ILCWR Annual Report, 2010-2011

helping people with disabilities achieve independence!

2010-2011annual report

ILC Annual Report 2010-11.indd 1 25/08/11 9:41 AM

table of contents

A Message from the President and Executive Director ...................................................3

Programs At A Glance: Attendant Services ..................................................4

Our Success Stories: James & Donna .......................................................5

Programs At A Glance: Community Support Services ..............................6

Our Success Stories: Jennifer & Justin ......................................................7

Summary of Revenues and Expenditures ............................................................8

Milestone Staff & Volunteers .........................................9Special Thanks to

All ILCWR Supporters ..........................................10Board of Directors & Staff Listing ..............................11

vision: Together, Freedom Through Access and Choice

mission: To support persons with disabilities by:

■ Facilitating individual growth towards greater independence

■ Creating opportunities to make informed choices

■ Assisting in the removal of barriers to full participation in the community

■ Improving the capacity of caregivers to assist and support them

■ Helping to increase the community’s acceptance and integration of them

justice | dignity | teamwork | respect | welcoming

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a message from the president and executive director

The Annual Report gives us an opportunity to pause and look back over the year, reflect on our successes, and share our accomplishments with the community we serve. In this report you will find not only the descriptions of our programs but real stories of the lives they impact. With our consumers at the heart of everything we do, we are excited to put them front and centre within these pages to paint a living portrait of our activities over the 2010-2011 year.

And what an exciting and productive year it has been! Last September, Taposhi Batabyal assumed her new role as President of the Board of Directors, skilfully guiding the Board through an eventful inaugural term focussing on enhancing our governance structure and raising the profile of the organization in the community.

In March, ILCWR successfully negotiated and signed a multi-year funding agreement with our major partner and supporter, the Waterloo-Wellington Local Health Integration Network. This was accompanied by a thorough examination of expenditures within all of our programs and services, to ensure that we are being as fiscally efficient as possible.

2010 also saw the establishment of the organization’s first Employee Relations Councils—four groups of attendant staff members who will bring their unique and important perspectives to twice-yearly meetings with members of the Leadership Team, and create an easy line of communication amongst our increasingly large staff.

We were very proud of ACCESS 2010, our hugely successful trade show exhibiting the best in accessible equipment and services for people with disabilities. All proceeds from that show went directly into supporting the delivery of our Community Support Services, including the vital Access Fund, to which our consumers can turn for financial support when they need to purchase equipment that supports their independence. We’re already looking forward to ACCESS 2012 which will take place on September 21 – 22, 2012 at the Kitchener Memorial Auditorium.

Finally, we are pleased to announce that ILCWR successfully completed its accreditation process with IL Canada, meaning that we are succeeding in providing the innovative community services associated with being an Independent Living Centre. Through this process our Centre was recognized for our commitment to IL principles and values. We look forward to honouring this accreditation, and continuing all of the wonderful programs that you will read about in the pages to come.

Bil Smith executive director

Taposhi Bayabyal president

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PROGRAMS AT A GLANCE: attendant servicesILCWR’s Attendant Services programs are one of the ways that we carry out our mission of helping people with disabilities to facilitate their own growth towards greater independence, and improve the capacity of their caregivers to support them.

For the twenty-ninth consecutive year, we are continuing to provide assistance with activities of daily living for consumers of our attendant services, both in their homes throughout the region and at our three Assisted Living projects. These services have improved the lives of countless individuals – to find out how, read the stories of James and Donna, two consumers whose life stories are our tales of success.

outreach“Thanks again for this great service. It has definitely made a difference in our whole family’s lives.”

This year, the Independent Living Centre of Waterloo Region supported 198 individuals with disabilities through our Outreach program. Every day, ILCWR attendants are helping consumers lead independent lives at home, work and school by assisting with personal care, meal preparation, homemaking and all the small day to day tasks that make a big difference.

All of these services are directed by the consumer, since no one is more aware of a person’s wants and needs than the person themselves. We make sure that they’re the ones who call the shots — it’s what independent living is all about.

assisted living“The staff here were wonderful about getting me in and settled and making me comfortable. I love it here.”

ILCWR’s Assisted Living programs offer 24 hour attendant services to respond to ongoing needs and urgent requests. Each Assisted Living project offers twelve to thirteen accessible units where individuals live independently in their own home, while having access to assistance around the clock.

The Mooregate, Shamrock and Kiwanis projects, located in Kitchener, Waterloo and Cambridge respectively, operate on the same principles of excellent care and self-direction as the Outreach program, and provided wonderful homes for 35 consumers of our services this past year.

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outreach: JAMES’ STORyJames describes everyday life as running a marathon. On some days, you run the whole race without stopping, and other days, you hit a wall. “My attendant,” he said, “is the person who is able to accept the wall—and make sure I’m at the starting line again the next morning.”

Since 1999, James has received support at home through ILCWR’s Outreach program. Though he only requires service once per week, these visits have a profound impact on his life.

“I think ILC has a program of attendant care that allows attendants to assist in living life to the fullest, rather than just dealing with its problems,” James said thoughtfully. And living life to the fullest is something he does very well.

Born with cerebral palsy in the mid-1940’s, James grew up to earn a university degree in Psychology, and went on to lead a very eventful professional life. Though he retired in 1994, James is heavily involved in several community groups including ILCWR Board of Directors, two book clubs and the Ontario Federation for Cerebral Palsy’s Medical and Housing Committee.

When asked how he handles such a full schedule of activities, James cited his attendant as a major influence. “She empowers me. I probably would not have the energy to be there if I didn’t have attendant care.”

The relationship that James and his ILCWR attendant share is one of the best parts of the service he receives. She has visited him in each of the three homes he has lived in throughout the past decade, has adapted to the changes that come with aging with a disability, and even attended his wedding in 2002. “I tend to call her the daughter I never had,” he said. “We have a very good relationship.”

Clearly, James’ Outreach services extend beyond the personal care, housekeeping and shopping assistance that he receives each week. “My attendant care worker,” he continued, “is someone who understands my journey, and who understands me.”

assisted living: DONNA’S STORyDonna had only a moment to chat when she was interviewed by phone at her apartment.

“I find that I’m just so busy all the time!” she said. And she’s absolutely right. Though she has been diagnosed with chronic progressive multiple sclerosis, Donna hasn’t let it hold her back. These days, she’s as active as ever.

Donna has clearly mastered the art of living independently with a disability, which is due mostly to her character, but also to a 5-year relationship with ILCWR. She began receiving our attendant services at home in 2006, but as her MS progressed over the following two years, she found that she needed more comprehensive support.

“I didn’t want to move into a nursing home,” Donna said. And being in her mid-60’s, she shouldn’t have to.

Relocating to a retirement community is often the only option for people with MS or similar conditions, regardless of their age. But ILCWR has an alternative—the Assisted Living program, which offers people like Donna their own accessible apartments in one of three Assisted Living projects.

Now, Donna serves on the Board of Directors for her Co-Op Housing Community, participates in ILCWR’s annual Balcony Gardening program each spring, and attends AquaFit classes at the yMCA twice a week, which is as much a social outlet as a physical one. She also spends time with her two grown children, who enjoy their visits to Donna’s new home, and keep in touch weekly by phone.

When asked about her experience in the Assisted Living environment, Donna was full of positivity. “ILC is such a fantastic program. I get better vibes, better help, and I like the fact that there’s constant care. If I need anything, it’s just a phone call away!”

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“ ILC has a program of attendant care

that allows attendants to assist in living life to the fullest, rather than just dealing

with its problems.”

“ ILC is such a fantastic program.”


PROGRAMS AT A GLANCE: community support servicesILCWR’s Community Support Services are instrumental in helping us to achieve our goals of facilitating greater independence, removing barriers and promoting integration, and creating opportunities to make informed choices for people with disabilities. Our spectrum of services has been well-used throughout the year by consumers with any disability, and include…

information & referralILCWR uses a comprehensive database of community resources to provide informational assistance in person, by phone or e-mail to answer any questions from community members with disabilities or their families.

peer resource This program offers a support network of people and organizations that can help individuals with disabilities to navigate services in the community or pursue personal goals like employment or education.

individual advocacyOne-on-one meetings that empower people with disabilities to become advocates for themselves when it comes to accessibility, housing, financial assistance, transportation and human rights.

food for thoughtTwice-monthly workshops on healthy eating and food preparation which provided a fun social and educational opportunity for people with disabilities to learn about cooking and nutrition.

tournament of hopeOur annual golf tournament which raises funds to purchase assistive devices for people with disabilities—now in its 14th year!

public awareness & educationPresentations for kids and adults designed to break down attitudinal barriers by educating the public on disability issues and the importance of accessibility. Through the Beyond Barriers program and our Kids on the Block puppet shows, ILCWR removes obstacles to the full community participation of people with disabilities, one show at a time.

direct fundingGives people with disabilities added independence by enabling them to become employers of their own attendants. A great way for consumers of our services to develop management and organizational skills and live a truly independent lifestyle!

youth in transitionA weekly get-together of young adults with disabilities which provides an opportunity to socialize with their peers, participate in fun and educational activities and develop valuable life skills to prepare for the transition into independent adulthood.

access fundA donor-funded program which provides applicants with financial assistance to purchase necessary equipment and assistive devices.6


food for thought: JENNIFER’S STORyJennifer wasn’t intending to be flattering when she said it. She was only saying what came to mind when asked about the Independent Living Centre of Waterloo Region’s Food For Thought program, which ran throughout the 2010-2011 year.

“Food For Thought made me a better cook,” she said, matter-of-factly.Jennifer, 35, found out about the Food for Thought program after becoming an Attendant

Services consumer with ILCWR in 2009. Diagnosed with osteoporosis at age 13, she recently moved out on her own, but continues to visit her parents at home—with recipes in hand.

While Jennifer is unable to eat the foods she learned to prepare through the Food for Thought program, she has a great time cooking the meals for her parents to enjoy. She is particularly fond of making desserts, and especially likes the challenges brought on by more complicated dishes. For example, not only does Jennifer know what a flan is, she has also learned exactly how to bake one.

Food for Thought has both cultivated Jennifer’s culinary skills, and introduced a new and thoroughly enjoyable activity into her life. Plus, it gives her a valued opportunity to take care of her parents, who have always taken care of her and her two older siblings.

Food for Thought touched the lives of many during its two-year run, and Jennifer’s story is just the beginning. We would like to express our sincere thanks to the Ministry of Health Promotion and Sport, as well as our chef, Wolfgang Stutz for bringing culinary independence into lives like Jennifer’s!

youth in transition: JuSTIN’S STORyyou can’t miss the enthusiasm in Justin’s voice when he talks about the Independent Living Centre of Waterloo Region’s youth in Transition program.

“I’m loving it. I’m loving it completely. youth Group is the most important activity I do outside home. I will probably be involved with the program until I can’t do it anymore!”

Justin, 23, has been involved with youth Group since he was a participant at age 17. “yours was the only program that would take me in,” he said. “I was either too high-functioning or too low-functioning for any others. But at youth in Transition, everyone is welcome. We accept everybody for who they are.”

Justin has nine cognitive disabilities including asbergers, tourettes and bi-polar disorder, but you would never know from talking to him. He is an avid conversationalist, and a mentor and attendant with the youth Group program—a position he attained through the facilitator’s invitation.

Justin talks about the positive effect that youth in Transition has had on the way he socializes, and also on building confidence which he uses to succeed in his work. Justin, who has been working in food services since 2007, now works on his own during almost every shift, and has mastered every task in the store.

“I’m the only person there who knows how to do everything,” he stated proudly. And learning to take on that kind of responsibility is one of the most important elements of adulthood.

The youth in Transition program has been helping young people with disabilities to navigate the path from adolescence to adulthood for over five years. Justin is just one of many participants who has thoroughly enjoyed the program, both as a social outlet and as a place of learning.

“It’s a wonderful program. We’re like a big happy family. We all work together like we’re one, and it’s teamwork to the end.”

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“ Food For Thought made me a

better cook.”

“ Youth Group is the most important activity I do outside

home. I will probably be involved with the program until I can‘t

do it anymore.”


summary of revenues and expendituresyear Ended March 31, 2011

REVENuESWaterloo-Wellington Local Health Integration Network $5,611,400Independent Living Canada 61,378Centre for Independent Living Toronto (C.I.L.T.) 76,027united Way of Kitchener-Waterloo 41,300Fees for Service 274,247Donations, Interest, Miscellaneous & Other Grants 111,337 _________TOTAL REVENUES $6,175,689

EXPENDITuRESOutreach $3,019,750Supportive Housing 2,112,191Community Support Services 282,238Administration 718,585Capital Expenditures 19,762Depreciation* 32,848 _________TOTAL EXENDITURES $6,185,374

DEFICIT $-9,685

* Depreciation is a non-cash expenditure used to depreciate capital assets on the balance sheet.

STATISTICSPROGRAM SERVICE LEVELSCommunity Support Services 492 contacts (Information and Referral, Peer Support, Individual Advocacy)

Public Awareness & Education Kids on the Block 71 shows, 2763 participantsBeyond Barriers 45 shows, 1282 participantsyouth In Transition 2 x 12 week sessions, 19 participants

Attendant ServicesOutreach 198 consumers 118,090 hoursSupportive Housing 35 consumers 12,697 days

SOURCE OF FUNDS

Waterloo-Wellington Local Health Integration Network

91%

Donations, Interest,Miscellaneous &

Grants 2%

Fees for Service 4%

United Way of KW 1%

Centre for Independent Living Toronto

1% Independent Living Canada

1%

USE OF FUNDS

Outreach49%

SupportiveHousing

34%

CommunitySupport Services

5%

Administration12% Depreciation

1%

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“ Thank you for your continued support in helping those of us that are able to live on our own, manage our

own care. It has been an unbelievable blessing to me, and I am truly grateful and thankful.”


5 yEARSJoyce NieuwesteegMargaret MarshEileen KrampienAnita BoehnkeAmanda ShyhinskyjLauris NairnLaura CourchesneJoanne NaisbyLavi LesenciucVanessa HenrichsSarah Holman

10 yEARSTina ColeDebra Gomez-OrtizSocorro MerinoDane KnechtelNatalia RobertsSandy McDonaldRonald KolodyRocio RodriguezHelia FriasElaine HarronLori LillyLydia Odhiambo

Gene WeberSandra GagnonAndrena Lockley-BrownJoan Kroetch

15 yEARSEd Pattersonursula ErlMichelle DelsautJames DownhamLeanne SchadeJill Anderson

20 yEARSRuthAnn WassingCarole BestLorraine Ottman

25 yEARSDarlene O’Brien

Jessica BarlowTaposhi BatabyalDeb BergeyJudy BruynDiego CantuAna CantuFran ChartrandDiane ChanElysia Cloet

Keena DorionPatti DukeEltag ElkhalifaSharron GarrahJustin GautreauKathleen HarrisMichael HarrisMaria HernandezJames Hunsberger

Joshua KortleveAshleigh LatimerJoan MazzantiGwen McAlisterLaurie ModdermanGreg MooreSue MorganVeronica NelsonLori Price

Liz ReussAlan SlaterInnez SniderPeter SnowCarmen SutherlandElizabeth TemplinGwen ThrowerJanet ValentineAngelika Werner

milestone staff

volunteers

9“ I love the Independent Living Centre. I don’t know what I’d do without you.”

“ I was truly blessed to have received wonderful care from the attendants of ILC. You and your staff made such a difference; I really appreciate it!”


Tim AllanPatricia A. AllanFran AllardJanet AllemangGary & Karen AngstBonnie AshleyShirley BakerJohn & Sandra BalheimTaposhi BatabyalAden & Joanne BaumanBell Employee

Giving ProgramDeb BergeyMillicent & Scott BissettAndrea BoehmDianne Boston-Nyp Susan BraunElizabeth BrownJudy BruynRon & Loretta BurkeMarion ByronColleen CameronMary E. CameronRudy CerantMichael CollinsShirley DueckSandy Duench

Patti DukeJudy EbenhoehDavid EbyDon & Betty EbyEltag ElkhalifaJohn EnnsIrvin FaruzelEmily J. FinneyJoe FleischmanGary H. Attack Financial

Planning IncJohn GazzolaFrances GirodatGordon Linkletter

Family FundMary Karen GosselinkAngelo GrahamCarol HaireEarl & Betty HebnerEstate of Clarence

Francis HehnRuth HelwigMurray & Norma HerzRon & Nicole HohlLinda HuberJames HunsbergerMaureen InchFred Kinsie

Eileen KrampienLadies of

Redeemer ChurchJohn LordHelen MacGillivrayDon & Erie MatthewsTom McGinnisMennonite Savings &

Credit unionRoy & Elsa MillingtonJohn & Pat MilloJadranka MocevicGreg MooreSue MorganLewis & Idella NafzigerNashfield Business ParkPeter & Anke NausOptimist Club of Twin Cities

Waterloo RegionWinfred & Phyllis OswaldFrançois ParéDavid & Wilma ReistAnne Rose & Emil RektorResearch In MotionElizabeth ReussPauline RothPaula SaundersPatricia Schreiter

Carol ShantzWalter W. SidlerKaroline SineBill & Gail SkellySmart Choice

Sales & LeasingKathleen SmithClare SniderKatherine Soule-BlaserSt. Jacobs PrinteryFloris StablerRoy & Bea SteckleyPaul & Barbara StumpfRod & Ruth SwartzElizabeth TemplinTom & Barbara TweedieJanet ValentineChristine WahlWallenstein Feed

Charitable FoundationWaterloo & Halton Region

Elks and Royal Purple Lodge

Jim & Brenda WeberCheryl WiandtlJoan WilliamsStephen WoodworthDerek Wright

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special thanks to all ILCWR supporters


2010-2011 board of directorsThe operations of the Independent Living Centre of Waterloo Region are guided by its Board of Directors, a group of ILCWR consumers and community members who determine the philosophical direction of the organization and monitor its effectiveness using a policy governance model.

Taposhi Batabyal, PresidentGreg Moore, Vice PresidentDeb Bergey Judy BruynPatti DukeEltag ElkhalifaJames HunsbergerSue MorganAlan SlaterElizabeth TemplinJanet Valentine

head office staffExecutive Director Bil SmithHuman Resources and Finance Director Angela KornEmployee Health Coordinator Christina ChurchillHuman Resources Coordinator Doug BoucherFinance Coordinator Tracy SpencerAdministrative Assistant Joyce NieuwesteegExecutive Assistant and

Community Relations Coordinator Andrew PosenReception and Information & Referral Jim Ducharme

Community Support Services Director Paula SaundersPublic Awareness and

Education Coordinator Andrena Lockley-BrownPeer Resource and Advocacy Coordinator Dan LajoieDirect Funding Coordinator Lorene CollingwoodPeer Nutrition Coordinator Wolfgang Stutz

Attendant Services Director Daryl NancekivellOutreach and In-Home Respite Supervisor Cindy GuyOutreach Supervisor James DownhamOutreach Supervisor Karen MahovlichMooregate Supervisor Allan RussellShamrock Supervisor Sandy StaufferKiwanis Supervisor RuthAnn WassingProgram Support Heather MarshProgram Support Leanne Schade

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“ Through ILC, I have a better idea of where to go and who to ask for help.”

“ Thanks again to everyone at ILC for always doing so much for

their employees. You go the extra mile to make us feel appreciated.”


127 Victoria Street South, Suite 201 Kitchener, Ontario N2G 2B4

Phone: 519-571-6788 TTy: 519-571-7590 Fax: 519-571-6388Website: www.ilcwr.org E-mail: [email protected]

Charitable #10750 5356 RR0001

This report can be made available in alternate formats, please contact the ILCWR office.


ILCWR Annual Report, 2010-2011

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Transcript of ILCWR Annual Report, 2010-2011