuzhchibmeen

7-8 May 2008 Leeds UKGeneBanC Project workshopGenetic Data and Biobanks in Hungary-Legislative attempts in Hungary-

18-20 March 2008 Strasbourg FranceCDBI Exploratory Group Meeting onPredictivity Genetic Tests and Insurance

29 February 2008 Szeged HungaryAz ssejtkutataacutes etikai eacutes jogi dilemmaacutei(Ethical and Legal Dilemmas of Stem Cell Research)Presentation by Judit Saacutendor

23 January 2008 Budapest Hungary1000-1200 presentation by Judit Sandoron Ethics and Law of BiotechnologyVenue National Institute of Criminology

9 - 11 January 2008 Sheffield United KingdomPrivileged Project ConferenceParticipant Prof Judit SaacutendorProject Bulletin No 1

6-7 December 2007 Rennes FranceMedically Assisted Reproduction and the Concept of Anonymity2nd Meeting of European Francophone Network of Lawyers in the field of BiomedicineFaculteacute de Droit de Rennes

9 November 2007 Budapest HungaryVenue Budapest Congress CenterCo-organized by the Hungarian Association for Biotechnology Hungarian Societyfor Oncology in the framework of the FP 6 Project ldquoGood Bioethical PracticesrdquoPresentations by Judit Saacutendor

1-3 November 2007 Brno Czech Republic

18

The Global Governance of Genomics Testing genes profiling DNAMedicine forensics and ethicsVenue Mendel Museum Museum of GeneticsJudit Sandor Therapy or Enhancement Ethical and legal issues in reprogenetics

25 October 2007 Porto PortugalJudit Saacutendor ldquoReproductive technologies uses and representations InternationalConference hosted by the Sociology Institute University of Porto

13-15 July 2007 Siena ItalySchool for Biotech Industrial Innovation ManagementSeminar 2 Securing the Competitive AdvantageClosing remarks by Judit Sandor

24-25 May 2007 BudapestldquoInternal and External Challengesrdquo Conference organized by Centre for Social Science inco-operation with Hungarian Academy of Sciences Institute for Ethnic and NationalMinorities StudiesGenetic data and bioethical challenges presented by Judit SaacutendorVenue Budapest I Orszaacuteghaacutez utca ndash Uri utca

5-7 May 2007 Cairo EgyptRegional Meeting of National Bioethics and other Ethics CommitteesOrganized by the regional office of UNESCO and WHO Participant Judit Saacutendor

March 1ndash2 2007 Budapest HungaryPerfect Copy Comparative and Interdisciplinary Approaches to Reproductive Cloning andStem Cell ResearchWorkshop held by the Center for Ethics and Law in Biomedicine at the CEU Senate RoomOrganized hosted and introduced by Judit Saacutendor Director of CELAB

December 1ndash2 2006 Leuven BelgiumGeneBanc (STREP) ProjectKick-off meeting of the Research Projectwwwgenebanceu

November 22 2006 Budapest HungaryImmortal body Contemporary Legal Issues of the Human TissuesOrganized by the ELTE Scientific Council of Students on Criminal LawVenue Eoumltvoumls Loraacutend University Faculty of LawPresentation by Judit Saacutendor

October 19 2006 Paris FranceMeeting of the European Lawyers Specialized in BiomedicineCabinet drsquoAvocats Paris FranceParticipant Judit Saacutendor CELAB

October 8ndash12 2006 Budapest HungaryTissue-Issue Ethics and Law of the Stored Human Tissues

19

International Conference ldquoImmunogenomics amp Immunomics Biobanks Networking andInformatics TutorialrdquoLecture by Judit Saacutendor

September 28ndash30 2006 Leuven BelgiumNew Pathways for European Bioethics CongressThe Center for Biomedical Ethics and Law at the Catholic University of Leuven Belgiumand the European Association of Centers of Medical Ethics (EACME)rsquos annual conferenceon the occasion of their 20th anniversaryCommentator of the session on bioethics politics and law Judit Saacutendor

September 4ndash6 2006 Stockholm SwedenScience and Democracy A New Frontier between Eastern and Western EuropeWorkshop at the The Nobel Museum and Soumldertoumlrn University College StockholmParticipants Judit Saacutendor and Teresa Kulawik

August 7ndash11 2006 Toulouse FranceBody that Matters Legal Dilemmas in the Realm of BiotechnologyPresentation at the 16th World Congress on Medical Law by Judit Saacutendor Chief of theCouncil of Presidents World Association for Medical Law

June 29 to July 6 2006 Brno Czech RepublicPrivacy and Genetic InformationEuropean Course on Biotechnology EthicsLecture by Judit Saacutendor

May 17 2006 Budapest HungaryRound-Table Discussion Genetic Research and InsuranceOrganized by the Hungarian Law Association and the Hungarian Bar AssociationSpeakers Judit Saacutendor Andraacutes Juhos Laacuteszloacute Majteacutenyi Andraacutes VaacuteradiPresentations were published in Biztositaacutesi Szemle vol 52 no 9 pp 15ndash34

May 12ndash13 2006 Oslo NorwayBioethics and Human RightsFollow-Up Meeting to the CELAB Scandinavian Workshop (see February 17 2006)Presentation by Judit Saacutendor

May 9 2006 Budapest HungarySzemeacutelyiseacuteg eacutes tulajdon a biotechnologiaacuteban (Person and Property in Biotechnology)Lecture Series organized by the Hungarian Patent Office at the Garibaldi Club BudapestPresentation by Judit Saacutendor

April 7 2006 Budapest HungaryAvian Flu Ethical Social and Economic ImplicationsCELAB Workshop organized in cooperation with the Department of Economics at CEUOrganized and hosted by Judit Saacutendor

March 28 2006 Budapest HungaryDeath and Dying Legal Aspects

20

Lecture at the Hungarian Academy of Sciences Jakobinus RoomLecture by Judit Saacutendor Director of CELAB

March 24 2006 Budapest HungaryFrom International to National Implementation of the Universal Declaration of Bioethicsand Human RightsRegional Meeting of the UNESCO National CommissionsLecture by Judit Saacutendor Director of CELAB

March 20 2006 Budapest HungaryTrusts in the Family Property Law and Reproduction in the Arab Southeast AsianDiaspora since 1880Presentation by Michael Gilsenan (New York University USA) at the CEU Popper RoomSession co-organized and chaired by Judit Saacutendor Director of CELAB

February 17 2006 Budapest HungaryBioethics in ScandinaviaCELAB Public Lecture Series Bioethics and Law around the World IOrganized and hosted by Judit Saacutendor

February 16 2006 Budapest HungaryStealth Seeds Bioproperty Biosafety BiopoliticsLecture by Ronald Herring (Cornell University USA) at the CEU Gellner RoomDiscussant Judit Saacutendor

January 23 2006 Brussels BelgiumScience in Society SeminarOrganized by the European Commission Research Directorate-GeneralKey-note speaker Judit Saacutendor

December 5 2005 Paris FranceFirst Meeting of the Review Committee for the GEO-law databaseMeeting organized by UNESCO SHSESTLegal expert Judit Saacutendor

November 26 2005 Budapest HungaryChanging SocietymdashChanging Family Assisted Reproduction and the LawldquoLaw Ethics and Regulation of Assisted Procreationrdquo conference held at the HotelNormafaPresentation by Judit Saacutendor

November 6ndash9 2005 Budapest HungaryEmbedding Ethics in Scientific PracticeExpert Meeting at the Hungarian Academy of SciencesPresentation by Judit Saacutendor

November 5 2005 Budapest HungarySingle and Single Infertile Womenrsquos Access to Assisted ReproductionPublic debate at the International Business School Budapest

21

Guest speaker Judit Saacutendor

November 3 2005 Budapest HungaryA test halhatatlansaacutega a bioetika joumlv je a XXI szaacutezadban (Immortality of the HumanBody Future of Bioethics in the 21st Century)Talks at the Hauer Pastry-shop organized by the Club of Scientific JournalistsGuest Judit Saacutendor

October 26 2005 Budapest HungaryEmberi jogok eacutes bioetika a XXI szaacutezadban (Human Rights and Bioethics in the 21stCentury)Meeting with the Swiss-Hungarian Studentsrsquo AssociationInvited guest Judit Saacutendor

October 21 2005 Budapest HungaryA Bioetika eacutes Emberi Jogok Egyetemes Nyilatkozata (Universal Declaration on Bioethicsand Human Rights)Hungarian COMEST Session at the Hungarian Academy of SciencesPresentation by Judit Saacutendor

October 13 2005 Budapest HungaryA biotechnoloacutegia etikai eacutes jogi dilemmaacutei (Ethical and Legal Questions of Biotechnology)Conference organized by the Hungarian Academy of Sciences at the Department ofResearch on Law and Governance at the Kaacuteroli Gaacutespaacuter University Faculty of LawPresentation by Judit Saacutendor

October 6ndash9 2005 Tenerife SpainBiobank Case StudyEURECA ProjectPresentation by Judit Saacutendor

September 8 2005 Brussels BelgiumEuropean Standards on Confidentiality and Privacy in Healthcare among VulnerablePatient Population (EuroSOCAP)Comments by Judit Saacutendor

January 9ndash11 2003 Sheffield United KingdomImplementation of the Data Protection Directive 9546EC in relation to medical researchand the role of ethics committeesConference discussant Judit Saacutendor

December 11ndash15 2002 Oslo NorwayRace Ethnicity and EugenismPaper delivered at the University of Oslo Department of Social Anthropology

November 25ndash30 2002 Montreal CanadaDrafting group International Declaration on the Protection of Genetic Data

September 30 to October 1 Paris France

22

The Role of Medical Abortion in Eastern and Central Europe Policy PerspectivesOrganized by the Population Council Open Society InstituteLaw-making in Central and Eastern Europe session chaired by Judit Saacutendor

September 19 2002 Budapest HungaryOur ldquoSequenced Futurerdquo Using Genetic Data beyond the Medical DomainPaper presented by Judit Saacutendor

September 5ndash8 Riga-Sigulda LatviaData Protection in Biomedical and Genetic ResearchldquoEthics in Researchrdquo Conference organized by the Norwegian Committee for MedicalResearch EthicsPaper presented by Judit Saacutendor

August 28ndash31 Bonn GermanyRegulation of New Technologies in HungaryInvitation by the German Federal Ministry for Education and Research (BMBF)Visiting the Centre of DRZE (Deutsches Referenzzentrum fuumlr Ethik in denBiowisissenschaften)Paper presented by Judit Saacutendor

June 27ndash30 2002 Vilnius LithuaniaPublic Understanding of Genetics ProjectResearch Discussion at the University of Vilnius

May 9ndash11 2002 Debrecen HungaryKoumlzoumls olvasat genetikai aacutebeacuteceacuteskoumlnyvuumlnk taacutersadalmi eacutes kulturaacutelis eacutertelmezhet seacutege(Common Reading Interpreting the Genetic Alphabet Socially and Culturally)Medical School Institute for Behavior SciencesKeynote speaker Judit Saacutendor

April 21ndash22 2002 Paris FranceSecond Meeting of the Drafting Group of the IBC for the Elaboration of an InternationalInstrument on Genetic Data

April 5ndash6 2002 Warsaw PolandLegal Remedies for the Conflict of Interest in Biomedical ScienceInternational Bioethical Conference on ldquoConflict of Interest and its Significance inScience and MedicinerdquoPaper presented by Judit Saacutendor

March 17ndash19 2002 Bratislava SlovakiaConference on Ethics of Research and Science Situation and perspective in the Countries inPre-AccessionEU Commission DG Research the Unit on Ethical issues in Science and Research

February 11ndash12 2002 Paris FranceUNESCO Member of the working group on Genetic Data drafting the InternationalDeclaration on Human Genetic Data

23

January 26 2002 Budapest HungaryFirst Hungarian Conference on ReproductionBudapest Hospital Nyir GyulaLecture on Ethical dilemmas in the regulation of the medically assisted procreation

January 17ndash20 2002 Manchester United KingdomPublic Understanding of Genetics ProjectResearch Discussion at the University of Manchester UK

December 14ndash16 2001 Helsinki FinlandAn expert meeting in HelsinkiPatient Advocacy and Patient Ombudsman Different European Approaches

November 11ndash13 2001 Paphos CyprusSixth European Conference of National Ethics CommitteesGenetic Information From Knowledge to RiskPaper presented on Genetics and society opportunities and threats

October 15ndash17 2001 Strasbourg FranceMeeting of the CDBI BIOTECH Working GroupThe Working Group has been established in 2000 The Parliamentary Assembly has alsoadopted Recommendations 1425 (1999) on biotechnology and intellectual Propertyand 1468 (2000) on biotechnology

October 3ndash7 2001 The HaguendashAmsterdam The NetherlandsStudy tour in NetherlandsInvited by the Dutch Parliamentary Committee on Health

September 19ndash21 2001 Budapest HungaryInformed Consent in Medical ResearchFifth meeting of the European Partnership on Patientrsquos Rights and CitizensrsquoEmpowermentPaper presented by Judit Saacutendor

September 12ndash14 2001 Paris FranceEighth Session of the International Bioethics Committee of UNESCOExtensive discussion took place of the criteria and conditions for patentability of thehuman genome

2

1991 Legal Internship at Simmons amp Simmons London UK (LitigationDepartment Company Law Department)

1990 McGill University Montreal Quebec Canada visiting fellow at thePostgraduate Centre for Medicine Ethics and Law

1989 Bar Exam (Hungarian legal post-graduate training and license exam)1986 JD (Faculty of Political Sciences and Law Eoumltvoumls Loraacutend University

Budapest)

OTHER PROFESSIONAL ACTIVITIES

2005ndash Director of the CEU Center for Ethics and Law in Biomedicine (CELAB)2011ndash Member of the International Advisory Board of DRZE (German Reference

Center for Ethics in the Life Sciences)2007ndash Member of the Advisory Committee of the European Privacy Institute1995ndash2011 Member of the National Health Science Council of Hungary (Advisory

Board to the Minister of Health)2008ndash2009 Member of the Hungarian Genetechnology Commission2005ndash2009 Chief of the Council of Presidents World Association for Medical Law2004ndash2005 Chief of Bioethics Section UNESCO Social and Human Sciences Sector2003ndash2004 Expert on genetics and law at the Advisory Group of the Hungarian Prime

Minister2002ndash2003 Member of the Drafting Group of the IBC on the preparation of an

international instrument on genetic data (Paris UNESCO)1996ndash2000 Representative and one of the founders of the Hungarian Patientsrsquo Rights

Foundation ldquoSzoacuteszoacuteloacuterdquo1996ndash1998 Participating as a consultant at the Health Care Legislation Process in

Hungary1991ndash2013 Member of the editorial board of the Lege Artis Medicinae (a medical

journal) Budapest1991ndash1992 Advisor on bioethics to the Parliamentary Committee on medical law and

ethics

FELLOWSHIPS

2000 Visiting Fellow at the University of Chicago Department of Anthropologyand Department of Law (OctoberndashDecember)

1998 Visiting Fellow at Center for Biomedical Ethics Stanford UniversityCalifornia Program in Genomics Ethics and Society (November)

1993ndash2000 Member of the editorial board of Health Care Analysis (An internationaljournal of health philosophy and policy Ed David Seedhouse) ISSN 1065-3058

1996 Fall Visiting Fellow at the Maison des Sciences de lHomme Paris France andvisiting the Comiteacute consultatif national deacutethique pour les sciences de lavie et de la santeacute (Mellon Fellowship)

1994ndash1997 Course Director on Human Rights and Medicine at Inter-University CentreDubrovnik Croatia

1993 Visiting scholar at the Hastings Center (New York)

3

LANGUAGES


















4




PUBLICATIONS

I Books










5












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CELAB PUBLICATIONS










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3

LANGUAGES


















4




PUBLICATIONS

I Books










5












6












7













8













9












10















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12








CELAB PUBLICATIONS










13












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4




PUBLICATIONS

I Books










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CELAB PUBLICATIONS










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CELAB PUBLICATIONS










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CELAB PUBLICATIONS










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CELAB PUBLICATIONS










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8













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CELAB PUBLICATIONS










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9












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CELAB PUBLICATIONS










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Judit Sándor JD. LLM. Ph.D. - CEU People · 1998–1999 Research on Human Embryos, Meetings in...

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Transcript of Judit Sándor JD. LLM. Ph.D. - CEU People · 1998–1999 Research on Human Embryos, Meetings in...