James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the
description
Transcript of James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the
![Page 1: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/1.jpg)
Meaningful Use and Personalized Patient Education:
Consumer Health Information Activities at the National Library of Medicine
James J. Cimino, MDChief, Laboratory for Informatics Development
NIH Clinical Center and the National Library of Medicine
![Page 2: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/2.jpg)
Disclaimer
This presentation is not intended to promote any commercial entity, including healthcare providers, knowledge resources or children’s entertainment.
![Page 3: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/3.jpg)
PersonalHealth
Records
![Page 4: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/4.jpg)
Personal Health Records
• State of the art in PHRs
![Page 5: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/5.jpg)
![Page 6: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/6.jpg)
![Page 7: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/7.jpg)
![Page 8: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/8.jpg)
![Page 9: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/9.jpg)
Personal Health Records
• State of the art in PHRs
• NLM Personal Health Record
![Page 10: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/10.jpg)
How does it differ from other PHRs? How does it differ from other PHRs?
• Single web page for efficient data entry Single web page for efficient data entry
• Generates input forms “on the fly”Generates input forms “on the fly”
• Can capture almost any kind of structured dataCan capture almost any kind of structured data
• Aims to code all key facts with US standardsAims to code all key facts with US standards
• Intelligent, Intelligent, patient-specificpatient-specific reminders reminders
![Page 11: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/11.jpg)
![Page 12: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/12.jpg)
![Page 13: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/13.jpg)
![Page 14: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/14.jpg)
![Page 15: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/15.jpg)
![Page 16: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/16.jpg)
![Page 17: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/17.jpg)
Personal Health Records
• State of the art in PHRs
• NLM Personal Health Record
![Page 18: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/18.jpg)
PersonalHealth
Records
ElectronicKnowledgeResources
![Page 19: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/19.jpg)
Electronic Knowledge Resources
• MedlinePlus
![Page 20: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/20.jpg)
MedlinePlus
• Consumer & patient health• English & Spanish• Coverage:
– Diseases and conditions– Health and wellness– Drugs, herbs, and supplements– Videos, interactive tutorials, etc.
• Stringent quality criteria
![Page 21: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/21.jpg)
~1,000 drugs100 supplements~1,000 drugs100 supplements
172 tutorials78 anatomy videos112 surgery videos5 Sp surgery videos
172 tutorials78 anatomy videos112 surgery videos5 Sp surgery videos
>40 languages>250 topics>3,000 links
>40 languages>250 topics>3,000 links
~ 3,500 encyclopedia articles> 2,000 images~ 3,500 encyclopedia articles> 2,000 images
15-20 news stories daily15-20 news stories daily
1,445 links to ClinicalTrials.gov1,445 links to ClinicalTrials.gov
885 English856 Spanish885 English856 Spanish
![Page 22: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/22.jpg)
![Page 23: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/23.jpg)
http://www.nlm.nih.gov/mobile/
![Page 24: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/24.jpg)
Electronic Knowledge Resources
• MedlinePlus
• Genetics Home Reference
![Page 25: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/25.jpg)
Genetics Home Reference Genetics Home Reference
• Website of genetics information for the publicWebsite of genetics information for the public• Currently more than 1,400 summaries Currently more than 1,400 summaries
– Incidence and prevalenceIncidence and prevalence– Gene/disease relationshipsGene/disease relationships– Common vocabulary terms, definedCommon vocabulary terms, defined
• Background information about geneticsBackground information about genetics– Handbook: Handbook: Help Me Understand GeneticsHelp Me Understand Genetics– Glossary of genetics termsGlossary of genetics terms
![Page 26: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/26.jpg)
![Page 27: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/27.jpg)
![Page 28: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/28.jpg)
Electronic Knowledge Resources
• MedlinePlus
• Genetics Home Reference
• Clinical Trials.gov
![Page 29: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/29.jpg)
ClinicalTrials.gov
• Access to data about individual clinical trials
• 97,835 registered trials from 7,961 Sponsors
• 2,467 Results entries from 449 Sponsors
• 43% with associated publications
• Powerful search tools
• Users can identify and track trials and outcomes
![Page 30: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/30.jpg)
![Page 31: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/31.jpg)
![Page 32: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/32.jpg)
![Page 33: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/33.jpg)
![Page 34: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/34.jpg)
![Page 35: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/35.jpg)
![Page 36: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/36.jpg)
![Page 37: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/37.jpg)
![Page 38: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/38.jpg)
Electronic Knowledge Resources
• MedlinePlus
• Genetics Home Reference
• Clinical Trials.gov
• Infobot
![Page 39: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/39.jpg)
39
Infobot
• Augment an EMR with pertinent information from evidence-based resources
• Provide access to key facts needed to support clinical decision making and evidence based plans of care
![Page 40: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/40.jpg)
Inside of CRIS
![Page 41: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/41.jpg)
![Page 42: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/42.jpg)
![Page 43: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/43.jpg)
43
![Page 44: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/44.jpg)
![Page 45: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/45.jpg)
![Page 46: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/46.jpg)
Electronic Knowledge Resources
• MedlinePlus
• Genetics Home Reference
• Clinical Trials.gov
• Infobot
![Page 47: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/47.jpg)
PersonalHealth
Records
ElectronicKnowledgeResources
Infobuttons
?
![Page 48: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/48.jpg)
Infobuttons
• Context-specific links out to information resources
![Page 49: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/49.jpg)
![Page 50: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/50.jpg)
![Page 51: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/51.jpg)
![Page 52: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/52.jpg)
Infobuttons
• Context specific links out to information resources
• Resources that respond to specific information needs
![Page 53: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/53.jpg)
MedlinePlus Connect for DiagnosesMedlinePlus Connect for Diagnoses
![Page 54: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/54.jpg)
Spanish MedlinePlus Connect for DiagnosesSpanish MedlinePlus Connect for Diagnoses
![Page 55: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/55.jpg)
MedlinePlus Connect for Medications
![Page 56: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/56.jpg)
56
![Page 57: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/57.jpg)
57
![Page 58: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/58.jpg)
Infobuttons
• Context specific links out to information resources
• Resources that respond to specific information needs
![Page 59: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/59.jpg)
PersonalHealth
Records
ElectronicKnowledgeResources
LITEInfobuttons
?
![Page 60: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/60.jpg)
i
Clinical Applicationwith Infobutton Link
UserPatient
Healthcare Institution
InfobuttonManager
Page of Links
Infobutton ManagerKnowledge Base
The Librarian Infobutton Tailoring Environment
(LITE)
Institutional Librarian(or other LITE users)
![Page 61: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/61.jpg)
![Page 62: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/62.jpg)
![Page 63: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/63.jpg)
![Page 64: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/64.jpg)
![Page 65: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/65.jpg)
PersonalHealth
Records
ElectronicKnowledgeResources
LITEInfobuttons
?
![Page 66: James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the](https://reader036.fdocuments.us/reader036/viewer/2022062423/568146cd550346895db405ad/html5/thumbnails/66.jpg)
Thanks to…
• Thomas Graf, Geissinger Health System
• Louise Lang, Kaiser Permanente
• Clem McDonald, NLM
• Swapna Abhayankar, NLM
• Joyce Backus, NLM
• May Cheh, NLM
• Deborah Zarin, NLM
• Dina Demner Fushman, NLM