Inspiring the Development of Cancer Support Groups in the Community

Rose ThompsonDirector of BME Cancer Communities

www.bmecancer.com0115 9348482

service@bmecancer.com

BMEWe prefer to say

Be Me(Put Yourself in My Place)

=

Black and Minority EthnicLess visible ethnic groups often excluded

BME Cancer CommunitiesA small developing social enterprise with a community focus on BME and low income

household communities affected by cancer. (CIC registered as Cancer Communities).

Based in Nottingham, we think nationally and act locally.What do we do ?

• Raise BME and low income household cancer awareness in the community and amongst health professionals via events and outreach and training.

• Empower cancer service users to make accurate , up to date informed choices

• Assist the development of community based effective support services.

• Develop BME cancer information resources and supportive community based networks

Family Cancer ExperienceLost mother and twin sister to breast cancer. (Both under 50)

Younger sister survives, 10 years after mastectomy and treatmentAunt (mother’s sister). Breast cancer and dementia 2012

First report on Ethnicity and CancerPublished in 2009

Cancer Incidence and SurvivalBy Major Ethnic Group,

England, 2002-2006

The National Cancer Intelligence Network (NCIN)

in collaboration with:

Cancer Research UK Cancer Survival Group.

London School of Hygiene & Tropical Medicine

Supporting The Shamrock Club The Irish Centre Nottingham

Chinese Cancer Awareness Day Nottingham

http://www.cnhlc.org.uk/

http://www.nottinghamchinese.org.uk/

Support is important and valued, especiallyif the support comes from someone who hasa similar experience and cultural heritage.

Gaps in appropriate Support services

Support via BME organisations and BME Cancer Survivors Important

Some of the most effective initiatives to support BME cancer patients/carers are based in the community

BME voluntary sector organisations are generally under funded, and increasingly being forced to end community services.

BME Cancer Communities Survey

PROSTATE CANCER AND BLACK MEN

• Black African Caribbean men 2.5 more likely to be diagnosed with prostate cancer (5 yrs earlier than expected)

• Some Black African men (not all), are also at increased risk, PROCESS = Prostate Cancer in Ethnic Sub Groups initial study (Limited to Bristol and London)

Friends and Bredrins

Elijah IsraelProstate Cancer Ambassador

FRIENDS AND BREDRINS

FIRST FUNDRAISER – BARBEQUEJUNE 2013

Prostate Cancer. A Widows Story (The Hugh Dwyer Inspirational Foundation)

Hugh

Back A Yard

Making wicker furniture

Hugh and Cynthia

Negative men’s stories and death rates led to a new type of BME report

Hear Me Now The Uncomfortable Reality of Prostate Cancer in black African Caribbean men

www.bmecancer.com

David Lammy MP (Tottenham)Speaking at the Hear Me Now launch

‘Hear Me Now’ Report LaunchHouse of Commons 2013

Report driven by higher death rates

Black men 30% more likely to die from prostate cancer than White British men

Dr Steve Knights - GP supportWindmill Practice Nottingham

Hear Me Now One Year On http://bmecancer.com/index.php/hmnreports/download-hear-me-now-

reports

Hear Me Now Round Table Westminster Sept 2014

Support groups start with one passionate person

supported by others with a shared passion.

Wayne Marston - FAB

Lloyd FerronBMECC Shiatsu massage expert

Thank You Rose Thompson

BME cancer.communitiesTel. 0115 9348482

Email. rose.thompson@bmecancer.com

Website. www.bmecancer.com