IBD Standards and Benchmarking - Gastrointestinal Nursing Conference · 2006 –IBD Audit launched...

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IBD Standards and Benchmarking Delivering sustained quality improvement in IBD care Jackie Glatter, Health Services Programme Manager, Crohn’s & Colitis UK

Transcript of IBD Standards and Benchmarking - Gastrointestinal Nursing Conference · 2006 –IBD Audit launched...

Page 1: IBD Standards and Benchmarking - Gastrointestinal Nursing Conference · 2006 –IBD Audit launched 2009 –IBD Standards launched 2007 –IBD Standards Group formed 2011 –IBDQIP

IBD Standards and Benchmarking Delivering sustained quality improvement in IBD care

Jackie Glatter, Health Services Programme Manager, Crohn’s & Colitis UK

Page 2: IBD Standards and Benchmarking - Gastrointestinal Nursing Conference · 2006 –IBD Audit launched 2009 –IBD Standards launched 2007 –IBD Standards Group formed 2011 –IBDQIP

Provide an overview of the new IBD Standards and Benchmarking Tool

Consider how these might benefit/affect nurses – and look for opportunities to use them to enhance patient care

Aims of session

Page 4: IBD Standards and Benchmarking - Gastrointestinal Nursing Conference · 2006 –IBD Audit launched 2009 –IBD Standards launched 2007 –IBD Standards Group formed 2011 –IBDQIP
Page 5: IBD Standards and Benchmarking - Gastrointestinal Nursing Conference · 2006 –IBD Audit launched 2009 –IBD Standards launched 2007 –IBD Standards Group formed 2011 –IBDQIP

2006 – IBD Audit launched

2009 – IBD Standards launched

2007 – IBD Standards Group formed

2011 – IBDQIP – first round pilots

2008 - IBD Audit into the Annual Health check

2010 - IBD Audit in the National Programme

2012 - Audit results onto NHS Choices /funding extended to 2014

- IBD Registry pilot starts- Peer support visits piloted

2013 – IBD Standards updatedIBD Registry launched

2014 – Registry – Early adopters

2015 – IBD Audit Roadshows; NICE Quality StandardMy Crohn’s and Colitis Care

2016 – RCP IBD Audit ends

2017 – RCP Biologics audit passed to UK IBD RegistryIBD UK launches

2019 – New IBD Standards, Benchmarking Tool and Patient Survey

IBD: The road to excellence?

Page 6: IBD Standards and Benchmarking - Gastrointestinal Nursing Conference · 2006 –IBD Audit launched 2009 –IBD Standards launched 2007 –IBD Standards Group formed 2011 –IBDQIP

Number of significant developments in IBD care since 2013

Increased formulary

Advancing technology

Increasing emphasis on remote follow up/patient-led care

IBD nurse impact

IBD Nurse R1 & R2

No IBD nurse R1IBD nurse R2

No IBD nurse R1 & R2

Is there written information for patients with IBD on whom to contact in the event of a relapse?

95% (79/83) 94% (16/17) 28% (13/46) P=0.001*

How soon could a relapsed patient be seen in clinic:<7 days?

85% (71/83) 71% (12/17) 48% (22/46) P=0.001*

Kemp K, OC-094 UK inflammatory bowel disease audit: nurse correlations between 2006 and 2008, Gut 2010;59:A39.

Page 7: IBD Standards and Benchmarking - Gastrointestinal Nursing Conference · 2006 –IBD Audit launched 2009 –IBD Standards launched 2007 –IBD Standards Group formed 2011 –IBDQIP

ibduk.org [email protected]

Page 8: IBD Standards and Benchmarking - Gastrointestinal Nursing Conference · 2006 –IBD Audit launched 2009 –IBD Standards launched 2007 –IBD Standards Group formed 2011 –IBDQIP

Number of significant developments in IBD care since 2013

Increased formulary

Advancing technology

Increasing emphasis on remote follow up/patient-led care

IBD UK organisations

Page 9: IBD Standards and Benchmarking - Gastrointestinal Nursing Conference · 2006 –IBD Audit launched 2009 –IBD Standards launched 2007 –IBD Standards Group formed 2011 –IBDQIP

Number of significant developments in IBD care since 2013

Increased formulary

Advancing technology

Increasing emphasis on remote follow up/patient-led care

Aims of IBD UK

Goal

To ensure that people with IBD have the best

possible outcomes from their treatment

and care

Defining quality -what does 'good'

look like and how is it

measured?

Embedding quality

improvement in IBD services and

care

Sharing good practice &

communication

Raising IBD on the political

agenda

Monitoring and reporting on

progress

Page 10: IBD Standards and Benchmarking - Gastrointestinal Nursing Conference · 2006 –IBD Audit launched 2009 –IBD Standards launched 2007 –IBD Standards Group formed 2011 –IBDQIP

Number of significant developments in IBD care since 2013

Increased formulary

Advancing technology

Increasing emphasis on remote follow up/patient-led care

2019 IBD Standards

Page 11: IBD Standards and Benchmarking - Gastrointestinal Nursing Conference · 2006 –IBD Audit launched 2009 –IBD Standards launched 2007 –IBD Standards Group formed 2011 –IBDQIP

Online surveys of 151 health care professionals, including 67 nurses; 689 patients & patient reference group

‘Standards help to plan and develop local services, to understand what a ‘great’ service should look like & with business case development for new resources’

The consensus IBD Standards following three rounds of modified e-DelphiPatient journey: referral, diagnosis, treatment & long-term management

To work together to deliver safe, consistent, high quality, personalised care for people with IBD whatever their age and wherever they live in the UK.

To support and empower people to manage their conditions.

Process

Page 12: IBD Standards and Benchmarking - Gastrointestinal Nursing Conference · 2006 –IBD Audit launched 2009 –IBD Standards launched 2007 –IBD Standards Group formed 2011 –IBDQIP

Timelineibduk.org

Page 13: IBD Standards and Benchmarking - Gastrointestinal Nursing Conference · 2006 –IBD Audit launched 2009 –IBD Standards launched 2007 –IBD Standards Group formed 2011 –IBDQIP

Website – ibduk.org

Launch Launch

Sharing Good Practice

Resources and Guidelines

‘One- Stop’ Shop

Website – ibduk.org

Page 14: IBD Standards and Benchmarking - Gastrointestinal Nursing Conference · 2006 –IBD Audit launched 2009 –IBD Standards launched 2007 –IBD Standards Group formed 2011 –IBDQIP

Website – ibduk.org

Launch Launch

Website – ibduk.org

Page 15: IBD Standards and Benchmarking - Gastrointestinal Nursing Conference · 2006 –IBD Audit launched 2009 –IBD Standards launched 2007 –IBD Standards Group formed 2011 –IBDQIP

Website – ibduk.org

Launch Launch

Page 16: IBD Standards and Benchmarking - Gastrointestinal Nursing Conference · 2006 –IBD Audit launched 2009 –IBD Standards launched 2007 –IBD Standards Group formed 2011 –IBDQIP

Website – ibduk.org

Launch Launch

Website – ibduk.org

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Launch

Flare management

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Launch

Access to an IBD Nurse Specialt

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Launch

Guidance

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Launch

Patient Survey

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Launch

Reports

Page 23: IBD Standards and Benchmarking - Gastrointestinal Nursing Conference · 2006 –IBD Audit launched 2009 –IBD Standards launched 2007 –IBD Standards Group formed 2011 –IBDQIP

It was

a real eye-opener

Dr Amar Wahid“

It really makes

you think

Dr Phil Smith“

A total of

24pieces of press coverage,

with a reach of

3,054,334

92%

of IBD services in the

UK registered for the

IBD Benchmarking

Tool

210

227or 10,220

IBD Patient Surveys

completed, covering

99%of services in

the UK

23,285IBD Patient Survey

leaflets and

819162

posters sent to

IBD

services

345,000IBD UK website visits,

with our animation

reaching nearly

25,000people

345,000

345,000Submitted service

self-assessments

135

In progress

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Page 24: IBD Standards and Benchmarking - Gastrointestinal Nursing Conference · 2006 –IBD Audit launched 2009 –IBD Standards launched 2007 –IBD Standards Group formed 2011 –IBDQIP

• Easier monitoring and improvement of service quality; Standardisation of best practice across the sites

• Enabling services to be benchmarked against national standards ; Support implementation of the BSG, ACPGBI NICE, guidelines

• Contribute to delivery of IBD Quality Accounts

• Supporting risk management and avoidance

• Supporting improved access and more patient centred personalised care

• Funding and business cases for staff (IBD nurse specialists, dietitian, psychologist, administrator)

• Support for service improvement (establishment of multidisciplinary team, rapid biologics initiation, joint gastroenterology/surgical clinic, fast track for perianal Crohn’s surgery)

• Enhance IBD care to improve patient outcomes and experience

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How can the Standards help you…

Page 25: IBD Standards and Benchmarking - Gastrointestinal Nursing Conference · 2006 –IBD Audit launched 2009 –IBD Standards launched 2007 –IBD Standards Group formed 2011 –IBDQIP

• Expand capacity-day case infusion, outpatient and emergency contact for IBD patients

• Alternative models of patient care such as virtual clinics and tele-clinics, dedicated advice line as well as ‘one stop’ drop in clinics

• Improve patient safety - increase in pharmacy and specialist IBD nurse roles to implement biological switching

• Buildings - increase bed:toilet ratio

• Alternative solutions to increasing capacity – e.g. IBD support workers, navigator roles; Redesigning IBD pathways - piloting community nurse role

• Protected time & funding to use UK IBD Registry, training staff

• Increased patient support (patient advice line, patient education, rapid access for flares, access to self management , patient panel, annual patient open day)

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Example Business Cases

Page 26: IBD Standards and Benchmarking - Gastrointestinal Nursing Conference · 2006 –IBD Audit launched 2009 –IBD Standards launched 2007 –IBD Standards Group formed 2011 –IBDQIP

•Template QI Plans

•Seminars

•QI Toolkit

•Buddying

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What next?

• IBD Patient Survey 2020

•Full Benchmarking 2021

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What difference could this make?

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Thank you!

ibduk.org [email protected]