HealthMeet Webinar May 22 - Smart Technology

7/28/2019 HealthMeet Webinar May 22 - Smart Technology

1/36

Westchester Institute for Human DevelopmentUniversity Center for Excellence in Developmental Disabilities

Using Smart Technology and the Cloud toMake Telehealth Accessible for People with

Intellectual and Developmental Disabilities

David OHara, Ph.D

Westchester Institute for HumanDevelopment

May 22nd , 2013


2/36


Emerging Cognitive Support Technologies:

A Key to Promoting Community Participation and Health for Individuals

with Intellectual and Developmental Disabilities


3/36


Cognitive Support Technologies

Technologies for Individuals with Cognitive Disabilities


4/36


Technology Defined

the application

of scientific advancesto benefit humanity

(The Franklin Institute - http://fi.edu.franklin.glossary.html)


5/36


Technology Paradox

Functionalit

y

Usability

the same technology that simplifies life by providing more functionality also

complicates life by making it hard to learn.

This paradox of technology is often used by people as an excuse for poor design

Donald A. Norman - The Design of Everyday Things, 1988 (pp. 30-31)

the same technology that simplifies life by providing more functionality

also complicates life by making it hard to learn.

This paradox of technology is often used by people as an excuse for poor design

Donald A. Norman - The Design of Everyday Things, 1988 (pp. 30-31)

F

u

n

c

ti

o

n

a

li

t

y

Usability

Technology ParadoxFunctionality vs. Usability

Low Hi

Low

Hi


6/36


Example: Microwave Ovens


7/36


Tele-Health: Existing and Emerging Technology Platforms

The User Interface is the Key (Software)


8/36


Cognitively Accessible

Windows or Macintosh Computing Environment


9/36


Desktops are Driven by Personal Interests and Needs


10/36


Accessibility Settings Applied to Each User via the Cloud


11/36


Type 2 Diabetes and People with I/DD

12

Data from 2006 Medical Expenditures PanelSurvey

o Health status of working age adults with cognitivelimitations compared with adults with no disabilityAdults with I/DD significantly higher prevalence

19.4% vs 3.8%

o Also significantly higher prevalence 6 other chronichealth conditions

o Adults with I/DD and diabetes significantly more likely tohave 4 or more chronic illnesses

Reichard & Stolzle (June, 2011). Diabetes among adults with cognitive limitationscompared to individuals with no cognitive disabilities. Intellectual and DevelopmentalDisabilities 49 (3), p 141-154.


12/36


The Wagner Chronic Care Model


13/36


Health Literacy

14

Institute of Medicine workshop reports:o Promoting health literacy to encourage prevention andwellness (November 1, 2011)

Research to find better pathways to improved health literacy and

better health

o Innovations in health literacy (March 10, 2011)Health literacy and health disparities, better use of IT improvehealth literacy

o Overall nearly nine out of 10 adults have difficulty using healthinformation to make proper health decisions


14/36

Westchester Institute for Human Development

University Center for Excellence in Developmental Disabilities

Premature Deaths of People with LearningDisabilities

15

Data from a study between 2010 and 2012 in the UKo Looked at the causes of death among all known deaths among peoplewith learning disabilities in the Bristol area of south-west England

o Men with learning disabilities died, on average, 13 years sooner thanthe general population

o Women with learning disabilities died, on average 20 years sooner thanthe general population

o Overall, 22% of the people with learning disabilities were under 50 atthe time of death compared with just 9% of the general population

oThe cause of their premature deaths appears to be because the NHS

is not being provided equitably to everyone based on need. People withlearning disabilities are struggling to have their illnesses investigated,

diagnosed and treated to the same extent as other people.

Heslop, et al, (March 19, 2013). Confidential inquiry into the premature deaths of people with learningdisabilities. Norah Fry Research Center, Bristol University, England.http://www.bris.ac.uk/cipold/fullfinalreport.pdf


15/36



Health Care Transition for Youth with

Special Health Care Needs: A Review

16

3,370 articles considered all had recommendations on what to do

15 had data on post-transition outcomes

Implications and Contribution:Although many youth with mild special health care needstransition successfully to adulthood, those with more complexmedical conditions experience less educational and employmentsuccess. Youth with cognitive or mental health impairments havepoorer transition experiences. Few programs demonstrated

evidence of success in improving youths transition outcomes.We recommend additional studies with strong research designsto guide best practice in preparing YSHCN for adulthood.

Bloom, et al. (2012). Health care transition for youth with special health careneeds. Journal of Adolescent Health 51, 213-219.


16/36



HealthCare Manager Personalized Health Plan on iPad


17/36



Cognitively Accessible Telehealth Portal - iPad/Android


18/36




19/36




20/36



Windows tablet individualdashboard


21/36



Cognitively Accessible Telehealth PortalDesktop/Touchsmart


22/36




23/36




24/36


University Center for Excellence in Developmental DisabilitiesFacebook: Powerful Opportunity to Connect


25/36


University Center for Excellence in Developmental DisabilitiesEndeavor Connect: Cognitive Access to Facebook


26/36



Improving Oral Health


27/36



Janice afteryou eatevery mealyou need togo brushyour teeth

and youneed to getyour brushand your

toothpasteand go tothebathroom


28/36



Self-Directed Consumer Surveys

Self-directed, survey tools , such as consumer satisfaction surveys,using multi-modal presentation and accessible design can increase

independence and reduce staff time interviewing and entering/aggregating data.

ATLAS Accessible Testing Learning & Assessment System


29/36




30/36




31/36



Health Quest

An accessible survey tools to enable individuals with cognitive disabilitiesto become active participants in their own health and wellness.


32/36



Access to Cloud-Based Data


33/36



Survey Response Summary

S R D t il


34/36



Survey Response Detail


35/36



Individual Responses


36/36



Future Projects

38

Design and implement an alternative patient-centeredmedical home experience survey directly accessible for

people with cognitive and other disabilities

Develop and deploy accessible health education,health promotion and wellness resources through

currently available EMRs

Use smart technologies to support transitions for

young adults with I/DD from pediatric to adult health

care

HealthMeet Webinar May 22 - Smart Technology

Documents

Transcript of HealthMeet Webinar May 22 - Smart Technology