IAPO Fact Sheet February 2013
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Transcript of IAPO Fact Sheet February 2013
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IAPO Fact Sheet
49-51 East Road London N1 6AH United Kingdom Tel +44 20 7250 8280 Fax +44 20 7250 [email protected] www.patientsorganizations.org
IAPO is a unique global alliance representing patients of all nationalities across all disease areas and promoting patient-
centred healthcare around the world. Our members are patientsorganizations working at the local, national, regional and
international levels to represent and support patients, their families and carers. IAPOs definition of a Patientis a person
with any chronic disease, illness, syndrome, impairment or disability.
IAPOs History
During a series of conferences between 1994 and 1996, patient representatives from around the world met and found that
patients in all disease areas and countries frequently face the same issues, such as access to treatment, good information
and patients rights. They established a permanent international coalition of patientsorganizations to create a strong,
coordinated patients voice across disease areas and countries.
IAPOs vision and mission
IAPOs vision is that patients throughout the world are at the centre of healthcare. IAPOs mission is to help build patient-
centred healthcare in every country by:
Realizing active partnerships with patients' organizations and maximizing their impact through capacity building Advocating internationally with a strong patients' voice on relevant aspects of healthcare policy, with the aim of
influencing international, regional and national health agendas and policies
Building cross-sector alliances and working collaboratively with like-minded medical and health professionals, policymakers, academics, researchers and industry representatives
Benefits of IAPO membership
Membership with IAPO strengthens representation of the patient at the global level. Important healthcare issues are
increasingly crossing geographical and disease boundaries, so it is vital that patients' groups traverse these boundaries and
work together for positive change. Patients voices are amplified and heard effectively when patient groups are linked, canshare best practices and practical strategies and are connected with resources. Becoming an IAPO member ensures that the
patients you work with are represented in the work that we do with the World Health Organization, the World Medical
Association, and others.
Joining IAPO also provides your organization with the following member services:
Stimulating links and exchange with other patients' organizations worldwide in diverse disease areas and countries Support for the vital work you do, including visibility and publicity in our publications, newsletters and website The opportunity to attend the Global Patients Congress open to members only Capacity building and training through Congress workshops, online resources, toolkits and briefing papers Involvement and representation in our policy work with the World Health Organization, World Medical Association,
International Council of Nurses, International Pharmaceutical Federation and many other key stakeholders in health
How to join IAPO
1. Complete the Membership Application Form (www.patientsorganizations.org/membership) and post with supportingdocuments to IAPO, 49-51 East Road, London N1 6AH, UK.
2. Your application will then be examined by the Governing Board according to IAPO's Statutes and Bylaws, which can beviewed online at www.patientsorganizations.org/about.
For more information
Email [email protected]. You can also subscribe to our monthly email newsletter for patients organizations
and other stakeholders around the world by visiting www.patientsorganizations.org/news.
http://www.patientsorganizations.org/membershiphttp://www.patientsorganizations.org/aboutmailto:[email protected]://www.patientsorganizations.org/newshttp://www.patientsorganizations.org/newsmailto:[email protected]://www.patientsorganizations.org/abouthttp://www.patientsorganizations.org/membership -
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IAPO Fact Sheet
49-51 East Road London N1 6AH United Kingdom Tel +44 20 7250 8280 Fax +44 20 7250 [email protected] www.patientsorganizations.org
Publications:
What is Patient-Centred Healthcare? A Review of Definitions and Principles (February 2005)
Patient-centred healthcare is a term in common usage but it is rarely defined. This publication provides an introduction to
the concept of patient-centred healthcare outlining current definitions and principles; examples of research studies on its
impact; and barriers to its practice. Available to download from www.patientsorganizations.org/pchreview.
IAPO Patient Safety Toolkit
This toolkit is a multi issue resource for patient groups, providing the means for patients and
patients organizations to engage in the provision of healthcare and contribute to a quality and
safe healthcare system, and a reduction in harm to patients. For more information, please
contact [email protected]
IAPO Briefing Papers
IAPOs Briefing Papers are designed to provide accurate, unbiased information based on
current evidence-based research and opinion to patients organizations and patient
advocates worldwide to equip them with an understanding of the science, technology and
related social, ethical, economic and regulatory issues.
In 2006, IAPO released two new Briefing Papers, the first on Biosimilar Medicines was launched in August 2006 and the
second on Paediatric Medicines and Clinical Research was published in November 2006. Available free to members;
order online at www.patientorganizations.org/biosimilars or www.patientsorganizations.org/paediatrics
IAPOs Policy Framework
The Policy Framework details IAPO's overall approach to the policy development process, providing a structure for
developing and communicating policy on healthcare issues which includes comprehensive consultation with IAPO's member
patients' organizations. The Framework is also a useful resource for patients organizations. Angela Jordan, National
Osteoporosis Society said:
The Policy Framework is available to download from www.patientsorganizations.org/policyframework.
Board and StaffThe business and affairs of IAPO are supervised by an international Governing Board, which comprises nine elected
representatives of the member organizations. The Board has two face-to-face meetings each year, and is in ongoing
communication with IAPOs staff.
There are currently seven members of staff based in our London, UK office.
"I found the IAPO Policy Framework incredibly helpful, it has provided me with a perfect template into which, as Policy Manager I can
design a framework for the NOS. It has certainly ensured that I am not reinventing wheels unnecessarily I feel as though I have
been given a huge helping hand."
http://www.patientsorganizations.org/pchreviewmailto:[email protected]://www.patientorganizations.org/biosimilarshttp://www.patientsorganizations.org/policyframeworkhttp://www.patientsorganizations.org/policyframeworkhttp://www.patientorganizations.org/biosimilarsmailto:[email protected]://www.patientsorganizations.org/pchreview
