JAMES MILEWSKI MENTOR: YUNAN CHEN, ASSISTANT PROFESSOR INFORMATICS Consumer health informatics and...
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Transcript of JAMES MILEWSKI MENTOR: YUNAN CHEN, ASSISTANT PROFESSOR INFORMATICS Consumer health informatics and...
JAMES MILEWSKIMENTOR: YUNAN CHEN, ASSISTANT PROFESSOR
INFORMATICS
Consumer health informatics and chronic illness: gathering requirements in context for a personal health information management
system
Personal Health Information ManagementPHIM
Why we engage in PHIM
PHIM Challenge Mediums + Distributed Sources
+ Demands of Health Care System = Work
Health Information at Home
Spheres of Influence on PHIM
Consumer Health Informatics:Approaching PHIM in the Home
Medical Informatics/Consumer Health Informatics CHI: Reaching the patient through computers
and telecommunication systems (Eysenback 2000)
Sociotechnical approach to explore interwoven networks of people, tools, routines, sources, and responsibilities of the patient
Previous Works
The concept of work in the home (Corbin 1985)
Privacy of Health: The consumer’s perspective. (Bartolo 2004)
The Work of Health Information Management in the Household (Moen 2005)
Information Work in the Chronic Experience (Souden 2008)
Why Diabetes?
Chronic Illness : 78% of health care expenditure (Holman 2005)
Previous work focused on diabetes Personal understandings of illness among people who
have type 2 diabetes (Hornsten et al 2004) Harnessing the potential of the Internet to
promote chronic illness self management: diabetes as an example of how well we are doing (Bull et al 2005)
Health communication and knowledge construction (Ginman et al 2003)
Purpose
Understand the in-home PHIM process of type 2 diabetes patients and their support group
TransitionsTechnologiesChallenges of managingHow info seeking and tech use change over
time
Methodology
Qualitative study based on in-depth interviews Participant Recruitment In-home session collecting data from
questionnaire, photos, and interviews
Questionnaire DataSources of Diabetes
Information
12 Patients with a mean of 11.5 years as a diabetic
Understanding of diabetes and its treatment
PATIENTS WERE ASKED TO RANK THE FOLLOWING AREAS WITH 1 BEING THE MOST DIFFICULT
Most Difficult Part of Managing Your Diabetes
Technology: “We’re you busy yesterday?” Technology: “We’re you busy yesterday?” Durable Media Durable Media
37 Photos
Transcription Coding
Using Grounded Theory: Independent coders sift, chart, and sort material according to key issues and themes until a consensus is reached for the codes.
Rely Eager Redundant Info
Don’t Track Memory Transit
Attitude Challenges Regimen
Q: Do you take info between doctors?I: No. (3, 22)
Transit
I always feel unfortunate that they don’t have a database that the doctors could feed it in, the web or something. (3, 27)
Eager
I just leave, ah, it in my blood monitor. I have never charted it (3, 99)
Rely
Preliminary Results and Implications
Patients with type 2 diabetes and their support networks Shift away from paper-based media to various
technologies Rely on IT-enabled diabetes management Eager for new technologies to augment the home-
based PHIM process
PHIM system adoption factors Perceived usefulness and the perceived ease of use
across the span of the disease
What’s next?
Cont’d gathering data: recruit 5 more participants
Extracting software requirements and use case scenarios
Prototype implementation and testing