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How to speak with your doctor (when you have cancer...)
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Transcript of How to speak with your doctor (when you have cancer...)
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How to talk with your doctorSuzana Makowski, MD MMM FACP
Associate Director of Palliative Care in the Cancer CenterAssistant Professor of Medicine
UMass Memorial Medical Center
Friday, March 16, 12
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Why talk about this?Helps you get the best care possible:
your disease and treatment
your wishes and values
your hopes and fears
your symptoms and side effects
what’s most important
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Things to consider
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Things to consider
How much do you want to know?
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Things to consider
How much do you want to know?
Everything? Nothing?
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Things to consider
How much do you want to know?
Everything? Nothing?
Who else should know?
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Things to consider
How much do you want to know?
Everything? Nothing?
Who else should know?
What should my doctor know about me?
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Things to consider
How much do you want to know?
Everything? Nothing?
Who else should know?
What should my doctor know about me?
Consider bringing a notebook/folder, or an organized & trusted friend
to record notes & questionsFriday, March 16, 12
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Topics
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Topics
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Diagnosis and Treatment
What do I need to know about my disease?
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Diagnosis and Treatment
What treatment options do I have?Risks and benefitsSide effectsHow should I feel?
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Diagnosis and Treatment
What treatment options do I have?Risks and benefitsSide effectsHow should I feel?
Friday, March 16, 12
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Diagnosis and Treatment
What treatment options do I have?Risks and benefitsSide effectsHow should I feel?
What other treatment options do I have?
Friday, March 16, 12
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Diagnosis and Treatment
What treatment options do I have?Risks and benefitsSide effectsHow should I feel?
What other treatment options do I have?
Friday, March 16, 12
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Diagnosis and Treatment
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Diagnosis and Treatment
How will treatment affect the things that are important to me?
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Dx/Tx to Sxps
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Dx/Tx to Sxps
Friday, March 16, 12
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Symptoms and side effects
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Symptoms and side effects
Knowing your symptoms and side effects gives doctors clues on how best to care for you.
Friday, March 16, 12
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Symptoms and side effects
Knowing your symptoms and side effects gives doctors clues on how best to care for you.
Untreated symptoms or side effects can drain you physically and emotionally.
Friday, March 16, 12
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Symptoms and side effects
Knowing your symptoms and side effects gives doctors clues on how best to care for you.
Untreated symptoms or side effects can drain you physically and emotionally.
The only way we know is if you tell us.
Friday, March 16, 12
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Symptoms and side effects
“I get so nervous”
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Symptoms and side effects
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Symptoms and side effects
“I don’t want to be a complainer”
Friday, March 16, 12
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Symptoms and side effects
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Symptoms and side effects
“I thought my doctor already knew “
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Symptoms and side effects
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Symptoms and side effects
“I can’t afford another medicine”
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Symptoms and side effects
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Symptoms and side effects
“””I have cancer, I’m supposed to feel this way.”
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Symptoms and side effects
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Symptoms and side effects• Tell doctor or your nurse
• Write down your symptoms
• Bring a friend or family member
What kind of symptom? • pain • nausea • breathlessness • anxiety • thinking
How bad is it? • mild • moderate • severe Where is it? Timing? • constant • worse in morning/night • intermittent
What makes it better? What makes it worse?How does it effect your life, activities?
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Symptoms and side effects
Knowing your symptoms and side effects gives doctors clues on how best to care for you.
Untreated symptoms or side effects can drain you physically and emotionally.
The only way we know is if you tell us.
Friday, March 16, 12
![Page 36: How to speak with your doctor (when you have cancer...)](https://reader036.fdocuments.us/reader036/viewer/2022062404/554b7891b4c90564168b5609/html5/thumbnails/36.jpg)
Topics
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Topics
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Friday, March 16, 12
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Prognosis
• Talking about prognosis does not change the prognosis
• Most doctors wait for patients to ask this question
• Helps us plan - even when the prognosis is good
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End-of-lifeWhere do you want to be?
How do you want to be cared for?
Who do you want with you?
Who can best help advocate for you?
Finding hope
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Elephant to Hope
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Elephant to Hope
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Goals of care
What’s important to me?
What am I fighting for?
What are my goals and hopes?
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Finding hope:good communication means:
Partnership: doctor-patient
Optimal treatment
Personalized care
Symptom control
Dignity & integrity
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Thank youFriday, March 16, 12