Introducing the ASD Stakeholder GroupLouise Rixon, Jeni Snell and Carol Wheeler

January 2014

What we do

Inform consultation, planning and development of local ASD Action Plans

Challenge professional and practitioners views

Represent children, young people/teenage years and adults across the spectrum

Raise awareness and highlight needs of individuals and their families Help develop best

practice

Who we are

Parents

Service UsersSocial Workers

Medical Professionals

Youth Councillors

Disability Champions

Educational Services Team

Disability Services Team

Why we do it

We love building partnerships and sharing information.

We can give a voice to individuals, families, parents and carers.

We’re seeing autism awareness improve dramatically.

We know our contributions are being listened to, valued and respected

Introducing the Terminology

AutismAutism

Autism Spectru

mAutism

Spectrum

High Functioning A

utism

High Functioning A

utism

AutisticAutistic

Atypical AutismAtypical Autism

ASDASD

Autism Spectrum Cond

itionsAutism Spe

ctrum Conditions

ASAS

Aspergers SyndromeAspergers Syndrome

Classic AutismClassic Autism

Kanner Autism

Kanner Autism

Childhood Au

tism

Childhood Au

tism

Infantile

Autism

Infantile

Autism

Autism Traits and PDDAutism Traits and PDD

But it’s really about people

Educating people about ASD

2009 2014

Basic Awareness

Open University

TEACCH

Visual Timetables and Social Stories Older People

Understanding the Autism Spectrum

ASD Assessment Diagnosis and Co- morbidities

Classroom Strategies

Understanding and Managing Behaviour

Trouble Shooting Workshops

Leisure and Play Young Carers Adult Respite Care

838 people in more than 50 organizations

Teen Life

Transition

Some great results…

Sam Francis, w

ho works in th

e

Children with

Disabilities

Team, won a so

cial care awar

d

for her ASD wo

rk in 2012.

Sam Francis, w

ho works in th

e

Children with

Disabilities

Team, won a so

cial care awar

d

for her ASD wo

rk in 2012.

Russian officials visited Monmouthshire to research new initiatives for their orphans who

have ASD, Sam was invited to visit

Russia to talk about best practice

in ASD.

Russian officials visited Monmouthshire to research new initiatives for their orphans who

have ASD, Sam was invited to visit

Russia to talk about best practice

in ASD.

The Adult Aspergers Virtual Team, set up in 2011 as part of the adult social services team, is working really well with over 60 people now receiving support.

The Adult Aspergers Virtual Team, set up in 2011 as part of the adult social services team, is working really well with over 60 people now receiving support.

We complet

ed our sec

ond ASD

Action Pla

n (2011 –

2014)

Developmen

t of an up

dated plan

for 2014 a

nd beyond

will be

finalised

once the N

ational

Plan is re

freshed.

We complet

ed our sec

ond ASD

Action Pla

n (2011 –

2014)

Developmen

t of an up

dated plan

for 2014 a

nd beyond

will be

finalised

once the N

ational

Plan is re

freshed.

…more great results!

We support

ed the you

th service

to fund so

me equipme

nt for

their new

sensory ga

rden in

Usk.

We support

ed the you

th service

to fund so

me equipme

nt for

their new

sensory ga

rden in

Usk.

We helped re

search and d

evelop

a user-frien

dly passport

information

system with

Mark,

Monmouthshir

e's Disabili

ty

Sports Offic

er.

We helped re

search and d

evelop

a user-frien

dly passport

information

system with

Mark,

Monmouthshir

e's Disabili

ty

Sports Offic

er.

Newport and Monmouthshire Education Departments are working together to share good practice and to promote an ASD Friendly Schools programme.

Newport and Monmouthshire Education Departments are working together to share good practice and to promote an ASD Friendly Schools programme.

We have developed a Picture Exchange Communication System for families to use in all of our leisure centres.

We have developed a Picture Exchange Communication System for families to use in all of our leisure centres.

Teresa, Monmouthshire ASD Co-

ordinator accompanied Jo, the

National ASD Co-ordinator to

Scotland to demonstrate how the

Welsh Government ASD Strategic

Action Plan for Wales is being

delivered at a local level.

Teresa, Monmouthshire ASD Co-

ordinator accompanied Jo, the

National ASD Co-ordinator to

Scotland to demonstrate how the

Welsh Government ASD Strategic

Action Plan for Wales is being

delivered at a local level.

Have your say!

We’re building the ASD action plan and we need your help. Please fill in the feedback form and tell us what you want.

Recommended reading

(Also under development: A book for adult parent carers)

Where to find the information

Homelessness Employment Advocacy Primary Healthcare Education Criminal Justice Leisure, Play and Sport Families and Family Support Dentists and Opticians Residential and Day Care Older People Religious Faiths Housing

Meet the team!

Bernard Boniface ASD Lead and Lead Commissioner Collaboration and PartnershipJackie Simmons Commissioning TeamTeresa James ASD Co-ordinator Commissioning Team Carol Buck Team Manager, Children Disability Team, MCCSue Gwynllyw Team ManagerStephanie Hawkins Head of Learning Support & Education InclusionLinda Marshall Team Leader LDSteve McDonagh Joint Commissioning ManagerDr Hilary Barton Consultant Child and Adolescent PsychiatristDr Sundari Consultant PsychiatristShirley Parsley National Co-ordinator WalesJane Cross Special Needs Team LeaderKate Thomas Health & Social Care FacilitatorJeni Snell Service User Rep Carol Wheeler SNAP VolunteerGeraint Spacey Operational ManagerHelen Knoyle Parent Carer RepSamantha Francis Senior Social WorkerJoy White Aspergers Project Officer Mark Foster Disability Sports Officer Rebecca Parks Performing Arts Co-ordinatorLouise Rixon Parent/Carer RepLiz Connors Training in Autism Spectrum ConditionsRosie Williams Training in Autism Spectrum ConditionsAndrew James Disability Champion Phil Walters Youth Councillor Lee Hale Youth Councillor

Thank you for listening!

(If you’re interested in getting involved with this work please come to talk to us at lunchtime.)