Guide to Selecting a Healthcare Provider

Maren DavisTina HuynhStella RestrepoParent Representative: Jennifer BannaFaculty Mentor: Judith Holt, PhDMedical Home Portal Representative: Mindy Tueller

Introduction

● Medical Home Portal ○ Web-based resource intended to provide valuable and relevant

information about CSHCN to their families and healthcare teams who care for them

● Overview of leadership project○ Creation of a Guide to Selecting a Healthcare Provider

■ Based on the Medical Home Model■ Consists of questions, includes descriptions of healthcare

providers■ Targeted domains are primary care, OT, PT, SLP and insurance

providers■ Based on research, in addition to feedback from families with

CSHCN and healthcare professionals in these related fields■ Goal is to provide valuable, reliable and robust information

Rationale● Diagnosis is a confusing time for families.● Guide intended for all stages of caring for a child with special

health care needs.● Easy to locate on the Medical Home Portal.● Personalizable.● Definitions of each provider, Primary Care, OT, PT and SLP.● Flexible for use in different communities or provider settings.● Intended to increase the awareness of the tenants of the Medical

Home Model.● First step in creating effective partnerships for families and

providers.● Includes questions related to insurance.

ProceduresMethods and Measures - Researched providers and relevant information to develop survey questions- Pilot Survey (15 families) - Refined questionnaire- Provider Surveys (5+ for each specialty)- Family Survey (15 additional families)

Survey Participants- Families with children with special health needs- OT, SLP, PT, and Primary Care Providers

Data Analysis- Quantitative and Qualitative analysis by members of the group.

Results

Responses from 30 families

● Completed surveys:○ 30 families (from Colorado, Idaho, Iowa, Montana, Utah,

West Virginia, Wisconsin, Wyoming)

“...I wish I would have thought of that question to ask my physician/provider…”

○ Providers:■ 9 OT■ 10 PT■ 7 SLP■ 7 PCP

“ Confusing answering questions about questions!”

Results

4= Very valuable3= Somewhat valuable2= Not very valuable1= Not at all valuable

Results4= Very valuable3= Somewhat valuable2= Not very valuable1= Not at all valuable

Project Summary● Challenges:

- Defining the project - Representing diverse needs of families with questions- Time constraints- Nature of survey:

- asking questions about questions! - length

- Disseminating the survey to get accurate representation- Interpreting survey results

● Future Directions: - Translate survey into Spanish to reach more populations

- Upload question bank to Portal website - Videos for the webpage showing the questions being asked to the providers

Special Acknowledgments

Medical Home Portal TeamMindy TuellerGina Pola-Money

URLEND Faculty and Trainees

Judith HoltBethany Rigles Trainee’s core mentorsSurvey participants

Questions?

Suggestions- Maren● Site-based Discussions

- During/after lectures, allow some time for more small-group discussion of the topic and then regroup to further discuss as large group - Giving more people an opportunity to share ideas and contribute

● Question/Answer Panels with Families/Individuals- After a specific topic (ie: genetics, advocacy, agencies, etc.) open up for trainees to ask a panel of family representatives with experience in that area to understand what they can do within their specialty area - Helps trainees understand how a topic relates to their field/application/ encourages proactive involvement with families

Suggestions- Tina● Personal reflections on clinical visits for URLEND trainees

○ Can be implemented as a monthly, required assignment ○ Allows trainees to develop as leaders, expanding their CSHCN

understanding beyond their discipline● Group discussion on key assignments, such as the family

mentorship experience○ Can be implemented by allowing time for trainees during the

last 15 minutes of seminar after an assignment is due○ Allows trainees to learn from one another and expand their

perspective● Creation of a forum for URLEND trainees and faculty

○ Can be implemented through an online media○ Allows individuals to connect and efficiently share information

Suggestions- Jenn• Journal entries for Parent Trainees rather than assignments.

o Implemented as a weekly or monthly turned into the core faculty.Varied topics to facilitate growth in different areas of leadership skills.

o Decrease intimidation and give opportunity for individualized growth.

• Opportunity for further discussion of certain topics at our locations.o This could be done by taking breaks from the large scale

discussions.o Increase awareness of community resources and the individuals

at our sites.• Additional topics of caring for children who are undiagnosed

or who have rare disorders.o This could be done by adding additional information.

o Increases leadership by increasing information for all trainees.

Suggestions- Stella● URLEND trainees participation in South Main Clinic

projects○ Increases cultural awareness through participation in longer

projects.

● Implement discussion time among URLEND trainees and faculty in each site.