Introduction – Anna Conlan Role Regional Care Development Advisor (RCDA)
-
Upload
adrian-powell -
Category
Documents
-
view
214 -
download
1
Transcript of Introduction – Anna Conlan Role Regional Care Development Advisor (RCDA)
![Page 1: Introduction – Anna Conlan Role Regional Care Development Advisor (RCDA)](https://reader036.fdocuments.us/reader036/viewer/2022062716/56649de75503460f94ae0cbf/html5/thumbnails/1.jpg)
• Introduction – Anna Conlan
Role Regional Care Development Advisor (RCDA)
![Page 2: Introduction – Anna Conlan Role Regional Care Development Advisor (RCDA)](https://reader036.fdocuments.us/reader036/viewer/2022062716/56649de75503460f94ae0cbf/html5/thumbnails/2.jpg)
Motor Neurone Disease
• Terminal disease
• Incidence: 2 per 100,000
• Bradford and Airedale 28 cases
• Prevalence: 5000 people in UK
![Page 3: Introduction – Anna Conlan Role Regional Care Development Advisor (RCDA)](https://reader036.fdocuments.us/reader036/viewer/2022062716/56649de75503460f94ae0cbf/html5/thumbnails/3.jpg)
Motor Neurone Disease
• Onset and progression is variable – can progress swiftly
• 90%-95% of people have the sporadic form
• Adult illness
![Page 4: Introduction – Anna Conlan Role Regional Care Development Advisor (RCDA)](https://reader036.fdocuments.us/reader036/viewer/2022062716/56649de75503460f94ae0cbf/html5/thumbnails/4.jpg)
Motor Neurone Disease
• Amyotrophic Lateral Sclerosis (ALS)– Most common 65%
• Progressive Bulbar Palsy (PBP)– Affects 25%
• Progressive Muscular Atrophy (PMA)– Affects 10%
![Page 5: Introduction – Anna Conlan Role Regional Care Development Advisor (RCDA)](https://reader036.fdocuments.us/reader036/viewer/2022062716/56649de75503460f94ae0cbf/html5/thumbnails/5.jpg)
Symptoms & Management
• Muscle wasting & weakness
• Fasciculation (muscle twitching)
• Cramps• Spasticity• Pain
• Physio & OT• Complimentary
therapies • Medication• MND-Riluzole• Antispasmodics -
Quinine / Baclofen / Zanaflex / Diazepam
• (Restless leg-Ropinerole / Cabaser)
![Page 6: Introduction – Anna Conlan Role Regional Care Development Advisor (RCDA)](https://reader036.fdocuments.us/reader036/viewer/2022062716/56649de75503460f94ae0cbf/html5/thumbnails/6.jpg)
Symptoms & Management• Speech & swallowing• Saliva & mucus
problems• Weight Loss
• Speech & language therapy
• Dietician• Physio & OT• PEG/RIG• Medication• Saliva control -
Amitriptyline / Hyoscine / Buscopan / Robinul / Low dose beta blockers / Mucodyne
![Page 7: Introduction – Anna Conlan Role Regional Care Development Advisor (RCDA)](https://reader036.fdocuments.us/reader036/viewer/2022062716/56649de75503460f94ae0cbf/html5/thumbnails/7.jpg)
Symptoms & Management
• Fatigue• Emotional problems
• Counselling• Alternative therapies• Medication• Anxiety -
Benzodiazepines ie Diazepam / Lorazepam / Midazolam
• Antidepressants - including amytriptyline / nortriptyline
![Page 8: Introduction – Anna Conlan Role Regional Care Development Advisor (RCDA)](https://reader036.fdocuments.us/reader036/viewer/2022062716/56649de75503460f94ae0cbf/html5/thumbnails/8.jpg)
Clues to Respiratory Muscle Involvement in MND
• Breathlessness• Poor sleep• Daytime • Headaches• Nocturnal Sweating
• Observation• Physiotherapy• Respiratory assessment• Overnight pulse
oximetrey• Referral to respiratory
consultant
![Page 9: Introduction – Anna Conlan Role Regional Care Development Advisor (RCDA)](https://reader036.fdocuments.us/reader036/viewer/2022062716/56649de75503460f94ae0cbf/html5/thumbnails/9.jpg)
Rarely Affected
• Senses
• Bowel & bladder function
• Sexual function
• Eye muscles
• Heart muscles
• Intellect
![Page 10: Introduction – Anna Conlan Role Regional Care Development Advisor (RCDA)](https://reader036.fdocuments.us/reader036/viewer/2022062716/56649de75503460f94ae0cbf/html5/thumbnails/10.jpg)
Cognitive Impairment
• Manifestations
• Management issues
• Dementia
![Page 11: Introduction – Anna Conlan Role Regional Care Development Advisor (RCDA)](https://reader036.fdocuments.us/reader036/viewer/2022062716/56649de75503460f94ae0cbf/html5/thumbnails/11.jpg)
• Tests may include blood tests, MRI, LP, EMG/NCS, myelogram, muscle biopsy
Diagnosis
![Page 12: Introduction – Anna Conlan Role Regional Care Development Advisor (RCDA)](https://reader036.fdocuments.us/reader036/viewer/2022062716/56649de75503460f94ae0cbf/html5/thumbnails/12.jpg)
Choking
• Explain cause and management
• Refer to advice of S<
• Physiotherapy
• Management of secretion
• Review use of equipment
![Page 14: Introduction – Anna Conlan Role Regional Care Development Advisor (RCDA)](https://reader036.fdocuments.us/reader036/viewer/2022062716/56649de75503460f94ae0cbf/html5/thumbnails/14.jpg)
Causes of MND?
![Page 15: Introduction – Anna Conlan Role Regional Care Development Advisor (RCDA)](https://reader036.fdocuments.us/reader036/viewer/2022062716/56649de75503460f94ae0cbf/html5/thumbnails/15.jpg)
Multidisciplinary Approach
![Page 16: Introduction – Anna Conlan Role Regional Care Development Advisor (RCDA)](https://reader036.fdocuments.us/reader036/viewer/2022062716/56649de75503460f94ae0cbf/html5/thumbnails/16.jpg)
Care Development
![Page 17: Introduction – Anna Conlan Role Regional Care Development Advisor (RCDA)](https://reader036.fdocuments.us/reader036/viewer/2022062716/56649de75503460f94ae0cbf/html5/thumbnails/17.jpg)
What the Association Contributes
![Page 18: Introduction – Anna Conlan Role Regional Care Development Advisor (RCDA)](https://reader036.fdocuments.us/reader036/viewer/2022062716/56649de75503460f94ae0cbf/html5/thumbnails/18.jpg)
Standards of Care
• Quality of life for people living with MND
![Page 19: Introduction – Anna Conlan Role Regional Care Development Advisor (RCDA)](https://reader036.fdocuments.us/reader036/viewer/2022062716/56649de75503460f94ae0cbf/html5/thumbnails/19.jpg)
• Anna Conlan, telephone: 0845 3751841
• Website – www.mndassociation.org
• MND Connect 08457 626262 (lo-call rate) for all.
• Leeds care centre 01133926078.
Thank you for listening
![Page 20: Introduction – Anna Conlan Role Regional Care Development Advisor (RCDA)](https://reader036.fdocuments.us/reader036/viewer/2022062716/56649de75503460f94ae0cbf/html5/thumbnails/20.jpg)
Together We Make A Difference