JPI Conference Dublin - Rob Buckle - SRA Development
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Transcript of JPI Conference Dublin - Rob Buckle - SRA Development
Developing a Strategic Research Agenda
Dr Rob Buckle, Director of Science Programmes, MRC
JPI Conference Dublin, 8th March 2013
Overview
� Summary of JPND
� Delivering the SRA
• resource and timeline
• components
• process
� The end product
� Key considerations
Goals of JPND
To deliver a coherent programme of ND research for prevention, diagnosis, treatment and patient care, that:
� improves the effectiveness of current efforts
� reflects the increasing need for ‘big science’, shared infrastructures, cutting edge technologies and interdisciplinarity
� acts as a magnet to attract new expertise and investment
� provides a platform for international cooperation
� encourages collaborative activity to promote innovative research and the sharing of best practice
Biological
• Animal models
• Biobanks
• Cohorts/registries
• Disease pathology
Social
• Health care delivery
• Home automation
• Health economics
• Ethics
Medical
• Early diagnosis
• Prevention
• Clinical trials
Work organised in
three domains
Scope of the initiative
Delivering the SRA
1. Mapping National and European programmes
2. Strategic prioritisation� 3 thematic workshops (basic/clinical/healthcare)� stakeholder consultations� 4th workshop to integrate outputs, incorporate stakeholder views
3. Consultation with the public (web-based)
4. Delivery of the SRA, taking into account� outputs from scientific workshops� consultation with stakeholder groups� discussion at MB (to incorporate funder, political & policy considerations)
Resource
EC support through JUMPAHEAD Coordination Action
SRA Work Package
� Scoping, strategic prioritisation and delivery of the SRA
� MRC lead, supported by MIUR, contribution from other WPs
� In kind contribution from other JPND members
� Resource provided through JUMPAHEAD• 2x programme manager, 1x admin support post• SRA workshop costs• contribution for website / database management
Timeline
Month 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15
T2.1 Mapping *
T2.2 Scientific Priorities *
T2.3 Delivering the SRA *
15 month timeline
Mapping Exercise
Aim of exercise� To provide context for developing the SRA� To provide a community resource� To provide an updatable platform for other funders
Data collection – 3 tiers� JPND member organisations� Other national / regional funders� Detail from PIs on bio-resources
Timeline� Feb to May 2011 - data entry from funders� June 2011 - analysis for prioritisation workshop� Nov 2011 - publication on JPND website
Workshops
Aim � to identify research opportunities, gaps, barriers to progress� to identify necessary infrastructures and technologies� to identify priority research areas (near and longer term)� to identify research requiring a cross‐border approach� to provide reports as a basis for stakeholder discussion
Timeline (2011)� March – 3 thematic workshops� April – preliminary reports for focussed stakeholder discussion� May – workshop reports published� June – (4th) prioritisation workshop� July – final workshop report published
Selection of experts
Inputs� list of expertise provided by JPND members� SAB knowledge of opinion leaders in the field
Selection according to three dimensionsi) research excellence (according to the 3 workshop themes)ii) scientific coverage (by disease and discipline)iii) geographic coverage
Stakeholders� representativeness an issue� consult via a parallel process� involvement in the final, prioritisation workshop
Meeting structure & outputs
Participants�35-40 research experts�3 SAB member organising committee�JPND programme managers & other WP leads
Format�structured discussion sessions�3 or 4 break-out groups, topics in two dimensions�choreography of groups to facilitate discussion and challenge�feedback according to a structured template�topic theme leaders + SAB members = writing group
What about stakeholders?
Key stakeholder groups for JPND� Patients and Carers� Research charities and other funders� Industry� Healthcare professionals� Policy makers
Engagement � Workshops� Questionnaires to fill gaps � Public consultation (web-based)
� Launched in Brussels February 2012
� Provides a holistic ‘roadmap’ for future EU-wide activity and investment
� Represents a common vision agreed by JPND Members
� Sets out clear scientific priorities & enabling activities
� Addresses the full spectrum of research and approaches that are required to achieve impact
JPND Research Strategy
Promotion & dissemination
www.neurodegenerationresearch.euwww.jpnd.eu
� Full Research Strategy � Executive Summary in 13 Languages � Reports summarising responses received from consultations
Concluding remarks
� Conceptual framework
� Time and resource
� Leadership and project management
� Transparency
� Credibility
� Inclusivity
� Validation
� Promotion