Inclusion of people with disability due to leprosy in C B R & Vice Versa
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Transcript of Inclusion of people with disability due to leprosy in C B R & Vice Versa
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Inclusion of people with disability due to leprosy in
C B R & Vice Versa
AIFO CBR EXPERIENCES AND SCOPE
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Main focus of AIFO• Inclusive -sustainable development of
marginalised -leprosy -disability - vulnerable children
• To create a long-term positive impact on the lives these persons
• To enable them to become productive members of the society.
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A paradigm shift from
- charity to rights mode- compassion to opportunity
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paradigm shift
SHG - exclusion into inclusion
- rehabilitation to development.
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CBR is a process of change
Changing the attitudes of:
- service providers - persons with disability
-their family members -the community.
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Who has to change ?
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CBR• CBR suppose to include all the persons with
disability • But in practice, excludes certain categories of
disabled persons owing to various reasons. • Persons affected by leprosy are one such
group who are not included in most of the CBR projects .
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Inclusion of people with disability due to leprosy in C B R programme
• The complexity of CBR –it is multi-disciplinary
• To provide assistance , improve the quality of life
• Ideal for leprosy rehabilitation too.
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CBR and AIFO• All the SET projects supported by AIFO included
rehabilitation activities. • Results -did not bring desired change in the lives of
the people affected by leprosy. • In 1992 AIFO initiated CBR concept to all our
partners . • Today all the projects view rehabilitation from rights
based approach. • Leprosy and CBR orientation for all personal in the
projects is a priority.
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Result • NGOs/projects are working for all kinds of
disability.• DPOs and SHGs included persons with disability
due to leprosy as equal members.• CBR workers collaborating with health
departments . • Leprosy colonies are facilitated for integrated
development.
•
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SHG & DPOIt is a movement for the life with • equal respect, • dignity • with equal rights for an independent living.
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SHG• Entry point , • Have power & information
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MANDYA LEPROSY- CBR
• In Mandya district, Modified-MDT began in 1992. • 1997 initiated a pilot leprosy and CBR integrated
project and extended to whole district.• MOB RHC, SET NGO adapted CBR (GHS)• SRMAB, CBR NGO included leprosy affected.• population of nearly 1.8 million.• 21152 persons (472 are grade II ) with disability
directly benefit.
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Combined efforts of people with disabilities their families, organizations in the
community SHGs, DPOs other organisations government and non-government
agencies
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Net work
• Network of all self-help organizations of disabled persons established.
• Partnership with concerned Govt. & NGO– exchange of information– Optimum use of facilities– effective advocacy
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Indiranagar colony
• The colony is situated on the outskirts of Ranchi town in Jharkhand.
• 150 families with 435 people, • Focussed on education of their children along
with developmental activities.• To bring about a positive change in the
colony.
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• 1994 AIFO supported the activities in the colony.• Children went with the elders for begging. • The schools to admit the children from the colony. • Result
- children are accepted by other schools for higher education and they are faring better.
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100% Child Literacy in a colony
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Combined effort
- Community Members– Community leaders, – Religious leaders – Volunteers – Local NGOs– Government departments
•
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• Medical care (ulcer dressing), housing, common well and roads provided by NGOs.
• Drinking water and electricity by concerned govt. departments.
• Formation of SHGs, women’s groups • Vocational training for the youth for gainful
employment has enhanced economical condition. • At present only few elderly persons with disability go
for begging.
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Over the period many changes • no more identified as a colony. • In many respects it is better developed,
comparing to nearby villages.
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Can we, the leprosy organisations rehabilitate all the persons de-habilitated due to leprosy??
Challenges • To ensure all the agencies providing
rehabilitation services to include persons affected by leprosy.
• To make them realise that it is their responsibility to include leprosy affected persons
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Challenges • To include other persons with disability in to
leprosy programmes.• To build trust & mutual confidence among
members • To realize the benefits of co-operative
enterprises. To work together in groups for a common
enterprise.
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Challenges
• To ensure the marginalized do not become the marginalized.
• To ensure the proper use of the government schemes.
• To avoid unhealthy competitions among service providers (especially NGOs).
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TRASPARENCY
TRUST ACCOUTABILITY
CHHALLENGES
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“We will not be able to do everything, but we can do something”
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Jose Manikkathan Varghese.AIFO, RepresentativeIndia / Bangladesh Amici di Raoul Follereau
No. 58, 4th Cross, Kavery Layout Bangalore, India – 560029
[email protected] www.aifo.org
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